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Volumn 24, Issue 4, 2009, Pages 227-239

Health-related quality of life of parents of children with high-functioning autism spectrum disorders

Author keywords

Children with autism spectrum disorders; Health related quality of life; Parents

Indexed keywords

ADULT; ARTICLE; COMPARATIVE STUDY; CONTROLLED STUDY; COPING BEHAVIOR; DEMOGRAPHY; FEMALE; HEALTH SURVEY; HUMAN; INCOME; INFANTILE AUTISM; MALE; MENTAL HEALTH; NORMAL HUMAN; PARENT; PARENTAL STRESS; PRIORITY JOURNAL; QUALITY OF LIFE; SOCIAL PSYCHOLOGY; STUDENT T TEST;

EID: 70450231886     PISSN: 10883576     EISSN: 15384829     Source Type: Journal    
DOI: 10.1177/1088357609347371     Document Type: Article
Times cited : (101)

References (51)
  • 3
    • 0008549694 scopus 로고
    • Research Progress and Promise: The Role of Perceptions in Cognitive Adaptation to Disability
    • A. Turnbull and J. M. Patterson (Eds.), Baltimore: Brookes.
    • Behr, S.K., and Murphy, D.L. (1993). Research progress and promise: The role of perceptions in cognitive adaptation to disability. In A. Turnbull and J. M. Patterson (Eds.), Cognitive coping, families, and disability (pp. 151-163). Baltimore: Brookes.
    • (1993) Cognitive Coping, Families, and Disability , pp. 151-163
    • Behr, S.K.1    Murphy, D.L.2
  • 4
    • 33748368915 scopus 로고    scopus 로고
    • The impact of child symptom severity on depressed mood among parents of children with ASD: The mediating role of stress proliferation
    • Benson, P.R. (2006). The impact of child symptom severity on depressed mood among parents of children with ASD: The mediating role of stress proliferation. Journal of Autism and Developmental Disorders, 36, 685-695.
    • (2006) Journal of Autism and Developmental Disorders , vol.36 , pp. 685-695
    • Benson, P.R.1
  • 5
    • 33749324009 scopus 로고    scopus 로고
    • Geneva, Switzerland: World Health Organization, Department of Mental Health. Retrieved August 23
    • Billington, R. (1999). WHOQOL annotated bibliography: October 1999 version. Geneva, Switzerland: World Health Organization, Department of Mental Health. Retrieved August 23, 2009, from http://depts.washington.edu/yqol/docs/ WHO-QOL-Bibliography.pdf
    • (1999) WHOQOL Annotated Bibliography: October 1999 Version
    • Billington, R.1
  • 7
    • 0002297915 scopus 로고
    • A Developmental Perspective on Stress and Coping in Families of Autistic Children
    • J. Blacher (Ed.), New York: Academic Press
    • Bristol, M.M., and Schopler, E. (1984). A developmental perspective on stress and coping in families of autistic children. In J. Blacher (Ed.), Severely handicapped children and their families (pp. 91-141). New York: Academic Press.
    • (1984) Severely Handicapped Children and Their Families , pp. 91-141
    • Bristol, M.M.1    Schopler, E.2
  • 8
    • 10944269279 scopus 로고    scopus 로고
    • Mothers supporting children with autistic spectrum disorders: Social support, mental health status, and satisfaction with services
    • Bromley, J., Hare, D.J., Davison, K., and Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status, and satisfaction with services. Autism, 8, 409-423.
    • (2004) Autism , vol.8 , pp. 409-423
    • Bromley, J.1    Hare, D.J.2    Davison, K.3    Emerson, E.4
  • 9
    • 34247371872 scopus 로고    scopus 로고
    • The quality of life of family caregivers of adults with intellectual disabilities in Taiwan
    • Chou, Y.C., Lin, L.C., and Chang, A.L. (2007). The quality of life of family caregivers of adults with intellectual disabilities in Taiwan. Journal of Applied Research in Intellectual Disabilities, 20, 200-210.
    • (2007) Journal of Applied Research in Intellectual Disabilities , vol.20 , pp. 200-210
    • Chou, Y.C.1    Lin, L.C.2    Chang, A.L.3
  • 11
    • 0035060186 scopus 로고    scopus 로고
    • The subjective well-being of people caring for a family member with a severe disability at home: A review
    • Cummins, R.A. (2001). The subjective well-being of people caring for a family member with a severe disability at home: A review. Journal of Intellectual and Developmental Disability, 26, 83-100.
    • (2001) Journal of Intellectual and Developmental Disability , vol.26 , pp. 83-100
    • Cummins, R.A.1
  • 12
    • 0038505020 scopus 로고    scopus 로고
    • Mothers of children and adolescents with intellectual disability: Social and economic situation, mental health status, and the self-assessed social and psychological impact of the childs difficulties
    • Emerson, E. (2003). Mothers of children and adolescents with intellectual disability: Social and economic situation, mental health status, and the self-assessed social and psychological impact of the childs difficulties. Journal of Intellectual Disability Research, 47, 385-399.
    • (2003) Journal of Intellectual Disability Research , vol.47 , pp. 385-399
    • Emerson, E.1
  • 14
    • 0037828830 scopus 로고    scopus 로고
    • Child behavior problems and partner mental health as correlates of stress in mothers and fathers of children with autism
    • Hastings, R.P. (2003). Child behavior problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research, 47, 231-237.
    • (2003) Journal of Intellectual Disability Research , vol.47 , pp. 231-237
    • Hastings, R.P.1
  • 15
    • 27144479251 scopus 로고    scopus 로고
    • Coping strategies in mothers and fathers of preschool and school-age children with autism
    • Hastings, R.P., Kovshoff, H., Brown, T., Ward, N.J., Espinosa, F.D., and Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9, 377-391.
    • (2005) Autism , vol.9 , pp. 377-391
    • Hastings, R.P.1    Kovshoff, H.2    Brown, T.3    Ward, N.J.4    Espinosa, F.D.5    Remington, B.6
  • 16
    • 0035149216 scopus 로고    scopus 로고
    • Hope and social support as resilience factors against psychological distress of mothers who care for children with chronic physical conditions
    • Horton, T.V., and Wallander, J.L. (2001). Hope and social support as resilience factors against psychological distress of mothers who care for children with chronic physical conditions. Rehabilitation Psychology, 46, 382-339.
    • (2001) Rehabilitation Psychology , vol.46 , pp. 382-339
    • Horton, T.V.1    Wallander, J.L.2
  • 17
    • 0032703420 scopus 로고    scopus 로고
    • The diagnosis of autism and Aspergers syndrome: Findings from a survey of 770 families
    • Howlin, P., and Asgharian, A. (1999). The diagnosis of autism and Aspergers syndrome: Findings from a survey of 770 families. Developmental Medicine and Child Neurology, 41, 834-839.
    • (1999) Developmental Medicine and Child Neurology , vol.41 , pp. 834-839
    • Howlin, P.1    Asgharian, A.2
  • 18
    • 34547559214 scopus 로고    scopus 로고
    • Caregiver strain and factors associated with caregiver self-efficacy and quality of life in a community cohort with multiple sclerosis
    • DOI 10.1080/01443610600964141, PII 780761964
    • Khan, F., Pallant, J., and Brand, C. (2007). Caregiver strain and factors associated with caregiver self-efficacy and quality of life in a community cohort with multiple sclerosis. Disability and Rehabilitation, 29, 1241-1250. (Pubitemid 47189917)
    • (2007) Disability and Rehabilitation , vol.29 , Issue.16 , pp. 1241-1250
    • Khan, F.1    Pallant, J.2    Brand, C.3
  • 20
    • 0002846970 scopus 로고    scopus 로고
    • Treatment and Intervention Guidelines for Individuals with Asperger Syndrome
    • A. Klin, F. R. Volkmar, and S. S. Sparrow (Eds.), New York: Guilford.
    • Klin, A., and Volkmar, F.R. (2000). Treatment and intervention guidelines for individuals with Asperger syndrome. In A. Klin, F. R. Volkmar, and S. S. Sparrow (Eds.), Asperger syndrome (pp. 340-366). New York: Guilford.
    • (2000) Asperger Syndrome , pp. 340-366
    • Klin, A.1    Volkmar, F.R.2
  • 22
    • 0032753543 scopus 로고    scopus 로고
    • Psychiatric problems in individuals with autism, their parents and siblings
    • Lainhart, J.E. (1999). Psychiatric problems in individuals with autism, their parents and siblings. International Review of Psychiatry, 11, 278-298.
    • (1999) International Review of Psychiatry , vol.11 , pp. 278-298
    • Lainhart, J.E.1
  • 23
    • 0034967235 scopus 로고    scopus 로고
    • Risk and resistance factors in the adaptation in mothers of children with juvenile rheumatoid arthritis
    • Manuel, C.J. (2001). Risk and resistance factors in the adaptation in mothers of children with juvenile rheumatoid arthritis. Journal of Pediatrics and Psychology, 26, 237-246.
    • (2001) Journal of Pediatrics and Psychology , vol.26 , pp. 237-246
    • Manuel, C.J.1
  • 24
    • 70450250906 scopus 로고
    • Family Inventory of Resources for Management (FIRM)
    • H. McCubbin and A. Thompson (Eds.), Madison: University of Wisconsin System.
    • McCubbin, H.I., Comeau, J., and Harkins, J. (1981). Family Inventory of Resources for Management (FIRM). In H. McCubbin and A. Thompson (Eds.), Family assessment for research and practice (pp. 145-157). Madison: University of Wisconsin System.
    • (1981) Family Assessment for Research and Practice , pp. 145-157
    • McCubbin, H.I.1    Comeau, J.2    Harkins, J.3
  • 25
    • 0002827238 scopus 로고
    • The Family Crisis Oriented Personal Evaluation Scales (F-COPES)
    • H. I. McCubbin, A. I. Thompson, and M. A. McCubbin (Eds.), Madison: University of Wisconsin System.
    • McCubbin, H.I., Olson, D.H., and Larsen, A.S. (1981). The Family Crisis Oriented Personal Evaluation Scales (F-COPES). In H. I. McCubbin, A. I. Thompson, and M. A. McCubbin (Eds.), Family assessment: Resiliency, coping and adaptation- Inventories for research and practice (pp. 195-207). Madison: University of Wisconsin System.
    • (1981) Family Assessment: Resiliency, Coping and Adaptation- Inventories for Research and Practice , pp. 195-207
    • McCubbin, H.I.1    Olson, D.H.2    Larsen, A.S.3
  • 26
    • 0027569430 scopus 로고
    • The MOS 36-Item Short Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs
    • McHorney, C.A., Ware, J.E., and Raczek, A.E. (1993). The MOS 36-Item Short Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Medical Care, 31, 247-263.
    • (1993) Medical Care , vol.31 , pp. 247-263
    • McHorney, C.A.1    Ware, J.E.2    Raczek, A.E.3
  • 30
    • 0006253018 scopus 로고    scopus 로고
    • Advocacy, stress, and quality of life in parents of children with developmental disabilities
    • Nachshen, J.S. (2000). Advocacy, stress, and quality of life in parents of children with developmental disabilities. Developmental Disabilities Bulletin, 28 (1). 39-55.
    • (2000) Developmental Disabilities Bulletin , vol.28 , Issue.1 , pp. 39-55
    • Nachshen, J.S.1
  • 34
    • 18844386245 scopus 로고    scopus 로고
    • Adjustment in mothers of children with Asperger syndrome: An application of the double ABCX model of family adjustment
    • Pakenham, K.I., Samios, C., and Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome: An application of the double ABCX model of family adjustment. Autism, 9, 191-212.
    • (2005) Autism , vol.9 , pp. 191-212
    • Pakenham, K.I.1    Samios, C.2    Sofronoff, K.3
  • 35
    • 16844377898 scopus 로고    scopus 로고
    • Do you know i have Aspergers syndrome? Risks of a non-obvious disability
    • Portway, S.M., and Johnson, B. (2005). Do you know I have Aspergers syndrome? Risks of a non-obvious disability. Health, Risk and Society, 7, 73-83.
    • (2005) Health, Risk and Society , vol.7 , pp. 73-83
    • Portway, S.M.1    Johnson, B.2
  • 38
    • 38149144991 scopus 로고
    • Family leisure and social support: Relations with parenting stress and psychological well-being in Head Start parents
    • Roggman, L.A., Moe, S.T., Hart, A.D., and Forthun, L.F. (1994). Family leisure and social support: Relations with parenting stress and psychological well-being in Head Start parents. Early Childhood Research Quarterly, 9, 463-480.
    • (1994) Early Childhood Research Quarterly , vol.9 , pp. 463-480
    • Roggman, L.A.1    Moe, S.T.2    Hart, A.D.3    Forthun, L.F.4
  • 39
    • 0031487038 scopus 로고    scopus 로고
    • Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention
    • Sanders, J.L., and Morgan, S.B. (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention. Child and Family Behavior Therapy, 19, 15-32.
    • (1997) Child and Family Behavior Therapy , vol.19 , pp. 15-32
    • Sanders, J.L.1    Morgan, S.B.2
  • 40
    • 0028879431 scopus 로고
    • The Swedish SF-36R Health Survey: I. Evaluation of data quality, scaling assumption, reliability and construct validity across general populations in Sweden
    • Sullivan, M., Karlsson, J., and Ware, J.E. (1995). The Swedish SF-36R Health Survey: I. Evaluation of data quality, scaling assumption, reliability and construct validity across general populations in Sweden. Social Science Medicine Medical, 41, 1349-1358.
    • (1995) Social Science Medicine Medical , vol.41 , pp. 1349-1358
    • Sullivan, M.1    Karlsson, J.2    Ware, J.E.3
  • 42
    • 33748714731 scopus 로고    scopus 로고
    • Experience of strain among types of caregivers responsibilities for children with serious emotional and behavioral disorders
    • Taylor-Richardson, K.D., Heflinger, C.A., and Brown, T.N. (2006). Experience of strain among types of caregivers responsibilities for children with serious emotional and behavioral disorders. Journal of Emotional and Behavioral Disorders, 14, 157-168.
    • (2006) Journal of Emotional and Behavioral Disorders , vol.14 , pp. 157-168
    • Taylor-Richardson, K.D.1    Heflinger, C.A.2    Brown, T.N.3
  • 44
    • 10244237830 scopus 로고    scopus 로고
    • Contemporary outcome research and programming guidelines for Asperger syndrome and high-functioning autism
    • Tsatsanis, K.D., Foley, C., and Donehower, C. (2004). Contemporary outcome research and programming guidelines for Asperger syndrome and high-functioning autism. Topics in Language Disorders, 24, 249-259.
    • (2004) Topics in Language Disorders , vol.24 , pp. 249-259
    • Tsatsanis, K.D.1    Foley, C.2    Donehower, C.3
  • 45
    • 0002550338 scopus 로고    scopus 로고
    • Diagnostic Issues in Asperger Syndrome
    • A. Klin, F. R. Volkmar, and S. S. Sparrow (Eds.), New York: Guilford.
    • Volkmar, F.R., and Klin, A. (2000). Diagnostic issues in Asperger syndrome. In A. Klin, F. R. Volkmar, and S. S. Sparrow (Eds.), Asperger syndrome (pp. 25-71). New York: Guilford.
    • (2000) Asperger Syndrome , pp. 25-71
    • Volkmar, F.R.1    Klin, A.2
  • 46
    • 0028863755 scopus 로고
    • Perceived role restriction and adjustment of mothers of children with chronic physical disability
    • Wallander, J.L., and Venters, T.L. (1995). Perceived role restriction and adjustment of mothers of children with chronic physical disability. Journal of Pediatric Psychology, 20, 619-632.
    • (1995) Journal of Pediatric Psychology , vol.20 , pp. 619-632
    • Wallander, J.L.1    Venters, T.L.2
  • 48
    • 0344051948 scopus 로고
    • The SF-36« Health Survey: Development and use in mental health research and the IQOLA Project
    • Ware, J.E., and Gandek, B. (1993). The SF-36« Health Survey: Development and use in mental health research and the IQOLA Project. International Journal of Mental Health, 23, 49-73.
    • (1993) International Journal of Mental Health , vol.23 , pp. 49-73
    • Ware, J.E.1    Gandek, B.2
  • 50
    • 0026877917 scopus 로고
    • The MOS 36-Item Short-Form Health Survey (SF-36). I. Conceptual framework and item selection
    • Ware, J.E., Jr., and Sherbourne, C.D. (1992). The MOS 36-Item Short-Form Health Survey (SF-36). I. Conceptual framework and item selection. Medical Care, 30, 473-483.
    • (1992) Medical Care , vol.30 , pp. 473-483
    • Ware Jr., J.E.1    Sherbourne, C.D.2
  • 51
    • 0035350054 scopus 로고    scopus 로고
    • Grandmothers raising grandchildren: Are they at increased risk of health problems
    • Whitley, D.M., Kelley, S.J., and Sipe, T.A. (2001). Grandmothers raising grandchildren: Are they at increased risk of health problems ? Health and Social Work, 26, 105-114.
    • (2001) Health and Social Work , vol.26 , pp. 105-114
    • Whitley, D.M.1    Kelley, S.J.2    Sipe, T.A.3


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