Transition of the Adolescent Patient with Rheumatic Disease: Issues to Consider

Rheumatic Disease Clinics of North America

Volumn 33, Issue 3, 2007, Pages 661-672

  Tucker, Lori B ^a   Cabral, David A ^a  

^a BC CHILDREN S HOSPITAL   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULTHOOD; CLINICAL PRACTICE; CULTURAL FACTOR; EDUCATION; HEALTH BEHAVIOR; HEALTH CARE DELIVERY; HEALTH CARE PERSONNEL; HEALTH CARE QUALITY; HEALTH CARE SYSTEM; HEALTH PROGRAM; HEALTH SERVICE; HUMAN; JUVENILE; LIFESTYLE; PATIENT CARE; PEER GROUP; PRACTICE GUIDELINE; PRIORITY JOURNAL; RESPONSIBILITY; REVIEW; RHEUMATIC DISEASE;

EID: 34948863913     PISSN: 0889857X     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.rdc.2007.07.005     Document Type: Review

References (33)

1. Viner R. Transition from paediatric to adult care. Bridging the gaps or passing the buck?. Arch Dis Child 81 (1999) 271-275
2. Blum R.W., Garell D., Hodgman C.H., et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health 14 7 (1993) 570-576
3. Duffy C.M. Health outcomes in pediatric rheumatic diseases. Curr Opin Rheumatol 16 (2004) 102-108
4. Andersson Gare B., and Fasth A. The natural history of juvenile chronic arthritis: a population based cohort study. II Outcome. J Rheumatol 22 (1995) 308-319
5. Minden K., Niewerth M., Listing J., et al. Long-term outcome in patients with juvenile idiopathic arthritis. Arthritis Rheum 46 9 (2002) 2392-2401
6. Flato B., Aasland A., Vinje O., et al. Outcome and predictive factors in juvenile rheumatoid arthritis and juvenile spondyloarthropathy. J Rheumatol 25 (1998) 366-373
7. David J., Cooper C., Hickey L., et al. The functional and psychological outcomes of juvenile chronic arthritis in young adulthood. Br J Rheumatol 33 (1994) 876-881
8. Oen K., Malleson P.N., Cabral D.A., et al. Disease course and outcome of juvenile rheumatoid arthritis in a multicenter cohort. J Rheumatol 29 (2002) 1989-1999
9. Packham J.C., Hall M.A., and Pimm T.J. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: predictive factors for mood and pain. Rheumatology (Oxford) 41 12 (2002) 1444-1449
10. Packham J.C., and Hall M.A. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: social function, relationships and sexual activity. Rheumatology (Oxford) 41 12 (2002) 1440-1443
11. Packham J.C., and Hall M.A. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: education and employment. Rheumatology (Oxford) 41 12 (2002) 1436-1439
12. Packham J.C., and Hall M.A. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: functional outcome. Rheumatology (Oxford) 41 12 (2002) 1428-1435
13. Foster H.E., Marshall N., Myers A., et al. Outcome of adults with juvenile idiopathic arthritis. Arthritis Rheum 48 3 (2003) 767-775
14. Steinbrocker I., Traeger C.H., and Batterman R.C. Criteria for determination of progression of rheumatoid arthritis and of functional capacity of patients with disease. JAMA 140 (1949) 209
15. Gladman D.D., Urowitz M.B., Goldsmith C.H., et al. The reliability of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index in patients with systemic lupus erythematosus. Arthritis Rheum 40 5 (1997) 809-813
16. Gladman D., Ginzler E., Goldsmith C., et al. The development and initial validation of the SLICC/ACR damage index for SLE. Arthritis Rheum 39 (1996) 363-369
17. Brunner H.I., Silverman E.D., To T., et al. Risk factors for damage in childhood-onset systemic lupus erythematosus: cumulative disease activity and medication use predict disease damage. Arthritis Rheum 46 2 (2002) 436-444
18. Ravelli A., Duarte-Salazar C., Buratti S., et al. Assessment of damage in juvenile-onset systemic lupus erythematosus: a multicenter cohort study. Arthritis Rheum 49 4 (2003) 501-507
19. Miettunen P.M., Ortiz-Alvarez O., Petty R.E., et al. Gender and ethnic origin have no effect on long term outcome of childhood onset systemic lupus erythematosus. J Rheumatol 31 8 (2004) 1650-1654
20. Peloro T.M., Miller O.F., Hahn T.F., et al. Juvenile dermatomyositis: a retrospective review of a 30-year experience. J Am Acad Dermatol 45 1 (2001) 28-34
21. Chalmers A., Sayson R., and Walters R. Juvenile dermatomyositis: medical, social, and economic status in adulthood. Can Med Assoc J 126 1 (1982) 31-33
22. Britto M.T., Rosenthal S.L., Taylor J., et al. Improving rheumatologists' screening for alcohol use and sexual activity. Arch Pediatr Adolesc Med 154 5 (2000) 478-483
23. McGill M. How do we organize smooth, effective transfer from pediatric to adult diabetes care?. Horm Res 57 Suppl 1 (2002) 66-68
24. Shaw K.L., Southwood T.R., McDonagh J.E., et al. Developing a programme of transitional care for adolescents with juvenile idiopathic arthritis: results of a postal survey. Rheumatol 43 (2004) 211-219
25. McDonagh J.E., Southwood T.R., Shaw K.L., and British Paediatric Rheumatology Group. Unmet education and training needs of rheumatology health professionals in adolescent health and transition care. Rheumatology 43 (2004) 737-743
26. Fox A. Physicians as barriers to successful transitional care. Int J Adolesc Med Health 14 1 (2002) 3-7
27. Nasr S., Campbell C., and Howatt W. Transition program from pediatric to adult care for cystic fibrosis patients. J Adolesc Health 13 (1992) 682-685
28. Sawyer S., Blair S., and Bowes G. Chronic illness in adolescents: transfer or transition to adult services?. J Paediatr Child Health 33 (1997) 88-90
29. Youth Health Program BC Children's Hospital. On TRAC-taking responsibility for adolescent/adult care (2000), Children's Hospital, Vancouver (BC). http://infosource.cw.bc.ca/cw_yhlth/content/prgOnTrac.asp Accessed November 1, 2004
30. Kipps S., Bahu T., Ong K., et al. Current methods of transfer of young people with type I diabetes to adult services. Diabet Med 19 (2002) 649-654
31. Adolescent Medicine Committee. (Canadian Pediatric Society). Care of the chronically ill adolescent. Canadian Journal of Pediatrics 4 (1994) 124-127
32. Medical Home Initiatives for Children with Special Needs Project Advisory Committee. The medical home. Pediatrics 110 (2002) 184-186
33. Olsen D.G., and Swigonski N.L. Transition to adulthood: the important role of the pediatrician. Pediatrics 113 (2004) e159-e162