Identity loss and maintenance: Commonality of experience in cancer and dementia

European Journal of Cancer Care

Volumn 13, Issue 5, 2004, Pages 436-442

  Gillies, B ^a   Johnston, G ^b  

^a UNIVERSITY OF DUNDEE   (United Kingdom)

^b Macmillan Education Unit   (United Kingdom)

Author keywords

Cancer; Dementia; Disease experience; Identity

Indexed keywords

ADULT; AGED; ARTICLE; CANCER; CLINICAL ARTICLE; DEMENTIA; DISEASE ASSOCIATION; FAMILY; FAMILY COUNSELING; FEMALE; HUMAN; IDENTITY; MALE; PATIENT CARE; QUALITATIVE ANALYSIS;

ADAPTATION, PSYCHOLOGICAL; AGED; CAREGIVERS; DEMENTIA; HUMANS; INTERVIEWS; NEOPLASMS; SELF CONCEPT;

EID: 11444253220     PISSN: 09615423     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2354.2004.00550.x     Document Type: Article

References (35)

1. Adams T. & Clarke C.L., eds (1999) Dementia Care: Developing Partnerships in Practice. Bailliere Tindall in association with the Royal College of Nursing, London, UK.
2. Baumeister R.F. (1986) Identity, Cultural Change and the Struggle for Self. Oxford University Press, Oxford, UK.
3. Breakwell G.M. (1986) Coping with Threatened Identities. Methuen, London, UK.
4. Brennan A. (1988) Conditions of Identity: a Study in Identity and Survival. Clarendon Press, Oxford, UK.
5. Brown J.D. (1998) The Self. McGraw-Hill, Boston, MA, USA.
6. Charmaz K. (1997) Identity dilemmas of chronically ill men. In: Grounded Theory in Practice (eds Strauss A. & Corbin J.), pp. 35-62. Sage, CA, USA.
7. Cheston R. & Bender M. (1999) Understanding Dementia: the Man with the Worried Eyes. Jessica Kingsley, London, UK.
8. Cooley C.H. (1902) Human Nature and the Social Order, pp. 179-185. Scribner's, New York.
9. Davies E. & Higginson I., eds (2004a) Better Palliative Care for Older People. World Health Organization, Copenhagen, Denmark.
10. Davies E. & Higginson I., eds (2004b) Palliative Care: the Solid Facts. World Health Organization, Milan, Italy.
11. Fontana A. & Smith R.W. (1989) Alzheimer's disease victims: the 'unbecoming' of self and the normalization of competence. Sociological Perspectives 32, 35-46.
12. Gillies B. (2000) A memory like clockwork: accounts of living through dementia. An exploration of the subjective experience of dementia. PhD Thesis, University of Dundee, Dundee, Scotland.
13. Grant L. What happens to me. The Guardian Newspaper, 7 July 1999, p. 2.
14. Hockey J. (1990) Experiences of Death: an Anthropological Account. Edinburgh University Press, Edinburgh, Scotland.
15. Johnston G. (1997) Assessing psychosocial and spiritual wellbeing in palliative care. PhD Thesis, University of Dundee.
16. Johnston G. (2004) Social death: the impact of protracted dying. In: Palliative Care Nursing: Principles and Evidence for Practice (eds Payne S., Seymour J. & Ingleton C.), pp. 351-363. OU Press, Maidenhead, UK.
17. Johnston G. & Abraham C. (2000) Managing awareness: negotiating and coping with a terminal prognosis. International Journal of Palliative Nursing 6, 485-494.
18. Kaufman S.R. (1986) The Ageless Self: Sources of Meaning in Late Life. University of Wisconsin press, WI, USA.
19. Kitwood T. (1997) Dementia Reconsidered: The Person Comes First. Open University Press, Buckingham, UK.
20. Lawler J. (1997) The Body in Nursing. Vic Churchill Livingstone, Melbourne, Australia (cited in Payne & Seymour 2004).
21. Lawton J. (2000) The Dying Process Patients' Experiences of Palliative Care. Routledge, London, UK.
22. Levinson D.J. (1994) The mid-life transition: developmental and evolutionary approaches to identity. In: Society and Social Science: A Reader (eds Anderson J. & Ricci M.), 2nd edn, pp. 153-169. The Open University, Milton Keynes, UK.
23. Lewinter M. (2001) Reciprocity in caregiving relationships between elderly and family and elderly and home help in Denmark. Paper given 17th World Congress of the International Association of Gerontology, Vancouver, 3 July (in Nolan). M., Grant G., Keady J. & Lundh U. (2003) New directions for partnerships: relationship-centred care. In: Partnerships in Family Care: Understanding the Caregiving Career (eds Nolan M., Lundh U., Grant G. & Keady J.), Open University Press, Berkshire, UK.
24. Lewinter M. (2001) Reciprocity in caregiving relationships between elderly and family and elderly and home help in Denmark. Paper given 17th World Congress of the International Association of Gerontology, Vancouver, 3 July (in Nolan). M., Grant G., Keady J. & Lundh U. (2003) New directions for partnerships: relationship-centred care. In: Partnerships in Family Care: Understanding the Caregiving Career (eds Nolan M., Lundh U., Grant G. & Keady J.), Open University Press, Berkshire, UK.
25. Mulkay M. (1993) Social death in Britain. In: The Sociology of Death (ed. Clark, D.), pp. 31-49. Blackwell, Oxford.
26. Nolan M., Grant G., Keady J. & Lundh U. (2003) New directions for partnerships: relationship-centred care. In: Partnerships in Family Care: Understanding the Caregiving Career (cited in Nolan et al. 2003), pp. 257-291. Open University Press, Berkshire, UK.
27. Orona C.J. (1990) Temporality and identity loss due to Alzheimer's disease. Social Science and Medicine 30, 1247-1256.
28. Payne S. & Seymour J. (2004) Overview. In: Palliative Care Nursing: Principles and Evidence for Practice (eds Payne S., Seymour J. & Ingleton C.), pp. 15-38. OU Press, Maidehead, UK.
29. Payne S., Seymour J. & Ingleton C., eds (2004) Palliative Care Nursing: Principles and Evidence for Practice. OU Press, Maidenhead, UK.
30. Rodin J. & Timko C. (1992) Sense of control, aging, and health. In: Aging, Health and Behavior (eds Ory M.G., Abeles R.P. & Lipman P.D.), pp. 174-206. Sage Publications, CA, USA.
31. Ronch J.L. (1996) Mourning and grief in late life Alzheimer's dementia: revisiting the vanishing self. American Journal of Alzheimer's Disease July/August, 25-28.
32. Sweeting H. & M.Gilhooly (1997) Dementia and the phenomenon of social death. Sociology of Health and Illness 19, 93-117.
33. Turner S., Iliffe S., Downs M., Wilcock J., Bryans M., Levin E., Keady J.& O'Carroll R. (2004) General practitioners' knowledge, confidence and attitudes in the diagnosis and management of dementia. Age and Ageing 33, 461-467.
34. Warnock M. (1987) Memory. Faber and Faber, London, UK.
35. Wilkinson. (1991) Factors which influence how nurses communicate with cancer patients. Journal of Advanced Nursing 16, 677-688.