-
1
-
-
0004301366
-
-
Bethesda, Maryland. CF Foundation
-
Cystic Fibrosis Foundation. Patient Registry 2001 Annual Report, Bethesda, Maryland 2002. CF Foundation
-
(2002)
Patient Registry 2001 Annual Report
-
-
-
2
-
-
0012877986
-
Growing up with cystic fibrosis: The adolescent years
-
Bluebond-Langner M, Lask B, Angst DB, eds. London, UK: Arnold
-
Tyrell J. Growing up with cystic fibrosis: the adolescent years. In: Bluebond-Langner M, Lask B, Angst DB, eds. Psychosocial aspects of cystic fibrosis. London, UK: Arnold, 2001; 139-149
-
(2001)
Psychosocial Aspects of Cystic Fibrosis
, pp. 139-149
-
-
Tyrell, J.1
-
3
-
-
0002610833
-
Adults
-
Bluebond-Langner M, Lask B, Angst DB, eds. London, UK: Arnold
-
Duncan-Skingle F, Pankhurst FJ. Adults. In: Bluebond-Langner M, Lask B, Angst DB, eds. Psychosocial aspects of cystic fibrosis. London, UK: Arnold, 2001; 161-171
-
(2001)
Psychosocial Aspects of Cystic Fibrosis
, pp. 161-171
-
-
Duncan-Skingle, F.1
Pankhurst, F.J.2
-
4
-
-
0022344111
-
Cystic fibrosis in adult life: A study of coping patterns
-
Pinkerton Ph, Trauer Th, Duncan F, et al. Cystic fibrosis in adult life: a study of coping patterns. Lancet 1985; 2:761-763
-
(1985)
Lancet
, vol.2
, pp. 761-763
-
-
Pinkerton, Ph.1
Trauer, Th.2
Duncan, F.3
-
6
-
-
0027369592
-
Krankheitsverarbeitung bei erwachsenen patienten der cystischen fibrose: I. Coping, persönlichkeit und befindlichkeit
-
Röthlisberger C. Krankheitsverarbeitung bei erwachsenen Patienten der Cystischen Fibrose: I. Coping, Persönlichkeit und Befindlichkeit. Z Klin Psychol Psychopathol Psychother 1993; 41:358-372
-
(1993)
Z Klin Psychol Psychopathol Psychother
, vol.41
, pp. 358-372
-
-
Röthlisberger, C.1
-
7
-
-
0012762925
-
The adult's perspective
-
Bluebond-Langner M, Lask B, Angst DB, eds. London, UK: Arnold
-
Peek D. The adult's perspective. In: Bluebond-Langner M, Lask B, Angst DB, eds. Psychosocial aspects of cystic fibrosis. London, UK: Arnold, 2001; 29-36
-
(2001)
Psychosocial Aspects of Cystic Fibrosis
, pp. 29-36
-
-
Peek, D.1
-
9
-
-
0034915189
-
Comparison of three generic questionnaires measuring quality of life in adolescents and adults with cystic fibrosis: The 36-Item Short Form Health Survey, the Quality of Life Profile for Chronic Diseases, and the Questions on Life Satisfaction
-
Goldbeck L, Schmitz TG. Comparison of three generic questionnaires measuring quality of life in adolescents and adults with cystic fibrosis: the 36-Item Short Form Health Survey, the Quality of Life Profile for Chronic Diseases, and the Questions on Life Satisfaction. Qual Life Res 2001; 10:23-36
-
(2001)
Qual Life Res
, vol.10
, pp. 23-36
-
-
Goldbeck, L.1
Schmitz, T.G.2
-
10
-
-
0001846744
-
Critical issues and needs in health-related quality of life assessment of children and adolescents with chronic health conditions
-
Drotar D, ed. Mahwah, NJ: Lawrence Erlbaum
-
Levi R, Drotar D. Critical issues and needs in health-related quality of life assessment of children and adolescents with chronic health conditions. In: Drotar D, ed. Measuring health related quality of life in children and adolescents: implications for research and practice. Mahwah, NJ: Lawrence Erlbaum, 1998; 3-24
-
(1998)
Measuring Health Related Quality of Life in Children and Adolescents: Implications for Research and Practice
, pp. 3-24
-
-
Levi, R.1
Drotar, D.2
-
11
-
-
18844383800
-
Conceptual issues in developing quality of life assessments for children: Illustrations from studies of insulin-dependent diabetes mellitus
-
Drotar D, ed. Mahwah, NJ: Lawrence Erlbaum
-
Jacobson AM, Fried K. Conceptual issues in developing quality of life assessments for children: illustrations from studies of insulin-dependent diabetes mellitus. In: Drotar D, ed. Measuring health related quality of life in children and adolescents: implications for research and practice. Mahwah, NJ: Lawrence Erlbaum, 1998; 131-150
-
(1998)
Measuring Health Related Quality of Life in Children and Adolescents: Implications for Research and Practice
, pp. 131-150
-
-
Jacobson, A.M.1
Fried, K.2
-
13
-
-
0000380017
-
Construction of a disease specific quality of life questionnaire for cystic fibrosis
-
Henry G, Grosskopf C, Aussage P, for the CFQoL Study Group. Construction of a disease specific quality of life questionnaire for cystic fibrosis. Pediatr Pulmonol 1996; 14(suppl):337-338
-
(1996)
Pediatr Pulmonol
, vol.14
, Issue.SUPPL.
, pp. 337-338
-
-
Henry, G.1
Grosskopf, C.2
Aussage, P.3
-
14
-
-
0031682139
-
Quality of life in patients with cystic fibrosis and their parents: What is important besides disease severity?
-
Staab D, Wenninger K, Gebert N, et al. Quality of life in patients with cystic fibrosis and their parents: what is important besides disease severity? Thorax 1998; 53:727-731
-
(1998)
Thorax
, vol.53
, pp. 727-731
-
-
Staab, D.1
Wenninger, K.2
Gebert, N.3
-
15
-
-
0000161709
-
Quality of life outcomes in children and adolescents with cystic fibrosis
-
Drotar D, ed. Mahwah, NJ: Lawrence Erlbaum Associates
-
Czyzewski DI, Bartholomew K. Quality of life outcomes in children and adolescents with cystic fibrosis. In: Drotar D, ed. Measuring health-related quality of life in children and adolescents. Mahwah, NJ: Lawrence Erlbaum Associates, 1998; 203-218
-
(1998)
Measuring Health-Related Quality of Life in Children and Adolescents
, pp. 203-218
-
-
Czyzewski, D.I.1
Bartholomew, K.2
-
16
-
-
0000606439
-
Development of a CF-specific quality of life instrument for adults with cystic fibrosis
-
Tullis, ED, Gilljam, M, Corey, M. Development of a CF-specific quality of life instrument for adults with cystic fibrosis [abstract]. Pediatr Pulmonol 1999; 19(Suppl):327
-
(1999)
Pediatr Pulmonol
, vol.19
, Issue.SUPPL.
, pp. 327
-
-
Tullis, E.D.1
Gilljam, M.2
Corey, M.3
-
17
-
-
0032775048
-
The adaptations of a quality of life questionnaire for routine use in clinical practice: The Chronic Respiratory Disease Questionnaire in cystic fibrosis
-
Bradley J, Dempster M, Wallace E, et al. The adaptations of a quality of life questionnaire for routine use in clinical practice: the Chronic Respiratory Disease Questionnaire in cystic fibrosis. Qual Life Res 1999; 8:65-71
-
(1999)
Qual Life Res
, vol.8
, pp. 65-71
-
-
Bradley, J.1
Dempster, M.2
Wallace, E.3
-
18
-
-
0033806096
-
Translation and linguistic validation of a disease-specific quality of life measure for cystic fibrosis
-
Quittner AL, Sweeny S, Watrous M, et al. Translation and linguistic validation of a disease-specific quality of life measure for cystic fibrosis. J Pediatr Psychol 2000; 25:403-414
-
(2000)
J Pediatr Psychol
, vol.25
, pp. 403-414
-
-
Quittner, A.L.1
Sweeny, S.2
Watrous, M.3
-
19
-
-
0033768032
-
Development of a disease specific health related quality of life measure for adults and adolescents with cystic fibrosis
-
Gee L, Abbott J, Conway SP, et al. Development of a disease specific health related quality of life measure for adults and adolescents with cystic fibrosis. Thorax 2000; 55:946-954
-
(2000)
Thorax
, vol.55
, pp. 946-954
-
-
Gee, L.1
Abbott, J.2
Conway, S.P.3
-
20
-
-
85031271312
-
Validation of a disease-specific quality of life measure for cystic fibrosis across two samples
-
Abstracts of the 24th European Cystic Fibrosis Conference, June 6 to 9, 2001. Vienna, Austria
-
Modi A, Davis M, Quittner AL, et al. Validation of a disease-specific quality of life measure for cystic fibrosis across two samples. Abstracts of the 24th European Cystic Fibrosis Conference, June 6 to 9, 2001. Vienna, Austria: J Cystic Fibrosis, 2001; 328
-
(2001)
J Cystic Fibrosis
, pp. 328
-
-
Modi, A.1
Davis, M.2
Quittner, A.L.3
-
21
-
-
33646222652
-
Psychometric properties of a disease-specific quality of life measure for adolescents and adults with cystic fibrosis
-
Abstracts of the 24th European Cystic Fibrosis Conference 6-9 June 6 to 9, 2001. Vienna, Austria
-
Quittner AL, Davis M, Modi A, et al. Psychometric properties of a disease-specific quality of life measure for adolescents and adults with cystic fibrosis. Abstracts of the 24th European Cystic Fibrosis Conference 6-9 June 6 to 9, 2001. Vienna, Austria: J Cystic Fibrosis, 2001, 330
-
(2001)
J Cystic Fibrosis
, pp. 330
-
-
Quittner, A.L.1
Davis, M.2
Modi, A.3
-
22
-
-
0001130635
-
Assessment of quality of life in adults with CF in the United Kingdom using the EUROQOL questionnaire
-
Abstracts of the 24th European Cystic Fibrosis Conference. June 6 to 9, 2001. Vienna, Austria
-
Walters S, Warren, RL. Assessment of quality of life in adults with CF in the United Kingdom using the EUROQOL questionnaire. Abstracts of the 24th European Cystic Fibrosis Conference. June 6 to 9, 2001. Vienna, Austria: J Cystic Fibrosis, 2001; 325
-
(2001)
J Cystic Fibrosis
, pp. 325
-
-
Walters, S.1
Warren, R.L.2
-
23
-
-
0034364666
-
M): A short questionnaire for measuring subjective quality of life
-
M): a short questionnaire for measuring subjective quality of life. Eur J Psychol Assess 2000, 16:150-159
-
(2000)
Eur J Psychol Assess
, vol.16
, pp. 150-159
-
-
Henrich, G.1
Herschbach, P.2
-
25
-
-
0003795622
-
-
Hannover, Germany: Zentrum für Qualitäts management in Gesundheitswesem
-
Sens B, Stern M, Wiedemann B, eds. Qualitätssicherung Mukoviszidose: Überblick über den Gesundheitszustand der Patienten in Deutschland 2000. Hannover, Germany: Zentrum für Qualitäts management in Gesundheitswesem, 2001 2001
-
(2001)
Qualitätssicherung Mukoviszidose: Überblick über den Gesundheitszustand der Patienten in Deutschland 2000
, pp. 2001
-
-
Sens, B.1
Stern, M.2
Wiedemann, B.3
-
26
-
-
0031950258
-
Risk of death in cystic fibrosis patients with severely compromised lung function
-
Milla CE, Warwick WJ. Risk of death in cystic fibrosis patients with severely compromised lung function. Chest 2001; 113:1230-1234
-
(2001)
Chest
, vol.113
, pp. 1230-1234
-
-
Milla, C.E.1
Warwick, W.J.2
-
27
-
-
0035865730
-
Predictive 5-year survivorship model of cystic fibrosis
-
Liou TB, Adler FR, Fitzsimmons SC, et al. Predictive 5-year survivorship model of cystic fibrosis. Am J Epidemiol 2001; 153:345-352
-
(2001)
Am J Epidemiol
, vol.153
, pp. 345-352
-
-
Liou, T.B.1
Adler, F.R.2
Fitzsimmons, S.C.3
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