Integrating a narrative medicine telephone interview with online life review education for cancer patients: lessons learned and future directions

Journal of the Society for Integrative Oncology

Volumn 7, Issue 1, 2009, Pages 19-25

  Wise, Meg ^a   Marchand, Lucille ^a   Aeschlimann, Elizabeth ^b   Causier, Daniel ^a   Cleary, James ^c  

^a UNIVERSITY OF WISCONSIN MADISON   (United States)

^b CARLETON COLLEGE   (United States)

^c UNIVERSITY OF WISCONSIN SCHOOL OF MEDICINE AND PUBLIC HEALTH   (United States)

Author keywords

Aging and cancer; Cancer patients; eHealth; Life review; Life review education; Narrative medicine; Psycho oncology interventions

Indexed keywords

ADULT; AGED; CANCER PATIENT; CANCER STAGING; CLINICAL ARTICLE; CONSULTATION; EDUCATION PROGRAM; EMOTIONALITY; FEMALE; HUMAN; HUMAN COMPUTER INTERACTION; INTERNET; INTERVIEW; MALE; MALIGNANT NEOPLASTIC DISEASE; MEDICAL RESEARCH; ONLINE SYSTEM; PATIENT EDUCATION; REVIEW; TELEPHONE; ARTICLE; FAMILY RELATION; INTERPERSONAL COMMUNICATION; MIDDLE AGED; NEOPLASM; PSYCHOLOGICAL ASPECT; VERBAL COMMUNICATION;

ADULT; AGED; AGED, 80 AND OVER; COMMUNICATION; FAMILY RELATIONS; FEMALE; HUMANS; INTERNET; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; NARRATION; NEOPLASMS;

EID: 67149138424     PISSN: 1715894X     EISSN: None     Source Type: Journal    
DOI: 10.2310/7200.2009.0002     Document Type: Review

References (61)

1. Byock I. The meaning and value of death. J Palliat Med 2002;5:279-88.
2. Block SD. Psychological issues in end-of-life care. J Palliat Med 2006;9:751-72.
3. Becker E. The denial of death. New York: Free Press; 1973.
4. Chochinov HM, Hack T, Hassard T, et al. Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life. J Clin Oncol 2005;23,5520-5.
5. Block SD. Psychological considerations, growth, and transcendence at the end-of-life: the art of the possible. JAMA 2001;285:2898-905.
6. Spiegel D, Bloom JR, Kraemer HC, Gottheil E. Effect of psychosocial treatment on survival of patients with metastatic breast cancer. Lancet 1989;2:888-91.
7. Breitbart W, Heller KS. J Reframing hope: meaning-centered care for patients near the end of life. J Palliat Med 2003;6(6):979-88.
8. Yalom I. Existential psychotherapy. New York: Basic Books; 1980.
9. Roberts LJ, Wise M, DuBenske L. Compassionate caregiving in the light and shadow of death. In: Fehr B, Sprecher S, Underwood L, editors. The science of compassionate love: research, theory and application. Malden, Mass: Blackwell Publishers; 2008;311-44
10. Kierkegaard SK. The sickness unto death. New York: Doubleday; 1954.
11. Frankl VE. Man's search for meaning. London: Hodder & Stoughton; 1964.
12. Kuebler-Ross E. On death and dying. New York: Collier Books/Macmillan; 1970.
13. Tedeschi RG, Calhoun LG. The posttraumatic growth inventory: measuring the positive legacy of trauma. J Trauma Stress 1996;9:455-71.
14. Carpenter JS, Brockopp DY, Andrykowski MA. Self-transformation as a factor in the self-esteem and well-being of breast cancer survivors. J Adv Nurs 1999;29:1402-11.
15. Cordova M, Cunningham L, Carlson C, Andrykowski M. Posttraumatic growth following breast cancer: a controlled comparison study. Health Psychol 2001;20:176-85.
16. Bellizzi KM. Expressions of generativity and posttraumatic growth in adult cancer survivors. Int J Aging Hum Dev 2004;58:267-88.
17. Classen C, Butler L, Koopman C, et al. Supportive-expressive group therapy and distress in patients with metastatic breast cancer. Arch Gen Psychiatry 2001;58:494-501.
18. Goodwin PJ. Support groups in advanced breast cancer: living better if not longer. Cancer 2005;104 Suppl 11:2596-601.
19. Spiegel D, Classen C. Group therapy for cancer patients. New York: Basic Books; 2000.
20. Chochinov HM, Cann BJ. Interventions to enhance the spiritual aspects of dying. J Palliat Med 2005;8 Suppl 1:S103-15.
21. Frank A. The wounded storyteller. Chicago: University of Chicago Press; 1995.
22. Kleinman A. The illness narratives: suffering, healing, and the human condition. New York: Basic Books; 1988.
23. McQuellon RP, Cowan MA. Turning toward death together: conversations in mortal time. Am J Hosp Palliat Care 2000;17:312-8.
24. Keeley MP. "Turning toward death together": the functions of messages during final conversations in close relationships. J Soc Pers Relat 2007;24:225-53.
25. Polkinghorne DE. Transformative narratives: from passive to agentic life plots. J Occup Ther 1996;50:299-305.
26. Butler R. The life review: an interpretation of reminiscence in the aged. Psychiatry 1963;26:65-76.
27. Butler RN. Age, death, and life review. Hospice Foundation of America; 2002. Available at: http://www.hospicefoundation.org/teleconference/2002/butler. asp (accessed April 23, 2008).
28. Erikson EH. The eight stages of man In: Childhood and society. 2nd ed. New York: W.W. Norton & Co.; 1963. p 247-74.
29. Erikson EH, Erikson JM, Kivnick HQ. Vital involvement in old age. New York: W.W. Norton & Company; 1986.
30. Ezzy D. Illness narratives: time, hope, and HIV. Soc Sci Med 2000;50:605-17.
31. Carlick A, Biley FC. Thoughts on the therapeutic use of narrative in the promotion of coping with cancer. Eur J Can Care 2004;13:308-17.
32. Pennebaker JW. Telling stories: the health benefits of narrative. Lit Med 2000;19:3-18.
33. Radley A. The aesthetics of illness: narrative, horror and the sublime. Soc Health Ill 1999;21:778-96.
34. Labouvie-Vief G. Wisdom as integrated thought: historical and developmental perspectives. In: Sternberg R, editor. Wisdom: its nature, origins, and development. New York: Cambridge University Press; 1990. p. 52-85.
35. Plexus Institute. Stories: complexity in action. Allentown (NJ): Plexus Institute; 2008.
36. Kreuter M, Green M, Cappella JN, et al. Narrative communication in cancer prevention and control: a framework to guide research and application. Ann Behav Med 2007;33:221-35.
37. Dominice P. Learning from our lives. San Francisco: Jossey Bass; 2000.
38. Davis MC. Life review therapy as an intervention to manage depression and enhance life satisfaction in individuals with right hemisphere cerebral vascular accidents. Issues Ment Health Nurs 2004;25:503-15.
39. Mastel-Smith B, McFarlane J, Sierpina M, et al. Improving depressive symptoms in community-dwelling older adults: a psychosocial intervention using life review and writing. J Gerontol Nurs 2007;33(5):13-9.
40. Smyth JM, Stone AA, Hurewitz A, Kaell A. Effects of writing about stressful experiences on symptom reduction in patients with asthma or rheumatoid arthritis. JAMA 1999;28:1304-9.
41. Shapiro J, Ross V. Applications of narrative theory and therapy to the practice of family medicine. Fam Med 2002;34:96-100.
42. Marchand L, Kushner K. Death pronouncements: surviving and thriving through stories. Fam Med 2004;36:702-4.
43. Charon R. Narrative and medicine. N Engl J Med 2004;350:862-4.
44. Chochinov HM. Dignity-conserving care-a new model for palliative care: helping the patient feel valued. JAMA 2002;28:2253-60.
45. Fox S. Online health search 2006. Washington (DC): Pew Internet & American Life Project; October 29, 2006. Available at: http://www.pewinternet. org/pdfs/PIP-Online-Health-2006.pdf (accessed April 22, 2008).
46. Shaw B, Gustafson D, Hawkins R, et al. How underserved breast cancer patients use and benefit from eHealth programs: implications for closing the digital divide. Am Behav Sci 2006;49:823-34.
47. Wise M, Gustafson D, Sorkness C, et al. (Internet telehealth for pediatric asthma case management: developing integrated computerized and case manager features for tailoring a web-based asthma education program. Health Promo Pract 2007;8(3):282-291.
48. Gustafson DH, Hawkins R, Boberg EW, et al. CHESS: ten years of research and development in consumer health informatics for populations, including the underserved. Int J Med Inform 2002;65:169-77.
49. Wise M, Han JY, Shaw B, et al. The effects of narrative and didactic information on healthcare participation for breast cancer patients. Pat Educ Couns 2008;70:348-56.
50. Ryff C, Singer B. Psychological well being: meaning, measurement, and implications for psychotherapy research. Psychother Psychosom 1996;65:14-23.
51. Strauss A. Qualitative analysis for social scientists. Cambridge (UK): Cambridge University Press; 1987.
52. Madden M. Internet penetration and impact 2006. Pew Internet & Am Life Project. Available at: http://pdftohtml.markoer.org/pdf2html.php?url=http:/ /www.pewinternet.org/pdfs/PIP-Internet-Impact.pdf&ID=100360 (accessed April 18, 2008).
53. Bruner J. The narrative construction of reality. Critical Inquiry 1991;18:1-21.
54. Charmaz K. Discoveries of self in illness. In Charmaz K, Paterniti DA Paterniti (Eds.), Health, illness, and healing: Society, social context, and self. Los Angeles: Roxbury; 1999;72-82.
55. Pennebaker JW. Telling stories: the health benefits of narrative. Lit Med 2000;19:3-18.
56. Monti DA, Peterson C, Kunkel EJS, et al. A randomized, controlled trial of mindfulness-based art therapy (MBAT) for women with cancer. Psychooncology 2006,15:363-73.
57. Parker PA, Carl de Moor WF, Cohen LL. Psychosocial and demographic predictors of quality of life in a large sample of cancer patients. Psychooncology 2003;12:183-93.
58. Bergin M. New projects help terminally ill patients share life stories. The Capital Times 2007 Oct 24. Available at: http://www.hospicecareinc.com/news/ detail.asp?fldID=36 (accessed April 22, 2008).
59. Boase J, Horrigan JB., Wellman, B, Rainie. L. The strength of Internet ties. Washington (DC): Pew Internet & American Life Project; January 2006. Available at: http://www.pewinternet.org/pdfs/PIP-Internet-ties.pdf (accessed April 18, 2008).
60. Horrigan J. Home broadband adoption 2006. Washington (DC): Pew Internet & American Life Project. Available at: http://www.pewinternet.org/pdfs/PIP- Broadband-trends2006.pdf (accessed April 18, 2008).
61. Madden M. Internet penetration and impact 2006. Washington (DC): Pew Internet & American Life Project. Available at: http://pdftohtml.markoer. org/pdf2html.php? url=http://www.pewinternet.org/pdfs/PIP-Internet-Impact. pdf&ID=100360 (accessed April 18, 2008).