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1
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Growing up and moving on Transition from pediatric to adult care
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McDonagh JE. Growing up and moving on. Transition from pediatric to adult care. Pediatr Transplant 2005; 9:364-372.
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Pediatr Transplant
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McDonagh, J.E.1
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2
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53749101258
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Adolescent transition to adult care in solid organ transplantation: A consensus conference report
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An excellent summary of the major issues and potential developments in transitional care
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Bell LE, Bartosh SM, Davis CL, et al. Adolescent transition to adult care in solid organ transplantation: a consensus conference report. Am J Transplant 2008; 8:2230-2242. An excellent summary of the major issues and potential developments in transitional care.
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Am J Transplant
, vol.8
, pp. 2230-2242
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Bell, L.E.1
Bartosh, S.M.2
Davis, C.L.3
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3
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0036897603
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A consensus statement on healthcare transitions for young adults with special healthcare needs
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American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine
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American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine. A consensus statement on healthcare transitions for young adults with special healthcare needs. Pediatrics 2002; 110:1304-1306.
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Pediatrics
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4
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Transition to adult healthcare for adolescents and young adults with chronic conditions
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Rosen DS, Blum RW, Britto M, et al. Transition to adult healthcare for adolescents and young adults with chronic conditions. J Adol Health 2003; 33:309-311.
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J Adol Health
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Rosen, D.S.1
Blum, R.W.2
Britto, M.3
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5
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Transition to adult care for youth with special healthcare needs
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the Adolescent Health Committee Canadian Paediatric Society
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Kaufman M, Pinzon J, and the Adolescent Health Committee, Canadian Paediatric Society. Transition to adult care for youth with special healthcare needs. Paediatr Child Health 2007; 12:785-788.
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Paediatr Child Health
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Kaufman, M.1
Pinzon, J.2
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6
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33749498954
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Department of Health. Improving the transition of young people with long-term conditions from children's to adult health services. London, UK: Department of Health Publications
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Department of Health. Transition: getting it right for young people. Improving the transition of young people with long-term conditions from children's to adult health services. London, UK: Department of Health Publications; 2006. www.dh.gov.uk/transition.
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Transition: Getting It Right for Young People
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9
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42049109519
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Survey of primary care pediatricians on the transition and transfer of adolescents to adult healthcare
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Burke R, Spoerri M, Price A, et al. Survey of primary care pediatricians on the transition and transfer of adolescents to adult healthcare. Clin Pediatr 2008; 447:347-354.
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Clin Pediatr
, vol.447
, pp. 347-354
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Burke, R.1
Spoerri, M.2
Price, A.3
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10
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44449174179
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Improving transition from pediatric to adult cystic fibrosis care: Lessons from a national survey of current practices
-
Despite being one of the reputed leading specialties in transitional care, this survey of CF services reminds the reader of the challenges of implementation in clinical practice
-
McLaughlin SE, Diener-West M, Indurkhya A, et al. Improving transition from pediatric to adult cystic fibrosis care: lessons from a national survey of current practices. Pediatrics 2008; 123:e1160-e1166. Despite being one of the reputed leading specialties in transitional care, this survey of CF services reminds the reader of the challenges of implementation in clinical practice.
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(2008)
Pediatrics
, vol.123
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McLaughlin, S.E.1
Diener-West, M.2
Indurkhya, A.3
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11
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59449095511
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Planning for healthcare transitions: Results from the 2005-2006 National survey of children with special healthcare needs
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Further evidence that highlights the challenges of translating policy into practice. A core performance outcome is usefully defined but shown to be met in a minority of young people
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Lotstein DS, Ghandour RM, Cash A, et al. Planning for healthcare transitions: results from the 2005-2006 National survey of children with special healthcare needs. Pediatrics 2009; 123:e145-e152. Further evidence that highlights the challenges of translating policy into practice. A core performance outcome is usefully defined but shown to be met in a minority of young people.
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Pediatrics
, vol.2009
, Issue.123
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Lotstein, D.S.1
Ghandour, R.M.2
Cash, A.3
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12
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40149106323
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A national conferment to determine research priorities in pediatric solid organ transplantation
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This conference proceeding provides the reader with an excellent summary of the major themes for future research initiatives, one of which being adolescence that encompasses transition
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Bartosh SM, Ryckman FC, Shaddy R, et al. A national conferment to determine research priorities in pediatric solid organ transplantation. Pediatr Transplant 2008; 12:153-166. This conference proceeding provides the reader with an excellent summary of the major themes for future research initiatives, one of which being adolescence that encompasses transition.
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(2008)
Pediatr Transplant
, vol.12
, pp. 153-166
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Bartosh, S.M.1
Ryckman, F.C.2
Shaddy, R.3
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15
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34547438181
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Adherence and medical outcomes in pediatric liver transplant recipients who transition to adult services
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Annunziato RA, Emre S, Shneider BL, et al. Adherence and medical outcomes in pediatric liver transplant recipients who transition to adult services. Pediatr Transplant 2007; 11:608-614.
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(2007)
Pediatr Transplant
, vol.11
, pp. 608-614
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Annunziato, R.A.1
Emre, S.2
Shneider, B.L.3
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16
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33644986406
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Transfer versus transition: Success in pediatric transplantation brings the welcome challenge of transition
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Stabile L, Rosser L, Porterfield KM, et al. Transfer versus transition: success in pediatric transplantation brings the welcome challenge of transition. Prog Transplant 2005; 15:363-370.
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(2005)
Prog Transplant
, vol.15
, pp. 363-370
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Stabile, L.1
Rosser, L.2
Porterfield, K.M.3
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17
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33845380753
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There to here: Young adult patients' perceptions of the process of transition from pediatric to adult transplant care
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McCurdy C, Dicenso A, Boblin S, et al. There to here: young adult patients' perceptions of the process of transition from pediatric to adult transplant care. Prog Transplant 2006; 16:309-316.
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(2006)
Prog Transplant
, vol.16
, pp. 309-316
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McCurdy, C.1
Dicenso, A.2
Boblin, S.3
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18
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63649127136
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The transition of kidney transplant recipients: A work in progress
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A small but interesting retrospective review of young people with kidney transplants before and after transfer, including both objective and subjective outcome measures; a useful model for future service evaluations
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Chaturvedi S, Jones CL, Walker RG, Sawyer SM. The transition of kidney transplant recipients: a work in progress. Pediatr Nephrol 2009; 24:1055-1060. A small but interesting retrospective review of young people with kidney transplants before and after transfer, including both objective and subjective outcome measures; a useful model for future service evaluations.
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(2009)
Pediatr Nephrol
, vol.24
, pp. 1055-1060
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Chaturvedi, S.1
Jones, C.L.2
Walker, R.G.3
Sawyer, S.M.4
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19
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60649113929
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Perceptions of transitional care needs and experiences in pediatric heart transplant recipients
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In this qualitative study, the importance of acknowledging the different perspectives of the young person and their parents is highlighted, finding apathy in the former and anxiety in the latter
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Anthony SJ, Kaufman M, Drabble A, et al. Perceptions of transitional care needs and experiences in pediatric heart transplant recipients. Am J Transplant 2009; 9:614-619. In this qualitative study, the importance of acknowledging the different perspectives of the young person and their parents is highlighted, finding apathy in the former and anxiety in the latter.
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(2009)
Am J Transplant
, vol.9
, pp. 614-619
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Anthony, S.J.1
Kaufman, M.2
Drabble, A.3
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20
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33744982408
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Transition to adulthood in congenital heart disease: Missed adolescent milestones
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Lyon ME, Kuehl K, McCarter R. Transition to adulthood in congenital heart disease: missed adolescent milestones. J Adol Health 2006; 39:121-124.
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(2006)
J Adol Health
, vol.39
, pp. 121-124
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Lyon, M.E.1
Kuehl, K.2
McCarter, R.3
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21
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33645352625
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Young adult patients with a history of pediatric disease: Impact on course of life and transition into adulthood
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Stam H, Hartman EE, Deurloo JA, et al. Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood. J Adol Health 2006; 39:4-13.
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J Adol Health
, vol.39
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Stam, H.1
Hartman, E.E.2
Deurloo, J.A.3
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22
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50049099579
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Clinical changes of patients with cystic fibrosis during transition from pediatric to adult care
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This study is another useful evaluation model in that it considers the multidimensional nature of transition, considering not only clinical status but also healthcare utilization and vocational aspects before and after transfer
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Dugueperoux I, Tamalet A, Sermet-Gaudelus I, et al. Clinical changes of patients with cystic fibrosis during transition from pediatric to adult care. J Adol Health 2008; 43:459-465. This study is another useful evaluation model in that it considers the multidimensional nature of transition, considering not only clinical status but also healthcare utilization and vocational aspects before and after transfer.
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(2008)
J Adol Health
, vol.43
, pp. 459-465
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Dugueperoux, I.1
Tamalet, A.2
Sermet-Gaudelus, I.3
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23
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Zamora I. Advances in kidney transplantation in children. An Espa Pediatr, 1997 (Spec No.); 1:25-26.
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An Espa Pediatr
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Zamora, I.1
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24
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Bartosh SM, Leverson G, Robillard D, Sollinger HW. Long term outcomes in pediatric renal transplant recipients who survive into adulthood. Transplantation 2003; 76:1195-1200.
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Transplantation
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DOI 10.1053/jlts.2003.50012
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Bucuvalas JC, Britto M, Krug S, et al. Health related quality of life in pediatric liver transplant recipients: a single center study. Liver Transpl 2003; 9:62-71. (Pubitemid 36104917)
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Liver Transplantation
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Bucuvalas, J.C.1
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Alonso, M.P.6
Ballistreri, W.F.7
Kotagal, U.8
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26
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Understanding the pathway between the transplant experience and health-related quality of life outcomes in adolescents
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Simons LE, Anglin G, Warshaw BL, et al. Understanding the pathway between the transplant experience and health-related quality of life outcomes in adolescents. Pediatr Transplant 2008; 12:187-193.
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Simons, L.E.1
Anglin, G.2
Warshaw, B.L.3
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28
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Bell LE. Adolescent dialysis patient transition to adult care: a cross-sectional survey. Pediatr Nephrol 2007; 22:720-726.
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Pediatr Nephrol
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Bell, L.E.1
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Young adults in children's hospitals what are they there?
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Lam P-Y, Fitzgerald BB, Sawyer SM. Young adults in children's hospitals: what are they there? Med J Austr 2005; 182:381-384.
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Med J Austr
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Lam, P.-Y.1
Fitzgerald, B.B.2
Sawyer, S.M.3
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30
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29144479889
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Growing up and moving on A multicentre UK audit of the transfer of adolescents with juvenile idiopathic arthritis JIA from paediatric to adult centred care
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Robertson LP, McDonagh JE, Southwood TR, Shaw KL. Growing up and moving on. A multicentre UK audit of the transfer of adolescents with juvenile idiopathic arthritis JIA from paediatric to adult centred care. Ann Rheum Dis 2006; 65:74-80.
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Ann Rheum Dis
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Robertson, L.P.1
McDonagh, J.E.2
Southwood, T.R.3
Shaw, K.L.4
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31
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Tuchman LK, Slap GB, Britto MT. Transition to adult care: experiences and expectations of adolescents with a chronic illness. Child Care Health Dev 2008; 34:557-563.
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Child Care Health Dev
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Tuchman, L.K.1
Slap, G.B.2
Britto, M.T.3
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32
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33845564020
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The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis
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McDonagh JE, Southwood TR, Shaw KL. The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology 2007; 46:161-168.
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Rheumatology
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McDonagh, J.E.1
Southwood, T.R.2
Shaw, K.L.3
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33
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40149096676
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Nonadherence to post transplant care: Prevalence, risk factors and outcomes in adolescent liver transplant recipients
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Adherence promotion is an integral aspect of transitional care. The finding from this study that nonadherence is a particular problem for older adolescents with more years after transplantation is particularly pertinent
-
Berquist RK, Berquist WE, Esquivel CO, et al. Nonadherence to post transplant care: prevalence, risk factors and outcomes in adolescent liver transplant recipients. Pediatr Transplant 2008; 12:194-200. Adherence promotion is an integral aspect of transitional care. The finding from this study that nonadherence is a particular problem for older adolescents with more years after transplantation is particularly pertinent.
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(2008)
Pediatr Transplant
, vol.12
, pp. 194-200
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Berquist, R.K.1
Berquist, W.E.2
Esquivel, C.O.3
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34
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20344364669
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Growing pains: Nonadherence with the immunosuppressive regimen in adolescent transplant recipients
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Dobbels F, van Damme-Lombaert R, Vanhaecke J, de Geest S. Growing pains: nonadherence with the immunosuppressive regimen in adolescent transplant recipients. Pediatr Transplant 2005; 9:381-390.
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(2005)
Pediatr Transplant
, vol.9
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Dobbels, F.1
Van Damme-Lombaert, R.2
Vanhaecke, J.3
De Geest, S.4
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35
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12144289312
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Medication adherence in pediatric and adolescent liver transplant recipients
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Shemesh E, Shneider BL, Savitzky JK, et al. Medication adherence in pediatric and adolescent liver transplant recipients. Pediatrics 2004; 113:825-832.
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(2004)
Pediatrics
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Shemesh, E.1
Shneider, B.L.2
Savitzky, J.K.3
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36
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Supporting development of children with chronic conditions: From compliance toward shared management
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Kieckhefer GM, Trahms CM. Supporting development of children with chronic conditions: from compliance toward shared management. Pediatr Nurs 2000; 26:354-363.
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Pediatr Nurs
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Kieckhefer, G.M.1
Trahms, C.M.2
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37
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42549104030
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Perceived barriers to adherence among adolescent renal transplant candidates
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This study employed the Medical Adherence Measure, a useful self-report tool to assess adherence, including items addressing who holds the primary responsibility over medication management. This is of particular interest in view of the necessary transition of responsibility from parent to young person
-
Zelikovsky N, Schast AP, Palmer J, Meyers KE. Perceived barriers to adherence among adolescent renal transplant candidates. Pediatr Transplant 2008; 12:300-308. This study employed the Medical Adherence Measure, a useful self-report tool to assess adherence, including items addressing who holds the primary responsibility over medication management. This is of particular interest in view of the necessary transition of responsibility from parent to young person.
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(2008)
Pediatr Transplant
, vol.12
, pp. 300-308
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Zelikovsky, N.1
Schast, A.P.2
Palmer, J.3
Meyers, K.E.4
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38
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42549118870
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Transitioning healthcare responsibility from care givers to patient: A pilot study aiming to facilitate medication adherence during this process
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This is a small pilot study of a targeted, outpatient-based, educational intervention regarding transition in responsibility for adolescents' own healthcare
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Annunziato RA, Emre S, Shneider BL, et al. Transitioning healthcare responsibility from care givers to patient: a pilot study aiming to facilitate medication adherence during this process. Pediatr Transplant 2008; 12:309-315. This is a small pilot study of a targeted, outpatient-based, educational intervention regarding transition in responsibility for adolescents' own healthcare.
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(2008)
Pediatr Transplant
, vol.12
, pp. 309-315
-
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Annunziato, R.A.1
Emre, S.2
Shneider, B.L.3
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39
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73349108597
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Multidimensional Adherence Classification System: Initial development with adolescent transplant recipients
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[Epub ahead of print] Effective assessment tools to measure adherence are needed and the preliminary data presented in this study give cause of optimism with a tool, which combines subjective and objective measures. Further validation studies are awaited with interest!
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Simons LE, Gilleland J, Blount RL, et al. Multidimensional Adherence Classification System: initial development with adolescent transplant recipients. Pediatr Transplant 2008. [Epub ahead of print] Effective assessment tools to measure adherence are needed and the preliminary data presented in this study give cause of optimism with a tool, which combines subjective and objective measures. Further validation studies are awaited with interest!
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(2008)
Pediatr Transplant
-
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Simons, L.E.1
Gilleland, J.2
Blount, R.L.3
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40
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42549130282
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Adherence and health related quality of life in adolescent liver transplant recipients
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This study highlights the interrelationships between HRQoL and adherence and suggests that HRQoL assessment may help identify those at risk of nonadherence
-
Fredericks EM, Magee JC, Opipari-Arrigan L, et al. Adherence and health related quality of life in adolescent liver transplant recipients. Pediatr Transplant 2008; 12:289-299. This study highlights the interrelationships between HRQoL and adherence and suggests that HRQoL assessment may help identify those at risk of nonadherence.
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(2008)
Pediatr Transplant
, vol.12
, pp. 289-299
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Fredericks, E.M.1
Magee, J.C.2
Opipari-Arrigan, L.3
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41
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DOI 10.1111/j.1399-3046.2007.00791.x
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Shemesh E, Annunziato RA, Shneider BL, et al. Improving adherence to medications in pediatric liver transplant recipients. Pediatr Transplant 2008; 12:316-323. (Pubitemid 351589440)
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(2008)
Pediatric Transplantation
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, Issue.3
, pp. 316-323
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Shemesh, E.1
Annunziato, R.A.2
Shneider, B.L.3
Dugan, C.A.4
Warshaw, J.5
Kerkar, N.6
Emre, S.7
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42
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50049114686
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Transition from pediatric to adult services: Are we getting it right?
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An excellent review of the whole transitional care arena and emphasizes the interrelationships of transitional care, adolescent medicine, self-management of chronic conditions and healthcare systems and training. Core reading for all trainees!
-
Kennedy A, Sawyer S. Transition from pediatric to adult services: are we getting it right? Curr Opin Pediatr 2008; 20:403-409. An excellent review of the whole transitional care arena and emphasizes the interrelationships of transitional care, adolescent medicine, self-management of chronic conditions and healthcare systems and training. Core reading for all trainees!
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(2008)
Curr Opin Pediatr
, vol.20
, pp. 403-409
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Kennedy, A.1
Sawyer, S.2
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Bagner DM, Rodrigue JR, Hemme J, et al. Developmental considerations in the context of pediatric transplantation. Ann Transplant 2005; 10:13-16.
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Ann Transplant
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Bagner, D.M.1
Rodrigue, J.R.2
Hemme, J.3
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Kaufman M. Role of adolescent development in the transition process. Prog Transplant 2006; 16:286-290.
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Prog Transplant
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Kaufman M. Transition of cognitively delayed adolescent organ transplant recipients to adult care. Pediatr Transplant 2006; 10:413-417.
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Pediatr Transplant
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Lurie S, Shemesh E, Sheiner PA, et al. Nonadherence in pediatric liver transplant recipients: an assessment if risk factors and natural history. Pediatr Transplant 2000; 4:200-206.
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Pediatr Transplant
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Lurie, S.1
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47
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Stilley CS, Lawrence K, Bender A, et al. Maturity and adherence in adolescent and young adult heart recipients. Pediatr Transplant 2006; 10:323-330.
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Stilley, C.S.1
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48
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Reid, G.J.1
Irvine, M.J.2
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49
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Evidence to support the benefits of routine adolescent health screening in clinical practice
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Brown JD, Wissow LS. Discussion of sensitive health topics with youth during primary care visits: relationship to youth perceptions of care. J Adolesc Health 2009; 44:48-54. Evidence to support the benefits of routine adolescent health screening in clinical practice.
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J Adolesc Health
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Brown, J.D.1
Wissow, L.S.2
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50
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Rheumatology
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McDonagh, J.E.1
Kaufman, M.2
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Goldenring JM, Rosen DS. Getting into adolescent heads: an essential update. Contemp Pediatr 2004; 21:64-90.
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Scott L, VallisM, CharetteM, et al. Transition of care: researching the needs of young adults with type 1 diabetes. Can J Diabetes 2005; 29:203-210.
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Can J Diabetes
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