메뉴 건너뛰기




Volumn 83, Issue 4, 2000, Pages 293-297

Quality of life in spina bifida: Importance of parental hope

Author keywords

Health related quality of life; Hope; Newborn; Spina bifida

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; EMOTION; HUMAN; MAJOR CLINICAL STUDY; NEUROLOGIC EXAMINATION; PARENTAL BEHAVIOR; PHYSICAL PERFORMANCE; PRIORITY JOURNAL; PROGNOSIS; QUALITY OF LIFE; RATING SCALE; SPINA BIFIDA;

EID: 0033798730     PISSN: 00039888     EISSN: 14682044     Source Type: Journal    
DOI: 10.1136/adc.83.4.293     Document Type: Article
Times cited : (74)

References (39)
  • 1
    • 0024373515 scopus 로고
    • Myelomeningocele: Current concepts of management
    • 1 Noetzel MJ. Myelomeningocele: current concepts of management. Clin Perinatol 1989;16:311-29.
    • (1989) Clin Perinatol , vol.16 , pp. 311-329
    • Noetzel, M.J.1
  • 2
    • 0025863475 scopus 로고
    • Prevention of neural tube defects: Results of the Medical Research Council vitamin study
    • 2 MRC Vitamin Study Research Group. Prevention of neural tube defects: results of the Medical Research Council vitamin study. Lancet 1991;338:131-7.
    • (1991) Lancet , vol.338 , pp. 131-137
  • 3
    • 0015632156 scopus 로고
    • Spina bifida survivors and their parents: A study of problems and services
    • 3 Richards ID, McIntosh HT. Spina bifida survivors and their parents: a study of problems and services. Dev Med Child Neurol 1973;15:292-304.
    • (1973) Dev Med Child Neurol , vol.15 , pp. 292-304
    • Richards, I.D.1    McIntosh, H.T.2
  • 4
    • 0019795508 scopus 로고
    • The young adult with spina bifida
    • 4 Castree BJ, Walker JH. The young adult with spina bifida. BMJ 1981;283:1040-2.
    • (1981) BMJ , vol.283 , pp. 1040-1042
    • Castree, B.J.1    Walker, J.H.2
  • 5
    • 0027407625 scopus 로고
    • Nordic children with myelomeningocele. Parents' assessment of the handicap and physicians' classifications of the disabilities
    • 5 Rasmussen F, Lie HR, Hagelsteen JH, Lagergren J, Borjeson MC, Lagerkvist B, Kohler L. Nordic children with myelomeningocele. Parents' assessment of the handicap and physicians' classifications of the disabilities. Acta Paediar 1993;82:276-80.
    • (1993) Acta Paediar , vol.82 , pp. 276-280
    • Rasmussen, F.1    Lie, H.R.2    Hagelsteen, J.H.3    Lagergren, J.4    Borjeson, M.C.5    Lagerkvist, B.6    Kohler, L.7
  • 6
    • 0015972173 scopus 로고
    • Effect of early surgery for spina bifida cystica on survival and quality of life
    • 6 Laurence KM. Effect of early surgery for spina bifida cystica on survival and quality of life. Lancet 1974;i:301.
    • (1974) Lancet , vol.1 , pp. 301
    • Laurence, K.M.1
  • 7
    • 0015074917 scopus 로고
    • Results of treatment of myelomeningocele. An analysis of 524 unselected cases, with special reference to possible selection for treatment
    • 7 Lorber J. Results of treatment of myelomeningocele. An analysis of 524 unselected cases, with special reference to possible selection for treatment. Dev Med Child Neurol 1971;13:279-303.
    • (1971) Dev Med Child Neurol , vol.13 , pp. 279-303
    • Lorber, J.1
  • 8
    • 0015455871 scopus 로고
    • Spina bifida cystica. Results of treatment of 270 consecutive cases with criteria for selection for the future
    • 8 Lorber J. Spina bifida cystica. Results of treatment of 270 consecutive cases with criteria for selection for the future. Arch Dis Child 1972;47:854-73.
    • (1972) Arch Dis Child , vol.47 , pp. 854-873
    • Lorber, J.1
  • 9
    • 0015893242 scopus 로고
    • Predictive factors in open myelomeningocele with special reference to sensory level
    • 9 Hunt G, Lewin W, Gleave J, Gairdner D. Predictive factors in open myelomeningocele with special reference to sensory level. BMJ 1973;4:197-201.
    • (1973) BMJ , vol.4 , pp. 197-201
    • Hunt, G.1    Lewin, W.2    Gleave, J.3    Gairdner, D.4
  • 10
    • 0021792337 scopus 로고
    • Selective surgical management of neural tube malformations
    • 10 Evans RC, Tew B, Thomas MD, Ford J. Selective surgical management of neural tube malformations. Arch Dis Child 1985;60:415-19.
    • (1985) Arch Dis Child , vol.60 , pp. 415-419
    • Evans, R.C.1    Tew, B.2    Thomas, M.D.3    Ford, J.4
  • 11
    • 0015821589 scopus 로고
    • Results of selective early operation in myelomeningocele
    • 11 Stark GD, Drummond M. Results of selective early operation in myelomeningocele. Arch Dis Child 1973;48:676-83.
    • (1973) Arch Dis Child , vol.48 , pp. 676-683
    • Stark, G.D.1    Drummond, M.2
  • 12
    • 0015935874 scopus 로고
    • Moral and ethical dilemmas in the special-care nursery
    • 12 Duff RS, Campbell AG. Moral and ethical dilemmas in the special-care nursery. N Engl J Med 1973;289:890-4.
    • (1973) N Engl J Med , vol.289 , pp. 890-894
    • Duff, R.S.1    Campbell, A.G.2
  • 14
    • 0022006264 scopus 로고
    • Management of the newborn with myelomeningocele: Time for a decision making process
    • 14 Charney EB, Weller SC, Sutton LN, Bruce DA, Schut LB. Management of the newborn with myelomeningocele: time for a decision making process. Pediatrics 1985;75:58-64.
    • (1985) Pediatrics , vol.75 , pp. 58-64
    • Charney, E.B.1    Weller, S.C.2    Sutton, L.N.3    Bruce, D.A.4    Schut, L.B.5
  • 15
    • 0022358637 scopus 로고
    • Prognosis for babies with meningomyelocele and high lumbar paraplegia at birth
    • 15 Menzies RG, Parkin JM, Hey EN. Prognosis for babies with meningomyelocele and high lumbar paraplegia at birth. Lancet 1985;ii:993-5.
    • (1985) Lancet , vol.2 , pp. 993-995
    • Menzies, R.G.1    Parkin, J.M.2    Hey, E.N.3
  • 16
    • 0021800712 scopus 로고
    • Newborns with myelodysplasia the rest of the story
    • 16 Gross RH. Newborns with myelodysplasia the rest of the story [editorial]. N Engl J Med 1985;312:1632-4.
    • (1985) N Engl J Med , vol.312 , pp. 1632-1634
    • Gross, R.H.1
  • 17
    • 0027453706 scopus 로고
    • The principles for family-centered neonatal care
    • 17 Harrison H. The principles for family-centered neonatal care. Pediatrics 1993;92:643-50.
    • (1993) Pediatrics , vol.92 , pp. 643-650
    • Harrison, H.1
  • 18
    • 0021153309 scopus 로고
    • Relationship of CSF shunting and IQ in children with myelomeningocele: A retrospective analysis
    • 18 Mapstone TB, Rekate HL, Nolsen FE, Dixon MS Jr, Glaser N, Jaffe M. Relationship of CSF shunting and IQ in children with myelomeningocele: a retrospective analysis. Childs Brain 1984;11:112-18.
    • (1984) Childs Brain , vol.11 , pp. 112-118
    • Mapstone, T.B.1    Rekate, H.L.2    Nolsen, F.E.3    Dixon M.S., Jr.4    Glaser, N.5    Jaffe, M.6
  • 19
    • 0023968228 scopus 로고
    • Illusion and well-being: A social psychological perspective on mental health
    • 19 Taylor SE, Brown JD. Illusion and well-being: a social psychological perspective on mental health. Psychol Bull 1988;103:193-210.
    • (1988) Psychol Bull , vol.103 , pp. 193-210
    • Taylor, S.E.1    Brown, J.D.2
  • 20
    • 0023871509 scopus 로고
    • Development of an instrument to measure hope
    • 20 Miller JF, Powers MJ. Development of an instrument to measure hope. Nurs Res 1988;37:6-10.
    • (1988) Nurs Res , vol.37 , pp. 6-10
    • Miller, J.F.1    Powers, M.J.2
  • 21
    • 0031132779 scopus 로고    scopus 로고
    • Spiritual well-being, religiosity, hope, depression, and other mood states in elderly people coping with cancer
    • 21 Fehring RJ, Miller JF, Shaw C. Spiritual well-being, religiosity, hope, depression, and other mood states in elderly people coping with cancer. Oncol Nurs Forum 1997;24:663-71.
    • (1997) Oncol Nurs Forum , vol.24 , pp. 663-671
    • Fehring, R.J.1    Miller, J.F.2    Shaw, C.3
  • 22
    • 0028509004 scopus 로고
    • Hope and social support as coping resources for adults waiting for cardiac transplantation
    • 22 Hirth AM, Steward MJ. Hope and social support as coping resources for adults waiting for cardiac transplantation. Can J Nurs Res 1994;26:31-48.
    • (1994) Can J Nurs Res , vol.26 , pp. 31-48
    • Hirth, A.M.1    Steward, M.J.2
  • 23
    • 0031851182 scopus 로고    scopus 로고
    • Reframing the meaning of disability to families: The embrace of paradox
    • 23 Larson E. Reframing the meaning of disability to families: the embrace of paradox. Soc Sci Med 1998;47:865-75.
    • (1998) Soc Sci Med , vol.47 , pp. 865-875
    • Larson, E.1
  • 26
    • 0031001605 scopus 로고    scopus 로고
    • Symptom distress, coping style and biological variables as predictors of survival after bone marrow transplantation
    • 26 Molassiotis A, Van Den Akker OB, Milligan DW, Goldman JM. Symptom distress, coping style and biological variables as predictors of survival after bone marrow transplantation. J Psychosom Res 1997;42:275-85.
    • (1997) J Psychosom Res , vol.42 , pp. 275-285
    • Molassiotis, A.1    Van Den Akker, O.B.2    Milligan, D.W.3    Goldman, J.M.4
  • 27
    • 0026210813 scopus 로고
    • Hope, social support and self-esteem of patients with spinal cord injuries
    • 27 Piazza D, Holcombe J, Foote A, Paul P, Love S, Daffin P. Hope, social support and self-esteem of patients with spinal cord injuries. J Neurosci Nurs 1991;23:224-30.
    • (1991) J Neurosci Nurs , vol.23 , pp. 224-230
    • Piazza, D.1    Holcombe, J.2    Foote, A.3    Paul, P.4    Love, S.5    Daffin, P.6
  • 28
    • 0026872522 scopus 로고
    • Relationships among hope, psychosocial development, and locus of control
    • 28 Brackney BE, Westman AS. Relationships among hope, psychosocial development, and locus of control. Psychol Rep 1992;70:864-6.
    • (1992) Psychol Rep , vol.70 , pp. 864-866
    • Brackney, B.E.1    Westman, A.S.2
  • 29
    • 0025437309 scopus 로고
    • Hope, self-esteem and social support in persons with multiple sclerosis
    • 29 Foote AW, Piazza D, Holcombe J, Paul P, Daffin P. Hope, self-esteem and social support in persons with multiple sclerosis. J Neurosci Nurs 1990;22:155-9.
    • (1990) J Neurosci Nurs , vol.22 , pp. 155-159
    • Foote, A.W.1    Piazza, D.2    Holcombe, J.3    Paul, P.4    Daffin, P.5
  • 30
    • 0024616228 scopus 로고
    • Hope-inspiring strategies of the critically ill
    • 30 Miller JF. Hope-inspiring strategies of the critically ill. Appl Nurs Res 1989;2:23-9.
    • (1989) Appl Nurs Res , vol.2 , pp. 23-29
    • Miller, J.F.1
  • 31
    • 0026950006 scopus 로고
    • Treating hopelessness: Nursing strategies from six countries
    • 31 Wake MM, Miller JF. Treating hopelessness: nursing strategies from six countries. Clin Nurs Res 1992;1:347-65.
    • (1992) Clin Nurs Res , vol.1 , pp. 347-365
    • Wake, M.M.1    Miller, J.F.2
  • 32
    • 0021982047 scopus 로고
    • A methodological framework for assessing health indices
    • 32 Kirshner B, Guyatt G. A methodological framework for assessing health indices. J Chron Dis 1985;38:27-36.
    • (1985) J Chron Dis , vol.38 , pp. 27-36
    • Kirshner, B.1    Guyatt, G.2
  • 36
    • 0021164890 scopus 로고
    • Values, preferences, and decisions in the care of children with developmental disabilities
    • 36 Cadman D, Goldsmith C, Bashim P. Values, preferences, and decisions in the care of children with developmental disabilities. J Dev Behav Pediatr 1984;5:60-4.
    • (1984) J Dev Behav Pediatr , vol.5 , pp. 60-64
    • Cadman, D.1    Goldsmith, C.2    Bashim, P.3
  • 38
    • 0028330414 scopus 로고
    • New approach to assess quality of life in neonatal surgical cases: Medical providers' subjective assessment of disease-and condition-related factors using the linear analogue scale
    • s38 Takayanagi K, Suruga K. New approach to assess quality of life in neonatal surgical cases: medical providers' subjective assessment of disease-and condition-related factors using the linear analogue scale. J Pediatr Surg 1994;29:659-62.
    • (1994) J Pediatr Surg , vol.29 , pp. 659-662
    • Takayanagi, K.1    Suruga, K.2
  • 39
    • 0028283945 scopus 로고
    • A randomized trial of nursing intervention to promote the adjustment of children with chronic physical disorders
    • 39 Pless IB, Feeley N, Gottlieb L, Rowat K, Dougherry G, Willard B. A randomized trial of nursing intervention to promote the adjustment of children with chronic physical disorders. Pediatrics 1994;94:70-5.
    • (1994) Pediatrics , vol.94 , pp. 70-75
    • Pless, I.B.1    Feeley, N.2    Gottlieb, L.3    Rowat, K.4    Dougherry, G.5    Willard, B.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.