-
1
-
-
1642474363
-
Differences between adolescents' and parents' reports of health-related quality of life in cystic fibrosis
-
Britto, M. T., Kotagal, U. R., Chenier, T., Tsevat, J., Atherton, H. D. & Wilmott, R. W. (2004) Differences between adolescents' and parents' reports of health-related quality of life in cystic fibrosis. Pediatric Pulmonology, 37, 165-171.
-
(2004)
Pediatric Pulmonology
, vol.37
, pp. 165-171
-
-
Britto, M.T.1
Kotagal, U.R.2
Chenier, T.3
Tsevat, J.4
Atherton, H.D.5
Wilmott, R.W.6
-
2
-
-
14544274112
-
Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer
-
Chang, P. C. & Yeh, C. H. (2005) Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer. Psycho-Oncology, 14, 125-134.
-
(2005)
Psycho-Oncology
, vol.14
, pp. 125-134
-
-
Chang, P.C.1
Yeh, C.H.2
-
3
-
-
33750018655
-
Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4. 0 (PedsQL) generic core scales
-
Cremeens, J., Eiser, C. & Blades, M. (2006) Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4. 0 (PedsQL) generic core scales. Health and Quality of Life Outcomes, 4, 58.
-
(2006)
Health and Quality of Life Outcomes
, vol.4
, pp. 58
-
-
Cremeens, J.1
Eiser, C.2
Blades, M.3
-
4
-
-
0028504726
-
Measurement of quality of well being in a child and adolescent cystic fibrosis population
-
Czyzewski, D. I., Mariotto, M. J., Bartholomew, L. K., LeCompte, S. H. & Sockrider, M. M. (1994) Measurement of quality of well being in a child and adolescent cystic fibrosis population. Medical Care, 32, 965-972.
-
(1994)
Medical Care
, vol.32
, pp. 965-972
-
-
Czyzewski, D.I.1
Mariotto, M.J.2
Bartholomew, L.K.3
LeCompte, S.H.4
Sockrider, M.M.5
-
5
-
-
34247520622
-
Parent-proxy and child self-reported health-related quality of life: Using qualitative methods to explain the discordance
-
Davis, E., Nicolas, C., Waters, E., Cook, K., Gibbs, L., Gosch, A. & Ravens-Sieberer, U. (2007) Parent-proxy and child self-reported health-related quality of life: Using qualitative methods to explain the discordance. Quality of Life Research, 16, 863-871.
-
(2007)
Quality of Life Research
, vol.16
, pp. 863-871
-
-
Davis, E.1
Nicolas, C.2
Waters, E.3
Cook, K.4
Gibbs, L.5
Gosch, A.6
Ravens-Sieberer, U.7
-
6
-
-
9344240442
-
Cancer incidence among children in France, 1990-1999
-
Desandes, E., Clavel, J., Berger, C., Bernard, J. L., Blouin, P., De Lumley, L., Demeocq, F., Freycon, F., Gembara, P., Goubin, A., Le Gall, E., Pillon, P., Sommelet, D., Tron, I. & Lacour, B. (2004a) Cancer incidence among children in France, 1990-1999. Pediatric Blood and Cancer, 43, 749-757.
-
(2004)
Pediatric Blood and Cancer
, vol.43
, pp. 749-757
-
-
Desandes, E.1
Clavel, J.2
Berger, C.3
Bernard, J.L.4
Blouin, P.5
De Lumley, L.6
Demeocq, F.7
Freycon, F.8
Gembara, P.9
Goubin, A.10
Le Gall, E.11
Pillon, P.12
Sommelet, D.13
Tron, I.14
Lacour, B.15
-
7
-
-
9344223965
-
Cancer incidence among adolescents in France
-
Desandes, E., Lacour, B., Sommelet, D., Buemi, A., Danzon, A., Delafosse, P., Grosclaude, P., Mace-Lesech, J., Raverdy-Bourdon, N., Tretarre, B., Velten, M. & Brugieres, L. (2004b) Cancer incidence among adolescents in France. Pediatric Blood and Cancer, 43, 742-748.
-
(2004)
Pediatric Blood and Cancer
, vol.43
, pp. 742-748
-
-
Desandes, E.1
Lacour, B.2
Sommelet, D.3
Buemi, A.4
Danzon, A.5
Delafosse, P.6
Grosclaude, P.7
Mace-Lesech, J.8
Raverdy-Bourdon, N.9
Tretarre, B.10
Velten, M.11
Brugieres, L.12
-
8
-
-
31144441095
-
Cancer survival among adolescents in France
-
Desandes, E., Lacour, B., Sommelet, D., Danzon, A., Delafosse, P., Grosclaude, P., Mace-Lesech, J., Maarouf, N., Marr, A., Raverdy-Bourdon, N., Tretarre, B., Velten, M. & Brugieres, L. (2006) Cancer survival among adolescents in France. European Journal of Cancer, 42, 403-409.
-
(2006)
European Journal of Cancer
, vol.42
, pp. 403-409
-
-
Desandes, E.1
Lacour, B.2
Sommelet, D.3
Danzon, A.4
Delafosse, P.5
Grosclaude, P.6
Mace-Lesech, J.7
Maarouf, N.8
Marr, A.9
Raverdy-Bourdon, N.10
Tretarre, B.11
Velten, M.12
Brugieres, L.13
-
9
-
-
0035081336
-
A review of measures of quality of life for children with chronic illness
-
Eiser, C. & Morse, R. (2001a) A review of measures of quality of life for children with chronic illness. Archives of Disease in Childhood, 84, 205-211.
-
(2001)
Archives of Disease in Childhood
, vol.84
, pp. 205-211
-
-
Eiser, C.1
Morse, R.2
-
10
-
-
0035161833
-
Can parents rate their child's health-related quality of life? Results of a systematic review
-
Eiser, C. & Morse, R. (2001b) Can parents rate their child's health-related quality of life? Results of a systematic review. Quality of Life Research, 10, 347-357.
-
(2001)
Quality of Life Research
, vol.10
, pp. 347-357
-
-
Eiser, C.1
Morse, R.2
-
11
-
-
0035077887
-
Quality-of-life measures in chronic diseases of childhood
-
Eiser, C. & Morse, R. (2001c) Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, 5, 1-157.
-
(2001)
Health Technology Assessment
, vol.5
, pp. 1-157
-
-
Eiser, C.1
Morse, R.2
-
12
-
-
40449122787
-
Self and proxy-reported health status and health-related quality of life in survivors of childhood cancer in Uruguay
-
Fluchel, M., Horsman, J. R., Furlong, W., Castillo, L., Alfonz, Y. & Barr, R. D. (2008) Self and proxy-reported health status and health-related quality of life in survivors of childhood cancer in Uruguay. Pediatric Blood and Cancer, 50, 838-843.
-
(2008)
Pediatric Blood and Cancer
, vol.50
, pp. 838-843
-
-
Fluchel, M.1
Horsman, J.R.2
Furlong, W.3
Castillo, L.4
Alfonz, Y.5
Barr, R.D.6
-
13
-
-
4344611059
-
How well do parents know their children? Implications for proxy reporting of child health-related quality of life
-
Jokovic, A., Locker, D. & Guyatt, G. (2004) How well do parents know their children? Implications for proxy reporting of child health-related quality of life. Quality of Life Research, 13, 1297-1307.
-
(2004)
Quality of Life Research
, vol.13
, pp. 1297-1307
-
-
Jokovic, A.1
Locker, D.2
Guyatt, G.3
-
14
-
-
33744951263
-
Agreement between parent and child report of quality of life in children with attention-deficit/hyperactivity disorder
-
Klassen, A. F., Miller, A. & Fine, S. (2006) Agreement between parent and child report of quality of life in children with attention-deficit/hyperactivity disorder. Child: Care, health and development, 32, 397-406.
-
(2006)
Child: Care, Health and Development
, vol.32
, pp. 397-406
-
-
Klassen, A.F.1
Miller, A.2
Fine, S.3
-
15
-
-
0003533032
-
-
HealthAct, Boston, MA, USA
-
Landgraf, J. M., Abetz, L. & Ware, J. E. (1999) The CHQ User's Manual. HealthAct, Boston, MA, USA.
-
(1999)
The CHQ User's Manual
-
-
Landgraf, J.M.1
Abetz, L.2
Ware, J.E.3
-
16
-
-
0017360990
-
The measurement of observer agreement for categorical data
-
Landis, J. R. & Koch, G. G. (1977) The measurement of observer agreement for categorical data. Biometrics, 33, 159-174.
-
(1977)
Biometrics
, vol.33
, pp. 159-174
-
-
Landis, J.R.1
Koch, G.G.2
-
17
-
-
0035044308
-
Childhood cancer mortality in Europe, 1955-1995
-
Levi, F., La Vecchia, C., Negri, E. & Lucchini, F. (2001) Childhood cancer mortality in Europe, 1955-1995. European Journal of Cancer, 37, 785-809.
-
(2001)
European Journal of Cancer
, vol.37
, pp. 785-809
-
-
Levi, F.1
La Vecchia, C.2
Negri, E.3
Lucchini, F.4
-
18
-
-
0033374144
-
Health-related quality of life in childhood cancer: Discrepancy in parent-child reports
-
Levi, R. B. & Drotar, D. (1999) Health-related quality of life in childhood cancer: Discrepancy in parent-child reports. International Journal of Cancer. Supplement, 12, 58-64.
-
(1999)
International Journal of Cancer
, vol.12
, Issue.SUPPL.
, pp. 58-64
-
-
Levi, R.B.1
Drotar, D.2
-
19
-
-
31044435482
-
Major stressors and their effects on the well-being of children with cancer
-
McCaffrey, C. N. (2006) Major stressors and their effects on the well-being of children with cancer. Journal of Pediatric Nursing, 21, 59-66.
-
(2006)
Journal of Pediatric Nursing
, vol.21
, pp. 59-66
-
-
McCaffrey, C.N.1
-
20
-
-
45449111948
-
Cancer in childhood: Children's and parents' aspects for quality of life
-
Matziou, V., Perdikaris, P., Feloni, D., Moshovi, M., Tsoumakas, K. & Merkouris, A. (2008) Cancer in childhood: Children's and parents' aspects for quality of life. European Journal of Oncology Nursing, 12, 209-216.
-
(2008)
European Journal of Oncology Nursing
, vol.12
, pp. 209-216
-
-
Matziou, V.1
Perdikaris, P.2
Feloni, D.3
Moshovi, M.4
Tsoumakas, K.5
Merkouris, A.6
-
21
-
-
33747357262
-
Exploring concerns of children with cancer
-
Moody, K., Meyer, M., Mancuso, C. A., Charlson, M. & Robbins, L. (2006) Exploring concerns of children with cancer. Support Care Cancer, 14, 960-966.
-
(2006)
Support Care Cancer
, vol.14
, pp. 960-966
-
-
Moody, K.1
Meyer, M.2
Mancuso, C.A.3
Charlson, M.4
Robbins, L.5
-
22
-
-
0033384060
-
Health-related quality of life in pediatric bone marrow transplant survivors: According to whom?
-
Parsons, S. K., Barlow, S. E., Levy, S. L., Supran, S. E. & Kaplan, S. H. (1999) Health-related quality of life in pediatric bone marrow transplant survivors: According to whom? International Journal of Cancer. Supplement, 12, 46-51.
-
(1999)
International Journal of Cancer
, vol.12
, Issue.SUPPL.
, pp. 46-51
-
-
Parsons, S.K.1
Barlow, S.E.2
Levy, S.L.3
Supran, S.E.4
Kaplan, S.H.5
-
23
-
-
0035404297
-
The French version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ)
-
Pouchot, J., Ruperto, N., Lemelle, I., Sommelet, D., Grouteau, E., David, L., Duquesne, A., Job, D. C., Kone, P. I., Pillet, P., Goumy, L., Barbier, C., Guyot, M. H., Mazingue, F., Gandon, L. S., Fischbach, M., Quartier, P., Guyot, C., Jean, S., Le Gall, E., Plouvier, E., Bost, M., de Lumley, L., LePlege, A., Larbre, J. P., Guillemin, F., Coste, J., Landgraf, J. M. & Prieur, A. M. (2001) The French version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clinical and Experimental Rheumatology, 19 (Suppl. 23), S60-S65.
-
(2001)
Clinical and Experimental Rheumatology
, vol.19
, Issue.SUPPL. 23
-
-
Pouchot, J.1
Ruperto, N.2
Lemelle, I.3
Sommelet, D.4
Grouteau, E.5
David, L.6
Duquesne, A.7
Job, D.C.8
Kone, P.I.9
Pillet, P.10
Goumy, L.11
Barbier, C.12
Guyot, M.H.13
Mazingue, F.14
Gandon, L.S.15
Fischbach, M.16
Quartier, P.17
Guyot, C.18
Jean, S.19
Le Gall, E.20
Plouvier, E.21
Bost, M.22
de Lumley, L.23
LePlege, A.24
Larbre, J.P.25
Guillemin, F.26
Coste, J.27
Landgraf, J.M.28
Prieur, A.M.29
more..
-
24
-
-
4143078383
-
Cross-cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries. Review of the general methodology
-
Ruperto, N., Ravelli, A., Pistorio, A., Malattia, C., Cavuto, S., Gado-West, L., Tortorelli, A., Landgraf, J. M., Singh, G. & Martini, A. (2001) Cross-cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries. Review of the general methodology. Clinical and Experimental Rheumatology, 19 (Suppl. 23), S1-S9.
-
(2001)
Clinical and Experimental Rheumatology
, vol.19
, Issue.SUPPL. 23
-
-
Ruperto, N.1
Ravelli, A.2
Pistorio, A.3
Malattia, C.4
Cavuto, S.5
Gado-West, L.6
Tortorelli, A.7
Landgraf, J.M.8
Singh, G.9
Martini, A.10
-
25
-
-
33646362296
-
Assessment of health-related quality of life in children with cancer: Consistency and agreement between parent and child reports
-
Russell, K. M., Hudson, M., Long, A. & Phipps, S. (2006) Assessment of health-related quality of life in children with cancer: Consistency and agreement between parent and child reports. Cancer, 106, 2267-2274.
-
(2006)
Cancer
, vol.106
, pp. 2267-2274
-
-
Russell, K.M.1
Hudson, M.2
Long, A.3
Phipps, S.4
-
26
-
-
0032126711
-
Comparison of patient and proxy EORTC QLQ-C30 ratings in assessing the quality of life of cancer patients
-
Sneeuw, K. C., Aaronson, N. K., Sprangers, M. A., Detmar, S. B., Wever, L. D. & Schornagel, J. H. (1998) Comparison of patient and proxy EORTC QLQ-C30 ratings in assessing the quality of life of cancer patients. Journal of Clinical Epidemiology, 51, 617-631.
-
(1998)
Journal of Clinical Epidemiology
, vol.51
, pp. 617-631
-
-
Sneeuw, K.C.1
Aaronson, N.K.2
Sprangers, M.A.3
Detmar, S.B.4
Wever, L.D.5
Schornagel, J.H.6
-
27
-
-
0031859245
-
The proxy problem: Child report versus parent report in health-related quality of life research
-
Theunissen, N. C., Vogels, T. G., Koopman, H. M., Verrips, G. H., Zwinderman, K. A., Verloove-Vanhorick, S. P. & Wit, J. M. (1998) The proxy problem: Child report versus parent report in health-related quality of life research. Quality of Life Research, 7, 387-397.
-
(1998)
Quality of Life Research
, vol.7
, pp. 387-397
-
-
Theunissen, N.C.1
Vogels, T.G.2
Koopman, H.M.3
Verrips, G.H.4
Zwinderman, K.A.5
Verloove-Vanhorick, S.P.6
Wit, J.M.7
-
28
-
-
0034947039
-
Issues in measuring quality of life in childhood cancer: Measures, proxies, and parental mental health
-
Vance, Y. H., Morse, R. C., Jenney, M. E. & Eiser, C. (2001) Issues in measuring quality of life in childhood cancer: Measures, proxies, and parental mental health. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 42, 661-667.
-
(2001)
Journal of Child Psychology and Psychiatry, and Allied Disciplines
, vol.42
, pp. 661-667
-
-
Vance, Y.H.1
Morse, R.C.2
Jenney, M.E.3
Eiser, C.4
-
29
-
-
34548419430
-
Literature review: Health-related quality of life measurement in pediatric oncology: Hearing the voices of the children
-
Varni, J. W., Limbers, C. & Burwinkle, T. M. (2007) Literature review: Health-related quality of life measurement in pediatric oncology: Hearing the voices of the children. Journal of Pediatric Psychology, 32, 1151-1163.
-
(2007)
Journal of Pediatric Psychology
, vol.32
, pp. 1151-1163
-
-
Varni, J.W.1
Limbers, C.2
Burwinkle, T.M.3
-
30
-
-
2442710129
-
Psychometric properties of a new measure of fathers' involvement in the management of pediatric chronic diseases
-
Wysocki, T. & Gavin, L. (2004) Psychometric properties of a new measure of fathers' involvement in the management of pediatric chronic diseases. Journal of Pediatric Psychology, 29, 231-240.
-
(2004)
Journal of Pediatric Psychology
, vol.29
, pp. 231-240
-
-
Wysocki, T.1
Gavin, L.2
-
31
-
-
26844500283
-
Evaluating quality of life in children with cancer using children's self-reports and parent-proxy reports
-
Yeh, C. H., Chang, C. W. & Chang, P. C. (2005) Evaluating quality of life in children with cancer using children's self-reports and parent-proxy reports. Nursing Research, 54, 354-362.
-
(2005)
Nursing Research
, vol.54
, pp. 354-362
-
-
Yeh, C.H.1
Chang, C.W.2
Chang, P.C.3
|