Caregiver strain and factors associated with caregiver self-efficacy and quality of life in a community cohort with multiple sclerosis

Disability and Rehabilitation

Volumn 29, Issue 16, 2007, Pages 1241-1250

  Khan, Fary ^a   Pallant, Julie ^b   Brand, Caroline ^a  

^a ROYAL MELBOURNE HOSPITAL   (Australia)

^b SWINBURNE UNIVERSITY OF TECHNOLOGY   (Australia)

Author keywords

Caregiver strain; Multiple sclerosis; Quality of life; Self efficacy; Self rated burden

Indexed keywords

ADULT; AGE DISTRIBUTION; AGED; ANXIETY; ARTICLE; CAREGIVER BURDEN; CAREGIVER STRAIN INDEX; COGNITIVE DEFECT; COHORT ANALYSIS; CONTROLLED STUDY; CORRELATION ANALYSIS; DEPRESSION; DISEASE SEVERITY; EMOTIONAL STABILITY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MULTIPLE SCLEROSIS; PHYSICAL DISABILITY; PRIORITY JOURNAL; QUALITY OF LIFE; QUANTITATIVE ANALYSIS; SCORING SYSTEM; SELF CONCEPT; SLEEP DISORDER; STANDARDIZATION; STRESS; STRUCTURED INTERVIEW; TERTIARY HEALTH CARE; TIME MANAGEMENT;

ADULT; AGED; ANXIETY; CAREGIVERS; CHI-SQUARE DISTRIBUTION; CROSS-SECTIONAL STUDIES; DEPRESSION; FEMALE; HUMANS; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; QUALITY OF LIFE; QUESTIONNAIRES; SELF EFFICACY; STATISTICS, NONPARAMETRIC; STRESS, PSYCHOLOGICAL;

EID: 34547559214     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.1080/01443610600964141     Document Type: Article

References (42)

1. Dombovy, M. L. (1998) Multiple sclerosis and Parkinson's disease rehabilitation. Principles of neurological rehabilitation, pp. 173-197. McGraw-Hill, New York
2. Kraft, G. H. and Cui, J. Y. (2005) Multiple sclerosis. Physical medicine and rehabilitation: Principles and practice., pp. 1753-1769. Lippincott Williams & Wilkins, Philadelphia
3. Weinshenker, B. G., Bass, B., Rice, G. P., Noseworthy, J., Carriere, W. and Baskerville, J. (1989) The natural history of multiple sclerosis: A geographically based study 2. Predictive value of early clinical course. Brain, 112, pp. 1419-1428.
4. Bourdette, D. N., Prochazaka, A. V., Mitchell, W., Licari, P. and Burks, J. (1993) Health care costs of veterans with MS: Implications for the rehabilitation of MS. Arch Phys Med Rehabil, 73, pp. 25-31.
5. Aronson, K. J. (1997) Quality of Life among persons with multiple sclerosis and their caregivers. Neurology, 48, pp. 74-80.
6. Dewis, M ME and Niskala, H. (1992) Nurturing a valuable resource: Family caregivers in multiple sclerosis. Axon, pp. 87-94.
7. Pozzilli, C., Palmisano, L., Mainerop, C., Tomassini, V., Marinelli, F., Ristori, G., Gasperini, C., Fabiani, M. and Battaglia, M. A. (2004) Relationship between emotional distress in caregivers and health status in persons with multiple sclerosis. Mult Scler, 10, pp. 442-446.
8. Carton, H., Loos, R., Pacolet, J., Versieck, K. and Vlietinck, R. (2000) A quantitave study of unpaid caregiving in multiple sclerosis. Mult Scler, 6, pp. 274-279.
9. O'Brien, M. T. (1993) Multiple sclerosis: Stressors and coping strategies in spousal caregivers. J Community Health Nursing, 10, pp. 123-135.
10. Zeigler, E. A. (1987) Spouses of persons who are brain injured: Overlooked victims. J Rehabil, 53, pp. 50-53.
11. Parker, G. and Lawton, D. (1990) Further analysis of the 1985 General Household Survey Data on Informal care, University of York
12. Taylor, R., Ford, G. and Dunbar, M. (1995) The effects of caring on health: A community based longitudinal study. Soc Sci Med, 40, pp. 1407-1415.
13. Knight, R. G., Devereux, R. C. and Godfrey, H PD (1997) Psychosocial consequences of caring for a spouse with multiple sclerosis. J Clin Experim Neuropsychol, 19, pp. 7-19.
14. Chipchase, S. Y. and Lincoln, N. B. (2001) Factors associated with carer strain in carers of people with multiple sclerosis. Disabil Rehabil, 23:17, pp. 768-776.
15. O'Brien, R. A., Wineman, N. M. and Nealon, N. R. (1995) Correlates of the caregiving process in multiple sclerosis. Scholarly Inq Nursing Pract: Int J, 9, pp. 323-338.
16. Riazi, A., Thompson, A. J. and Hobart, J. C. (2004) Self-efficacy predicts self reported health measures in multiple sclerosis. Mult Scler, 10, pp. 61-66.
17. Bandura, A. (1977) Self-efficacy: Towards a unifying theory of behavior change. Psychological Rev, 84, pp. 191-215.
18. Kavanagh, D. J., Gooley, S. and Wilson, P. H. (1992) Prediction of adherence and control in diabetes. J Behav Med, 16, pp. 1-14.
19. Cunningham, A. J., Lockwood, G. A. and Cunningham, J. A. (1991) A relationship between perceived self-efficacy and quality of life in cancer patients. Patient Educ Counsel, 17, pp. 71-78.
20. Barnell, A. M. and Kavanagh, D. J. (1997) Prediction of psychological adjustment to multiple sclerosis. Soc Sci Med, 45, pp. 411-418.
21. Rigby, S. A., Domenech, C., Thornton, E. W., Tedman, S. and Young, C. A. (2003) Development and validation of a self-efficacy measure for people with multiple sclerosis: The Multiple sclerosis Self-Efficacy Scale. Mult Scler, 9, pp. 73-81.
22. Cockerill, R. and Warren, S. (1990) Care for caregivers: The needs of family members of MS patients. J Rehabil, 56, pp. 41-44.
23. Knight, R. G., Devereux, R. C. and Godfrey, H PD (1997) Psychosocial consequences of caring for a spouse with multiple sclerosis. J Clin Experim Neuropsychol, 19, pp. 7-19.
24. Schwartz, L. and Kraft, G. H. (1999) The role of spouse responses to disability and family environment in multiple sclerosis. Am J Phys Med Rehabil, 78:6, pp. 525-532.
25. Poser, C. M., Paty, D. W. and Scheinberg, L. (1983) New diagnostic criteria for Multiple Sclerosis: Guidelines for research protocols. Ann Neurol, 3, pp. 227-231.
26. Paty, D. W., Oger, J. J. and Kastrukoff, L. F. (1988) MRI in the diagnosis of MS: A prospective study with comparison of clinical evaluation, evoked potentials, oligoclonal banding and CT neurology. Neurology, 38:2, pp. 180-185.
27. Kurtzke, J. F. (1983) Rating neurological impairment in multiple sclerosis: An expanded disability status scale (EDSS). Neurology, 33, pp. 1444-1452.
28. Robinson, B. C. (1983) Validation of a caregiver strain index. J Gerontol, 38, pp. 344-348.
29. Van Exel, N JA, Reimer, W JM Scholte op, Rouwe, B. and Berg, B Van den (2004) Instruments for assessing the burden of informal care giving stroke patients in clinical practice: A comparison of CSI, CRA, SCQ and SRB. Clin Rehabil, 18, pp. 203-214.
30. Hawthorne, G. and Osbourne, R. (2005) Population norms and meaningful differences for the Assessment of Quality of Life (AQoL) measure. Austral NZ J Public Health, 29:2, pp. 136-142.
31. Khan, F., McPhail, T., Brand, C., Turner-Stokes, L. and Kilpatrick, T. (2006) Multiple sclerosis: Disability profile and quality of life in an Australian community cohort. Int J Rehabil Res, 29:2, pp. 87-96.
32. Bossher, R. J. and Smith, J. H. (1998) Confirmatory factor analysis of the general Self Efficacy Scale. Behav Res Ther, 36, pp. 339-343.
33. Sherer, M., Maddux, J. E., Mercadante, B. and Prentice-Dunn, S. (1982) The Self Efficacy scale: Construction and validation. Psychological Rep, 51, pp. 663-671.
34. Lovibond, S. H. and Lovibond, P. F. (1995) Manual for the Depression Anxiety Stress Scales, Psychology Foundation of Australia, Sydney, Australia
35. Aronson, K. J., Cleghorn, G. and Goldenberg, E. (1996) Assistance arrangements and use of services among persons with multiple sclerosis and their caregivers. Disabil Rehabil, 18:7, pp. 354-361.
36. (2005) Current medical literature. Remedica, Med Educ Publishing, 9:2, pp. 178-180.
37. Huston, P. G. (1990) Family care of the elderly and caregiver stress. Am J Family Pract, 42, pp. 671-676.
38. Niskala, H. and Dewis, M. (1989) Multiple sclerosis: The well being of family caregivers. Paper presented at the Registered Nurses Association of British Colombia Meeting Vancouver, Vancouver
39. Chwastiak, L., Ehde, D. M. and Gibbons, L. E. (2002) Depressive symptoms and severity of illness in multiple sclerosis: Epidemiological study of a large community sample. Am J Psychiatry, 159, pp. 1862-1868.
40. Rao, S. M., Huber, S. J. and Bornstein, R. A. (1992) Emotional changes with multiple sclerosis and Parkinson's disease. J Consult Clin Psychol, 60, pp. 369-378.
41. Schubert, D. S. and Foliart, R. H. (1993) Increased depression in multiple sclerosis patients. A meta analysis. Psychosomatics, 34:2, pp. 124-130.
42. Barnwell, A. M. and Kavanagh, D. J. (1997) Prediction of psychological adjustment to multiple sclerosis. Soc Sci Med, 45, pp. 411-418.