Overcoming barriers to cancer care: Patient and public perspectives

Toward the Elimination of Cancer Disparities: Clinical and Public Health Perspectives

Volumn , Issue , 2009, Pages 299-315

  Donelan, Karen ^a  

^a MASSACHUSETTS GENERAL HOSPITAL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 72449207176     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1007/978-0-387-89443-0_13     Document Type: Chapter

References (67)

1. American Cancer Society. Cancer Facts and Figures, 2007. Atlanta: American Cancer Society, 2007.
2. American Cancer Society. Insurance and Cost Related Barriers to Cancer Care. Cancer Facts and Figures 2008. Available at: http://www.cancer.org/ downloads/accesstocare/CFF2008- Special-Section.pdf. Accessed August 15, 2008
3. Asplin BR, Rhodes KV, Levy H, et al. Insurance status and access to urgent ambulatory care follow-up appointments. JAMA. 2005;294(10):1248-1254.
4. Battaglia TA, Roloff K, Posner MA, Freund KM. Improving follow-up to abnormal breast cancer screening in an urban population. A patient navigation intervention. Cancer. 2007;109(2 Suppl):359-367.
5. Bickell NA, Young GJ. Coordination of care for early-stage breast cancer patients. J Gen Intern Med. 2001;16(11):737-742.
6. Burhansstipanov L, Wound DB, et al. Culturally relevant ''Navigator'' patient support. The Native sisters. Cancer Pract. 1998;6(3):191-194.
7. Cancer Care Nova Scotia. Cancer Patient Navigation Evaluation: Final Report. Halifax, Nova Scotia, Canada: Cancer Care Nova Scotia, 2004.
8. Chen LA, Santos S, Jandorf L, Christie J, Castillo A, Winkel G, Itzkowitz S. A program to enhance completion of screening colonoscopy among urban minorities. Clin Gastroenterol Hepatol. 2008;6(4):443-450. Epub 2008 Mar 4.
9. Centers for Medicare and Medicaid Services. Evidence report and evidence based recommendations: cancer prevention and treatment demonstration for ethnic and racial minorities. Prepared by Schneider Institute for Health Policy and the Heller School for Social Policy and Management, Brandeis University, Contract No. 500-00-0031. Baltimore: Centers for Medicare and Medicaid Services, 2003.
10. Christie J, Itzkowitz S, Lihau-Nkanza I, Castillo A, Redd W, Jandorf L. A randomized controlled trial using patient navigation to increase colonoscopy screening among lowincome minorities. J Natl Med Assoc. 2008;100(3):278-284.
11. The Commonwealth Fund 2006 Health Care Quality SurveyAvailable at http://www. commonwealthfund.org/surveys/surveys-show.htm?doc-id=506847. Accessed August 15, 2008
12. DesRoches CM, Campbell EG, Rao SR, Donelan K, Ferris TG, Jha A, Kaushal R, Levy DE, Rosenbaum S, Shields AE, Blumenthal D. Electronic health records in ambulatory care- A national survey of physicians. N Engl J Med 2008;359:50-60.
13. Dignan MB, Burhansstipanov L, Hariton J, Harjo L, Rattler T, Lee R, Mason M. A comparison of two Native American Navigator formats: face-to-face and telephone. Cancer Control. 2005;12 (Suppl 2):28-33.
14. Dohan D, Schrag D. Using navigators to improve care of underserved patients. Cancer. 2005;104(4):848-855.
15. Donelan K, Miralles P. Consumers, EHRs and PHRs: measures and measurement. In Blumenthal D, Desroches C, Donelan K, Ferris T, Jha A, Kaushal R, Rao S, Rosenbaum S, Shields A (eds). Health Information Technology in the United States: Where Do We Stand? Princeton NJ: Robert Wood Johnson Foundation, June 2008. Available from: http://www.rwjf.org/qualityequality/product.jsp?id= 31831 Accessed August 15, 2008.
16. Farber JM, Deschamps M, et al. Investigation and Assessment of the Navigator Role in Meeting the Information, Decisional and Educational Needs of Women with Breast Cancer in Canada. Ottawa, Canadian Breast Cancer Initiative, Centre for Chronic Disease Prevention and Control, Health Canada. 2002. http://www.hc-sc.gc.ca/pphb-dgspsp/ccdpc-cpcmc/cancer/publications/navigator-e. html Canadian Breast Cancer Initiative
17. Ferrante JM, Chen PH, Kim S. The effect of patient navigation on time to diagnosis, anxiety, and satisfaction in urban minority women with abnormal mammograms: a randomized controlled trial. J Urban Health. 2008;85(1):114-124. Epub September 29, 2007. Available at: http://www.springerlink.com.ezp-prod1. hul.harvard.edu/content/16u877j728414512.
18. Fiscella K, Franks P, Doescher MP. Disparities in health care by race, ethnicity, and language among the insured: findings from a national sample. Med Care. 2002;40:52-59.
19. Flores G, Abreu M, Tomany-Korman SC. Limited English proficiency, primary language at home, and disparities in children's health care: how language barriers are measured matters. Public Health Rep. 2005;120(4):418-430.
20. Flores G, Tomany-Korman SC. The language spoken at home and disparities in medical and dental health, access to care, and use of services in US children. Pediatrics. 2008;121:e1703-e1714.
21. Freeman HP. Patient navigation: A community based strategy to reduce cancer disparities. J Urban Health. 2006;83(2):139-141.
22. Freeman HP. A model patient navigation program. Oncol Issues. 2004, Sept/Oct;19:44-46.
23. Freeman HP, Muth BJ, et al. Expanding access to cancer screening and clinical follow-up among the medically underserved. Cancer Pract. 1995;3(1):19-30.
24. GreenAS, CarneyDR, PallinDJ, Ngo LH, RaymondKL, Iezzoni LI, BanajiMR. Implicit bias among physicians and its prediction of thrombolysis decisions for black and white patients. JGen InternMed. 2007 Sep;22(9):1231-1238. Epub June 27, 2007. Available at: http://www. pubmedcentral.nih.gov/articlerender.fcgi? tool=pubmed&pubmedid=17594129
25. Greenberg Quinlan Rosner. 2007 Health Priorities Survey. Available at: http://healthyamericans. org/reports/files/2007HealthPriorities.pdf. Accessed August 15, 2008.
26. Halpern MTet al. Association of insurance status and ethnicity with cancer stage at diagnosis for 12 cancer sites: a retrospective analysis. Lancet Oncol. March 2008;9(3):222-231.
27. Haynes MA, Smedley BD (eds). The Unequal Burden of Cancer: An Assessment of Research and Program for Ethnic Minorities and the Medically Underserved. Washington, DC: Institute of Medicine, National Academy 1999.
28. Health Care Association of New York State (HANYS) Breast Cancer Demonstration Project. Breast Health Patient Navigator Resource Kit. Rensselaer, NY: HANYS, 2002
29. Hesse BW, Nelson DE, Kreps GL, Croyle RT, Arora NK, Rimer BK,Viswanath K. Trust and sources of health information: The impact of the Internet and its implications for health care providers. Arch Intern Med. 2005;165(22):2618-2624.
30. Hiatt RA, Pasick RJ, et al. Community-based cancer screening for underserved women: design and baseline findings from the Breast and Cervical Cancer Intervention Study. Prev Med. 2001;33(3):190-203.
31. Horrigan J. 62% of all Americans are part of a wireless, mobile population that participates in digital activities away from home or work. Pew Internet and American Life Project, March 2008.
32. Iezzoni LI, Ngo LH, Li D, Roetzheim RG, Drews RE, McCarthy EP. Early Stage Breast Cancer Treatments for Younger Medicare Beneficiaries with Different Disabilities. Health Serv Res. 2008a May 12. [Epub] Available at: http://www3.interscience.wiley.com/journal/120120491/abstract?CRETRY= 1&SRETRY=0
33. Iezzoni LI, Ngo LH, Li D, Roetzheim RG, Drews RE, McCarthy EP. Treatment disparities for disabled Medicare beneficiaries with stage I non-small cell lung cancer. Arch Phys Med Rehabil. 2008b;89(4):595-601.
34. Iezzoni LI, O'Day B. More Than Ramps: A Guide to Improving Health Care Quality and Access for People with Disabilities. Oxford, New York: Oxford University Press, 2006.
35. Institute of Medicine, Board on Health Care Services, Care Without Coverage: Too Little, Too Late, Washington, DC: National Academy of Sciences, 2002
36. Institute of Medicine, Ensuring Quality Cancer Care, Washington DC: National Academy of Sciences, 2004.
37. Jandorf L, Gutierrez Y, Lopez J, Christie J, Itzkowitz SH. Use of a patient navigator to increase colorectal cancer screening in an urban neighborhood health clinic. J Urban Health. 2005;82(2):216-224. Epub May 11, 2005. Available at: http://www.springerlink. com.ezp-prod1.hul.harvard.edu/ content/m6h4635852004x26
38. Jones C, LaVeist T, Lillie-Blanton M. ''Race'' in epidemiologic literature: an examination of the American Journal of Epidemiology, 1921-1990. Am J Epidemiol. 1991;134:1079-1084.
39. Kaiser Family Foundation, March/April 2006 Kaiser Health Poll Report Survey, April 2006
40. McCarthy EP, Ngo LH, Chirikos TN, Roetzheim RG, Li D, Drews RE, Iezzoni LI. Cancer stage at diagnosis and survival among persons with Social Security Disability Insurance on Medicare. Health Serv Res. 2007;42(2):611-628.
41. McCarthy EP, Ngo LH, Roetzheim RG, Chirikos TN, Li D, Drews RE, Iezzoni LI. Disparities in breast cancer treatment and survival for women with disabilities. Ann Intern Med. 2006;145(9):637-645.
42. Mead H, Cartwright-Smith L, Jones K, Ramos C, Woods K, Siegel B. Racial and Ethnic Disparities in U.S. Health Care: A Chartbook. The Commonwealth Fund, March 2008. Available at: http://www.commonwealthfund.org/publications/ publications-show.htm? doc-id=672908. Accessed August 15, 2008.
43. National Cancer Institute. Health Information National Trends (HINTS) Surveys, 2003 and 2005. Available at: http://hints.cancer.gov/questions/ qDisplay.jsp?specCase=0&qID= 1317&dataset=2005 and http://hints.cancer. gov/questions/qDisplay.jsp?specCase=0&qID=1317&dataset=2005http://hints. cancer.gov/docs/HINTS-Brief070606.pdf. Accessed August 15, 2008
44. National Cancer Institute. NCI Cancer Health Disparities Fact Sheet. Available at: http://www.nci.nih.gov/newscenter/healthdisparities. Accessed August 15, 2008.
45. National Cancer Institute. NCI Awards $25 Million for Patient Navigator Research Program for Minority and Underserved Cancer Patients, 10/27/2005. Available at: http://www. cancer.gov/newscenter/pressreleases/ PatientNavigatorGrants. Accessed August 15, 2008.
46. Office of Management and Budget. Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity Federal Register October 30, 1997. Available at: http://www.whitehouse.gov/omb/fedreg/ 1997standards.html. Accessed August 15, 2008.
47. Oppenheimer G. Paradigm lost: race, ethnicity, and the search for a new population taxonomy. Am J Public Health. 2001;91:1049-1055.
48. Petereit DG, Molloy K, Reiner ML, Helbig P, Cina K, Miner R, Spotted Tail C, Rost C, Conroy P, Roberts CR. Establishing a patient navigator program to reduce cancer disparities in the american Indian communities of Western South Dakota: initial observations and results. Cancer Control. 2008 July;15(3):254-259.
49. Ponce NA, Hays RD, Cunningham WE. Linguistic disparities in health care access and health status among older adults. J Gen Int Med. 2006;21(7):786-791.
50. President's Cancer Panel. Facing Cancer in Indian Country: The Yakama Nation and Pacific Northwest Tribes (President's Cancer Panel 2002 Annual Report). Bethesda, MD: National Cancer Institute, 2003
51. President's Cancer Panel. Voices of a Broken System: Real People, Real Problems (President's Cancer Panel, Report of the Chairman, 2000-2001). Bethesda, MD: National Cancer Institute, 2001.
52. President's Cancer Panel. Living Beyond Cancer: Finding a New Balance. 2003-2004, Bethesda MD: National Cancer Institute, 2004.
53. Rahm AK, Sukhanova A, Ellis J, Mouchawar J. Increasing utilization of cancer genetic counseling services using a patient navigator model. J Genet Couns. 2007;16(2):171-177.
54. Regenstein M, Mead H, Muessig KE, Huang J. Challenges in language services: identifying and responding to patients' needs. J Immigr Minor Health. June 7, 2008
55. Sabin JA, Rivara FP, Greenwald AG. Physician implicit attitudes and stereotypes about race and quality of medical care. Med Care. 2008;46(7):678-685.
56. Saha S, Arbelaez JJ, Cooper LA. Patient-physician relationships and racial disparities in the quality of health care. Am J Public Health. 2003;93(10):1713-1719.
57. Schneider EC, Zaslavsky AM, Epstein AM. Racial disparities in the quality of care for enrollees in Medicare managed care. JAMA. 2002;287:1288-1294.
58. Smedley BD, Stith AY, Nelson AR (eds). Unequal treatment: confronting racial and ethnic disparities in health care. Washington, DC: Institute of Medicine, The National Academies Press, 2003
59. Smith WR, Betancourt JR, Wynia MK, Bussey-Jones J, Stone VE, Phillips CO, Fernandez A, Jacobs E, Bowles J. Recommendations for Teaching about Racial and Ethnic Disparities in Health and Health Care. Ann Intern Med. 2007;147:654-665.
60. Steinberg ML, Fremont A, Khan DC, Huang D, Knapp H, Karaman D, Forge N, Andre K, Chaiken LM, Streeter OE Jr. Lay patient navigator program implementation for equal access to cancer care and clinical trials: essential steps and initial challenges. Cancer. 2006;1;107(11):2669-2677.
61. Thorpe KE, Howard D. Health insurance and spending among cancer patients. Health Aff (Millwood). 2003 Jan-Jun;Suppl Web Exclusives:W3-189-98.
62. Analysis of the March 2007 Current Population Survey Urban Institute and Kaiser Commission on Medicaid and the Uninsured Available at http://facts.kff.org/chart.aspx?ch= 365
63. U.S. Census Bureau. Racial and Ethnic Classifications Used in Census 2000 and Beyond. 2006. Available at http://www.census.gov/population/www/socdemo/ race/racefactcb. html. Accessed 9-17-2008.
64. USA Today/Kaiser Family Foundation/Harvard School of Public Health National Survey of Households Affected by Cancer, conducted Aug 1-Sept 14, 2006.
65. Weinick RM, Caglia JM, Friedman E, Flaherty K. Measuring racial and ethnic health care disparities in Massachusetts. Health Aff. 2007;26(5):1293-1302.
66. Weinrich SP, Boyd MD, et al. Increasing prostate cancer screening in African American men with peer-educator and client-navigator interventions. J Cancer Educ. 1998;13(4):213-219.
67. Williams DR. The concept of race in health services research. Health Services Res. 1994;29:261.