Assessing caregivers for team interventions (ACT): A new paradigm for comprehensive hospice quality care

American Journal of Hospice and Palliative Medicine

Volumn 26, Issue 2, 2009, Pages 128-134

  Demiris, George ^a   Oliver, Debra Parker ^b   Wittenberg Lyles, Elaine ^c  

^a UNIVERSITY OF WASHINGTON   (United States)

^b University of Missouri   (United States)

^c UNIVERSITY OF NORTH TEXAS   (United States)

Author keywords

Caregivers; Hospice care; Interdisciplinary communication; Patient care team

Indexed keywords

ARTICLE; ATTITUDE TO DEATH; ATTITUDE TO HEALTH; CAREGIVER; COOPERATION; HEALTH CARE QUALITY; HEALTH SERVICE; HOME CARE; HOSPICE CARE; HUMAN; HUMAN RELATION; NEOPLASM; ORGANIZATION AND MANAGEMENT; PATIENT CARE; THEORETICAL MODEL;

ATTITUDE TO DEATH; CAREGIVERS; COOPERATIVE BEHAVIOR; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SERVICES NEEDS AND DEMAND; HOME NURSING; HOSPICE CARE; HUMANS; MODELS, THEORETICAL; NEOPLASMS; PATIENT CARE TEAM; PROFESSIONAL-PATIENT RELATIONS; QUALITY OF HEALTH CARE;

EID: 64249096110     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909108328697     Document Type: Article

References (39)

1. National Hospice and Palliative Care Organization. NHPCO Facts and Figures: Hospice Care in America [electronic version]. Available at: www.nhpco.org. Retrieved May 2008.
2. Jaffe C., Ehrlich C. All Kinds of Love: Experiencing Hospice. Amityville, NY: Baywood Publishing Co ; 1997.
3. Egan KA A Patient-Family Value Based End of Life Care Model. Largo, FL: Hospice Institute of the Florida Suncoast ; 1998.
4. Kapo J., Casarett D. Working to improve palliative care trials. J Palliat Med. 2004 ; 7: 395-397.
5. Hermann C., Looney S. The effectiveness of symptom management in hospice patients during the last seven days of life. J Hosp Palliat Nurs. 2001 ; 3: 88-96.
6. Kutner JS, Kassner CT, Nowels DE Symptom burden at the end of life: hospice providers' perceptions. J Pain Symptom Manage. 2001 ; 21: 473-480.
7. Teno JM, Clarridge BR, Casey V., et al. Family perspectives on end-of-life care at the last place of care. JAMA. 2004 ; 291: 88-93.
8. Steele RG, Fitch MI Coping strategies of family caregivers of home hospice patients with cancer. Oncol Nurs Forum. 1996 ; 23: 955-960.
9. Brinson SV, Brunk Q. Hospice family caregivers: an experience in coping. Hosp J. 2000 ; 15: 1-12.
10. Steinhauser SE, Christakis NA, Clipp EC, McNeilly M., McIntyre L., Tulsky JA Factors considered important at the end of life by patients, family, physicians and other care providers. JAMA. 2000 ; 284: 2476-2482.
11. Steele RG, Fitch MI Coping strategies of family caregivers of home hospice patients with cancer. Oncol Nurs Forum. 1996 ; 23: 955-960.
12. Berry PE, Ward SE Barriers to pain management in hospice: a study of family caregivers. Hosp J. 1995 ; 10: 19-33.
13. Keefe FJ, Ahles TA, Porter LS, et al. The self-efficacy of family caregivers for helping cancer patients manage pain at end-of-life. Pain. 2003 ; 103: 157-162.
14. Letizia M., Creech S., Norton E., Shanahan M., Hedges L. Barriers to caregiver administration of pain medication in hospice care. J Pain Symptom Manage. 2004 ; 27: 114-124.
15. McMillan SC, Moody LE Hospice patient and caregiver congruence in reporting patients' symptom intensity. Cancer Nurs. 2003 ; 26: 113-118.
16. Parker Oliver D., Wittenberg-Lyles E., Demiris G., Washington K., Porock D., Day M. Barriers to pain management: caregiver perceptions and pain talk by hospice interdisciplinary teams. J Pain Symptom Manage. 2008 ; 36: 374-382.
17. US Health Care Financing Administration. Medicare Program Hospice Care: Final Rule (A.M.P.H.C.F.R.), Agency for Health Policy Research. Fed Regist. 1983 ; 48: 50008-50036.
18. Parker Oliver D., Porock D., Demiris G., Courtney KL Patient and Family Involvement in Hospice Interdisciplinary Teams: a brief study. J Palliat Care. 2005 ; 21: 270-276.
19. McMillan SC, Small BJ, Weitzner M., Schonwetter R., Tittle M., Moody L., Haley WE Impact of coping skills intervention with family caregivers of hospice patients with cancer: a randomized clinical trial. Cancer. 2006 ; 106: 214-222.
20. Walsh SM, Schmidt LA Telephone support for caregivers of patients with cancer. Cancer Nurs. 2003 ; 26: 448-453.
21. Harding R., Higginson IJ What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliat Med. 2003 ; 17: 63-74.
22. Jensen S., Given BA Fatigue affecting family caregivers of cancer patients. Cancer Nurs. 1991 ; 14: 181-187.
23. Kinsella G., Cooper B., Picton C., Murtagh D. A Review of measurement of caregiver and family burden in palliative care. J Palliat Care. 1998 ; 14: 37-45.
24. Newton M., Bell D., Lambert S., Fearing A. Concerns of hospice patient caregivers. ABNF J. 2002 ; 13: 140-144.
25. Kinsella G., Cooper B., Picton C., Murtagh D. Factors influencing outcomes for family caregivers of persons receiving palliative care: toward an integrated model. J Palliat Care. 2000 ; 16: 46-54.
26. Pearlin LI, Mullan JT, Semple SJ, Skaff MM Caregiving and the stress process: an overview of concepts and their measures. Gerontologist. 1990 ; 30: 583-594.
27. Meyers JL, Gray LN The relationships between family primary caregiver characteristics and satisfaction with hospice care, quality of life, and burden. Oncol Nurs Forum. 2001 ; 28: 73-82.
28. Houts PS, Nezu AM, Nezu CM, Bucher JA The prepared family caregiver: a problem-solving approach to family caregiver education. Patient Educ Couns. 1996 ; 27: 63-73.
29. Nezu A., Nezu C., Perri M. Problem Solving Therapy for Depression: Theory, Research, and Clinical Guidelines. New York: Wiley ; 1989.
30. Nezu AM, D'Zurilla T. Social problem solving and negative affective states. In: Kendall P, Watson D, eds. Anxiety and Depression: Disctinctive and Overlapping Features. New York, NY: Academic Press ; 1989.
31. D'Zurilla T., Nezu A. Social problem-solving in adults. In: Kendall P, ed. Advances in Cognitive-Behavioral Research and Therapy, Vol 1. New York, NY: Academic Press ; 1982.
32. Field MJ, Cassel CK, eds. and the Institute of Medicine; Approaching Death: Improving Care at the End of Life. Washington, DC: National Academy Press ; 1997.
33. Payne S., Smith P., Dean S. Identifying the concerns of informal carers in palliative care. Palliat Med. 1999 ; 13: 37-44.
34. Demiris G., Parker Oliver DR, Courtney KL, Porock D. Use of technology as a support mechanism for caregivers of hospice patients. J Palliat Care. 2005 ; 21: 303-309.
35. Demiris G., Washington K., Parker Oliver D., Wittenberg-Lyles E. A study of information flow in hospice interdisciplinary team meetings. J Interprof Care. 2008 ; 22: 621-629.
36. Bronstein LR A model for interdisciplinary collaboration. Soc Work. 2003 ; 48: 297-306.
37. Hebert RS, Schulz R. Caregiving at the end of life. J Palliat Med. 2006 ; 9: 1174-1187.
38. Emanuel EJ, Fairclough DL, Slutsman J., Emanuael LL Understanding economic and other burdens of terminal illness: the experience of patients and their caregivers. Ann Intern Med. 2000 ; 132: 451-459.
39. Saltz CC, Schaefer T. Interdisciplinary teams in health care: integration of family caregivers. Soc Work Health Care. 1996 ; 22: 59-69.