Communication issues faced by parents who have a child diagnosed with cancer

Journal of Pediatric Oncology Nursing

Volumn 20, Issue 4, 2003, Pages 175-191

  Clarke, Juanne N ^a   Fletcher, Paula ^a  

^a WILFRID LAURIER UNIVERSITY   (Canada)

Author keywords

Cancer; Child; Communication; Parents

Indexed keywords

ADULT; CANCER DIAGNOSIS; CHILD; CHILDHOOD CANCER; CONFUSION; FEMALE; HEALTH CARE DELIVERY; HEALTH CARE PERSONNEL; HEALTH CARE QUALITY; HEALTH CARE SYSTEM; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MEDICAL CARE; MEDICAL INFORMATION; PARENT; PERCEPTION; REVIEW; ARTICLE; CHILD PARENT RELATION; HUMAN RELATION; INTERVIEW; NEOPLASM; PSYCHOLOGICAL ASPECT;

ADULT; COMMUNICATION; FEMALE; HUMANS; INTERVIEWS; MALE; NEOPLASMS; PARENT-CHILD RELATIONS; PARENTS; PROFESSIONAL-FAMILY RELATIONS;

EID: 0642374482     PISSN: 10434542     EISSN: None     Source Type: Journal    
DOI: 10.1177/1043454203254040     Document Type: Review

References (44)

1. American Psychiatrie Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: American Psychiatric Association.
2. Barbarin, O. A., & Chesler, M. A. (1984a). Coping as inter-personal strategy: Families with childhood cancer. Family Systems Medicine, 2(3), 279-289.
3. Barbarin, O. A., & Chesler, M. A. (1984b). Difficulties of providing help in crisis: Relationships between parents of children with cancer and their parents. Journal of Social Issues, 40(4), 113-134.
4. Baskin, D. H., Forehand, R., & Saylor , C. (1985). Predictors of psychological adjustment in mothers of children with cancer. Journal of Psychosocial Oncology, 3, 43-54.
5. Bennett, M., & Allison, D. (1996). Discussing the diagnosis and prognosis with cancer patients. Postgraduate Medical Journal, 72(843), 25-29.
6. Bryman, A. (2001). Social research methods. Oxford, UK: Oxford University Press.
7. Burke, B. L. (1999). Moving children with cancer from hospital to home. The Canadian Nurse, 95(2), 25-28.
8. Butow, P. N., Kazemi, J., Beeney, L., Griffin, A. M., Dunn, S. M., & Tattersall, M. H. N. (1996). When the diagnosis is cancer: Patient communication experiences and preferences. Cancer, 77(12), 2630-2637.
9. Chesler, M. A., & Parry, C. (2001). Gender roles and/or styles in crisis: An integrative analysis of the experiences of fathers of children with cancer. Qualitative Health Research, 11(3), 363-384.
10. Clarke J. N., & Clarke, L. N. (1999). Finding strength: A mother and daughter's story of childhood cancer. Toronto, Canada: Oxford University Press.
11. Eiser, C. (1996). Comprehensive care of the child with cancer: Obstacles to the provision of psychological support in pediatric oncology: A comment. Psychology, Health, & Medicine, 1(2), 145-157.
12. Eiser, C. (1998). Long term consequences of childhood cancer. Journal of Child Psychology and Psychiatry, 39, 621-633.
13. Ellis, P. M., & Tattersall, M. H. N. (1999). How should doctors communicate the diagnosis of cancer to patients? Annals of Medicine, 31(5), 336-341.
14. Epstein, R. M. (1993). Perspectives on patient-doctor communication. Journal of Family Practice, 37(4), 377-388.
15. Fife, B., Norton, J., & Groom, G. (1987). The family's adaptation to childhood leukemia. Social Science in Medicine, 24(2), 159-168.
16. Frankel, R. M. (1995). Emotion and the physician-patient relationship. Motivation and Emotion, 19(3), 163-173.
17. Gotcher, J. M., & Edwards, R. (1991). Coping strategies of cancer patients: Actual communication and imagined interactions. Health Communication, 2(4), 255-266.
18. Green, J. M., & Murton, F. E. (1996). Diagnosis of Duchenne muscular dystrophy: Parents' experiences and satisfaction. Child: Care, Health and Development, 22, 113-128.
19. Grootenhuis, M. A., & Last, B. F. (1997). Adjustment and coping by parents of children with cancer: A review of the literature. Supportive Care in Cancer, 5, 466-484.
20. Hardy, M. S., Armstrong, F. D., Routh, D. K., Albrecht, J., & Davis, J. (1994). Coping and communication among parents and children with human immunodeficiency virus and cancer. Journal of Developmental & Behavioural Pediatrics, 15, 549-553.
21. Hasnat, M. J., & Graves, P. (2000). Disclosure of developmental disability: A study of parent satisfaction and the determinants of satisfaction. Journal of Pediatric Child, Health, 36(1), 32-35.
22. Hawley, D. R., & de Haan, L. (1996). Toward a definition of family resilience: Integrating life-span and family perspective. Family Process, 35(3), 283-298.
23. Jarrett, N.J., & Payne, S. A. (2000). Creating and maintaining "optimist" in cancer care communication. International Journal of Nursing Studies, 37(1), 81-90.
24. Johnson, K. R. S. (1998). Ethnocultural influences in cancer. Journal of Clinical Psychology in Medical Settings, 5(3), 357-364.
25. Kazak, A. E., & Nachman, G. S. (1991). Family research on childhood chronic illness: Pediatric oncology as an example. Journal of Family Psychology, 4(4), 462-483.
26. Kidder, L. H., & Judd, C. M. (1986). Research methods in social relations (5th ed.). New York: Holt, Rinehart and Winston.
27. Lincoln, Y., & Cuba, E. G. (1985). Naturalistic inquiry. Beverly Hills, CA: Sage.
28. Lozowski, S., Chesler, M. A., & Chesney, B. K. (1993). Parental intervention in the medical care of children with cancer. Journal of Psychosocial Oncology, 11(5), 63-88.
29. Mangano, J. J. (1999). A rise in the incidence of childhood cancer in the United States. International Journal of Health Services, 29(2), 393-408.
30. Manne, S. L., Lesanics, D., Meyers, P., Steinherz, P., Wollner, N., & Redd, W. (1995). Predictors of depressive symptomatology among parents of newly diagnosed children with cancer. Journal of Pediatric Psychology, 20, 541-510.
31. Mercer, M., & Ritchie, J. A. (1997). Home community cancer care: Parents' perspectives. Journal of Pediatric Nursing, 12(3), 133-141.
32. Morrow, G. R., Hoagland, A. C., & Carpenter, P. J. (1982). Improving physician-patient communications in cancer treatment. Journal of Psychosocial Oncology, 1, 93-101.
33. Noble, L. (1998). Doctor-patient communication and adherence to treatment. In L. B. Myers & K. Midence (Eds.), Adherence to treatment in medical conditions (pp. 51-82). Amsterdam, the Netherlands: Harwood Academic.
34. Ong, L. M. L., Dehaes, J. C. J. M., Hoos, A. M., & Lammes, F. B. (1995). Doctor-patient communication: A review of the literature. Social Science & Medicine, 40(7), 903-918.
35. Pask, E. G. (1997). Culture and the changing health scene. Australian Pediatric Nursing, 6(1), 25-28.
36. Pinkerton, C. R. (1993). Multidisciplinary care in the management of childhood cancer. British Journal of Hospital Medicine, 50(1), 54-59.
37. Quirt, C. F., Mackillop, W. J., Ginsburg, A. D., Sheldon, L., Brundage, M., Dixon, P., et al. (1997). Do doctors know when their patients don't? A survey of doctor-patient communication in lung cancer. Lung Cancer, 18(1), 1-20.
38. Rosenthal, M. K. (1999). Out-of-home child care research: A cultural perspective. International Journal of Behavioural Development, 23(2), 477-518.
39. Schneider, D. E., & Tucker, R. K. (1992). Measuring communicative satisfaction in doctor-patient relations: The Doctor-Patient Communication Inventory. Health Communication, 4(1), 19-28.
40. Selleck, S. M., Desa, V. X., & MacDonald, K. (1996). The impact of shared care on children with cancer and their families. Pediatric Child Health, 2(3), 211-215.
41. Shapiro J., Perez, M., & Warden, M. J. (1998). The importance of family functioning to caregiver adaptation in mothers of child cancer patients: Testing a social ecological model. Journal of Pediatric Oncology Nursing, 15(1), 47-54.
42. Speechley, K. N., & Noh, S. (1992). Surviving childhood cancer, social support, and parents' psychological adjustment. Journal of Pediatric Psychology, 17(1), 15-31.
43. Stuber, M. L., Gonzales, S., Meeske, K., Guthrie, D., Houskamp, B. M., Pynoos, R., et al.(1994). Post-traumatic stress after childhood cancer II: A family model. Psycho-Oncology, 3, 313-319.
44. van Dongen-Melman, J. E. W. M., Pruyn, J. F. A., DeGroot, A., Koot, H. M., Hahlen, K., & Verhulst, F. C. (1995). Late psychosocial consequences for parents of children who survived cancer. Journal of Pediatric Psychology, 20, 567-586.