What is important to young children who have cancer while in hospital?

Children and Society

Volumn 23, Issue 2, 2009, Pages 85-98

  Aldiss, Susie ^a,c   Horstman, Maire ^b   O'Leary, Chris ^c   Richardson, Alison ^d   Gibson, Faith ^c  

^a UNIVERSITY COLLEGE LONDON   (United Kingdom)

^b LONDON SOUTH BANK UNIVERSITY   (United Kingdom)

^c GREAT ORMOND STREET HOSPITAL   (United Kingdom)

^d KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 59349118060     PISSN: 09510605     EISSN: 10990860     Source Type: Journal    
DOI: 10.1111/j.1099-0860.2008.00162.x     Document Type: Article

References (49)

1. Alderson P. 2000. Children as researchers. In Research with Children: Perspectives and Practices. Christensen P, James A (ed.). Falmer Press : London 241 257.
2. Alderson P, Morrow V. 2004. Ethics, Social Research and Consulting with Children and Young People. Banardo's : Barkingside.
3. Alderson P, Sutcliffe K, Curtis K. 2006. Children as partners with adults in their medical care. Archives of Disease in Childhood 91 : 300 303.
4. Bearison D, Pacifici C. 1989. Children's event knowledge of cancer treatment. Journal of Applied Developmental Psychology 8 : 129 141.
5. Bluebond-Langner M, Perkel D, Goertzel T, Nelson K, McGeary J. 1990. Children's knowledge of cancer and its treatment: impact of an oncology camp experience. Journal of Pediatrics 116 : 207 213.
6. Bruner J. 1983. The acquisition of pragmatic concepts. In The Transition from Prelinguistic to Linguistic Communication. Golinkoff R (ed.). Lawrence Erlbaum : New Jersey 27 42.
7. Cameron H. 2005. Asking the tough questions: a guide to ethical practices in interviewing young children. Early Child Development and Care 175 : 597 610.
8. Carney T, Murphy S, McClure J, Bishop E, Kerr C, Parker J, Scott F, Shields C, Wilson L. 2003. Children's views of hospitalization: an exploratory study of data collection. Journal of Child Health Care 7 : 27 40.
9. Cavet J, Sloper P. 2004. The participation of children and young people in decisions about UK service development. Child Care Health and Development 30 : 613 621.
10. Christensen P, Prout A. 2002. Working with ethical symmetry in social research with children. Childhood - A Global Journal of Child Research 9 : 477 497.
11. Clark A, Moss P. 2001. Listening to Young Children: The Mosaic Approach. National Children's Bureau : London.
12. Clark A, McQuail S, Moss P. 2003. Exploring the Field of Listening to and Consulting with Young Children. Department for Education and Skills : London.
13. Clarke J, Fletcher P. 2003. Communication issues faced by parents who have a child diagnosed with cancer. Journal of Pediatric Oncology Nursing 20 : 175 191.
14. Coad J, Lewis A. 2004. Engaging Children and Young People in Research. Literature review for The National Evaluation of the Children's Fund : Birmingham.
15. Coffey A, Atkinson P. 1996. Making Sense of Qualitative Data. Sage : London.
16. Coyne I. 2006. Consultation with children in hospital: children, parents' and nurses' perspectives. Journal of Clinical Nursing 15 : 61 71.
17. Crisp J, Ungerer J, Goodnow J. 1996. The impact of experience on children's understanding of illness. Journal of Psychology 21 : 57 72.
18. Curtin C. 2001. Eliciting children's voices in qualitative research. American Journal of Occupational Therapy 55 : 295 302.
19. Darbyshire P, MacDougall C, Schiller W. 2005. Multiple methods in qualitative research with children: more insight or just more? Qualitative Research 5 : 417 436.
20. Davis J. 1998. Understanding the meanings of children: a reflexive process. Children and Society 12 : 325 335.
21. Eiser C, Havermans T. 1992. Children's understanding of cancer. Psycho Oncology 1 : 169 181.
22. Enskar K, Carlsson M, Hamrin E, Kreuger A. 1997. Parental reports of changes and challenges that result from parenting a child with cancer. Journal of Pediatric Oncology Nursing 14 : 156 163.
23. Evans P, Fuller M. 1996. Hello. Who am I speaking to? Communicating with pre-school children in educational research settings. Early Years 17 : 17 20.
24. Gariepy N, Howe N. 2003. The therapeutic power of play: examining the play of young children with leukaemia. Child: Care, Health and Development 29 : 523 537.
25. Garth B, Aroni R. 2003. 'I value what you have to say'. Seeking the perspective of children with a disability, not just their parents. Disability and Society 18 : 561 576.
26. Gibson F, Richardson A, Hey S, Horstman M, O'Leary C. 2005. Listening to Children and Young People with Cancer. Final report submitted to Macmillan Cancer Support : London. Available from authors.
27. Greig A, Taylor J, Mackay T. 2007. Doing Research with Children. Sage : London.
28. Harden J, Scott S, Backett-Milburn K, Jackson S. 2000. Can't talk, won't talk: methodological issues in researching children. Sociological Research Online 5 : 84 98.
29. Hill M, Davis J, Prout A, Tisdall K. 2006. Moving the participation agenda forward. Children and Society 18 : 77 96.
30. Kenrick C, Culling J, Oakhill T, Mott M. 1986. Children's understanding of their illness and its treatment within a paediatric oncology unit. Association for Child Psychology and Psychiatry Newsletter 8 : 16 20.
31. Kortesluoma R, Hentinen M, Nikkonen M. 2003. Conducting a qualitative child interview: methodological considerations. Journal of Advanced Nursing 42 : 434 441.
32. Krahenbuhl S, Blades M. 2006. The effect of interviewing techniques on young children's responses to questions. Child Care Health and Development 32 : 321 331.
33. Lansdown R. 1996. Children in Hospital: A Guide for Family and Carers. Oxford University Press : Oxford.
34. Mauthner M. 1997. Methodological aspects of collecting data from children: lessons learnt from three research projects. Children and Society 10 : 145 154.
35. McClement S, Woodgate R. 1998. Research with families in palliative care: conceptual and methodological challenges. European Journal of Cancer Care 7 : 247 254.
36. Measelle J, Albow J, Cowan P, Cowan C. 1998. Assessing young children's views of their academic, social and emotional lives: an evaluation of the self-perception scales of the Berkeley Puppet Interview. Child Development 69 : 1556 1576.
37. Melnyk B, Alpert-Gillis L, Feinstein N, Crean H, Johnson J, Fairbanks E, Small L, Rubenstein J, Slota M, Corbo-Richert B. 2004. Creating opportunities for parent empowerment: program effects on the mental health/coping outcomes of critically ill young children and their mothers. Pediatrics 113 : 597 607.
38. Morgan M, Gibbs S, Maxwell K, Britten N. 2002. Hearing children's voices: methodological issues in conducting focus groups with children aged 7-11 years. Qualitative Research 2 : 5 20.
39. National Institute for Health and Clinical Excellence (NICE). 2005. Improving Outcomes in Children and Young People with Cancer: The Evidence Review August 2005. Available at: http://www.nice.org.uk/download.aspx?o=269230 [Accessed 14 June 2006].
40. Nelson K. 1986. Event Knowledge: Structure and Function of Development. Lawrence Erlbaum : New Jersey.
41. Punch S. 2002. Research with children: the same or different from research with adults? Childhood 9 : 321 341.
42. Save the Children Fund. 1989. Hospital: A Deprived Environment for Children? The Case for Hospital Play Schemes. Save the Children Fund : London.
43. Sinclair R. 2004. Participation in practice: making it meaningful, effective and sustainable. Children and Society 18 : 106 118.
44. Slackman E, Hudson J, Fivush R. 1986. Actions, actors, links, and goals: the structure of children's event representations. In Event Knowledge: Structure and Function in Development. Nelson K (ed.). Lawrence Erlbaum : London 47 69.
45. Thomas N, O'Kane C. 1998. The ethics of participatory research with children. Children and Society 12 : 336 348.
46. Vessey J, Mahon M. 1990. Therapeutic play and the hospitalised child. Journal of Paediatric Nursing 5 : 328 333.
47. Wood D. 1989. Social interaction as tutoring. In Interaction in Human Development. Bornstein M, Bruner J (eds). Lawrence Erlbaum : New Jersey 54 80.
48. Woodgate R. 2006. Life is never the same: childhood cancer narratives. European Journal of Cancer Care 15 : 8 18.
49. Young B, Dixon-Woods M, Findlay M, Heney D. 2002. Parenting in a crisis: conceptualising mothers of children with cancer. Social Science and Medicine 55 : 1835 1847.