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Volumn 47, Issue 4, 2005, Pages 281-285

Subjective quality of life in children with intellectual impairment - How can it be assessed?

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; BEHAVIOR DISORDER; CEREBRAL PALSY; CHILD; CHILD BEHAVIOR; CHILDHOOD DISEASE; COGNITION; COMMUNICATION DISORDER; COMPETENCE; FUNCTIONAL ASSESSMENT; HUMAN; INDEPENDENCE; INTELLECTUAL IMPAIRMENT; INTELLIGENCE QUOTIENT; INTERVIEW; PATIENT SATISFACTION; PHYSICAL ACTIVITY; PRIORITY JOURNAL; QUALITY OF LIFE; SELF REPORT; SOCIAL INTERACTION; WELLBEING;

EID: 20144387558     PISSN: 00121622     EISSN: None     Source Type: Journal    
DOI: 10.1017/S0012162205000526     Document Type: Article
Times cited : (72)

References (43)
  • 1
    • 0001954021 scopus 로고    scopus 로고
    • Quality of life studies: Definitions and conceptual issues
    • Spilker B, editor. 2nd edn. Philadelphia: Lippincott Raven
    • Schipper H, Clinch JJ, Olweny CLM. (1996) Quality of life studies: definitions and conceptual issues. In: Spilker B, editor. Quality of Life and Pharmacoeconomics in Clinical Trials. 2nd edn. Philadelphia: Lippincott Raven. p 11-23.
    • (1996) Quality of Life and Pharmacoeconomics in Clinical Trials , pp. 11-23
    • Schipper, H.1    Clinch, J.J.2    Olweny, C.L.M.3
  • 2
    • 0002972226 scopus 로고
    • Quality of life from a longitudinal research perspective
    • Schalock RL, editor. Washington DC: American Association on Mental Retardation
    • Edgerton RB. (1990) Quality of life from a longitudinal research perspective. In: Schalock RL, editor. Quality of life: Perspectives and Issues. Washington DC: American Association on Mental Retardation. p 149-160.
    • (1990) Quality of Life: Perspectives and Issues , pp. 149-160
    • Edgerton, R.B.1
  • 4
    • 0036232811 scopus 로고    scopus 로고
    • Quality of life of a population of 54 ambulatory children with cerebral palsy. A cross-sectional study
    • Hodgkinson I, d'Anjou MC, Dazord A, Berard C. (2002) Quality of life of a population of 54 ambulatory children with cerebral palsy. A cross-sectional study. Ann Readapt Med Phys 45: 154-158.
    • (2002) Ann. Readapt. Med. Phys. , vol.45 , pp. 154-158
    • Hodgkinson, I.1    d'Anjou, M.C.2    Dazord, A.3    Berard, C.4
  • 7
    • 0036247063 scopus 로고    scopus 로고
    • Neuroimpairments, activity limitations, and participation restrictions in children with cerebral palsy
    • Beckung E, Hagberg G. (2002) Neuroimpairments, activity limitations, and participation restrictions in children with cerebral palsy. Dev Med Child Neurol 44: 309-316.
    • (2002) Dev. Med. Child Neurol. , vol.44 , pp. 309-316
    • Beckung, E.1    Hagberg, G.2
  • 9
    • 0037332584 scopus 로고    scopus 로고
    • Health status of Australian children with mild to severe cerebral palsy: Cross-sectional survey using the Child Health Questionnaire
    • Wake M, Salmon L, Reddihough D. (2003) Health status of Australian children with mild to severe cerebral palsy: cross-sectional survey using the Child Health Questionnaire. Dev Med Child Neurol 45: 194-199.
    • (2003) Dev. Med. Child Neurol. , vol.45 , pp. 194-199
    • Wake, M.1    Salmon, L.2    Reddihough, D.3
  • 11
    • 0037841933 scopus 로고    scopus 로고
    • Assessing emotional and behavioural problems in children with intellectual disability: Revisiting the factor structure of the developmental behavior checklist
    • Dekker MC, Nunn RJ, Einfeld SE, Tonge BJ, Koot HM. (2002) Assessing emotional and behavioural problems in children with intellectual disability: revisiting the factor structure of the developmental behavior checklist.J Autism Dev Disord 32: 601-610.
    • (2002) J. Autism. Dev. Disord. , vol.32 , pp. 601-610
    • Dekker, M.C.1    Nunn, R.J.2    Einfeld, S.E.3    Tonge, B.J.4    Koot, H.M.5
  • 12
    • 0030997094 scopus 로고    scopus 로고
    • Self-reported fears in children with and without mental retardation
    • Ramirez SZ, Kratochwill TR. (1997) Self-reported fears in children with and without mental retardation. Ment Retard 35: 83-92.
    • (1997) Ment. Retard. , vol.35 , pp. 83-92
    • Ramirez, S.Z.1    Kratochwill, T.R.2
  • 13
    • 0030070591 scopus 로고    scopus 로고
    • Parent- And self-ratings of anxiety in children with mental retardation: Agreement levels and test-retest reliability
    • Sarphare G, Aman MG. (1996) Parent- and self-ratings of anxiety in children with mental retardation: agreement levels and test-retest reliability. Res Dev Disabil 17: 27-39.
    • (1996) Res. Dev. Disabil. , vol.17 , pp. 27-39
    • Sarphare, G.1    Aman, M.G.2
  • 14
    • 84971937243 scopus 로고
    • Children's production and comprehension of questions
    • Tyack D, Ingram D. (1977) Children's production and comprehension of questions. J Child Lang 4: 211-224.
    • (1977) J. Child Lang , vol.4 , pp. 211-224
    • Tyack, D.1    Ingram, D.2
  • 16
    • 0006152844 scopus 로고
    • Research interviews with people with mental handicaps
    • Atkinson D. (1988) Research interviews with people with mental handicaps. Ment Hand Res 1: 75-90.
    • (1988) Ment. Hand Res. , vol.1 , pp. 75-90
    • Atkinson, D.1
  • 18
    • 0344885669 scopus 로고
    • The use of analogue scales and personal questionnaires for interviewing people with learning disabilities
    • Dagnan D, Ruddick L. (1995) The use of analogue scales and personal questionnaires for interviewing people with learning disabilities. Clin Psychol Forum 79: 21-24.
    • (1995) Clin. Psychol. Forum. , vol.79 , pp. 21-24
    • Dagnan, D.1    Ruddick, L.2
  • 19
    • 0034078427 scopus 로고    scopus 로고
    • Consumer based quality of life assessment: A path model of perceived satisfaction
    • Schalock RL, Bonham GS, Marchand CB. (2000) Consumer based quality of life assessment: a path model of perceived satisfaction. Eval Prog Plan 23: 77-87.
    • (2000) Eval. Prog. Plan. , vol.23 , pp. 77-87
    • Schalock, R.L.1    Bonham, G.S.2    Marchand, C.B.3
  • 20
    • 0037303656 scopus 로고    scopus 로고
    • Life satisfaction of people with intellectual disability living in community residences: Perceptions of the residents, their parents and staff members
    • Schwartz C, Rabinovitz S. (2003) Life satisfaction of people with intellectual disability living in community residences: perceptions of the residents, their parents and staff members. J Intellect Disabil Res 47: 75-84.
    • (2003) J. Intellect. Disabil. Res. , vol.47 , pp. 75-84
    • Schwartz, C.1    Rabinovitz, S.2
  • 21
    • 0000689257 scopus 로고
    • The pictorial scale of perceived competence and social acceptance for young children
    • Harter S, Pike K. (1984) The pictorial scale of perceived competence and social acceptance for young children. Child Dev 48: 80-87.
    • (1984) Child Dev. , vol.48 , pp. 80-87
    • Harter, S.1    Pike, K.2
  • 22
    • 0029903323 scopus 로고    scopus 로고
    • Questions and answers to psychological assessment schedules: Hidden troubles in 'quality of life' interviews
    • Antaki C, Rapley M. (1996) Questions and answers to psychological assessment schedules: hidden troubles in 'quality of life' interviews.J Intellect Disabil Res 40: 421-437.
    • (1996) J. Intellect. Disabil. Res. , vol.40 , pp. 421-437
    • Antaki, C.1    Rapley, M.2
  • 23
    • 0001717479 scopus 로고    scopus 로고
    • Interviewing persons with a learning disability: How setting lower standards may inflate well-being scores
    • Antaki C. (1999) Interviewing persons with a learning disability: how setting lower standards may inflate well-being scores. Qual Health Res 9: 437-454.
    • (1999) Qual. Health Res. , vol.9 , pp. 437-454
    • Antaki, C.1
  • 24
    • 0036181672 scopus 로고    scopus 로고
    • Subjective judgements of quality of life: A comparison study between people with intellectual disability and those without disability
    • Hensel E, Rose J, Kroese BS, Banks-Smith J. (2002) Subjective judgements of quality of life: a comparison study between people with intellectual disability and those without disability. J lntellect Disabil Res 46: 95-107.
    • (2002) J. Intellect. Disabil. Res. , vol.46 , pp. 95-107
    • Hensel, E.1    Rose, J.2    Kroese, B.S.3    Banks-Smith, J.4
  • 25
    • 0026055758 scopus 로고
    • Disease experience and psychosocial adjustment in children with juvenile rheumatoid arthritis: Children's versus mothers' reports
    • Ennett ST, DeVellis BM, Earp JA, Kredich D, Warren RW, Wilhelm CL. (1991) Disease experience and psychosocial adjustment in children with juvenile rheumatoid arthritis: children's versus mothers' reports.J Pediatr Psychol l6: 557-568.
    • (1991) J. Pediatr. Psychol. , vol.16 , pp. 557-568
    • Ennett, S.T.1    DeVellis, B.M.2    Earp, J.A.3    Kredich, D.4    Warren, R.W.5    Wilhelm, C.L.6
  • 26
    • 0029553045 scopus 로고
    • Adjustment of children with newly diagnosed cancer: Cross-informant variance
    • Varni JW, Katz ER, Colegrove R, Dolgin M. (1995) Adjustment of children with newly diagnosed cancer: cross-informant variance.J Psychosoc Oncol 13: 23-38.
    • (1995) J. Psychosoc. Oncol. , vol.13 , pp. 23-38
    • Varni, J.W.1    Katz, E.R.2    Colegrove, R.3    Dolgin, M.4
  • 27
    • 0033374144 scopus 로고    scopus 로고
    • Health-related quality of life in childhood cancer: Discrepancy in parent-child reports
    • Levi RB, Drotar D. (1999) Health-related quality of life in childhood cancer: discrepancy in parent-child reports. Int J Cancer Suppl 12: 58-64.
    • (1999) Int. J. Cancer Suppl. , vol.12 , pp. 58-64
    • Levi, R.B.1    Drotar, D.2
  • 28
    • 0033384060 scopus 로고    scopus 로고
    • Health-related quality of life in pediatric bone marrow transplant survivors: According to whom?
    • Parsons SK, Barlow SE, Levy SL, Surpan SE, Kaplan SH. (1999) Health-related quality of life in pediatric bone marrow transplant survivors: according to whom? Int J Cancer Suppl 12: 46-51.
    • (1999) Int. J. Cancer Suppl. , vol.12 , pp. 46-51
    • Parsons, S.K.1    Barlow, S.E.2    Levy, S.L.3    Surpan, S.E.4    Kaplan, S.H.5
  • 29
    • 0035077887 scopus 로고    scopus 로고
    • Quality-of-life measures in chronic diseases of childhood
    • Eiser C, Morse R. (2001) Quality-of-life measures in chronic diseases of childhood. Health Technol Assess 5: 55-63.
    • (2001) Health Technol. Assess. , vol.5 , pp. 55-63
    • Eiser, C.1    Morse, R.2
  • 30
    • 1642474363 scopus 로고    scopus 로고
    • Differences between adolescents' and parents' reports of health-related quality of life in cystic fibrosis
    • Britto MT, Kotagal UR, Chenier T, Tsevat J, Atherton HD, Wilmott RW. (2004) Differences between adolescents' and parents' reports of health-related quality of life in cystic fibrosis. Pediatr Pulmonol 37: 165-171.
    • (2004) Pediatr. Pulmonol. , vol.37 , pp. 165-171
    • Britto, M.T.1    Kotagal, U.R.2    Chenier, T.3    Tsevat, J.4    Atherton, H.D.5    Wilmott, R.W.6
  • 32
    • 0002446926 scopus 로고    scopus 로고
    • Measuring health outcomes in pediatric populations: Issues in psychometrics and application
    • Spilker B, editor. 2nd edn. Philadelphia: Lippincott-Raven
    • Landgraf JM, Abetz LN. (1996) Measuring health outcomes in pediatric populations: issues in psychometrics and application. In: Spilker B, editor. Quality of Life and Pharmacoeconomics in Clinical Trials. 2nd edn. Philadelphia: Lippincott-Raven. p 793-802.
    • (1996) Quality of Life and Pharmacoeconomics in Clinical Trials , pp. 793-802
    • Landgraf, J.M.1    Abetz, L.N.2
  • 33
    • 0033796268 scopus 로고    scopus 로고
    • The parent-form Child Health Questionnaire in Australia: Comparison of reliability, validity, structure, and norms
    • Waters E, Salmon L, Wake M. (2000) The parent-form Child Health Questionnaire in Australia: comparison of reliability, validity, structure, and norms. J Pediatr Psychol 25: 381-391.
    • (2000) J. Pediatr. Psychol. , vol.25 , pp. 381-391
    • Waters, E.1    Salmon, L.2    Wake, M.3
  • 34
    • 0033043115 scopus 로고    scopus 로고
    • Proxy respondents and the reliability of the Quality of Life Questionnaire Empowerment factor
    • Stancliffe RJ. (1999) Proxy respondents and the reliability of the Quality of Life Questionnaire Empowerment factor. J Intellect Disabil Res 43 185-193.
    • (1999) J. Intellect. Disabil. Res. , vol.43 , pp. 185-193
    • Stancliffe, R.J.1
  • 36
    • 0024245558 scopus 로고
    • Patient-proxy response comparability on measures of patient health and functional status
    • Magaziner J, Simonsick E, Kashner T, Hebel J. (1988) Patient-proxy response comparability on measures of patient health and functional status. J Clin Epidemiol 41: 1065-1074.
    • (1988) J. Clin. Epidemiol. , vol.41 , pp. 1065-1074
    • Magaziner, J.1    Simonsick, E.2    Kashner, T.3    Hebel, J.4
  • 37
    • 0000621642 scopus 로고    scopus 로고
    • Measuring health-related quality of life in pediatric populations: Conceptual issues
    • Spilker B, editor. 2nd edn. Philadelphia: Lippincott-Raven
    • Rosenbaum P, Saigal S. (1996) Measuring health-related quality of life in pediatric populations: conceptual issues. In: Spilker B, editor. Quality of Life and Pharmacoeconomics in Clinical Trials 2nd edn. Philadelphia: Lippincott-Raven. p 785-792.
    • (1996) Quality of Life and Pharmacoeconomics in Clinical Trials , pp. 785-792
    • Rosenbaum, P.1    Saigal, S.2
  • 38
    • 0021164890 scopus 로고
    • Values, preferences and decisions in the care of children with developmental disabilities
    • Cadman D, Goldsmith C, Bashim P. (1984) Values, preferences and decisions in the care of children with developmental disabilities. J Dev Behav Pediatr 5: 60-64.
    • (1984) J. Dev. Behav. Pediatr. , vol.5 , pp. 60-64
    • Cadman, D.1    Goldsmith, C.2    Bashim, P.3
  • 39
    • 0030769939 scopus 로고    scopus 로고
    • Children's quality of life measures
    • Eiser C. (1997) Children's quality of life measures. Arch Dis Child 77: 350-354.
    • (1997) Arch. Dis. Child , vol.77 , pp. 350-354
    • Eiser, C.1
  • 40
    • 0030817215 scopus 로고    scopus 로고
    • Defining and applying the concept of quality of life
    • Felce D. (1997) Defining and applying the concept of quality of life.J Intellect Disabil Res 41: 126-135.
    • (1997) J. Intellect. Disabil. Res. , vol.41 , pp. 126-135
    • Felce, D.1
  • 41
    • 0035597295 scopus 로고    scopus 로고
    • Is satisfaction a valid concept in the assessment of quality of life of people with intellectual disabilities? A review of the literature
    • Hensel E. (2001) Is satisfaction a valid concept in the assessment of quality of life of people with intellectual disabilities? A review of the literature.J Appl Res Intellect Dis 14: 311-326.
    • (2001) J. Appl. Res. Intellect. Dis. , vol.14 , pp. 311-326
    • Hensel, E.1
  • 42
    • 0036055247 scopus 로고    scopus 로고
    • Quality of life measurement and people with intellectual disabilities: A reply to Cummins
    • Hatton C, Ager A. (2002) Quality of life measurement and people with intellectual disabilities: a reply to Cummins. J Appl Res Intellect Dis 15: 254-260.
    • (2002) J. Appl. Res. Intellect. Dis. , vol.15 , pp. 254-260
    • Hatton, C.1    Ager, A.2
  • 43
    • 0029532551 scopus 로고
    • On the trail of the gold standard for subjective well-being
    • Cummins RA. (1995) On the trail of the gold standard for subjective well-being. Social Indic Res 35: 179-200.
    • (1995) Social Indic. Res. , vol.35 , pp. 179-200
    • Cummins, R.A.1


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