Genetic counseling - Stress, coping, and the empowerment perspective

Journal of Genetic Counseling

Volumn 8, Issue 6, 1999, Pages 345-357

  McConkie Rosell, Allyn ^a   Sullivan, Jennifer A ^a  

^a DUKE UNIVERSITY MEDICAL CENTER   (United States)

Author keywords

Control; Counseling interventions; Empowerment; Nondirectiveness; Theory of stress and coping

Indexed keywords

ADAPTIVE BEHAVIOR; COPING BEHAVIOR; DECISION MAKING; EMOTIONAL STRESS; GENETIC COUNSELING; HUMAN; PATIENT COUNSELING; REVIEW; THEORY;

EID: 0033378563     PISSN: 10597700     EISSN: None     Source Type: Journal    
DOI: 10.1023/A:1022919325772     Document Type: Review

References (47)

1. Bandura A, Wood R (1989) Effect of perceived controllability and performance standards on self-regulation of complex decision making. J Pers Soc Psychol 56:805-814.
2. Bartels DM, LeRoy BS, McCarthy P, Caplan AL (1997) Nondirectiveness in genetic counseling: a survey of practitioners. Am J Med Genet 72:172-179.
3. Baum A, Friedman AL, Zadowski SG (1997) Stress and genetic testing for disease risk. Health Psychol 16:8-19.
4. Berkenstadt M, Shiloh S, Garkai G, Katznelson MB-M, Goldman B (1999) Perceived personal control (ppc): A new concept in measuring outcome of genetic counseling. Am J Med Genet 82:53-59.
5. Bernhardt B (1997) Empirical evidence that genetic counseling is directive: Where do we go from here? Am J Hum Genet 60:17-20.
6. Biesecker BB (1998) Future directions in genetic counseling: Practical and ethical considerations. Kennedy Inst Ethics J 8:145-160.
7. Botkin JR (1995) Genetic counseling: making room for beneficence. J Clin Ethics 6:182-184.
8. Brunger F, Lippman A (1995) Resistance and adherence to the norms of genetic counseling. J Genet Counsel 4:151-167.
9. Burr W, Klien S (1994) A systems model of family stress. In: Burr W, Klien S (eds) Reexamining Family Stress. Thousand Oaks, CA: Sage, pp 30-50.
10. Caplan AL (1993) Neutrality is not morality: the ethics of genetic counseling. In: Bartels D, LeRoy B, Caplan A (eds) Prescribing Our Future: Ethical Challenges in Genetic Counseling. New York: Aldine DeGruyter, pp 149-165.
11. Clarke AJ (1997) The process of genetic counseling: Beyond non-directiveness. In: Harper PS, Clarke AJ (eds) Genetics Society and Clinical Practice. Herndon, VA: BIOS Scientific Publishers, pp 179-200.
12. Dunst CJ, Paget KD (1991) Parent-professional partnerships and family empowerment. In: Fine M (ed) Collaboration with Parents of Exceptional Children. Brandon, VT: Clinical Psychology, pp 25-44.
13. Fine BA (1993) The evolution of nondirectiveness in genetic counseling and implications of the human genome project. In: Bartels D, LeRoy B, Caplan A (eds) Prescribing Our Future: Ethical Challenges in Genetic Counseling. New York: Aldine DeGruyter, pp 101-117.
14. Folkman S (1984) Personal control and stress and coping processes: a theoretical analysis. J Pers Soc Psychol 46:839-852.
15. Folkman S, Lazarus RS, Gruen RJ, DeLongis A (1986) Appraisal, coping, health status, and psychological symptoms. J Pers Soc Psychol 50:571-579.
16. Gervais KG (1993) Objectivity, value neutrality, and nondirectiveness in genetic counseling. In: Bartels D, LeRoy B, Caplan A (eds) Prescribing Our Future: Ethical Challenges in Genetic Counseling. New York: Aldine DeGruyter, pp 119-130.
17. Gutierrez LM (1994) Beyond coping: An empowerment perspective on stressful life events. J Social Soc Welfare 21:201-219.
18. Headings VE (1997) Revisiting foundations of autonomy and beneficence in genetic counseling. Genet Counsel 8:291-294.
19. Heaney CA, Israel BA (1997) Social networks and social support. In: Glanz K, Lewis FM, Rimer BK (eds) Health Behavior and Health Education: Theory, Research, and Practice, 2nd ed. San Francisco: Jossey-Bass, pp 179-205.
20. Kenen RH, Smith ACM (1995) Genetic counseling for the next 25 years: Models for the future. J Genet Counsel 4:115-124.
21. Kessler S (1984) Psychologic responses to stresses in genetic disease. Birth Defects Orig Artic Ser 20:114-117.
22. Kessler S (1992) Psychological aspects of genetic counseling. VIII. Suffering and countertransference. J Genet Counsel 1:303-308.
23. Kessler S (1997a) Psychological aspects of genetic counseling. IX. Teaching and counseling. J Genet Counsel 6:287-295.
24. Kessler S (1997b) Psychological aspects of genetic counseling. XI. Nondirectiveness revisited. Am J Med Genet 72:164-171.
25. Lazarus RS, Folkman S (1984) Stress, Appraisal, and Coping. New York: Springer.
26. McGee G, Arruda M (1998) A crossroads in genetic counseling and ethics. Cambr Q Healthcare Ethics 7:97-100.
27. Michie S, Bron F, Bobrow M, Marteau T (1997) Nondirectiveness in genetic counseling: An empirical study. Am J Hum Genet 60:40-47.
28. Ostell A (1991) Coping, problem solving and stress: A framework for intervention strategies. Br J Med Psychol 64:11-24.
29. Parsons E, Atkinson P (1992) Lay constructions of genetics risk. Social Health Illness 14:437-455.
30. Resta RG (1997) Eugenics and nondirectiveness in genetic counseling. J Genet Counsel 6:255-258.
31. Robbins SP, Chatterjee P, Canda ER (1998a) The nature of theories. In: Contemporary Human Behavior Theory: A Critical Perspective for Social Work. Boston: Allyn and Bacon, pp 1-24.
32. Robbins SP, Chatterjee P, Canda ER, Couchonnal G, Snodgress M, Becker B (1998b) Theories of empowerment. In: Contemporary Human Behavior Theory: A Critical Perspective for Social Work. Boston: Allyn and Bacon, pp 89-117.
33. Schild S, Black RB (1984) Social Work and Genetics: A Guide for Practice. New York: The Haworth Press.
34. Shiloh S (1996) Genetic counseling: A developing area of interest for psychologists. Prof Psychol Res Pr 27:475-486.
35. Shiloh S, Saxe L (1989) Perception of risk in genetic counseling. Psychol Health 3:45-61.
36. Shiloh S, Berkenstadt M, Meiran N, Bat-Miriam-Katznelson M, Goldman B (1997) Mediating effects of perceived personal control in coping with a health threat: The case of genetic counseling. J Appl Soc Psychol 27:1146-1174.
37. Singer GHS (1996) Clarifying the duties and goals of genetic counselors: implications for nondirectiveness. In: Gert B, Berger EM, George F. Cahill J, Clouoser KD, Culver CM, Moeschler JB, Singer GHS (eds) Morality and the New Genetics: A Guide for Students and Health Care Providers. Sudbury, MA: Jones and Bartlett, pp 125-145.
38. Sorenson JR (1993) Genetic counseling: Values that have mattered. In: Bartels D, LeRoy B, Caplan A (eds) Prescribing our Future: Ethical Challenges in Genetic Counseling. New York: Aldine DeGruyter, pp 3-14.
39. Suter SM (1998) Value neutrality and nondirectiveness: Comments on "future directions in genetic counseling." Kennedy Inst Ethics J 8:161-163.
40. van Zuuren FJ (1997) The standard of neutrality during genetic counselling: An empirical investigation. Patient Educ Counsel 32:69-79.
41. Wachbroit R, Wasserman D (1995) Clarifying the goals of nondirective genetic counseling. Philos Public Pol 15:1-6.
42. White MT (1997) "Respect for autonomy" in genetic counseling: An analysis and proposal. J Genet Counsel 6:297-313.
43. White MT (1998) Decision-making through dialogue: Reconfiguring autonomy in genetic counseling. Theor Med Bioeth 19:5-19.
44. Wilfond BS, Baker D (1995) Genetic counseling, non-directiveness, and the clients' values: Is what clients say, what they mean. J Clin Ethics 6:180-182.
45. Wolff G, Jung C (1995) Nondirectiveness and genetic counseling. J Genet Counsel 4:3-25.
46. Yarborough M, Scott JA, Dixon LK (1989) The role of beneficence in clinical genetics: Non-directive counseling reconsidered. Theor Med 10:139-149.
47. Zimmerman MA (1990) Toward a theory of learned hopefulness: A structural model analysis of participation and empowerment. J Res Pers 24:71-86.