Exploring morally relevant issues facing families in their decisions to monitor the health-related behaviours of loved ones

Journal of Medical Ethics

Volumn 35, Issue 7, 2009, Pages 424-428

  Gammon, D ^a   Christiansen, E K ^a   Wynn, R ^b  

^a UNIVERSITY HOSPITAL OF NORTH NORWAY   (Norway)

^b UNIVERSITY OF TROMSØ   (Norway)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; AGE; AMBULATORY MONITORING; ARTICLE; BLOOD; BLOOD GLUCOSE MONITORING; CAREGIVER; CHILD; CHILD PARENT RELATION; FEMALE; GLUCOSE BLOOD LEVEL; HEALTH BEHAVIOR; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; MALE; METHODOLOGY; MORALITY; PATIENT ATTITUDE; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SELF CARE;

ADOLESCENT; ADULT; AGE FACTORS; BLOOD GLUCOSE; BLOOD GLUCOSE SELF-MONITORING; CAREGIVERS; CHILD; DIABETES MELLITUS, TYPE 1; FEMALE; HEALTH BEHAVIOR; HUMANS; MALE; MONITORING, AMBULATORY; MORALS; PARENT-CHILD RELATIONS; PATIENT ACCEPTANCE OF HEALTH CARE; QUALITY OF LIFE; SELF CARE; YOUNG ADULT;

EID: 72449132807     PISSN: 03066800     EISSN: 14734257     Source Type: Journal    
DOI: 10.1136/jme.2008.027920     Document Type: Article

References (39)

1. Redman BK. Responsibility for control: Ethics of patient preparation for self-management of chronic disease. Bioethics 2007;21:243-50.
2. Hoefer D, Mecheels S, eds. I-wear for health care and wellness - State of the art and future possibilities. Amsterdam: ISO Press, 2004.
3. Rigby M. Applying emergent ubiquitous technologies in health: The need to respond to new challenges of opportunity, expectation, and responsibility. Int J Med Inform 2007;124:65-70.
4. Lymberis A, ed. Research and development of smart wearable health applications: The challenge ahead. Amsterdam: IOS Press, 2004.
5. Drotar D, Greenley R, Hoff A, et al. Summary of issues and challenges in the use of new technologies in clinical care and with children and adolescents with chronic illness. Childrens Health Care 2006;35:91-102.
6. Verhoeven F, van Gemert-Pijnen L, Dijkstra K, et al. The contribution of teleconsultation and videoconferencing to diabetes care: A systematic literature review. J Med Internet Res 2007;9:e37.
7. Murakami Y, ed. Legal issues for realizing ubiquitous information society. Presented at the SICE Annual ConferenceSapporo, Japan, 4-6 August 2004.
8. Rodrigues RJ. Ethical and legal issues in interactive health communications: A call for international cooperation. J Med Internet Res 2000;2:e8.
9. Anderson JG. The role of ethics in information technology decisions: a case-based approach to biomedical informatics education. Int J Med Inform 2004;73:145-50.
10. Ashcroft R. health technology assessment. In: Chadwick R, ed. The concise encyclopedia of the ethics of new technologies. San Diego: Academic Press, 2001:235-44.
11. Braunack-Mayer AJ. Ethics and health technology assessment: Handmaiden and/or critic? Int J Technol Assess Health Care 2006;22:307-12.
12. Hofmann B. Toward a procedure for integrating moral issues in health technology assessment. Int J Technol Assess Health Care 2005;21:312-18.
13. Saarni SI, Hofmann B, Lampe K, et al. Ethical analysis to improve decision-making on health technologies. Bull World Health Organ 2008;86:577-656.
14. Ferrer-Roca O, Cárdenas A, Diaz-Cardama A, et al. Mobile phone text messaging in the management of diabetes. J Telemed Telecare 2004:282-5.
15. Franklin V, Waller A, Pagliari C, et al. "Sweet talk": text messaging support for intensive insulin therapy for young people with diabetes. Diabetes Technol Ther 2003;5:991-6.
16. Ellis DA, Podolski C-L, Frey M, et al. The role of parental monitoring in adolescent health outcomes: Impact on regimen adherence in youth with Type 1 diabetes. J Pediatr Psychol 2007 September 1;32:907-17.
17. Weinger K, ódonnell KA, Ritholz MD. Adolescent views of diabetes-related parent conflict and support: a focus group analysis. J Adolesc Health 2001;29:330-6.
18. Hood KK, Butler DA, Anderson BJ, et al. Updated and Revised Diabetes Family Conflict Scale. Diabetes Care 2007;30:1764-9.
19. Anderson BJ, Vangsness L, Connell A, et al. Family conflict, adherence, and glycaemic control in youth with short duration Type 1 diabetes. Diabetic Med 2002;19:635-42.
20. Anderson B, Ho J, Brackett J, et al. Parental involvement in diabetes management tasks: Relationships to blood glucose monitoring adherence and metabolic control in young adolescents with insulin-dependent diabetes mellitus. J Pediatr 1997;130:257-65.
21. Gammon D, Årsand E, Walseth OA, et al. Parent-child interaction using a mobile and wireless system for blood glucose monitoring. J Medl Internet Res 2005;7:e57.
22. Carroll AE, Downs SM, Marrero DG. What adolescents with type 1 diabetes want from testing technology: A qualitative study. Comput Inform Nurs 2007;25:23-9.
23. Carroll AE, Marrero DG, Downs SM. The HealthPia GlucoPack diabetes phone: a usability study. Diabetes Technol Ther 2007;9:158-64.
24. Baumrind D, Thompson D. The ethics of parenting. In: Bornstein MH, ed. Practical issues in parenting. Florence, KY : Routledge, Taylor & Francis Group, 2002:3-34.
25. Baines P. Medical ethics for children: applying the four principles to paediatrics. J Med Ethics 2008 March 1;34:141-5.
26. Lupton D. Risk. London: Routledge, 1999.
27. Lupton D. The imperative of health: public health and the regulated body. London: SAGE Publications, 1995.
28. Wood DM, ed. A report on the surveillance society. London: Information Commissioner's Office, 2006.
29. Goodman E. Surveillance society: Big brother meets big parent. International Harald Tribune 2007. November 3-4;Section 4.
30. King P, Tester J. The Landscape of persuasive technologies. Communications of the ACM 1999;42:31-8.
31. Boyd D. Social network sites: public, private, or what? Knowledge Tree 2007;13 http://kt.flexiblelearning.net.au/tkt2007/?page_id=28.
32. Miller VA, Drotar D, Kodish E. Children's competence for assent and consent: A review of empirical findings. Ethics Behav 2004;14:255-95.
33. Swierstra T. From critique to responsibility: the ethical turn in the technology debate. Phil Tech 1997;3:68-74.
34. Wysocki T, Harris MA, Buckloh LM, et al. Effects of behavioral family systems therapy for diabetes on adolescents' family relationships, treatment adherence, and metabolic control. J Pediatr Psychol 2006 October 1;31:928-38.
35. Coiera E. Four rules for the reinvention of health care. Br Med J 2004;328: 1197-9.
36. Reuzel RPB, van der Wilt GJ, ten Have HAMJ, et al. Interactive technology assessment and wide reflective equilibrium. J Med Philos 2001 January 1;26:245-61.
37. Reuzel R, van der Wilt G-J, ten Have H, et al. Reducing normative bias in health technology assessment: Interactive evaluation and casuistry. Med Health Care Philos 1999;2:255-63.
38. Ruland C. Improving patient safety through informatics tools for shared decision making and risk communication. Int J Med Inform 2004;73:551-7.
39. Muller MJ. Participatory design: the third space in HCI. In: Jacko JA, Sears A, eds. The human-computer interaction handbook: fundamentals, evolving technologies and emerging applications. New Jersey: Lawrence Erlbaum Associates Publishers, 2004:1051-68.