Telephone Support for Caregivers of Patients with Cancer

Cancer Nursing

Volumn 26, Issue 6, 2003, Pages 448-453

  Walsh, Sandra M ^a,b,c   Schmidt, Lee A ^c  

^a BARRY UNIVERSITY   (United States)

^b South Miami Hospital   (United States)

^c UNIVERSITY OF MIAMI   (United States)

Author keywords

Cancer; Caregiver; Hospice; Nursing; Telephone intervention

Indexed keywords

ADULT; AGED; BEREAVEMENT; CANCER PATIENT; CAREGIVER; CONTROLLED STUDY; DEATH; DEPRESSION; DISEASE SEVERITY; DISORIENTATION; EMOTION; FAMILY; FEMALE; HOSPICE; HUMAN; MALE; NURSE; PRIORITY JOURNAL; PSYCHOSOCIAL CARE; REVIEW; SOCIAL SUPPORT; TELEPHONE;

EID: 0348011669     PISSN: 0162220X     EISSN: None     Source Type: Journal    
DOI: 10.1097/00002820-200312000-00004     Document Type: Review

References (67)

1. SUPPORT. A controlled trial to improve care for seriously ill hospitalized patients. JAMA. 1995;274(20):1591-1598.
2. SUPPORT. Hastings Center Report. 1998;25(suppl 6):S3-S6.
3. Field MJ, Cassell CK, eds. Approaching Death. Committee on Care at the End of Life. Division of Health Care Services, Institute of Medicine. National Academy of Sciences. Washington, DC: National Academy Press; 1997.
4. Blank J, Clark L, Longman A, Atwood J. Perceived home care needs of cancer patients and their caregivers. Cancer Nurs. 1989;12:78-84.
5. Koop PM, Strang V. Predictors of bereavement outcomes in families of patients with cancer: a literature review. Can J Nurs Res. 1997;4:21-33.
6. Johnson J, Johnson MR. Programmatic approaches to psychosocial support. In: Carroll-Johnson RM, Gorman LM, Bush, NJ, eds. Psychosocial Nursing Care Along the Cancer Continuum. Pittsburgh, Pa: Oncology Nursing Press; 1998:315-327.
7. Wolfe B, Jordan JR. Ramblings from the trenches. Death Stud. 2000;24:569-584.
8. Wrubel J, Folkman S. What informal caregivers actually do: the caregiving skills of partners of men with AIDS. AIDS Care. 1997;9(6):691-706.
9. Hoffman C. Helping to heal through hospice. Caring. November 1996: 56-57.
10. Lattanzi-Licht M, Mahoney JJ, Miller GW. The Hospice Choice: In Pursuit of a Peaceful Death. The National Hospice Organization Guide to Hospice Care. New York, NY: Simon & Schuster; 1998.
11. Ferrell BR. Suffering. In: Carroll-Johnson RM, Gorman LM, Bush NJ, eds. Psychosocial Nursing Care Along the Cancer Continuum. Pittsburgh, Pa: Oncology Nursing Press; 1998:99-111.
12. Kurtz ME, Kurtz JC, Given CW, Given B. Predictors of postbereavement depressive symptomatology among family caregivers of cancer patients. Support Care Cancer. 1997;5:3-60.
13. Astudillo W, Mendinueta. Exhaustion syndrome in palliative care. Support Care Cancer. 1996;4:1-15.
14. Emanuel LL, von Gunten CF, Ferris FE. Gaps in end-of-life care. Arch Fam Med. 2000;9:1176-1180.
15. Furukawa MM. Meeting the needs of the dying patient's family. Crit Care Nurse. 1996;16(1):51-57.
16. Bedini LA, Phoenix TL. Recreation programs for caregivers of older adults: a review and analysis of literature from 1990 to 1998. Activities Adapt Aging. 1999;24(2):17-34.
17. Karlin NJ, Bell PA, Noah JL, Martichuski DK, Knight BL. Assessing Alzheimer's support group participation: a retrospective follow-up. Am J Alzheimer Dis. 1999;14(6):326-333.
18. Glaus A, Senn HJ. Who cares for the caregivers? Support Care Cancer. 1996;4:399-400.
19. Williamson GM, Shaffer DR, Schulz R. Activity restriction and prior relationship history as contributors to mental health outcomes among middle-aged and older spousal caregivers. Health Psychol. 1998;17(2): 152-162.
20. Horowitz MJ, Siegel B, Holen A, Bonanno GA, Milbrath C, Stinson CH. Diagnostic criteria for complicated grief disorder. Am J Psychiatry. 1997;154(7):904-910.
21. Hileman JW, Lackey NR. Self-identified needs of patients with cancer at home and their home caregivers: a descriptive study. Oncol Nurs Forum. 1990;17(6):907-913.
22. Kaunone M, Aaloto P, Tarkka M, Paunonen. Oncology ward nurses' perspectives of family grief and a supportive telephone call after the death of a significant other. Cancer Nurs. 2000;23(4):314-324.
23. Bucher JA, Houts PS, Glajchen M, Blum D. Telephone counseling. In: Holland JC, ed. Psychooncology. New York, NY: Oxford University Press; 1998:758-766.
24. Hagopian GA, Rubenstein JH. Effects of telephone call interventions on patients' well-being in a radiation therapy department. Cancer Nurs. 1990;13(6):339-344.
25. Mermelstein HT, Holland JC. Psychotherapy by telephone: a therapeutic tool for cancer patients. Psychosomatics. 1991;31:407-412.
26. Colon Y. Telephone support groups: a nontraditional approach to reaching underserved cancer patients. Cancer Pract. 1996;4(3):156-159.
27. McMillan SC, Tittle MB, Hill D. A systematic evaluation of the "I Can Cope" program using a national sample. Oncol Nurs Forum. 1993;20(3): 455-461.
28. Poe MR, DeVore LM. Using the telephone for cancer information. Cancer Pract. 1996;4(1):47-49.
29. Siegel KD, Mesagno FP, Karus DG, Christ G. Reducing the prevalence of unmet needs for concrete services of patients with cancer: evaluation of a computerized telephone outreach system. Cancer. 1992;69:1873-1883.
30. Glajchen MC, Moul JW. Teleconferencing as a method of educating men about managing advanced prostate cancer and pain. J Psychosoc Oncol. 1996;14(2):73-87.
31. Goodman CC, Pynoos. Telephone networks connect caregiving families of Alzheimer's victims. Gerontologist. 1988;28(5):602-605.
32. Stewart MJ, Hart G, Mann K, Jackson S, Langille L, Reidy M. Telephone support group intervention for persons with hemophilia and HIV/AIDS and family caregivers. Int J Nurs Stud. 2001;38(2):209-225.
33. Heckman TG, Kalichman SC, Roffman R, et al. A telephone-delivered coping improvement intervention for persons living with HIV/AIDS in rural areas. Soc. Work Groups. 1999;21(4):49-62.
34. Hogan NS. Development and testing of the Hogan Grief Reaction Checklist. In: Nineteenth Annual Conference of Association of Death Education and Counseling; 1997; Miami, Fla.
35. Hogan N, DeSantis L. Development of substantive theory in nursing. Nurse Educ Today. 1991;11:167-171.
36. Hogan N, DeSantis L. Things that help and hinder adolescent sibling bereavement. West J Nurs Res. 1994;16(2):132-153.
37. Hogan NS, Morse J, Tason M. Toward an experiential theory of bereavement. Omega J Death Dying. 1996;33:43-65.
38. Houston K, Petronis K, Denham K, Kosier M. An interdisciplinary approach to inpatient palliative care. Continuum. November-December 1995:9-16.
39. Nuland SB. How We Die: Reflections on Life's Final Chapter. New York, NY: Alfred Knopf; 1994.
40. Rubert M, Walsh S, Estrada G. Tele-care for caregivers of cancer patients. In: University of Miami and STT New Horizons Research Conference. Proceedings; January 5-8, 2001; Miami, Fla.
41. McFarlane R, Bashe P. The Complete Bedside Companion: No-Nonsense Advice on Caring for the Seriously Ill. New York, NY: Simon & Schuster; 1998.
42. Quill TE. Initiating end-of-life discussions with seriously ill patients: addressing the "Elephant in the Room." JAMA. 2000;284(19):2502-2507.
43. Carroll-Johnson RM, Gorman LM, Bush NJ, eds. In: Psychosocial Nursing Care Along the Cancer Continuum. Pittsburgh, Pa: Oncology Nursing Press; 1998.
44. Bush NJ. Family systems theory: a holistic framework for oncology nursing practice. In: Carroll-Johnson RM, Gorman LM, Bush, NJ, eds. Psychosocial Nursing Care Along the Cancer Continuum. Pittsburgh, Pa: Oncology Nursing Press; 1998:329-340.
45. Kurtz ME, Kurtz JC, Given CW, Given B. Predictors of postbereavement depressive symptomatology among family caregivers of cancer patients. Support Care Cancer. 1997;5:3-60.
46. Schwenzer KJ. How to offer comfort and symptom relief to the dying patient: algorithms for effective pain management. J Crit Illn. 1998;13(6):381-392.
47. Cotton P. Talk to people about dying: they can handle it, say geriatricians and patients. JAMA. 1993;269(3):321-322.
48. Tolle SW, Tilden VP, Hickman SE, Rosenfeld AG. Family reports of pain in dying hospitalized patients: a structured telephone survey. West J Med. 2000;172(6):374-378.
49. Mitka M. Suggestions for help when the end is near. JAMA. 2000; 284(19):2441-2442.
50. Weiss GL, Hite CA. The do-not-resuscitate decision: the context, process, and consequences of DNR orders. Death Stud. 2000;24:307-323.
51. Teno J, Lynn J, Connors AF, et al. The illusion of end-of-life resource savings with advance directives. J Am Geriatr Soc. 1997;45(4):513-518.
52. Albom M. Tuesdays With Morrie. New York, NY: Doubleday; 1997.
53. Curtis R, Patrick DL, Caldwell ES, Collier AC. Why don't patients and physicians talk about end-of-life care? Arch Intern Med. 2000;160: 1690-1696.
54. Hoffman C. Helping to heal through hospice. Caring. November 1996:56-57.
55. Lattanzi-Licht M, Mahoney JJ, Miller GW. The Hospice Choice: In Pursuit of a Peaceful Death. The National Hospice Organization Guide to Hospice Care. New York: Simon & Schuster; 1998.
56. Goodman KW. End-of life algorithms. Psychol Pub Policy Law. 1998;4: 719-727.
57. Hite CA. The do-not-resuscitate decision: the context, process, and consequences of DNR orders. Death Stud. 2000;24(4):307-323.
58. Meisel A, Snyder L, Quill T. Seven legal barriers to end-of-life care. JAMA. 2000;284(19):2495-2501.
59. Lawton MP, Moss M, Kleban MH, Glicksman A, Rovine M. Measuring caregiver appraisal. J Gerontol Psychol Sci. 1989;44:61-71.
60. Lawton MP, Moss M, Kleban MH, Glicksman A, Rovine M. A two-factor model of caregiving stress and psychological well-being. J Gerontol Psychol Sci. 1991;46:181-189.
61. Zarit SH, Todd PA, Zarit JM. Subjective burden of husbands and wives as caregivers: a longitudinal study. Gerontologist. 1986;26:260-266.
62. Radloff L. The Center for Epidemiological Studies-Depression Scale: a self-report depression scale for research in the general population. Appl Psychol Measure. 1977;3:85-401.
63. Hertzog C, Van Alstine J, Usala PD, Hultsch DF. Measurement properties of the Center for Epidemiological Studies-Depression Scale (CES-D) in older populations. Psychol Assess. 1990;2:64-72.
64. Hogan NS, Schmidt LA. Testing the grief to personal growth theory using structural equation modeling. Death Stud. 2002;26:615-634.
65. Hogan NS, Greenfield DB. Adolescent sibling bereavement symptomatology in a large community sample. J Adolesc Res. 1991;6(1):97-112.
66. Hogan NS, Greenfield DB, Schmidt LA. Development and validation of the Hogan Grief Reaction Checklist. Death Stud. 2001;25:1-35.
67. Walsh S. VITAS Pilot Study. Dean's award and VITAS award; 2000.