Survey of primary care pediatricians on the transition and transfer of adolescents to adult health care

Clinical Pediatrics

Volumn 47, Issue 4, 2008, Pages 347-354

  Burke, Robert ^a   Spoerri, Michael ^b   Price, Ashley ^c   Cardosi, Ann Marie ^d   Flanagan, Patricia ^a  

^a HASBRO CHILDREN'S HOSPITAL   (United States)

^b RHODE ISLAND DEPARTMENT OF HEALTH   (United States)

^c BROWN UNIVERSITY   (United States)

^d MEMORIAL HOSPITAL OF RHODE ISLAND   (United States)

Author keywords

Adolescents; Children and youth with special health care needs (CYSHCN); Transition

Indexed keywords

ADOLESCENT HEALTH; ARTICLE; CHILD CARE; CLINICAL PRACTICE; CONTROLLED STUDY; HEALTH CARE ORGANIZATION; HEALTH CARE POLICY; HEALTH INSURANCE; HEALTH SURVEY; HUMAN; MEDICAL EDUCATION; PRIMARY MEDICAL CARE; TRAINING;

ADOLESCENT; ADOLESCENT HEALTH SERVICES; ADULT; HEALTH CARE SURVEYS; HEALTH SERVICES ACCESSIBILITY; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; PATIENT TRANSFER; PEDIATRICS; PRIMARY HEALTH CARE; QUESTIONNAIRES; RHODE ISLAND; TRANSFER AGREEMENT;

EID: 42049109519     PISSN: 00099228     EISSN: None     Source Type: Journal    
DOI: 10.1177/0009922807310938     Document Type: Article

References (24)

1. Magrab P, Millar, H, eds. Surgeon General Conference. Growing Up and Getting Health Care: Youth with Special Health Care Needs. Washington, DC: National Center for Networking Community Based Services, Georgetown University Child Development Center ; 1988.
2. American Academy of Pediatrics, American Academy of Family Physicians, and American College of Physicians- American Society of Internal Medicine. A consensus statement on health care transition of young adults with special health care needs. Pediatrics. 2002 ; 110: 1304-1306.
3. McDonaugh JE, Kelly DA Transiting care of the pediatric recipient to adult care givers. Ped Clin North Am. 2003 ; 50: 1561-1583.
4. Kelly AM, Kratz B., Bielski M., Rinehart PM Implementing transition for youth with complex chronic conditions using the medical home model. Pediatrics. 2002 ; 110: 1322-1327.
5. Scal P. Transition for youth with chronic conditions: primary care physician's approach. Pediatrics. 2002 ; 110: 1315-1321.
6. US Department of Health and Human Services, Maternal and Child Health Bureau. All Aboard the 2010 Express: A 10-Year Action Plan to Achieve Community-Based Service Systems for Children and Youth with Special Health Care Needs and Their Families. Washington DC: Maternal and Child Health Bureau ; 2001.
7. Lotstein, DS, McPherson M., Strickland B., Newacheck PW Transition planning for youth with special health care needs: results from national survey of children with special health care needs. Pediatrics. 2005 ; 115: 1562-1568.
8. Scal P., Ireland, M. Addressing transition to adult health care for adolescents with special health care needs. Pediatrics. 2005 ; 115: 1607-1612.
9. Reiss J., Gibson R. Health care transition: youth, family and provider prospective. Pediatrics. 2005 ; 115: 112-120.
10. Center for Disease Control and Prevention, National Center for Health Statistics. State and Local Area Integrated Telephone Survey (SLAITS), National Survey of Children with Special Health Care Needs. Available at: www.cdc.gov/nchs/about/major/slaits/cshcn.htm. Accessed Oct 31, 2007.
11. McDonaugh JE, Viner RM Lost in transition: between paediatric and adult services. BMJ. 2006 ; 332: 435-436.
12. Reiss J., Gibson R. Health care transition: destinations unknown. Pediatrics. 2002 ; 110: 1307-1314.
13. Blum R. Introduction. Pediatrics. 2002 ; 110: 1301-1303.
14. Betz CL Transition of adolescents with special health care needs: review and analysis of the literature. Issues Compr Pediatr Nurs. 2004 ; 27: 179-241.
15. Geenen SJ, Powers LE, Sells W. Understanding the role of health care providers during the transition of adolescents with disabilities and special health care needs. J Adolesc Health. 2003 ; 32: 225-233.
16. Levey EB, Murphy NA Addressing transition with special needs patients. AAP News. 2005 ; 26: 9.
17. Gesenway D. Internist wanted for complex adolescent care. ACP Observer. Available at: http://www.acponline.org/journals/news/Dec04/adolescents.htm. Accessed Oct 31, 2007.
18. Rosen DS, ed. Society for Adolescent Medicine. Transition to adult health care for adolescents and young adults with chronic health conditions, position paper of the society for adolescent medicine. J Adolesc Health. 2003 ; 33: 309-311.
19. White PH Access to health care: insurance considerations for young adults with special health care needs/ disabilities. Pediatrics. 2002 ; 110: 1328-1335.
20. American Academy of Pediatrics, Committee on Children with Disabilities. Managed care and children with special health care needs. Pediatrics. 2004 ; 114: 1693-1698.
21. Cull WL, O'Connor KG, Sharp S., Tong SF Response rate and response bias for 50 surveys of pediatricians. Health Serv Res. 2005 ; 40: 213-225.
22. Freed GL, Hudson EJ Transitioning children with chronic diseases to adult care: current knowledge, practices, and directions. J Pediatr. 2006 ; 148: 824-827.
23. American Academy of Family Physicians (AAFP), American Academy of Pediatrics (AAP), American College of Physicians (ACP), American Osteopathic Association (AOA). Joint Principles of the Patient-Centered Medical Home. March 2007. Available at: http://www.acponline.org/advocacy. Accessed Oct 31, 2007.
24. HagoodJS, Lenker CV, Thrasher S. A course on the transition to adult care of patients with childhood onset chronic illnesses. Acad Med. 2005 ; 80: 352-355.