Working to improve palliative care trials

Journal of Palliative Medicine

Volumn 7, Issue 3, 2004, Pages 395-397

  Kapo, Jennifer ^a   Casarett, David ^a,b  

^a UNIVERSITY OF PENNSYLVANIA   (United States)

^b VETERANS AFFAIRS MEDICAL CENTER   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CAREGIVER; CLINICAL PRACTICE; CLINICAL STUDY; CLINICAL TRIAL; COGNITIVE DEFECT; DECISION MAKING; FAMILY; HOSPICE CARE; HUMAN; INFORMATION PROCESSING; INFORMED CONSENT; INTERVIEW; METHODOLOGY; NURSING HOME; PALLIATIVE THERAPY; QUESTIONNAIRE; SCREENING; SHORT SURVEY;

CLINICAL TRIALS; HOSPICES; HUMANS; MEDICAL HISTORY TAKING; PALLIATIVE CARE; PATIENT SELECTION; RESEARCH DESIGN; THIRD-PARTY CONSENT; TIME FACTORS;

EID: 3242795746     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/1096621041349400     Document Type: Short Survey

References (10)

1. Casarett D, Karlawish J: Are special ethical guidelines needed for palliative care research? J Pain Sympt Manage 2000;20:130-139.
2. Casarett D, Karlawish J, Hirschman K: Identifying ambulatory cancer patients at risk of impaired capacity to consent to research. J Pain Sympt Manage 2003;26:615-626.
3. Sulmasy DP, McIlvane JM, Pasley PM, Rahn M: A scale for measuring patient perceptions of the quality of end-of-life care and satisfaction with treatment: The reliability and validity of QUEST. J Pain Sympt Manage 2002;23:458-470.
4. Hickman SE, Tilden VP, Tolle SW: Family reports of dying patients' distress: the adaptation of a research tool to assess global symptom distress in the last week of life. J Pain Sympt Manage 2001;22:565-574.
5. Lobchuk MM, Degner LF: Symptom experiences: Perceptual accuracy between advanced-stage cancer patients and family caregivers in the home care setting. J Clin Oncol 2002;20:3495-3507.
6. Crowley R, Casarett D: Patients' willingness to participate in symptom-related and disease-modifying research: Results of a screening initiative in a palliative care clinic. Cancer 2003;97:2327-2333.
7. Andrews SC: Caregiver burden and symptom distress in people with cancer receiving hospice care. Oncol Nurs Forum 2001;28:1469-1474.
8. Casarett D, Takesaka J, Karlawish J, Hirschman K, Clark C: How should clinicians discuss hospice as an option for patient care in the final stage of dementia? Caregivers' attitudes toward hospice and information needs. Alzheimer Dis Assoc Dis 2002;16:116-122.
9. Casarett D, Crowley R, Hirschman K: Surveys to assess satisfaction with end-of-life care: Does timing matter? J Pain Sympt Manage. 2003;25:125-132.
10. Casarett D, Karlawish J, Hirschman K: Are hospices ready to participate in palliative care research? Results of a nationwide survey. J Palliat Med 2001;5: 397-406.