The experience of caring in relatives to patients with serious mental illness: Gender differences, health and functioning

Scandinavian Journal of Caring Sciences

Volumn 23, Issue 1, 2009, Pages 153-160

  Møller, Turid ^a,b   Gudde, Camilla Buch ^a   Folden, Gunn Eva ^a   Linaker, Olav M ^a,b  

^a TRONDHEIM UNIVERSITY HOSPITAL   (Norway)

^b NORWEGIAN UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Norway)

Author keywords

Experience of caring; Gender; Relatives; Serious mental illness

Indexed keywords

ADULT; ARTICLE; CAREGIVER; COMPARATIVE STUDY; COST OF ILLNESS; FEMALE; HEALTH STATUS; HOSPITALIZATION; HUMAN; MALE; MENTAL DISEASE; MIDDLE AGED; NORWAY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SEX DIFFERENCE;

ADULT; CAREGIVERS; COST OF ILLNESS; FEMALE; HEALTH STATUS; HUMANS; MALE; MENTAL DISORDERS; MIDDLE AGED; NORWAY; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX; SEX FACTORS;

EID: 60449097196     PISSN: 02839318     EISSN: 14716712     Source Type: Journal    
DOI: 10.1111/j.1471-6712.2008.00605.x     Document Type: Article

References (51)

1. Schene AH, Tessler RC, Gamache GM. Instruments measuring family or caregiver burden in severe mental illness. Soc Psychiatry Psychiatr Epidemiol 1994 29 : 228 40.
2. Addington J, Coldham EL, Jones B, Addington D. The first episode of psychosis: the experience of relatives. Acta Psychiatr Scand 2003 108 : 285 9.
3. Addington J, Collins A, McCleery A, Addington D. The role of family work in early psychosis. Schizophr Res 2005 79 : 77 83.
4. Tennakoon L, Fannon D, Doku V, O'Ceallaigh S, Soni W, Santamarina M, Kuipers E, Sharma T. Experience of caregiving: relatives of people experiencing a first episode of psychosis. Br J Psychiatry 2000 177 : 529 33.
5. Szmukler G. From family 'burden' to caregiving. Psychiatr Bull 1996 20 : 449 51.
6. Hunt C. Concepts in caregiver research. J Nurs Scholarsh 2003 35 : 27 32.
7. Lazarus RS, Folkman S. Stress, Appraisal and Coping. 1984, Springer, New York.
8. Quinn J, Barrowclough QJ, Tarrier N. The Family Questionnaire (FQ): a scale for measuring symptom appraisal in relatives of schizophrenic patients. Acta Psychiatr Scand 2003 108 : 290 6.
9. Engmark L, Alfstadsaether B, Holte A Diagnose schizofreni: Foreldres erfraing (Diagnosis Schizophrenia: Parents' Experience). Report 6. 2006, Norwegian Institute of Public Health, Oslo.
10. Brand U. European perspectives: a carer's view. Acta Psychiatr Scand Suppl 2001 104 : 96 101.
11. Bogren LY. Expressed emotion, family burden, and quality of life in parents with schizophrenic children. Nord J Psychiatry 1997 51 : 229 33.
12. Veltman A, Cameron JI, Stewart DE. The experience of providing care to relatives with chronic mental illness. J Nerv Ment Dis 2002 190 : 108 14.
13. Kuipers L. Family burden in schizophrenia: implications for services. Soc Psychiatry Psychiatr Epidemiol 1993 28 : 207 10.
14. MacCarthy B, Lesage A, Brewin CR, Brugha TS, Mangen S, Wing JK. Needs for care among the relatives of long-term users of day-care. Psychol Med 1989 19 : 725 36.
15. Mohr WK, Regan-Kubinski MJ. Living in the fallout: parents' experiences when their child becomes mentally ill. Arch Psychiatr Nurs 2001 15 : 69 77.
16. Pejlert A. Being a parent of an adult son or daughter with severe mental illness receiving professional care: parents' narratives. Health Soc Care Community 2001 9 : 194 204.
17. Stein CH, Wemmerus VA. Searching for a normal life: personal accounts of adults with schizophrenia, their parents and well-siblings. Am J Community Psychol 2001 29 : 725 46.
18. Oldridge ML, Hughes ICT. Psychological well-being in families with a member suffering from schizophrenia. An investigation into long-standing problems. Br J Psychiatry 1992 161 : 249 51.
19. Hansen-Grant S, Pariante C, Kalin N, Miller A. Neuroendocrine and immune system pathology in psychiatric disease. In Textbook of Psychopharmacology, 2nd edn (Schatzberg A, Nemeroff C eds 1998, American Psychiatric Press, Washington.
20. Kiecolt-Glaser J, Glaser R. Caregivers mental health and immune function. In Stress Effects of Family Caregivers of Alzheimer's Patients: Research and Interventions (Light E, Niederehe G, Lebowitz B eds 1994, Springer, New York, 64 75.
21. Wahl OF, Harman CR. Family views of stigma. Schizophr Bull 1989 15 : 131 9.
22. Magliano L, Fadden G, Economou M, Held T, Xavier M, Guarneri M, Malangone C, Marasco C, Maj M. Family burden and coping strategies in schizophrenia: 1-year follow-up data from the BIOMED I study. Soc Psychiatry Psychiatr Epidemiol 2000 35 : 109 15.
23. Veltro F, Magliano L, Lobrace S, Morosini PL, Maj M. Burden on key relatives of patients with schizophrenia vs neurotic disorders: a pilot study. Soc Psychiatry Psychiatr Epidemiol 1994 29 : 66 70.
24. Winefield HR, Harvey EJ. Needs of family caregivers in chronic schizophrenia. Schizophr Bull 1994 20 : 557 66.
25. Doornbos MM. Family caregivers and the mental health care system: reality and dreams. Arch Psychiatr Nurs 2002 16 : 39 46.
26. Argimon JM, Limon E, Vila J, Cabezas C. Health-related quality of life in caregivers of patients with dementia. Fam Pract 2004 21 : 454 7.
27. Burns A. The burden of Alzheimer's disease. Int J Neuropsychopharmacol 2000 3 : 31 38.
28. Donaldson C, Burns A. Burden of Alzheimer's disease: helping the patient and caregiver. J Geriatr Psychiatry Neurol 1999 12 : 21 28.
29. McWilliams S, Hill S, Mannion N, Kinsella A, O'Callaghan E. Caregiver psychoeducation for schizophrenia: Is gender important? Eur Psychiatr 2007 22 : 323 7.
30. Baronet AM. Factors associated with caregiver burden in mental illness: a critical review of research literature. Clin Psychol Rev 1999 19 : 819 41.
31. Jones SL, Roth D, Jones PK. Effect of demographic and behavioural variables on burden of caregivers of chronic mentally ill persons. Psychiatr Serv 1995 46 : 141 5.
32. Pickett SA, Greenley JR, Greenberg JS. Off-timedness as a contributor to subjective burdens for parents of offspring with severe mental illness. Fam Relat 1995 44 : 195 201.
33. Reinhard SC. Living with mental illness: effects of professional support and personal control on caregiver burden. Res Nurs Health 1994 17 : 79 88.
34. Cook JA, Lefley HP, Pickett SA, Cohler BJ. Age and family burden among parents of offspring with severe mental illness. Am J Orthopsychiatry 1994 64 : 435 47.
35. Greenberg JS, Kim HW, Greenley JR. Factors associated with subjective burden in siblings of adults with severe mental illness. Am J Orthopsychiatry 1997 67 : 231 41.
36. Solomon P, Draine J. Subjective burden among family members of mentally ill adults: relation to stress, coping, and adaptation. Am J Orthopsychiatry 1995 65 : 419 27.
37. Song L, Biegel DE, Milligan SE. Predictors of depressive symptomatology among lower social class caregivers of persons with chronic mental illness. Community Ment Health J 1997 33 : 269 86.
38. Horwitz AV, Reinhard SC. Ethnic differences in caregiving duties and burdens among parents and siblings of persons with severe mental illness. J Health Soc Behav 1995 36 : 138 50.
39. Stueve A, Vine P, Struening EL. Perceived burden among caregivers of adults with serious mental illness. Comparison of black, hispanic, and white families. Am J Orthopsychiatry 1997 67 : 199 209.
40. Szmukler GI, Burgess P, Herrman H, Benson A, Colusa S, Bloch S. Caring for relatives with serious mental illness: the development of the Experience of Caregiving Inventory. Soc Psychiatry Psychiatr Epidemiol 1996 31 : 137 48.
41. Reine G, Lancon C, Simeoni MC, Duplan S, Auquier P. Caregiver burden in relatives of persons with schizophrenia: an overview of measure instruments. Encephale 2003 29 : 137 47.
42. Joyce J, Leese M, Szmukler G. The Experience of Caregiving Inventory: further evidence. Soc Psychiatry Psychiatr Epidemiol 2000 35 : 185 9.
43. Bruusgaard D, Nessioy I, Rutle O, Furuseth K, Natvig B. Measuring functional status in a population survey. The Darthmouth COOP functional health assessment charts/WONCA used in an epidemiological study. Fam Pract 1993 10 : 212 8.
44. Kinnersley P, Peters T, Stott N. Measuring functional health status in primary care using the COOP-WONCA charts: acceptability, range of scores, construct validity, and sensitivity to change. Br J Gen Pract 1994 44 : 545 9.
45. Lindegaard PM, Bentzen N, Christiansen T. Reliability of the COOP/WONCA charts. Test-retest completed by patients presenting psychosocial health problems to their general practitioner. Scand J Prim Health Care 1999 17 : 145 8.
46. Bentsen BG, Natvig B, Winnem M. Assessment of own functional status. COOP-WONCA charts in clinical work and research. J Norwegian Med Assoc 1997 117 : 1790 3.
47. Miller B, Cafasso L. Gender differences in caregiving: facts or artefact? Gerontologist 1992 32 : 498 507.
48. Vitaliano P, Zhang J, Scanlan JM. Is caregiving hazardous to one's physical health? A meta-analysis. Psychol Bull 2003 129 : 946 72.
49. Pinquart M, Sörensen S. Gender differences in caregiver stressors, social resources, and health: an updated meta-analysis. J Gerontol 2006 61 : 33 45.
50. Kramer MK. Self-characterisations of adult female informal caregivers: gender identity and the bearing of burden. Res Theory Nurs Pract 2005 19 : 137 61.
51. St-Onge M, Lavoie F. The experience of caregiving among mothers of adults suffering from psychotic disorders: factors associated with their psychological distress. Am J Community Psychol 1997 25 : 73 94.