Patient involvement in health research: A contribution to a systematic review on the effectiveness of treatments for degenerative ataxias

Social Science and Medicine

Volumn 69, Issue 6, 2009, Pages 920-925

  Serrano Aguilar, P ^a   Trujillo Martin M M ^b   Ramos Goni J M ^b   Mahtani Chugani, V ^a   Perestelo Perez L ^a   Posada de la Paz, M ^c  

^a CIBER EPIDEMIOLOGÍA Y SALUD PÚBLICA CIBERESP   (Spain)

^b Canary Islands Foundation for Health and Research (FUNCIS)   (Spain)

^c INSTITUTO DE SALUD CARLOS III   (Spain)

Author keywords

Ataxia; Patient participation; Rare diseases; Research; Spain; Systematic review; Treatment outcome

Indexed keywords

DISEASE CONTROL; DISEASE TREATMENT; HEALTH CARE; QUALITY OF LIFE; RESEARCH;

ADULT; ARTICLE; ATAXIA; CLINICAL EFFECTIVENESS; DAILY LIFE ACTIVITY; DEGENERATIVE DISEASE; DELPHI STUDY; E-MAIL; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL RESEARCH; PATIENT ATTITUDE; PATIENT PARTICIPATION; PHYSIOTHERAPY; PSYCHOSOCIAL CARE; QUALITY OF LIFE; RARE DISEASE; SELF CONCEPT; SELF ESTEEM; SOCIAL INTERACTION; SPAIN; TREATMENT OUTCOME; VISUAL DISORDER;

ADULT; ATAXIA; ATTITUDE TO HEALTH; DELPHI TECHNIQUE; DISEASE PROGRESSION; ELECTRONIC MAIL; FEMALE; HUMANS; MALE; MIDDLE AGED; PATIENT PARTICIPATION; QUESTIONNAIRES; RESEARCH DESIGN; REVIEW LITERATURE AS TOPIC; TREATMENT OUTCOME;

EURASIA; EUROPE; SOUTHERN EUROPE; SPAIN;

EID: 69549128318     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2009.07.005     Document Type: Article

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