Information needs at the end of life: A content analysis of one person's story

Journal of the Medical Library Association

Volumn 92, Issue 1, 2004, Pages 78-82

  Baker, Lynda M ^a  

^a WAYNE STATE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACCESS TO INFORMATION; ALTERNATIVE MEDICINE; COPING BEHAVIOR; DYING; EMOTION; FAMILY LIFE; FINANCIAL MANAGEMENT; GRIEF; HUMAN; MEDICAL INFORMATION SYSTEM; PATIENT CARE; PHYSICAL DISEASE; PROFESSIONAL PRACTICE; REVIEW;

AGED; ATTITUDE TO DEATH; COUNSELING; FEMALE; GRIEF; HUMANS; MALE; MEDICINE IN LITERATURE; NEEDS ASSESSMENT; PATIENT EDUCATION; PROFESSIONAL-PATIENT RELATIONS; PROSTATIC NEOPLASMS; SPIRITUALITY; TERMINAL CARE; TERMINOLOGY;

EID: 1542316903     PISSN: 15365050     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (39)

1. LUNNEY JR, LYNN J, HOGAN C. Profiles of older medicare decedents. J Am Geriatr Soc 2002 Jun;50(6):1108-12.
2. GELFAND DE, BAKER LM, COONEY G. Developing interdisciplinary end-of-life programs in university-wide settings. Am J Hospice Palliat Care 2003 Jun;20(3):201-4.
3. PARRY A, DOAN RE. Story re-visions: narrative therapy in the postmodern world. New York, NY: Guilford Press, 1994: 24.
4. KLEINMAN A. The illness narratives; suffering, healing and the human condition. New York, NY: Basic Books, 1988: 49.
5. BAKER LM, PETTIGREW KE. Theories for practitioners: two frameworks for studying consumer health information-seeking behavior. Bull Med Libr Assoc 1999 Oct;87(4):444-50.
6. BAKER LM. Preference for physicians as information providers by women with multiple sclerosis: a potential cause for communication problems? J Doc 1997 Jun;53(3):251-62.
7. BAKER LM, CONNOR JJ. Physician-patient communication from the perspective of library and information science. Bull Med Libr Assoc 1994 Jan;82(1):36-42.
8. TULSKY JA, FISCHER GS, ROSE MR, ARNOLD RM. Opening the black box: how do physicians communicate about advance directives? Ann Intern Med 1998 Sep 15;129:441-9.
9. QUILL TE. Initiating end-of-life discussions with seriously ill patients. JAMA 2000 Nov 15;284(19):2502-7.
10. THE AM, HAK T, KOETER G, VAN DER WAL G. Collusion in doctor-patient communication about imminent death: an ethnographic study. BMJ 2000 Dec 2;321(7273):1376-81.
11. SWIGART V, LIDZ C, BUTTERWORTH V, ARNOLD R. Letting go: family willingness to forgo life support. Heart Lung 1996 Nov-Dec;25(6):483-94.
12. TILDEN VP, TOLLE SW, NELSON CA, THOMPSON M, EGGMAN SC. Family decision making in foregoing life-extending treatments. J Fam Nurs 1999 Nov;5(4):426-42.
13. KUTNER JS, STEINER JF, CORBETT KK, JAHNIGEN DW, BARTON PL. Information needs in terminal illness. Soc Sci Med 1999;48:1341-52.
14. IBID., 1343.
15. IBID., 1349.
16. PARRY, op. cit., 3.
17. SIMPKINSON AA. Sacred stories. Storytelling 1997 Jul; 9(4):24-7.
18. PARRY, op. cit., 19.
19. SIMPKINSON, op. cit., 26.
20. BUTTERWORTH MD, FULMER KA. The effect of family violence on children: intervention strategies including bibliotherapy. Aust J Marriage Fam 1991 Nov;12(3):170-82.
21. PARDECK JT. Bibliotherapy with abused children. Families in Society 1990 Apr;71(4):229-35.
22. FRANK AW. The wounded storyteller: body, illness, and ethics. Chicago, IL: University of Chicago Press, 1995.
23. IBID., 1.
24. FRANK AW. The standpoint of storyteller. Qual Health Res 2000 May;10(3):354-65.
25. KRAMER K, KRAMER H. Conversations at midnight: coming to terms with dying and death. New York, NY: Avon Books, 1993.
26. SPROULL NL. Handbook of research methods: a guide for practitioners and students in the social sciences. 2nd ed. Lanham, MD: Scarecrow, 1995:246.
27. POWELL RR. Basic research methods for librarians. 3rd ed. Greenwich, CT: Ablex, 1997:50.
28. SCHAMBER L. Time-line interviews and inductive content analysis: their effectiveness for exploring cognitive behaviors. J Am Soc Info Sci 2000;51(8):734-44.
29. KRIKELAS J. Information-seeking behavior: patterns and concepts. Drexel Lib Q 1983;19(2):5-20.
30. KRAMER, op. cit., 49.
31. IBID., 33.
32. IBID., 147.
33. IBID., 41.
34. IBID., 35.
35. IBID., 35.
36. IBID., 174.
37. IBID., 116-7.
38. KUTNER, op. cit.
39. HARVEY SA. S.C.A.L.E. - Spiritual care at life's end: a multi-disciplinary approach to end-of-life issues in a hospital setting. Med Ref Serv Q 2001 Winter;20(4):63-71.