Evaluating quality of life in children with cancer using children's self-reports and parent-proxy reports

Nursing Research

Volumn 54, Issue 5, 2005, Pages 354-362

  Yeh, Chao Hsing ^a,b   Chang, Chi Wen ^b   Chang, Pi Chen ^c  

^a CHANG GUNG MEMORIAL HOSPITAL   (Taiwan)

^b CHANG GUNG UNIVERSITY   (Taiwan)

^c TAIPEI MEDICAL UNIVERSITY   (Taiwan)

Author keywords

Children with cancer; Proxy agreement; Quality of life

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CLASSIFICATION; CUSTODY; FEMALE; HOSPITALIZATION; HUMAN; INFORMATION PROCESSING; LONGITUDINAL STUDY; MALE; NEOPLASM; NURSING RESEARCH; PARENT; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; REPRODUCIBILITY;

ADOLESCENT; CHILD; DATA COLLECTION; FEMALE; HUMANS; LONGITUDINAL STUDIES; MALE; NEOPLASMS; NURSING RESEARCH; PARENTS; PROXY; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SEVERITY OF ILLNESS INDEX;

EID: 26844500283     PISSN: 00296562     EISSN: None     Source Type: Journal    
DOI: 10.1097/00006199-200509000-00010     Document Type: Article

References (30)

1. Aaronson, N. K. (1991). Methodologic issues in assessing the quality of life of cancer patients. Cancer, 67(3 Suppl), 844-850.
2. Aaronson, N. K. (1998). Assessing the quality of life of patients with cancer: east meets west. European Journal of Cancer, 34(6), 767-769.
3. Achenbach, T. M., McConaughy, S. H., & Howell, C. T. (1987). Child/adolescent behavioral and emotional problems: Implications of cross-informant correlations for situational specificity. Psychological Bulletin, 101(2), 213-232.
4. Cella, D. F. (1994). Quality of life: concepts and definition. Journal of Pain & Symptom Management, 9(3), 186-192.
5. Cella, D. F., & Tulsky, D. S. (1993). Quality of life in cancer: Definition, purpose, and method of measurement. Cancer Investigation, 11(3), 327-336.
6. Chang, P. C., & Yeh, C. H. (2005). Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer. Psycho-Oncology, 14(2), 125-134.
7. Claflin, C. J., & Barbarin, O. A. (1991). Does "telling" less protect more? Relationships among age, information disclosure, and what children with cancer see and feel. Journal of Pediatric Psychology, 16, 169-191.
8. Cohen, J. (1992). Quantitative methods in psychology: A power primer. Psychological Bulletin, 112, 155-159.
9. Cotterill, S. J., Ahrens, S., Paulussen, M., Jurgens, H. F., Voute, P. A., Gadner, H. (2000). Prognostic factors in Ewing's tumor of bone: Analysis of 975 patients from the European Intergroup Cooperative Ewing's Sarcoma Study Group. Journal of Clinical Oncology, 18, 3108-3114.
10. Eiser, C. (2004). Children with cancer: The quality of life. New Jersey: Erlbaum.
11. Eiser, C., & Morse, R. (2001). Can parents rate their child's health-related quality of life? Results of a systematic review. Quality of Life Research, 10, 347-357.
12. Ennett, S. T., DeVellis, B. M., Earp, J. A., Kredich, D., Warren, R. W., & Wilhelm, C. L. (1991). Disease experience and psychosocial adjustment in children with juvenile rheumatoid arthritis: Children's versus mothers' reports. Journal of Pediatric Psychology, 16, 557-568.
13. Feeny, D., Furlong, W., Mulhern, R. K., Barr, R. D., & Hudson, M. (1999). A framework for assessing health-related quality of life among children with cancer. International Journal of Cancer, 12(Suppl), 2-9.
14. Hinds, P. S., & Haase, J. E. (1998). Quality of life in children and adolescents with cancer. In C. R. King & P. S. Hinds (Eds.), Quality of Life From Nursing and Patients Perspective (pp. 54-63). London: Jones and Bartlett Publishers International.
15. Holmbeck, G. N., Li, S. T., Schurman, J. V., Friedman, D., & Coakley, R. M. (2002). Collecting and managing multisource and multimethod data in studies of pediatric populations. Journal of Pediatric Psychology, 27, 5-18.
16. Hung, L. C., & Yeh, C. H. (2000). Coping process of adolescents with cancer [in Chinese]. Chang Gung Nursing Journal, 11, 14-24.
17. Landgraf, J. E., & Abetz, L. N. (1996). Quality of life and pharmacoeconomics in clinical trials measuring health outcomes in pediatric populations: Issues in psychometrics and application. In B. Spilker (Ed.), Quality of life and pharmacoeconomics in clinical trials (pp. 793-802). Philadelphia: Lippincott-Raven.
18. Parsons, S. K., Barlow, S. E., Levy, S. L., Supran, S. E., & Kaplan, S. H. (1999). Health-related quality of life in pediatric bone marrow transplant survivors: According to whom? International Journal of Cancer, 12(Suppl), 46-51.
19. Pollock, B. H. (1999). Obstacles and opportunities for the use of health-related quality-of-life assessment in pediatric cancer clinical trials (discussion). International Journal of Cancer, 12(Suppl), 151-153.
20. Testa, M. A., & Simonson, D. C. (1996). Assessment of quality-of-life outcomes. New England Journal of Medicine, 334, 835-840.
21. Theunissen, N. C., Vogels, T. G., Koopman, H. M., Verrips, G. H., Zwinderman, K. A., Verloove-Vanhorick, S. P. (1998). The proxy problem: Child report versus parent report in health-related quality of life research. Quality of Life Research, 7, 387-397.
22. Varni, J. W., Katz, E. R., Seid, M., Quiggins, D. J., Friedman-Bender, A., & Castro, C. M. (1998). The Pediatric Cancer Quality of Life Inventory (PCQL): I. Instrument development, descriptive statistics, and cross-informant variance. Journal of Behavioral Medicine, 21, 179-204.
23. Varni, J. W., Seid, M., & Rode, C. A. (1999). The PedsQL: Measurement model for the pediatric quality of life inventory. Medical Care, 37, 126-139.
24. Yeh, C. H. (2001). Adaptation in children with cancer: Research with Roy's model. Nursing Science Quarterly, 14, 141-148.
25. Yeh, C. H., Chao, K. Y., & Hung, L. C. (2004). The quality of life for children with cancer (QOLCC) in Taiwan (part I): Reliability and validity testing by confirmatory factor analysis. Psycho-Oncology, 13, 161-170.
26. Yeh, C. H., & Hung, L. C. (2003). Construct validity of newly developed quality of life assessment instrument for child and adolescent cancer patients in Taiwan. Psycho-Oncology, 12, 345-356.
27. Yeh, C. H., Hung, L. C, & Chao, K. Y. (2004). The quality of life for children with cancer (QOLCC) in Taiwan (part II): Feasibility, cross-informants variances and clinical validity. Psycho-Oncology, 13, 171-176.
28. Yeh, C. H., Lee, T. T., Chen, M. L., & Li, W. (2000). Adaptational process of parents of pediatric oncology patients. Pediatric Hematology Oncology, 17, 119-131.
29. Young-Saleme, T. K., & Prevatt, F. F. (2001). Brief report: Psychometric evaluation of the Severity of Illness Scale in a pediatric oncology sample. Journal of Pediatric Psychology, 26, 55-60.
30. Zebrack, B. J., & Chesler, M. A. (2002). Quality of life in childhood cancer survivors. Psycho-Oncology, 11, 132-141.