The impact of dementia on self and identity: A systematic review

Clinical Psychology Review

Volumn 30, Issue 1, 2010, Pages 113-126

  Caddell, Lisa S ^a   Clare, Linda ^a  

^a BANGOR UNIVERSITY   (United Kingdom)

Author keywords

Alzheimer's disease; Fronto temporal dementia; Personhood; Self concept; Selfhood; Vascular dementia

Indexed keywords

ALZHEIMER DISEASE; AUTOBIOGRAPHICAL MEMORY; COGNITIVE DEFECT; DEMENTIA; DISEASE COURSE; FRONTOTEMPORAL DEMENTIA; IDENTITY; MILD COGNITIVE IMPAIRMENT; MINI MENTAL STATE EXAMINATION; MULTIINFARCT DEMENTIA; NARRATIVE; NONVERBAL COMMUNICATION; PERSONALITY; REVIEW; SELF CONCEPT; SOCIAL INTERACTION; SYSTEMATIC REVIEW;

DEMENTIA; HUMANS; MENTAL RECALL; MODELS, PSYCHOLOGICAL; SELF CONCEPT;

EID: 71249122658     PISSN: 02727358     EISSN: 18737811     Source Type: Journal    
DOI: 10.1016/j.cpr.2009.10.003     Document Type: Review

References (58)

1. Addis D.R., and Tippett L.J. Memory of myself: Autobiographical memory and identity in Alzheimer's disease. Memory 12 (2004) 56-74
2. Ajuriaguerra J., Strejilevitch M., and Tissot R. A propos de quelques conduits devant le miroir de sujets atteints de syndromes dementiels du grand age. Neuropsychologia 1 (1963) 59-72
3. Beard R.L. In their voices: Identity preservation and experiences of Alzheimer's disease. Journal of Aging Studies 18 (2004) 415-428
4. Biringer F., and Anderson J.R. Self-recognition in Alzheimer's disease: A mirror and video study. Journal of Gerontology: Psychological Sciences 47 6 (1992) 385-388
5. Biringer F., Anderson J.R., and Strubel D. Self-recognition in senile dementia. Experimental Aging Research 14 4 (1988) 177-180
6. Blumer H. Symbolic interactionism: Perspective and method (1969), University of California Press
7. Boeker H., Kleiser M., Lehman D., Bogerts B., and Northoff G. Executive dysfunction, self, and ego pathology in Schizophrenia. Comprehensive Psychiatry 47 1 (2006) 7-19
8. Bologna S.M., and Camp C.J. Self-recognition in Alzheimer's disease: Evidence of an explicit/implicit dissociation. Clinical Gerontologist 15 (1995) 51-54
9. Bologna S.M., and Camp C.J. Covert versus overt recognition in late stage Alzheimer's disease. Journal of the International Neuropsychological Society 3 (1997) 195-198
10. Breen N., Caine D., and Coltheart M. Mirrored-self misidentification: Two cases of focal onset dementia. Neurocase 7 (2001) 239-254
11. Bruner J. Life as narrative. Social Research 54 11-32 (1987)
12. Chapman L.J., Chapman J.P., and Raulin M.L. Body image aberration in Schizophrenia. Journal of Abnormal Psychology 87 4 (1978) 399-407
13. Clare L. Managing threats to self: Awareness in early-stage Alzheimer's disease. Social Science and Medicine 57 (2003) 1017-1029
14. Cohen- Mansfield J., Golander H., and Arnheim G. Self-identity in older persons suffering from dementia: Preliminary results. Social Science and Medicine 51 (2000) 381-394
15. Cohen- Mansfield J., Parpura-Gill A., and Golander H. Salience of self-identity roles in persons with dementia: Differences in perceptions among elderly persons, family members and caregivers. Social Science and Medicine 62 (2006) 745-757
16. Cohen-Mansfield J.A., Parpura-Gill A., and Golander H. Utilisation of self-identity roles for designing interventions for persons with dementia. Journal of Gerontology: Psychological Sciences 61B (2006) 202-212
17. Davis D.H.J. Dementia: Sociological and philosophical constructions. Social Science and Medicine 58 (2004) 369-378
18. Fazio S., and Mitchell D.B. Persistence of self in individuals with Alzheimer's disease. Dementia 8 1 (2009) 39-59
19. Fitts W.H., and Warren W.L. Tennessee Self-Concept Scale. 2nd ed. (1996), Western Psychological Services, Los Angeles, CA
20. Folstein M.F., Folstein S.E., and McHugh P.R. Mini-Mental State: A practical method of grading the cognitive state of patients for the clinician. Journal of Psychiatric Research 12 (1975) 189
21. Fontana A., and Smith R.W. Alzheimer's disease victims; The 'unbecoming' of self and the normalization of competence. Sociological Perspectives 32 1 (1989) 35-46
22. Gergen K.J. The social constructionist movement in modern psychology. American Psychologist 40 3 (1985) 266-275
23. Gil R., Arroyo-Anllo E.M., Ingrand P., Gil M., Neau J.P., Ornon C., et al. Self-consciousness and Alzheimer's disease. Acta Neurologica Scandinavica 104 (2001) 296-300
24. Gillies, B. (2000). A memory like clockwork: Accounts of living through dementia. An exploration of the subjective experience of dementia. PhD Thesis, University of Dundee, Dundee, Scotland.
25. Gillies B., and Johnston G. Identity loss and maintenance: Commonality of experience in cancer and dementia. European Journal of Cancer Care 13 (2004) 436-442
26. Glaser B.G., and Strauss A. The discovery of grounded theory: Strategies for qualitative research (1967), Aldine de Gruyter, New York
27. Grewal R.P. Self-recognition in dementia of the Alzheimer type. Perceptual and Motor Skills 79 2 (1994) 1009-1010
28. Gross J., Harmon M.E., Myers R.A., Evans R.L., Kay N.R., Rodriguez-Charbonier S., et al. Recognition of self among persons with dementia; Pictures versus names as environmental supports. Environment and Behavior 36 3 (2004) 424-454
29. Gumperz J.J. Language and social identity (1982), Cambridge University Press, Cambridge, New York
30. Head D.M., Portnoy S., and Woods R.T. The impact of reminiscence groups in two different settings. International Journal of Geriatric Psychiatry 5 (1990) 295-302
31. Hehman J.A., German T.P., and Klein S.B. Impaired self-recognition from recent photographs in a case of late-stage Alzheimer's disease. Social Cognition 23 1 (2005) 118-123
32. Hubbard G., Cook A., Tester S., and Downs M. Beyond words: Older people with dementia using and interpreting nonverbal behaviour. Journal of Aging Studies 16 (2002) 155-167
33. Klein S.B., Cosmides L., and Costabile K.A. Preserved knowledge of self in a case of Alzheimer's dementia. Social Cognition 21 (2003) 157-165
34. Kontos P. 'The painterly hand': Embodied consciousness and Alzheimer's disease. Journal of Aging Studies 17 (2003) 151-170
35. Kontos P.C. Ethnographic reflections on selfhood, embodiment and Alzheimer's disease. Ageing and Society 24 (2004) 829-849
36. Kopelman M., Wilson B., and Baddeley A. The Autobiographical Memory Interview (1990), Thames Valley Test Company, Windsor, UK
37. Kuhn M.H., and McPartland T.S. An empirical investigation of self-attitudes. American Sociological Review 19 (1954) 68-76
38. Li R., and Orleans M. Personhood in a world of forgetfulness: An ethnography of the self-process among Alzheimer's patients. Journal of Aging and Identity 7 4 (2002) 227-244
39. Mead G.H. Mind, self and society (1934), University of Chicago Press, Chicago
40. Mendez M.F., Martin R.J., Smyth K.A., and Whitehouse P.J. Disturbances of person identification in Alzheimer's disease: A retrospective study. Journal of Nervous and Mental Disease 180 2 (1992) 94-96
41. Mills M.A. Narrative identity and dementia: A study of emotion and narrative in older people with dementia. Ageing and Society 17 (1997) 673-698
42. Naylor E., and Clare L. Awareness of memory functioning, autobiographical memory and identity in early-stage dementia. Neuropsychological Rehabilitation 18 5-6 (2008) 590-606
43. Pearce A., Clare L., and Pistrang N. Managing sense of self: Coping in the early stages of Alzheimer's disease. Dementia 1 (2002) 173-192
44. Rankin K.P., Baldwin E., Pace-Savitsky C., Kramer J.H., and Miller B.L. Self awareness and personality change in dementia. Journal of Neurology, Neurosurgery and Psychiatry 76 (2005) 632-639
45. Rhee E., Uleman J.S., Lee H.K., and Roman R.J. Spontaneous self-descriptions and ethnic identities in individualistic and collectivist cultures. Journal of Personality and Social Psychology 69 (1995) 142-152
46. Rohricht F., and Priebe S. Ego pathology and common symptom factors in Schizophrenia. Journal of Nervous and Mental Disease 192 6 (2004) 446-449
47. Romero B., and Wenz M. Self-maintenance therapy in Alzheimer's disease. Neuropsychological Rehabilitation 11 (2001) 333-355
48. Ruby P., Collette F., D'Argembeau A., Peters F., Degueldre C., Balteau E., et al. Perspective taking to assess self-personality: What's modified in Alzheimer's disease?. Neurobiology of Aging 30 10 (2009) 1637-1651
49. Ruby P., Schmidt C., Hogge M., D'Argembeau A., Collette F., and Salmon E. Social mind representation: Where does it fail in frontotemporal dementia?. Journal of Cognitive Neuroscience 19 4 (2007) 671-683
50. Sabat S.R. Surviving manifestations of selfhood in Alzheimer's disease: A case study. Dementia 1 1 (2002) 25-36
51. Sabat S.R., and Collins M. Intact social, cognitive ability, and selfhood: A case study of Alzheimer's disease. American Journal of Alzheimer's Disease 14 1 (1999) 11-19
52. Sabat S.R., and Harre R. The construction and deconstruction of self in Alzheimer's disease. Ageing and Society 12 (1992) 443-461
53. Saunders P.A. "My brain's on strike"-The construction of identity through memory accounts by dementia patients. Research on Aging 20 1 (1998) 65-90
54. Small J.A., Geldart K., Gutman G., and Scott M.A.C. The discourse of self in dementia. Ageing and Society 18 (1998) 291-316
55. Surr C.A. Preservation of self in people with dementia living in residential care: A socio-biographical approach. Social Science and Medicine 62 (2006) 1720-1730
56. Tappen R.M., Williams C., Fishman S., and Touhy T. Persistence of self in advanced Alzheimer's disease. Journal of Nursing Scholarship 31 2 (1999) 121-125
57. Usita P.M., Hyman I.E., and Herman K.C. Narrative intentions: Listening to life stories in Alzheimer's disease. Journal of Aging Studies 12 2 (1998) 185-197
58. Weckowicz T.E., and Sommer R. Body image and self-concept in Schizophrenia: An experimental study. Journal of Mental Science 106 (1960) 17-39