International conferences on rare diseases: Initiatives in commitment, patient care and connections

Medical Journal of Australia

Volumn 187, Issue 10, 2007, Pages 597-

  Zurynski, Yvonne A ^a   Reeve, Katie N ^a   Elliott, Elizabeth J ^a,b  

^a CHILDREN S HOSPITAL AT WESTMEAD   (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

AUSTRALIA; CLINICAL RESEARCH; DISEASE SURVEILLANCE; EVIDENCE BASED MEDICINE; FUNDING; HEALTH CARE ACCESS; HEALTH CARE PLANNING; HEALTH CARE POLICY; HEALTH SERVICE; HUMAN; LETTER; PATIENT CARE; RARE DISEASE; INTERNATIONAL COOPERATION; NOTE; ORGANIZATION;

CONGRESSES AS TOPIC; HUMANS; INTERNATIONAL COOPERATION; RARE DISEASES;

EID: 38449120883     PISSN: 0025729X     EISSN: 13265377     Source Type: Journal    
DOI: 10.5694/j.1326-5377.2007.tb01433.x     Document Type: Letter

References (7)

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3. European Organisation for Rare Diseases. Rare diseases: understanding this public health priority. Nov 2005. http://www.eurordis.org/IMG/pdf/ princeps_document-EN.pdf (accessed Aug 2007).
4. Dunstan DW, Zimmet PZ, Welborn TA, et al. The rising prevalence of diabetes and impaired glucose tolerance: the Australian Diabetes, Obesity and Lifestyle Study. Diabetes Care 2002; 25: 829-834.
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6. US Department of Health and Human Services. National Institutes of Health. NIH news. National Centre for Research Resources. NIH establishes rare diseases clinical research network. http://www.nih.gov/ news/pr/nov2003/ncrr-03.htm (accessed Oct 2007).
7. Grenier D, Elliott EJ, Zurynski Y, et al. Beyond counting cases: public health impacts of national paediatric surveillance units. Arch Dis Child 2007; 92: 527-533.