Sources of data for a longitudinal birth cohort

Paediatric and Perinatal Epidemiology

Volumn 23, Issue SUPPL. 1, 2009, Pages 51-62

  Golding, Jean ^a   Jones, Richard ^a  

^a UNIVERSITY OF BRISTOL   (United Kingdom)

Author keywords

Biomarkers; Case registers; Data sources; Education records; Environment; Genetic traits; GIS; Hands on examinations; Health records; Longitudinal birth cohort; Questionnaires

Indexed keywords

BIOLOGICAL MARKER;

ACCURACY; ARTICLE; BIRTH; COHORT ANALYSIS; COST BENEFIT ANALYSIS; CRIMINAL BEHAVIOR; E-MAIL; GENETIC TRAIT; GENETIC VARIABILITY; GEOGRAPHIC INFORMATION SYSTEM; HUMAN; INFORMATION; INFORMATION PROCESSING; INTERVIEW; LONGITUDINAL STUDY; MASS SPECTROMETRY; MEDICAL RECORD; PHYSICAL EXAMINATION; QUESTIONNAIRE; SOCIAL WORK; TELEPHONE;

BIRTH CERTIFICATES; CHILD DEVELOPMENT; COHORT STUDIES; DATA COLLECTION; DATABASES, GENETIC; EDUCATION; ENVIRONMENT; EPIDEMIOLOGIC METHODS; FEMALE; HOSPITAL RECORDS; HUMANS; INFANT, NEWBORN; MALE; PREGNANCY; SOCIAL WORK;

EID: 67449156101     PISSN: 02695022     EISSN: 13653016     Source Type: Journal    
DOI: 10.1111/j.1365-3016.2008.00996.x     Document Type: Article

References (40)

1. Golding J, Jones R, Preece A, Bruné M-N, Pronczuk J. Choice of environmental components for a longitudinal birth cohort study. Paediatric and Perinatal Epidemiology 2009 23 (Suppl. 1 134 153.
2. Jones R. The importance of biological samples in longitudinal birth cohort studies. Paediatric and Perinatal Epidemiology 2009 23 (Suppl. 1 93 102.
3. Golding J, Steer C. How many subjects are needed in a longitudinal birth cohort study? Paediatric and Perinatal Epidemiology 2009 23 (Suppl. 1 31 38.
4. Emmett PM. Assessing diet in longitudinal birth cohort studies. Paediatric and Perinatal Epidemiology 2009; 23(Suppl. 1): DOI 10.1111/j.1365-3016.2009.01015.x
5. Bruijnzeels MA, Foets M, van der Wouden JC, Prins A, van den Heuvel WJA. Measuring morbidity of children in the community: a comparison of interview and diary data. International Journal of Epidemiology 1998 27 : 96 100.
6. Bowling A. Mode of questionnaire administration can have serious effects on data quality. Journal of Public Health 2005 27 : 281 291.
7. Picavet HSJ. National health surveys by mail or home interview: effects on response. Journal of Epidemiology and Community Health 2001 55 : 408 413.
8. Tourangeau R, Smith TW. Asking sensitive questions: the impact of data collection mode, question format, and question context. Public Opinion Quarterly 1996 60 : 275 304.
9. Brook L. Postal survey procedures. In : Survey Research Practice. Editors : Hoinville G, Jowell R. London : Heinemann, 1977 pp. 124 143.
10. Richter LM, Norris SA, De Wet T. Transition from Birth to Ten to Birth to Twenty: the South African cohort reaches 13 years of age. Paediatric and Perinatal Epidemiology 2004 18 : 290 301.
11. Silva P. The Dunedin Multidisciplinary Health and Development Study: a fifteen-year follow-up. Paediatric and Perinatal Epidemiology 1990 4 : 76 107.
12. Fergusson DM, Horwood LJ, Shannon FT, Lawton JM. The Christchurch Child Development Study: a review of epidemiological findings. Paediatric and Perinatal Epidemiology 1989 3 : 302 325.
13. Golding J, Pembrey M, Jones R, ALSPAC Study Team. ALSPAC - The Avon Longitudinal Study of Parents andChildren. I. Study methodology. Paediatric and Perinatal Epidemiology 2001 15 : 74 87.
14. Golombok S, Rust J, Zervoulis K, Croudace T, Golding J, Hines M. Developmental trajectories of sex-typed behavior in boys and girls: a longitudinal general population study of children aged 2.5-8 years. Child Development 2008 79 : 1583 1593.
15. Golding J. Data organisation and preparation for statistical analysis in a longitudinal birth cohort. Paediatric and Perinatal Epidemiology 2009 23 (Suppl. 1 DOI 10.1111/j.1365-3016.2009.01019.x
16. Geographic Information Systems (GIS). http://www.who.int/health-mapping/ en/last accessed 21 October 2008 1998 : http://www.opsi.gov.uk/acts/acts1998/ ukpga-19980029-en-l last accessed 16 November 2008 J. Preparation, piloting and validation for a longitudinal birth cohort study. Paediatric and Perinatal Epidemiology 2009 23 (Suppl. 1 DOI 10.1111/j.1365-3016.2009.01017.x
17. The UK Data Protection Act 1998: http://www.opsi.gov.uk/ acts/acts1998/ukpga-19980029-en-l [last accessed 16 November 2008].
18. Patient Information Advisory Group: http://www. advisorybodies.doh.gov. uk/piag [last accessed 16 November 2008].
19. Golding J. Preparation, piloting and validation for a longitudinal birth cohort study. Paediatric and Perinatal Epidemiology 2009; 23(Suppl. 1): DOI 10.1111/ j.1365-3016.2009.01017.x
20. Danish National Birth Cohort. http://www.dnbc.dk [last accessed 21 October 2008].
21. Norwegian Mother and Child Cohort Study (MoBa). http://www.fhi.no/eway [last accessed 21 October 2008].
22. Edmond KM, Quigley MA, Zandoh C, Danso S, Hurt C, Agvei SO, et al. Diagnostic accuracy of verbal autopsies in ascertaining the causes of stillbirths and neonatal deaths in rural Ghana. Paediatric and Perinatal Epidemiology 2008;22:417-429.
23. Sidebotham P, Golding J, ALSPAC Study Team. Child maltreatment in the 'Children of the Nineties': a longitudinal study of parental risk factors. Child Abuse and Neglect 2001 25 : 1177 1200.
24. Sidebotham P, Heron J, ALSPAC Study Team. Child maltreatment in the 'Children of the Nineties': the role of the child. Child Abuse and Neglect 2003 27 : 337 352.
25. Sidebotham P, Heron J, ALSPAC Study Team. Child maltreatment in the Children of the Nineties: a cohort study of risk factors. Child Abuse and Neglect 2006 30 : 497 522.
26. Sidebotham P, Heron J, Golding J, ALSPAC Study Team. Child maltreatment in the 'Children of the Nineties': deprivation, class and social networks in a UK sample. Child Abuse and Neglect 2002 26 : 1243 1259.
27. Birmingham K, Doyle A. Ethics and governance of a longitudinal birth cohort study. Paediatric and Perinatal Epidemiology 2009 23 (Suppl. 1 39 50.
28. Arseneault L, Moffitt TE, Caspi A, Taylor PJ, Silva PA. Mental disorders and violence in a total birth cohort: results from the Dunedin Study. Archives of General Psychiatry 2000 57 : 979 986.
29. Fergusson DM, Swain-Campbell NR, Horwood LJ. Arrests and convictions for cannabis related offences in a New Zealand birth cohort. Drug and Alcohol Dependence 2003 70 : 53 63.
30. Jones RW, Golding J. Choosing the types of biological sample to collect in longitudinal birth cohort studies. Paediatric and Perinatal Epidemiology 2009 23 (Suppl. 1 103 113.
31. Barton RH, Nicholson JK, Elliott P, Holmes E. High-throughput 1H NMR-based metabolic analysis of human serum and urine for large-scale epidemiological studies: validation study. International Journal of Epidemiology 2008 37 : i31 i40.
32. Dunn WB, Broadhurst D, Ellis DI, Brown M, Halsall A, O'Hagan S, et al. A GC-TOF-MS study of the stability of serum and urine metabolomes during the UK Biobank sample collection and preparation protocols. International Journal of Epidemiology 2008 37 : i23 i30.
33. Chace DH, Kalas TA, Naylor EW. Use of tandem mass spectrometry for multianalyte screening of dried blood specimens from newborns. Clinical Chemistry 2003 49 : 1797 1817.
34. United Kingdom National External Quality Assessment Service. http://www.ukneqas.org.uk last accessed 21 October 2008 FS, Patrinos A, Jordan E, Chakravarti A, Gesteland R, Walters L. New goals for the U.S. Human Genome Project: 1998-2003. Science 1998 282 : 682 689.
35. College of American Pathologists. http://www.cap.org [last accessed 21 October 2008].
36. Collins FS, Patrinos A, Jordan E, Chakravarti A, Gesteland R, Walters L. New goals for the U.S. Human Genome Project: 1998-2003. Science 1998; 282:682-689.
37. Collins FS, Morgan M, Patrinos A. The Human Genome Project: lessons from large-scale biology. Science 2003; 300:286-290.
38. European Surveillance of Congenital Anomalies (EUROCAT). http://www.eurocat.ulster.ac.uk/ [last accessed 21 October 2008].
39. Gudbjornsdottir S, Cederholm J, Nilsson PM, Eliasson B. The National Diabetes Register in Sweden: an implementation of the St Vincent Declaration for Quality Improvement in Diabetes Care. Diabetes Care 2003; 26:1270-1276.
40. Western Australia Autism Register. http://www. autismwa.org.au/autism- register.html [last accessed 21 October 2008].