Patients' concerns for family burden: A nonconforming preference in standards for surrogate decision making

Journal of Clinical Ethics

Volumn 20, Issue 2, 2009, Pages 158-161

  Berger, Jeffrey T ^a,b  

^a STONY BROOK UNIVERSITY   (United States)

^b WINTHROP UNIVERSITY HOSPITAL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; ARTIFICIAL VENTILATION; ATTITUDE TO DEATH; COST OF ILLNESS; DECISION MAKING; ETHICS; FAMILY; HUMAN; HUMAN RELATION; INFORMED CONSENT; LIVING WILL; PATIENT ADVOCACY; PERSONAL AUTONOMY; SPOUSE; TERMINALLY ILL PATIENT; TREATMENT REFUSAL;

ADVANCE DIRECTIVES; ATTITUDE TO DEATH; COST OF ILLNESS; DECISION MAKING; FAMILY; HUMANS; INTERPERSONAL RELATIONS; PATIENT ADVOCACY; PERSONAL AUTONOMY; RESPIRATION, ARTIFICIAL; SPOUSES; TERMINALLY ILL; THIRD-PARTY CONSENT; TREATMENT REFUSAL;

EID: 67650764082     PISSN: 10467890     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (24)

1. C.D. Moore et al., "Surrogate decision-making: judgment standard preferences of older adults," Social Work in Health Care 37 (2003): 1-16;
2. P.A. Singer et al., "Reconceptualizing advance care planning from the patient's perspective," Archives of Internal Medicine 158 (1998): 879-884;
3. T.R. Fried et al., "Older persons' preferences for site of terminal care," Annals of Internal Medicine 131 (1999): 109-112;
4. G.E. Mead et al., "What factors influence patient preferences regarding cardiopulmonary resuscitation?" Journal of the Royal College of Physicians of London 29 (1995): 295-298;
5. C.J. McPherson et al., "Selfperceived burden to others: patient and family caregiver correlates," Journal of Palliative Care 23 (2007): 135-142;
6. C.J. McPherson, K.G. Wilson, and M.A. Murray, "Feeling like a burden to others: a systematic review focusing on the end of life," Palliative Medicine 21 (2007): 115-128;
7. D.A. Gruenewald and E.J. White, "The illness experience of older adults near the end of life: a systematic review," Anesthesiology Clinics 24 (2006): 163-180;
8. S. Bito et al., "Acculturation and end-of-life decision making: comparison of Japanese and Japanese-American focus groups," Bioethics 21 (2007): 251-262;
9. J.T. Berger, "Patients' interests in their family members' wellbeing: an overlooked, fundamental consideration within substituted judgments," The Journal of Clinical Ethics 16, no.1 (Spring 2005): 3-10.
10. J.T. Berger et al., "Do Potential Recipients of Cardiopulmonary Resuscitation Want Their Family Members to Attend?" The Journal of Clinical Ethics 2, no.4 (Winter 2004): 237-242;
11. J.T. Berger and S.D. Majerovitz, "Do elderly persons' concerns for family burden influence their preferences for future participation in dementia research?" The Journal of Clinical Ethics 16, no.2 (Summer 2005): 108-115;
12. J.H. Karlawish et al., "How do AD patients and their caregivers decide whether to enroll in a clinical trial?" Neurology 56 (2001): 789-792;
13. W. Born et al., "Knowledge, attitudes, and beliefs about end-of-life care among inner-city African Americans and Latinos," Journal of Palliative Medicine 7 (2004): 247-256;
14. K.E. Steinhauser et al., "Factors considered important at the end of life by patients, family, physicians, andother care providers," Journal of the American Medical Association 284 (2000): 2476-2482;
15. P.V. Caralis et al., "The influence of ethnicity and race on attitudes toward advance directives, life-prolonging treatments, and euthanasia," The Journal of Clinical Ethics 4, no.2 (Summer 1993): 155-165
16. U.K. Braun et al., "Voices of African American, Caucasian, and Hispanic surrogates on the burdens of end-of-life decision making," Journal of General Internal Medicine 23 (2008): 267-274
17. J.J. Fins et al., "Contracts, covenants and advance care planning: an empirical study of the moral obligations of patient and proxy," Journal of Pain and Symptom Management 29 (2005): 55-68;
18. A. Ho, "Relational autonomy or undue pressure? Family's role in medical decision-making," Scandanavian Journal of Caring Sciences 22 (2008): 128-135;
19. H.M. Chan, "Sharing death and dying: advance directives, autonomy and the family," Bioethics 18 (2004): 87-103.
20. T.L. Beauchamp and J.F. Childress, Principles of Biomedical Ethics (New York: Oxford University Press, 2001), 57-112.
21. J.T. Berger, E.G. DeRenzo, and J. Schwartz, "Surrogate decision making: reconciling ethical theory and clinical practice," Annals of Internal Medicine 149 (2008): 48-53.
22. J. Klessig, "The effect of values and culture on life-support decisions," Western Journal of Medicine 157 (1992): 316-322;
23. S.V. Hopper, "The influence of ethnicity on the health of older women," Clinics in Geriatric Medicine 9 (1993): 231-259;
24. H.I. McCubbin et al., "Culture, ethnicity, and the family: critical factors in childhood chronic illnesses and disabilities," Pediatrics 91 (1993): 1063-1067