Life satisfaction of adolescents and adults with cystic fibrosis: Impact of partnership and gender

Journal of Cystic Fibrosis

Volumn 8, Issue 2, 2009, Pages 104-109

  Besier, Tanja ^a   Schmitz, Tim G ^b   Goldbeck, Lutz ^a  

^a UNIVERSITY HOSPITAL ULM   (Germany)

^b Pediatric Rehabilitation Clinic St Maria   (Germany)

Author keywords

Cystic fibrosis; Gender differences; Life satisfaction; Partnership

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CYSTIC FIBROSIS; FAMILY LIFE; FEMALE; HEALTH SURVEY; HUMAN; HUMAN RELATION; LIFE SATISFACTION; MAJOR CLINICAL STUDY; MALE; QUALITY OF LIFE; QUESTIONNAIRE; SEX DIFFERENCE;

ADOLESCENT; ADULT; CYSTIC FIBROSIS; FAMILY CHARACTERISTICS; FEMALE; HUMANS; INTERPERSONAL RELATIONS; MALE; MIDDLE AGED; PERSONAL SATISFACTION; QUALITY OF LIFE; QUESTIONNAIRES; SEX FACTORS; YOUNG ADULT;

EID: 60449113738     PISSN: 15691993     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jcf.2008.10.001     Document Type: Article

References (30)

1. Stern M., Sens B., Wiedemann B., Busse O., Damm G., and Wenzlaff P. Qualitätssicherung Mukoviszidose. Überblick über den Gesundheitszustand der Patienten in Deutschland 2005 (2007), Medizinisch Wissenschaftliche Verlagsgesellschaft, Berlin
2. Demko C.A. Gender differences in cystic fibrosis: Pseudomonas aeruginosa infection. J Clin Epidemiol 48 (1995) 1041-1049
3. Rosenfeld M., Davis R., FitzSimmons S., Pepe M., and Ramsey B. Gender gap in cystic fibrosis mortality. Am J Epidemiol 145 (1997) 794-803
4. Verma N., Bush A., and Buchdahl R. Is there still a gender gap in cystic fibrosis?. Chest 128 (2005) 2824-2834
5. WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med 41 (1995) 1403-1409
6. Wijnhoven H.A.H., Kriegsman D.M.W., Snoek F.J., Hesselink A.E., and De Haan M. Gender differences in health-related quality of life among asthma patients. J Asthma 40 (2003) 189-199
7. Gee L., Abbott J., Conway S.P., Etherington C., and Webb A.K. Quality of life in cystic fibrosis: the impact of gender, general health perceptions and disease severity. J Cyst Fibros 2 (2003) 206-213
8. Mrus J.M., Williams P.L., Tsevat J., Cohn S.E., and Wu A.W. Gender differences in health-related quality of life in patients with HIV/AIDS. Qual Life Res 14 (2005) 479-491
9. Arrington-Sanders R., Yi M.S., Tsevat J., Wilmott R.W., Mrus J.M., and Britto M.T. Gender differences in health-related quality of life of adolescents with cystic fibrosis. Health Quality Life Outcomes 4 (2006) 5
10. Staab D., Wenninger K., Gebert N., Rupprath K., Bisson S., Trettin M., et al. Quality of life in patients with cystic fibrosis and their parents: what is important besides disease severity?. Thorax 53 (1998) 727-731
11. Riekert K.A., Bartlett S.J., Boyle M.P., Krishnan J.A., and Rand C.S. The association between depression, lung function, and health-related quality of life among adults with cystic fibrosis. Chest 132 1 (Jul 2007) 231-237
12. Bennett S.J., Perkins S.M., Lane K.A., Deer M., Brater D.C., and Murray M.D. Social support and health-related quality of life in chronic heart failure patients. Quality Life Res 10 (2001) 671-682
13. Gustavsson-Lilius M., Julkunen J., and Hietanen P. Quality of life in cancer patients: the role of optimism, hopelessness, and partner support. Quality Life Res 16 (2007) 75-87
14. Joekes K., Van Elderen T., and Schreurs K. Self-efficacy and overprotection are related to quality of life, psychological well-being and self-management in cardiac patients. J Health Psychol 12 (2007) 4-16
15. Goldbeck L., Zerrer S., and Schmitz T.G. Monitoring quality of life in outpatients with cystic fibrosis: feasibility and longitudinal results. J Cyst Fibros 6 3 (2007 May) 171-178
16. Sawyer S.M., Phelan P.D., and Bowes G. Reproductive health in young women with cystic fibrosis: knowledge, behaviour and attitudes. J Adolesc Health Care 17 (1995) 46-50
17. Fair A., Griffiths K., and Osman L.M. Attitudes to fertility issues among adults with cystic fibrosis in Scotland. Thorax 55 (2000) 672-677
18. Walters S., Britton J., and Hodgson M. Demographic and social characteristics of adults with cystic fibrosis in the United Kingdom. BMJ 306 (1993) 549-552
19. Henrich G., and Herschbach P. Questions on Life Satisfaction (FLZM) - a short questionnaire for assessing subjective quality of life. Eur J Psychol Assess 16 (2000) 150-159
20. Goldbeck L., Schmitz T.G., Henrich G., and Herschbach P. Questions on Life Satisfaction for Adolescents and Adults with Cystic Fibrosis (FLZ-CF). Dev Disease-specific Quest Chest 123 (2003) 42-48
21. Goldbeck L., and Schmitz T.G. Comparison of three generic questionnaires measuring quality of life in adolescents and adults with cystic fibrosis: the 36-item short form health survey, the quality of life profile for chronic diseases, and the questions on life satisfaction. Quality Life Res 10 1 (2001) 23-36
22. Bortz J, Döring N. Forschungsmethoden und Evaluation für Human- und Sozialwissenschaftler. 4.Auflage ed. Heidelberg: Springer-Verlag; 2006.
23. Staab D. Cystic fibrosis and reproduction - vision or reality? (CF und Kinderwunsch - Vision oder Realität?). Atemwegs-Lungenkr 31 6 (2005) 326-330
24. Popli K., and Stewart J. Infertility and its management in men with cystic fibrosis: review of literature and clinical practices in the UK. Hum Fertil 10 (2007) 217-221
25. Sokol R.Z. Infertility in men with cystic fibrosis. Curr Opin Pulm Med 7 (2001) 421-426
26. Sawyer S.M., Farrant B., Cerritelli B., and Wilson J. A survey of sexual and reproductive health in men with cystic fibrosis: new challenges for adolescent and adult services. Thorax 60 (2005) 326-330
27. Tonelli M.R., and Aitken M.L. Pregnancy in cystic fibrosis. Curr Opin Pulm Med 13 (2007) 537-540
28. Siegel B., and Siegel S. Pregnancy and delivery in a patient with cystic fibrosis of the pancreas. Obstet Gynecol 16 (1960) 438-440
29. Symister P., and Friend R. The influence of social support and problematic support on optimism and depression in chronic illness: a prospective study evaluating self-esteem as a mediator. Health Psychol 22 (2003) 123-129
30. Conway S.P., Pond M.N., Hamnett T., and Watson A. Compliance with treatment in adult patients with cystic fibrosis. Thorax 51 1 (1996) 29-33