Education: A complex and empowering social work intervention at the end of life

Health and Social Work

Volumn 34, Issue 1, 2009, Pages 17-27

  Cagle, John G ^a   Kovacs, Pamela J ^b  

^a UNIVERSITY OF NORTH CAROLINA   (United States)

^b VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

Author keywords

Death and dying; Education; Empowerment; End of life; Health literacy; Informational support

Indexed keywords

EID: 62349125867     PISSN: 03607283     EISSN: 15456854     Source Type: Journal    
DOI: 10.1093/hsw/34.1.17     Document Type: Review

References (54)

1. Adler, S. S. (1989). Truth telling to the terminally ill: Neglected role of the social worker. Social Work, 34, 158-160.
2. Aoun, S. M., Kristjanson, L. J., Currow, D. C., & Hudson, P. L. (2005). Caregiving for the terminally ill: At what cost? Palliative Medicine, 19, 551-555.
3. Baker, L. M. (2004). Information needs at the end of life: A content analysis of one person's story. Journal of the Medical Library Association, 92, 78-82.
4. Beauchamp,T. L., & Childress. J. F. (1994). Principles of biomedical ethics (4th ed.). New York: Oxford University Press.
5. Beck, J. (1995). Cognitive therapy: Basics and beyond. New York: Guilford Press.
6. Bern-Klug, M. (2004). The ambiguous dying syndrome. Health & Social Work, 29, 55-65.
7. Bern-Klug, M., Gessert, C., & Forbes, S. (2001). The need to revise assumptions about the end of life: Implications for social work practice. Health & Social Work, 26, 28-48.
8. Braun, K. L.,Tanji,V M., & Heck, R. (2001). Support for physician-assisted suicide: Exploring the impact of ethnicity and attitudes toward planning for death. Gerontologist, 41, 51-60.
9. Christ, G. H., & Christ,A. E. (2006). Current approaches to helping children cope with a parent's terminal illness. CA:A Cancer Journal for Clinicians, 56, 197-212.
10. Christ, G. H., & Sormanti, M. (1999). Advancing social work practice in end-of-life care. Social Work in Health Care, 30(2), 81-99.
11. Clayton, J. M., Butow, P. N., & Tattersall, M.H.N. (2005). The needs of terminally ill cancer patients versus those of caregivers for information regarding prognosis and end-of-life issues. Cancer, 103, 1957-1964.
12. Csikai, E. L., & Bass, K. (2000). Health care social workers' view of ethical issues, practice, and policy in end-of-life care. Social Work in Health Care, 32(2), 1-22.
13. Dean, R. G. (2001). The myth of cross-cultural competence. Families in Society: The Journal of Contemporary Human Services, 82, 623-630.
14. Deja, K. (2006). Social workers breaking bad news:The essential role of an interdisciplinary team when communicating prognosis. Journal of Palliative Medicine, 9, 807-809.
15. Dhooper, S. S. (1997). Social work in health care in the 21st century. Thousand Oaks, CA: Sage Publications.
16. Drought,T. S., & Koenig, B. A. (2002). "Choice" in end-of-life decision making: Researching fact or fiction. Gerontologist, 42, 114-128.
17. Fallowfield, L. (2004). Communication with the patient and family in palliative medicine. In D. Doyle, G. Hanks, N. Cherny, & K. Caiman (Eds.), Oxford textbook of palliative medicine (3rd ed., pp. 101-115). Oxford: Oxford University Press.
18. Goldstein, E. (1995). Ego psychology and social work practice (2nd ed., pp. 166-199). New York: Free Press.
19. Grbich, C., Parker, D., & Maddocks I. (2000). Communication and information needs of care-givers of adult family members at diagnosis and during treatment of terminal cancer. Progress in Palliative Care, 8, 345-350.
20. Gwyther, L. P., Altilio, T., Blacker, S., Christ, G., Csikai, E. L., Hooyman, N., Kramer,B., Linton,J. M., Rayner, M., & Howe, J. (2005). Social work competencies in palliative and end-of-life are. Journal of Social Work in End-of-Life & Palliative Care, 1, 88-120.
21. Hay, A., & Johnson, S. (2001). Fundamental skills and knowledge for hospice and palliative care social workers. Competency-based education for social workers. Arlington. VA: National Hospice and Palliative Care Organization.
22. Healthy People 2010. (2005). Healthy People 2010: Objectives for improving health-Health communication. Retrieved December 17, 2005, from http://www.healthypeople.gov/document/pdf/Volumel/11HealthCom.pdf
23. Ingersoll-Dayton, B., Schroepfer. T., Pryce. J., & Waaral, C. (2003). Enhancing relationships in nursing homes through empowerment [Practice Update]. Social Work, 48, 420-424.
24. James, R. K., & Gilliland, B. E. (2001). Crisis intervention strategies (4th ed.). Belmont, CA: Brooks/Cole.
25. Jennings, B., Ryndes. T., D'Onofno, C., & Baily, M. A. (2003). Access to hospice care: Expanding boundaries, overcoming barriers. Hastings Center Report, 33, S3-S59.
26. Kirsch, I., Jungeblut, A., Jenkins, L., & Kolstad. A. (1993). The first look at the results of the National Adult Literacy Survey (NALS). Washington, DC: U.S. Department of Education.
27. Koenig, B. A. (1997). Cultural diversity in decision making. In M. J. Field & C. K. Cassel (Eds.), Approaching death: Improving care at. the end of life (pp. 363-382). Washington, DC: Institute of Medicine.
28. Kovacs, P. J., & Bronstein, L. (1999). Preparing social workers for oncology settings: What hospice social workers say they need. Health & Social Work, 24, 57-64.
29. Krohne, H.W., & Slangen, K. E. (2005). Influence of social support on adaptation to surgery. Health Psychology, 24, 101-105.
30. Kubler-Ross, E. (1969). On death and dying. New York: Touchstone. Kutner,J. S., Steiner, J. F., Corbett, K. K., Jahnigen, D. W., & Barton, P. L. (1999). Information needs in terminal illness. Social Science & Medicine, 48, 1341-1352.
31. Lee, J.A.B. (1996).The empowerment approach to social work practice. In F.Turner (Ed.), Social work treatment: Interlocking theoretical approaches (4th ed.,pp. 218-249). New York: Free Press.
32. Makoul, G. (2003). The interplay between education and research about patient-provider communication. Patient Education and Counseling, 50, 79-84.
33. Maly, R. C., Leake, B., & Silliman, R. A. (2004). Breast cancer treatment in older women: Impact of the patient-physician interaction. Journal of the American Geriatrics Society, 52, 1138-1145.
34. Miller, R. D., & Walsh, T. D. (1991). Psychosocial aspects of palliative care in advanced cancer. Journal of Pain and Symptom Management, 6, 24-29.
35. National Association of Social Workers. (2000). Code of ethics of the National Association of Social Workers. Retrieved June 16, 2006, from http://www.socialworkers.org/pubs/code/code.asp
36. National Association of Social Workers. (2003). Social workers in hospice and palliative care settings. Retrieved April 9, 2004, from, http://www.socialworkers.org/practice/bereavement/updates/EndOfLifeCare-PU0204. pdf
37. Parry, J. K. (1990). Social work practice with the terminally ill: A transcultural perspective. Springfield, IL: Charles C Thomas.
38. Pickett, M., Barg, F. K., & Lynch, M. P. (2001). Development of a home-based family caregiver education program. Hospice Journal, 15, 19-40.
39. Powazki, R. D., & Walsh, D. (1999). Acute care palliative care medicine: Psychosocial assessment of patients and primary caregivers. Palliative Medicine, 15, 367-374.
40. Proot, I. M., Abu-Saad, H. H., ter Meulen, R.H.J., Goldsteen, M., Spreeuwenberg, C., & Widdershoven, G.A.M. (2004). The needs of terminally ill patients at home: Directing one's life, health and things related to beloved others. Palliative Medicine, 18, 53-61.
41. Rabow, M.W., Hauser,J. M., & Adams, J. (2004). Supporting family caregivers at the end of life: "They don't know what they don't know." JAMA, 291, 483-490.
42. Reese, D.J., & Raymer, M. (2004). Relationships between social work involvement and hospice outcomes: Results of the National Hospice Social Work Survey. Social Work, 49, 415-422.
43. Richards, S. (2000). Bridging the divide: Elders and the assessment process. British Journal of Social Work, 30, 37-49.
44. Rose, K. E. (1999). A qualitative analysis of the information needs of informal carers of terminally ill cancer patients. Journal of Clinical Nursing, 8, 81-88.
45. Shapiro, P. J., Coyne, J. C., & Kruus, L. K. (2004). Interest in services among prostate cancer patients receiving androgen deprivation therapy. Psycho-Oncology, 13, 512-525.
46. Sheldon, J. E. (1998). Patient education: Adding to quality of care. American Journal of Hospice and Palliative Care, 15, 239-242.
47. Small, N., & Rhodes, P. (2000). Too ill to talk? User involvement in palliative care. London: Routledge.
48. Steinhauser, K. E., Christakis, N. A., Clipp, E. C., McNeilly, M., Grambow, S., Parker, J., & Tulsky, J. A. (2001). Preparing for the end of life: Preferences of patients, families, physicians, and other care providers. Journal of Pain and Symptom Management, 22, 727-737.
49. Stoneberg J. N., & von Gunten, C. F. (2006). Assessment of palliative care needs. Anesthesiology Clinics of North America, 24, 1-17.
50. Taylor-Brown, S.T., Blacker, S., Walsh-Burke, K., Christ, G. H., & Altilio.T. (2001). Care at the end of life. Philadelphia: Society of Social Work Leadership in Health Care.
51. Tringali, C. (1986). The needs of family members of cancer patients. Oncology Nursing Forum, 13, 65-69.
52. Walsh, J. (2006). Theories for direct social work practice. Belmont, CA:Brooks/Cole.
53. Walsh. T., & Lord, B. (2004). Client satisfaction and empowerment through social work intervention. Social Work in Health Care, 38(4), 37-56.
54. Willert, M., Beckwith, B., Holm, J., & Beckwith, S. (1995). A preliminary study of the impact of terminal illness on spouses: Social support and coping strategies. Hospice Journal, 10, 35-48.