Agreement between parent and child report of quality of life in children with attention-deficit/hyperactivity disorder

Child: Care, Health and Development

Volumn 32, Issue 4, 2006, Pages 397-406

  Klassen, Anne F ^a   Miller, A ^a   Fine, S ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

Attention deficit disorder with hyperactivity; Parents; Proxy; Quality of life; Questionnaires

Indexed keywords

DEXAMPHETAMINE; METHYLPHENIDATE;

ADOLESCENT; ARTICLE; ATTENTION DEFICIT DISORDER; CANADA; CHILD BEHAVIOR; CHILD HEALTH CARE; CHILD PARENT RELATION; COMORBIDITY; CONTROLLED STUDY; CORRELATION COEFFICIENT; FEMALE; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PRIORITY JOURNAL; PSYCHOSOCIAL DISORDER; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; SCORING SYSTEM; SELF ESTEEM; SELF REPORT; SOCIAL STATUS;

ADOLESCENT; ATTENTION DEFICIT DISORDER WITH HYPERACTIVITY; CHILD; FAMILY; FEMALE; HUMANS; MALE; MENTAL HEALTH; PARENTS; QUALITY OF LIFE; QUESTIONNAIRES; SELF ASSESSMENT (PSYCHOLOGY); SELF CONCEPT; SELF-ASSESSMENT;

EID: 33744951263     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/j.1365-2214.2006.00609.x     Document Type: Article

References (44)

1. Achenbach, T. M., McConaughy, S. H. & Howell, C. T. (1987) Child/ adolescent behavioral and emotional problems: Implications of cross-informant correlations for situational specificity. Psychological Bulletin, 101, 213-232.
2. Asch, D. A., Jedrziewski, M. K. & Christakis, N. A. (1997) Response rates to mail surveys published in medical journals. Journal of Clinical Epidemiology, 50, 1129-1136.
3. Barkley, R. A., DuPaul, G. J. & McMurray, M. B. (1990) Comprehensive evaluation of attention deficit disorder with and without hyperactivity as defined by research criteria. Journal of Consulting and Clinical Psychology, 58, 775-789.
4. Bastiaansen, D., Koot, H. M., Ferdinand, R. F. & Verhulst, F. C. (2004) Quality of life in children with psychiatric disorders; self-, parent, and clinician report. Journal of the American Academy of Child and Adolescent Psychiatry, 43, 221-230.
5. Biederman, J., Faraone, S. V., Keenan, K., Benjamin, J., Krifcher, B., Moore, C., Sprich-Buckmister, S., Ugaglia, K., Jellinek, M. S., Steingard, R., Spencer, T., Norman, D., Kolodny, R., Kraus, I., Perrin, J., Keller, M. B. & Tsuang, M. T. (1992) Further evidence for family-genetic risk factors in attention deficit hyperactivity disorder. Patterns of comorbidity in probands and relatives psychiatrically and pediatrically referred samples. Archives of General Psychiatry, 49, 728-738.
6. Cohen, J. (1977) Statistical Power for the Behavioral Sciences. Academic Press, New York, NY, USA.
7. Connolly, M. A. & Johnson, J. A. (1999) Measuring quality of life in paediatric patients. Pharmacoeconomics, 16, 605-625.
8. DeVeaugh-Geiss, J., Conners, C. K., Sarkis, E. H., Winner, P. K., Ginsberg, L. D., Hemphill, J. M., Lauremza, A., Barrows, C. E., Webster, C. J., Stotka, C. J. & Asgharnejad, M. (2002) GW320659 for the treatment of attention-deficit/hyperactivity disorder in children. Journal of American Academy of Child and Adolescent Psychiatry, 41, 914-920.
9. Diener, M. B. & Milich, R. (1977) Effects of positive feedback on the social interactions of boys with attention deficit hyperactivity disorder: A test of the self-protective hypothesis. Journal of Clinical Child Psychology, 26, 256-265.
10. Eiser, C. & Morse, R. (2001) Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, 5, 1-157.
11. Fayers, P. M. & Machin, D. (2000) Quality of Life Assessment, Analysis and Interpretation. John Wiley & Sons, Chichester, England.
12. Fitzpatrick, R., Davey, C., Buxton, M. J. & Jones, D. R. (1998) Evaluating patient-based outcome measures for use in clinical trials. Health Technology Assessment, 2, 1-74.
13. Forrest, C. B. (2004) Outcomes research on children, adolescents, and their families. Directions for further inquiry. Medical Care, 42 (Suppl. 4), III-19-III-23.
14. Gadow, K. D. & Sprafkin, J. (1997) Child Symptom Inventory 4 Norms Manual. Checkmate Plus, Stony Brook, NY, USA.
15. Gadow, K. D. & Sprafkin, J. (1998) Adolescent Symptom Inventory 4 Norms Manual. Checkmate Plus, Stony Brook, NY, USA.
16. Gilmore, A. & Milne, R. (2001) Methylphenidate in children with hyperactivity: Review and cost-utility analysis. Pharmacoepidemiology and Drug Safety, 10, 85-94.
17. Grayson, P. & Carlson, G. A. (1991) The utility of a DSM-III-R-based checklist in screening child psychiatric patients. Journal of American Academy of Child and Adolescent Psychiatry, 30, 669-673.
18. Hepner, K. A. & Sechrest, L. (2002) Confirmatory factor analysis of the Child Health Questionnaire-Parent Form 50 in a predominantly minority sample. Quality of Life Research, 11, 763-773.
19. Hoza, B., Pelham, W. E. Jr, Dobbs, J., Owens, J. S. & Pillow, D. R. (2000) Do boys with attention-deficit/hyperactivity disorder have positive illusory self-concepts? Journal of Abnormal Psychology, 111, 268-278.
20. Klassen, A. (2005) Quality of life of children with attention-deficit/ hyperactivity disorder: A review of published studies. Expert Review of Pharmacoeconomics & Outcomes Research, 5, 95-103.
21. Klassen, A., Miller, A. & Fine, S. (2004) Health-related quality of life in children and adolescents diagnosed with attention-deficit/ hyperactivity disorder. Pediatrics, 114, e541-e547.
22. Landgraf, J. M. & Abetz, L. N. (1997) Functional status and well-being of children representing three cultural groups: Initial self-reports using the CHQ-CF87. Psychology and Health, 12, 839-854.
23. Landgraf, J. M., Abetz, L. & Ware, J. E. (1999) The CHQ User's Manual. Second Printing. HealthAct, Boston, MA, USA.
24. Landis, J. R. & Koch, G. G. (1977) The measurement of observer agreement for categorical data. Biometrics, 33, 159-174.
25. Matza, L. S., Secnik, K., Rentz, A. M., Mannix, S., Sallee, F. R., Gilbert, D. & Revicki, D. A. (2005) Assessment of health state utilities for attention-deficit/hyperactivity disorder in children using parent proxy report. Quality of Life Research, 14, 735-747.
26. Matza, L. S., Rentz, A. M., Secnik, K., Swensen, A. R., Revicki, D. A., Michelson, D., Spencer, T., Newcorn, J. H. & Kratochvil, C. J. (2004) The link between health-related quality of life and clinical symptoms among children with attention-deficit/hyperactivity disorder. Journal of Developmental & Behavioral Pediatrics, 25, 166-174.
27. Michelson, D., Faries, D., Wernicke, J., Kelsey, D., Kendrick, K., Sallee, F. R., Spencer, T. & Atomoxetine ADHD Study Group (2001) Atomoxetine in the treatment of children and adolescents with attention-deficit/hyperactivity disorder: A randomized placebocontrolled, dose-response study. Pediatrics, 108, e83.
28. Ohan, J. L. & Johnston, C. (2002) Are the performance overestimates given by boys with ADHD self-protective? Journal of Clinical Child and Adolescent Psychology, 31, 230-241.
29. Owens, J. S. & Hoza, B. (2003) The role of inattention and hyperactivity/impulsivity in the positive illusory bias. Journal of Consulting and Clinical Psychology, 71, 680-691.
30. Patrick, D. L., Edwards, T. C. & Topolski, T. D. (2002) Adolescent quality of life, Part II: Initial validation of a new instrument. Journal of Adolescence, 25, 287-300.
31. Perwien, A. R., Faries, D. E., Kratochvil, C. J., Sumner, C. R., Kelsey, D. K. & Allen, A. J. (2004) Improvement in health-related quality of life in children with ADHD: An analysis of placebo controlled studies of atomoxetine. Journal of Developmental & Behavioral Pediatrics, 25, 264-271.
32. Rentz, A. M., Matza, L. S., Secnik, K., Swensen, A. & Revicki, D. A. (2005) Psychometric validation of the child health questionnaire (CHQ) in a sample of children and adolescents with attentiondeficit/ hyperactivity disorder. Quality of Life Research, 14, 719-734.
33. Ruperto, N., Ravelli, A., Pistorio, A., Malattia, C., Cavuto, S., Gado-West, L., Tortorelli, A., Landgraf, J. M., Singh, G. & Martini, A. (2001) Paediatric Rheumatology International Trials Organisation. Cross-cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries. Review of the general methodology. Clinical and Experimental Rheumatology, 19 (4 Suppl. 23), S1-9.
34. Sawyer, M. G., Whaites, L., Rey, J. M., Hazell, P. L., Graetz, B. W. & Baghurst, P. (2002) Health-related quality of life of children and adolescents with mental disorders. Journal of American Academy of Child and Adolescent Psychiatry, 41, 530-537.
35. Schmidt, L. J., Garrat, A. M. & Fitzpatrick, R. (2002) Child/ parent-assessed population health outcome measures: A structured review. Child: Care, Health and Development, 28, 227-237.
36. Secnik, K., Matza, L. S., Cottrell, S., Edgell, E., Tilden, D. & Mannix, S. (2005) Health state utilities for childhood attention-deficit/ hyperactivity disorder based on parent preferences in the United Kingdom. Medical Decision Making, 25, 56-70.
37. Spieth, L. E. & Harris, C. V. (1996) Assessment of health related quality of life in children and adolescents: An integrative review. Journal of Pediatric Psychology, 21, 175-193.
38. Spitzer, R. (1983) Psychiatric diagnosis: Are clinicians still necessary? Comprehensive Psychiatry, 24, 399-411.
39. Sprangers, M. A. & Schwartz, C. E. (1999) Integrating response shift into health-related quality of life research: A theoretical model. Social Science and Medicine, 48, 1507-1515.
40. Topolski, T. D., Edwards, T. C., Patrick, D. L., Varley, P., Way, M. E. & Buesching, D. P. (2004) Quality of life of adolescent males with attention-deficit/hyperactivity disorder. Journal of Attention Disorders, 7, 163-173.
41. Waters, E., Salmon, L. & Wake, M. (2000) The parent-form Child Health Questionnaire in Australia: Comparison of reliability, validity, structure, and norms. Journal of Pediatric Psychology, 25, 381-391.
42. Waters, E. B., Salmon, L. A., Wake, M., Wright, M. & Hesketh, K. D. (2001) The health and well-being of adolescents: A school-based population study of the self-report Child Health Questionnaire. Journal of Adolescent Health, 29, 140-149.
43. Waters, E., Wright, M., Wake, M., Landgraf, J. & Salmon, L. (1999) Measuring the health and well-being of children and adolescents: A preliminary comparative evaluation of the Child Health Questionnaire in Australia. Ambulatory Child Health, 5, 131-141.
44. World Health Organization. (1948) Constitution of The World Health Organization. WHO Basic Documents, Geneva.