Paediatric health-related quality of life instrument for primary school children: Cross-cultural validation

Journal of Advanced Nursing

Volumn 59, Issue 5, 2007, Pages 542-550

  Laaksonen, Camilla ^a   Aromaa, Minna ^b   Heinonen, Olli J ^a   Suominen, Sakari ^a   Salanterä, Sanna ^a  

^a UNIVERSITY OF TURKU   (Finland)

^b Turku Municipal Health Care and Social Services   (Finland)

Author keywords

Children; Cross cultural validation; Finnish; Health related quality of life; Measurement tool; Nursing; Pediatric Quality of Life InventoryTM

Indexed keywords

ARTICLE; CHILD; CULTURAL FACTOR; EVALUATION; FEMALE; FINLAND; HEALTH PROMOTION; HEALTH STATUS; HUMAN; INFORMATION PROCESSING; LANGUAGE; MALE; METHODOLOGY; PARENT; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; REPRODUCIBILITY;

CHILD; CULTURAL CHARACTERISTICS; DATA COLLECTION; FEMALE; FINLAND; HEALTH PROMOTION; HEALTH STATUS; HUMANS; MALE; PARENTS; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; TRANSLATING;

EID: 34547702763     PISSN: 03092402     EISSN: 13652648     Source Type: Journal    
DOI: 10.1111/j.1365-2648.2007.04347.x     Document Type: Article

References (39)

1. Apajasalo M. (1997) Measuring Health-related Quality of Life of School-aged Children. University of Helsinki, Faculty of Medicine, Helsinki.
2. Apajasalo M., Sintonen H., Holmberg C., Sinkkonen J., Aalberg V., Pihko H., Siimes M.A., Kaitila I., Mäkelä A., Rantakari K., Anttila R. Rautonen J. (1996a) Quality of life in early adolescent: a sixteen dimensional health-related measure (16D). Quality of Life Research 5 (2 532 538.
3. Apajasalo M., Rautonen J., Holmberg C., Sinkkonen J., Aalberg V., Pihko H., Siimes M.A., Kaitila I., Mäkelä A., Erkkilä K. Sintonen H. (1996b) Quality of life in pre-adolescence: a 17-dimensional health-related measure (17D). Quality of Life Research 5 (6 532 538.
4. Bastiaansen D., Koot H.M., Bongers I.L., Varni J.W. Verhulst F.C. (2004) Measuring quality of life in children referred for psychiatric problems: psychometric properties of the PedsQL 4.0 generic core scales. Quality of Life Research 13 (2 489 495.
5. Beaton D.E., Bombardier C. Guillemin F. Ferraz M.B. (2000) Guidelines for the process of cross-cultural adaptation of self-report measures. Spine 25 (24 3186 3191.
6. Bowden A. Fox-Rushby J.A. (2003) A systematic and critical review of the process of translation and adaptation of generic health-related quality of life measures in Africa, Asia, Eastern Europe, the Middle East, South Africa. Social Science and Medicine 57 (7 1289 1306.
7. Bullinger M., Alonso J., Apolone G., Leplège A., Sulliven M., Wood-Dauphnee S., Gandek B., Wagner A., Aaronson N., Bech P., Fukuhara S., Kaasa S. Ware Jr. J.E. (1998) Translating health status questionnaires and evaluating their quality: the IQOLA project approach. Journal of Clinical Epidemiology 51 (11 913 923.
8. Chang A.M., Chau J.P.C. Holroyd E. (1999) Translation of questionnaires and issues of equivalence. Journal of Advanced Nursing 29 (2 316 322.
9. CHQ. (2004) Retrieved from http://www.healthact.com/chg/ on 15 August 2006.
10. Corless I.B., Nicholas P.K. Nokes K.M. (2001) Issues in cross-cultural quality of life research. Journal of Nursing Scholarship 33 (1 15 20.
11. DeMaio T.J. Rothgeb J.M. (1996) Cognitive interviewing techniques. In the lab and in the field. In Answering Questions. Methodology for Determining Cognitive and Communicative Processes in Survey Rese (Schwarz N. Sudman S., eds Jossey-Bass Publishers, San Francisco, pp. 177 195.
12. Eiser C. Morse R. (2001) Quality of life measures in chronic diseases of childhood. Health Technology Assessment 5 (4). Retrieved from http://www.ncchta.org on 5 October 2006.
13. Fayers P. Machin D. (2000) Quality of Life Assessment, Analysis and Interpretation. John Wiley & Sons, Ltd, UK.
14. Felder-Puig R., Frey E., Proksch K., Varni J.W., Gadner H. Topf R. (2004) Validation of the German version of the pediatric quality of life inventory (the PedsQL) in childhood cancer patients off treatment and children with epilepsy. Quality of Life Research 13 (1 223 234.
15. Guyatt G.H., Feeny D.H. Patrick D.L. (1993) Measuring health-related quality of life. Annals of International Medicine 118 (8 622 629.
16. Herdman M., Fox-Roshby J. Badia X. (1997) "Equivalence" and the translation and adaptation of health-related quality of life questionnaires. Quality of Life Research 6 (3 237 247.
17. Hilton A. Skrutkowski M. (2002) Translating instruments into other languages: development and testing processes. Cancer Nursing 25 (1 1 7.
18. Lindström B. Kohler L. (1991) Youth, disability and quality of life. Pediatrician 18 (2 121 128.
19. Maneesriwongul W. Dixon J.K. (2004) Instrument translation process: a methods review. Methodological issues in nursing research. Journal of Advanced Nursing 48 (2 175 186.
20. Pelkonen P., Ruperto N., Honkanen V., Hannula S., Savolainen A. Lahdenne P. (2001) The Finnish version of the childhood health assessment questionnaire (CHAQ) and the child health questionnaire (CHQ). Pediatric Rheumatology International Trials Organisation. Clinical Expert of Rheumatology 19 (4 55 59.
21. Powers S.W., Patton S.R., Hommel K.A. Hershey A.D. (2004) Quality of life in pediatric migrane: characterization of age-related effects using the PedsQL 4.0. Cephalalgia 24 (2 120 127.
22. Rajmil L., Herdman M., Fernandez de Sanmamed M.-J., Detmar S., Bruil J., Ravens-Sieberer U., Bullinger M., Simeoni M.-C., Auquier P. Kidscreen Group. (2004) Generic health-related quality of life instruments in children and adolescents: a qualitative analysis of content. Journal of Adolescent Health 34 (1 37 45.
23. Reinfjell T., Diseth T.H., Veenstra M. Vikan A. (2006) Measurinh health-related quality of life in young adolescents: reliability and validity in the Norwegian version of the pediatric quality of life inventory 4.0 (the PedsQL) Generic Core Scales. Health and Quality of Life Outcomes 4, 61 Retrieved from http://www.hqlo.com/content/4/1/61 on 6 October 2006.
24. Rew L., Horner S.D., Riesch L. Cauvin R. (2004) Computer-assisted survey interviewing of school-age children. Advances in Nursing Science 27 (2 129 137.
25. Sawyer M.G., Whitham J.N., Roberton D.M., Taplin J.E., Varni J.W. Baghurst P.A. (2004) The relationship between health-related quality of life, pain and coping strategies in juvenile idiopathic arthritis. Rheumatology (Oxford) 43 (3 325 330.
26. Schools on the Move (n.d.) Retrieved from http://www.koulutliikkeelle.fi on 31 July 2006.
27. Sousa K.H. Williamson A. (2003) Symptom status and health-related quality of life: clinical relevance. Journal of Advanced Nursing 42 (6 571 577.
28. The PedsQLTM 4.0 (n.d.) Pediatric Quality of Life Inventory. Retrieved from http://www.pedsql.org on 6 October 2006.
29. Theunissen N.C.M., Vogels T.G.C., Koopman H.M., Verrips G.H.W., Zwinderman K.A.H., Verloove-Vanhorick S.P. Wit J.M. (1998) The proxy problem: child report versus parent report in health-related quality of life research. Quality of Life Research 7 (5 387 397.
30. Upton P., Eiser C., Cheung I., Hutchings H.A., Jenney M., Maddocks A., Russell I.T. Williams J.G. (2005) Measurement properties of the UK-English version of the Pediatric Quality of Life InventoryTM 4.0 (the PedsQLTM) Generic Core Scales. Health and Quality of Life Outcomes 3 (1 22.
31. Uzark K., Jones K., Burwinkle T.M. Varni J.W. (2003) The Pediatric Quality of Life InventoryTM in children with heart disease. Progress in Pediatric Cardiology 18, 141 148.
32. Varni J.W., Seid M. Rode C.A. (1999) The PedsQLTM. Measurement model for the Pediatric Quality of Life InventoryTM. Medical Care 37 (2 126 139.
33. Varni J.W., Seid M. Kurtin P.S. (2001) The PedsQLTM 4.0: reliability and validity of the Pediatric Quality of Life InventoryTM version 4.0 Generic Core Scales in healthy and patient populations. Medical Care 39 (8 800 812.
34. Varni J.W., Burwinkle T.M., Katz E.R., Meeske K. Dickinson P. (2002a) The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale and cancer module. Cancer 94 (7 2090 2106.
35. Varni J.W., Seid M., Knight T.S., Uzark K. Szer I.S. (2002b) The PedsQLTM 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decision-making. Journal of Behavioral Medicine 25 (2 175 193.
36. Varni J.W., Burwinkle T.M., Jacobs J.R., Gottschalk M., Kaufman F. Jones K.L. (2003a) The PedsQLTM in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life InventoryTM Generic Core Scales and type 1 diabetes module. Diabetes Care 26 (3 631 637.
37. Varni J.W., Burwinkle T.M., Seid M. Skarr D. (2003b) The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability and validity. Ambulatory Pediatrics 3 (6 329 341.
38. Varni J.W., Burwinkle T.M. Seid M. (2006) The PedsQLTM 4.0 as a school population health measure: feasibility, reliability, and validity. Quality of Life Research 15 (2 203 215.
39. World Health Organization (1948) Constitution of the World Health Organization Basic Document. World Health Organization, Geneva, Switzerland.