Loss of autonomy, control and independence when caring: A qualitative study of informal carers of stroke survivors in the first three months after discharge

Disability and Rehabilitation

Volumn 32, Issue 2, 2010, Pages 125-133

  Greenwood, Nan ^a   MacKenzie, Ann ^a   Cloud, Geoffrey ^b   Wilson, Nikki ^a  

^a ST GEORGE'S UNIVERSITY OF LONDON   (United Kingdom)

^b ST GEORGE S HOSPITAL   (United Kingdom)

Author keywords

Autonomy; Carer; Stroke

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER BURDEN; CAREGIVER SUPPORT; DECISION MAKING; EXPERIENCE; FEMALE; HUMAN; INDEPENDENCE; LIFESTYLE; MALE; PRIORITY JOURNAL; STROKE;

ADAPTATION, PSYCHOLOGICAL; CAREGIVERS; HUMANS; INTERNAL-EXTERNAL CONTROL; INTERVIEWS AS TOPIC; PATIENT DISCHARGE; PERSONAL AUTONOMY; STROKE; UNCERTAINTY;

EID: 71449093215     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638280903050069     Document Type: Article

References (23)

1. McCullagh E, Brigstocke G, Donaldson N, Kalra L. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke 2005;36:2181-2186.
2. Han B, Haley, WE. Family caregiving for patients with stroke. Review and analysis. Stroke 1999;30:1478-1485.
3. Low JT, Payne S, Roderick P. The impact of stroke on informal carers: a literature review. Soc Sci Med 1999;49:711-725.
4. Greenwood N, Mackenzie A, Cloud G, Wilson N. What influences outcomes for informal stroke carers? A systematic review of quantitative studies. Disabil Rehabil 2008;30:1329-1349.
5. Greenwood N, Mackenzie A, Cloud G, Wilson N. Informal primary carers of stroke survivors living at home - challenges, satisfactions and coping: a systematic review of qualitative studies. Disabil Rehabil 2008;31:337-351.
6. Ilse IB, Feys H, de Wit L, Putman K, de Weerdt W. Stroke caregivers' strain: prevalence and determinants in the first six months after stroke. Disabil Rehabil 2008;30:523-530.
7. Draper BM, Poulos RG, Poulos CJ, Ehrlich F. Risk factors for stress in elderly caregivers. Int J Geriatric Psychiatry 1995;11:227-231.
8. Brereton L, Nolan M. 'You know he has had a stroke, don't you?' Preparation for family caregiving - the neglected dimension. J Adv Nurs 2000;9:498-507.
9. Wilkinson, PR, Wolfe CD, Warburton FG, Rudd AG, Howard RS, Ross-Russell RW, Beech RR. A long-term follow-up of stroke patients. Stroke 1997;28:507-512.
10. Secrest J, Thomas SP. Continuity and discontinuity: the quality of life following stroke. Rehabil Nurs 1999;24:240-246.
11. Skinner AE. A guide to constructs of control. J Personal Soc Psychol 1996;71:549-570.
12. Department of Health, Carers at the heart of 21st families and communities: a caring system on our side, a life of our own. London: DH; 2008.
13. World Health Organisation. The International Classification of Impairments, Activities, and Participation. A manual of dimensions of disablement and health. (Beta-1 Draft for field trials). Geneva: WHO; 1997.
14. Gignac MAM, Cott CA. A conceptual model of independence and dependence for adults with chronic physical illness and disability. Soc Sci Med 1998;47:739-775.
15. Cott CA, Gignac MAM. Independence and dependence for adults with chronic physical illness and disability. Can J Aging 1999;18:1-25.
16. Gignac MAM, Cott, CA, Badley E. Adaptation to chronic illness and disability and its relationship to perceptions of independence and dependence. J Gerontol Psychol Sci 2000;55B:362-372.
17. Hammersley M, Atkinson P. Ethnography. Principles in practice, 2nd ed. London: Routledge; 1995.
18. Fitzpatrick R, Bolton M. Qualitative methods in assessing health care. Qual Health Care 1994;3:107-113.
19. Pope C, Ziebland S, Mays N. Qualitative research in health care. Analysing qualitative data. Br Med J 2000;320: 114-116.
20. Pope C, Mays N. Qualitative research in health care. Assessing quality in qualitative research. Br Med J 2000;320: 50-52.
21. Williams GR, Jiang JG, Matchar DB, Samsa GP. Incidence and occurrence of total (first-ever and recurrent) stroke. Stroke 1999;30:2523-2528.
22. Greenwood N, Mackenzie A, Wilson N, Cloud G. Managing uncertainty in life after stroke: a qualitative study of the experiences of established and new informal carers in the first 3 months after discharge. Int J Nurs Stud 2009; 46:1122-1133.
23. Cardol M, De Jong BA, Ward CD. On autonomy and participation in rehabilitation. Disabil Rehabil 2002;24:970-974.