-
1
-
-
0033598322
-
Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients
-
Emanuel EJ, Fairclough DL, Slutsman J, Alpert H, Baldwin D, Emanuel LL. Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients. N Engl J Med 1999; 341: 956-963.
-
(1999)
N Engl J Med
, vol.341
, pp. 956-963
-
-
Emanuel, E.J.1
Fairclough, D.L.2
Slutsman, J.3
Alpert, H.4
Baldwin, D.5
Emanuel, L.L.6
-
2
-
-
0031930795
-
Cancer and caregiving: The impact on the caregiver's health
-
Nijboer C, Tempelaar R, Sanderman R, Triemstra M, Spruijt RJ, van den Bos GA. Cancer and caregiving: The impact on the caregiver's health. Psychooncology 1998; 7: 3-13.
-
(1998)
Psychooncology
, vol.7
, pp. 3-13
-
-
Nijboer, C.1
Tempelaar, R.2
Sanderman, R.3
Triemstra, M.4
Spruijt, R.J.5
van den Bos, G.A.6
-
3
-
-
0035958317
-
Involvement in caregiving and adjustment to death of a spouse: Findings from the caregiver health effects study
-
Schulz R, Beach SR, Lind B, Martire LM, Zdaniuk B, Hirsch C. Involvement in caregiving and adjustment to death of a spouse: Findings from the caregiver health effects study. JAMA 2001; 285: 3123-3129.
-
(2001)
JAMA
, vol.285
, pp. 3123-3129
-
-
Schulz, R.1
Beach, S.R.2
Lind, B.3
Martire, L.M.4
Zdaniuk, B.5
Hirsch, C.6
-
4
-
-
3042553652
-
Family caregiver burden: Results of a longitudinal study of breast cancer patients and their principal caregivers
-
Grunfeld E, Coyle D, Whelan T, Clinch J, Reyno L, Earle CC. Family caregiver burden: Results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ 2004; 170: 1795-1801.
-
(2004)
CMAJ
, vol.170
, pp. 1795-1801
-
-
Grunfeld, E.1
Coyle, D.2
Whelan, T.3
Clinch, J.4
Reyno, L.5
Earle, C.C.6
-
5
-
-
23844507947
-
Economic burdens and quality of life of family caregivers of cancer patients
-
Yun YH, Rhee YS, Kang IO, Lee JS, Bang SM, Lee WS. Economic burdens and quality of life of family caregivers of cancer patients. Oncology 2005; 68: 107-114.
-
(2005)
Oncology
, vol.68
, pp. 107-114
-
-
Yun, Y.H.1
Rhee, Y.S.2
Kang, I.O.3
Lee, J.S.4
Bang, S.M.5
Lee, W.S.6
-
6
-
-
0034696509
-
Understanding economic and other burdens of terminal illness: The experience of patients and their caregivers
-
Emanuel EJ, Fairclough DL, Slutsman J, Emanuel LL. Understanding economic and other burdens of terminal illness: The experience of patients and their caregivers. Ann Intern Med 2000; 132: 451-459.
-
(2000)
Ann Intern Med
, vol.132
, pp. 451-459
-
-
Emanuel, E.J.1
Fairclough, D.L.2
Slutsman, J.3
Emanuel, L.L.4
-
7
-
-
0038119711
-
Vulnerability of family caregivers in terminal palliative care at home; balancing between burden and capacity
-
Proot IM, Abu-Saad HH, Crebolder HF, Goldsteen M, Luker KA, Widdershoven GA. Vulnerability of family caregivers in terminal palliative care at home; balancing between burden and capacity. Scand J Caring Sci 2003; 17: 113-121.
-
(2003)
Scand J Caring Sci
, vol.17
, pp. 113-121
-
-
Proot, I.M.1
Abu-Saad, H.H.2
Crebolder, H.F.3
Goldsteen, M.4
Luker, K.A.5
Widdershoven, G.A.6
-
8
-
-
0027997996
-
The impact of serious illness on patients' families. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment
-
Covinsky KE, Goldman L, Cook EF, Oye R, Desbiens N, Reding D. The impact of serious illness on patients' families. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. JAMA 1994; 272: 1839-1844.
-
(1994)
JAMA
, vol.272
, pp. 1839-1844
-
-
Covinsky, K.E.1
Goldman, L.2
Cook, E.F.3
Oye, R.4
Desbiens, N.5
Reding, D.6
-
10
-
-
0030036511
-
Factors influencing life-sustaining treatment decisions in a community sample of families
-
Karel MJ, Gatz M. Factors influencing life-sustaining treatment decisions in a community sample of families. Psychol Aging 1996; 11: 226-234.
-
(1996)
Psychol Aging
, vol.11
, pp. 226-234
-
-
Karel, M.J.1
Gatz, M.2
-
11
-
-
0037158598
-
Experiences of Oregon nurses and social workers with hospice patients who requested assistance with suicide
-
Ganzini L, Harvath TA, Jackson A, Goy ER, Miller LL, Delorit MA. Experiences of Oregon nurses and social workers with hospice patients who requested assistance with suicide. N Engl J Med 2002; 347: 582-588.
-
(2002)
N Engl J Med
, vol.347
, pp. 582-588
-
-
Ganzini, L.1
Harvath, T.A.2
Jackson, A.3
Goy, E.R.4
Miller, L.L.5
Delorit, M.A.6
-
12
-
-
34247352523
-
The attitudes of Chinese family caregivers of older people with dementia towards life sustaining treatments
-
Kwok T, Twinn S, Yan E. The attitudes of Chinese family caregivers of older people with dementia towards life sustaining treatments. J Adv Nurs 2007; 58: 256-262.
-
(2007)
J Adv Nurs
, vol.58
, pp. 256-262
-
-
Kwok, T.1
Twinn, S.2
Yan, E.3
-
13
-
-
0034020761
-
The effects of patient race on outcomes in seriously ill patients in SUPPORT: An overview of economic impact, medical intervention, and end-of-life decisions. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments
-
Borum ML, Lynn J, Zhong Z. The effects of patient race on outcomes in seriously ill patients in SUPPORT: An overview of economic impact, medical intervention, and end-of-life decisions. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. J Am Geriatr Soc 2000; 48: S194-S198.
-
(2000)
J Am Geriatr Soc
, vol.48
-
-
Borum, M.L.1
Lynn, J.2
Zhong, Z.3
-
14
-
-
0036729623
-
Communication in end-of-life cancer care: A comparison of team assessments in three European countries
-
Higginson IJ, Costantini M. Communication in end-of-life cancer care: A comparison of team assessments in three European countries. J Clin Oncol 2002; 20: 3674-3682.
-
(2002)
J Clin Oncol
, vol.20
, pp. 3674-3682
-
-
Higginson, I.J.1
Costantini, M.2
-
15
-
-
3042805474
-
Ideals of patient autonomy in clinical decision making: A study on the development of a scale to assess patients' and physicians' views
-
Stiggelbout AM, Molewijk AC, Otten W, Timmermans DR, van Bockel JH, Kievit J. Ideals of patient autonomy in clinical decision making: A study on the development of a scale to assess patients' and physicians' views. J Med Ethics 2004; 30: 268-274.
-
(2004)
J Med Ethics
, vol.30
, pp. 268-274
-
-
Stiggelbout, A.M.1
Molewijk, A.C.2
Otten, W.3
Timmermans, D.R.4
van Bockel, J.H.5
Kievit, J.6
-
16
-
-
33745214010
-
Finnish doctors and the realisation of patient autonomy in the context of end of life decision making
-
Hilden HM, Honkasalo ML, Louhiala P. Finnish doctors and the realisation of patient autonomy in the context of end of life decision making. J Med Ethics 2006; 32: 316-320.
-
(2006)
J Med Ethics
, vol.32
, pp. 316-320
-
-
Hilden, H.M.1
Honkasalo, M.L.2
Louhiala, P.3
-
18
-
-
1342289775
-
The attitudes of cancer patients and their families toward the disclosure of terminal illness
-
Yun YH, Lee CG, Kim SY, Lee SW, Heo DS, Kim JS. The attitudes of cancer patients and their families toward the disclosure of terminal illness. J Clin Oncol 2004; 22: 307-314.
-
(2004)
J Clin Oncol
, vol.22
, pp. 307-314
-
-
Yun, Y.H.1
Lee, C.G.2
Kim, S.Y.3
Lee, S.W.4
Heo, D.S.5
Kim, J.S.6
-
19
-
-
33646687708
-
Ethical decision making on truth telling in terminal cancer: Medical students' choices between patient autonomy and family paternalism
-
Sheu SJ, Huang SH, Tang FI, Huang SL. Ethical decision making on truth telling in terminal cancer: Medical students' choices between patient autonomy and family paternalism. Med Educ 2006; 40: 590-598.
-
(2006)
Med Educ
, vol.40
, pp. 590-598
-
-
Sheu, S.J.1
Huang, S.H.2
Tang, F.I.3
Huang, S.L.4
-
20
-
-
17944363042
-
Ethics in decision making and patient autonomy
-
Al-Mobeireek A. Ethics in decision making and patient autonomy. Chest 2001; 120: 688.
-
(2001)
Chest
, vol.120
, pp. 688
-
-
Al-Mobeireek, A.1
-
21
-
-
0036040812
-
Acculturation of attitudes toward end-of-life care: A cross-cultural survey of Japanese Americans and Japanese
-
Matsumura S, Bito S, Liu H, Kahn K, Fukuhara S, Kagawa-Singer M. Acculturation of attitudes toward end-of-life care: A cross-cultural survey of Japanese Americans and Japanese. J Gen Intern Med 2002; 17: 531-539.
-
(2002)
J Gen Intern Med
, vol.17
, pp. 531-539
-
-
Matsumura, S.1
Bito, S.2
Liu, H.3
Kahn, K.4
Fukuhara, S.5
Kagawa-Singer, M.6
-
22
-
-
0032876071
-
Chinese and U.S. internists adhere to different ethical standards
-
Feldman MD, Zhang J, Cummings SR. Chinese and U.S. internists adhere to different ethical standards. J Gen Intern Med 1999; 14: 469-473.
-
(1999)
J Gen Intern Med
, vol.14
, pp. 469-473
-
-
Feldman, M.D.1
Zhang, J.2
Cummings, S.R.3
-
23
-
-
33646237770
-
Public attitudes toward dying with dignity and hospice·palliative care
-
Yun YH, Rhee YS, Nam SY, Chae YM, Heo DS, Lee SW. Public attitudes toward dying with dignity and hospice·palliative care. Korean J Hosp Palliat Care 2004; 7: 17-28.
-
(2004)
Korean J Hosp Palliat Care
, vol.7
, pp. 17-28
-
-
Yun, Y.H.1
Rhee, Y.S.2
Nam, S.Y.3
Chae, Y.M.4
Heo, D.S.5
Lee, S.W.6
-
24
-
-
34447302876
-
Good death in cancer care: A nationwide quantitative study
-
Miyashita M, Sanjo M, Morita T, Hirai K, Uchitomi Y. Good death in cancer care: A nationwide quantitative study. Ann Oncol 2007; 18: 1090-1097.
-
(2007)
Ann Oncol
, vol.18
, pp. 1090-1097
-
-
Miyashita, M.1
Sanjo, M.2
Morita, T.3
Hirai, K.4
Uchitomi, Y.5
-
25
-
-
0034969396
-
Chinese seniors' perspectives on end-of-life decisions
-
Bowman KW, Singer PA. Chinese seniors' perspectives on end-of-life decisions. Soc Sci Med 2001; 53: 455-464.
-
(2001)
Soc Sci Med
, vol.53
, pp. 455-464
-
-
Bowman, K.W.1
Singer, P.A.2
-
26
-
-
33644758133
-
What matters most in end-of-life care: Perceptions of seriously ill patients and their family members
-
Heyland DK, Dodek P, Rocker G, Groll D, Gafni A, Pichora D. What matters most in end-of-life care: Perceptions of seriously ill patients and their family members. CMAJ 2006; 174: 627-633.
-
(2006)
CMAJ
, vol.174
, pp. 627-633
-
-
Heyland, D.K.1
Dodek, P.2
Rocker, G.3
Groll, D.4
Gafni, A.5
Pichora, D.6
-
27
-
-
0034669456
-
Factors considered important at the end of life by patients, family, physicians, and other care providers
-
Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000; 284: 2476-2482.
-
(2000)
JAMA
, vol.284
, pp. 2476-2482
-
-
Steinhauser, K.E.1
Christakis, N.A.2
Clipp, E.C.3
McNeilly, M.4
McIntyre, L.5
Tulsky, J.A.6
-
28
-
-
0038710813
-
What matters to seriously ill older persons making end-of-life treatment decisions? A qualitative study
-
Fried TR, Bradley EH. What matters to seriously ill older persons making end-of-life treatment decisions? A qualitative study. J Palliat Med 2003; 6: 237-244.
-
(2003)
J Palliat Med
, vol.6
, pp. 237-244
-
-
Fried, T.R.1
Bradley, E.H.2
-
30
-
-
16844364792
-
Patient autonomy: Reflections from a developing country
-
Qidwai W. Patient autonomy: Reflections from a developing country. Am Fam Physician 2005; 71: 1261.
-
(2005)
Am Fam Physician
, vol.71
, pp. 1261
-
-
Qidwai, W.1
-
31
-
-
0033853770
-
Attitudes and beliefs of palliative care physicians regarding communication with terminally ill cancer patients
-
Bruera E, Neumann CM, Mazzocato C, Stiefel F, Sala R. Attitudes and beliefs of palliative care physicians regarding communication with terminally ill cancer patients. Palliat Med 2000; 14: 287-298.
-
(2000)
Palliat Med
, vol.14
, pp. 287-298
-
-
Bruera, E.1
Neumann, C.M.2
Mazzocato, C.3
Stiefel, F.4
Sala, R.5
-
32
-
-
0025006813
-
The social structure of the hospice decision
-
Gochman DS, Bonham GS. The social structure of the hospice decision. Hosp J 1990; 6: 15-36.
-
(1990)
Hosp J
, vol.6
, pp. 15-36
-
-
Gochman, D.S.1
Bonham, G.S.2
-
33
-
-
0026756833
-
The negotiation of death: Clinical decision making at the end of life
-
Slomka J. The negotiation of death: Clinical decision making at the end of life. Soc Sci Med 1992; 35: 251-259.
-
(1992)
Soc Sci Med
, vol.35
, pp. 251-259
-
-
Slomka, J.1
-
34
-
-
23444446928
-
Beyond autonomy: Diversifying end-of-life decision-making approaches to serve patients and families
-
Winzelberg GS, Hanson LC, Tulsky JA. Beyond autonomy: Diversifying end-of-life decision-making approaches to serve patients and families. J Am Geriatr Soc 2005; 53: 1046-1050.
-
(2005)
J Am Geriatr Soc
, vol.53
, pp. 1046-1050
-
-
Winzelberg, G.S.1
Hanson, L.C.2
Tulsky, J.A.3
-
35
-
-
0033550496
-
Quality end-of-life care: Patients' perspectives
-
Singer PA, Martin DK, Kelner M. Quality end-of-life care: Patients' perspectives. JAMA 1999; 281: 163-168.
-
(1999)
JAMA
, vol.281
, pp. 163-168
-
-
Singer, P.A.1
Martin, D.K.2
Kelner, M.3
-
36
-
-
0034881825
-
Patient-focused, family-centered end-of-life medical care: Views of the guidelines and bereaved family members
-
Teno JM, Casey VA, Welch LC, Edgman-Levitan S. Patient-focused, family-centered end-of-life medical care: Views of the guidelines and bereaved family members. J Pain Symptom Manage 2001; 22: 738-751.
-
(2001)
J Pain Symptom Manage
, vol.22
, pp. 738-751
-
-
Teno, J.M.1
Casey, V.A.2
Welch, L.C.3
Edgman-Levitan, S.4
-
37
-
-
0037779069
-
Family issues in end-of-life decision making and end-of-life care
-
Haley WE, Allen RS, Raynold S, Chen H. burton, A, Gallagher-Thomson, D. Family issues in end-of-life decision making and end-of-life care. Am Behav Sci 2002; 46: 284-298.
-
(2002)
Am Behav Sci
, vol.46
, pp. 284-298
-
-
Haley, W.E.1
Allen, R.S.2
Raynold, S.3
Chen, H.4
Burton, A.5
Gallagher-Thomson, D.6
-
38
-
-
0027935567
-
Physicians in health care management: 8. The patient-physician partnership: Decision making, problem solving and the desire to participate
-
Deber RB. Physicians in health care management: 8. The patient-physician partnership: Decision making, problem solving and the desire to participate. CMAJ 1994; 151: 423-427.
-
(1994)
CMAJ
, vol.151
, pp. 423-427
-
-
Deber, R.B.1
-
39
-
-
0024581423
-
Measuring patients' desire for autonomy: Decision making and information-seeking preferences among medical patients
-
Ende J, Kazis L, Ash A, Moskowitz MA. Measuring patients' desire for autonomy: Decision making and information-seeking preferences among medical patients. J Gen Intern Med 1989; 4: 23-30.
-
(1989)
J Gen Intern Med
, vol.4
, pp. 23-30
-
-
Ende, J.1
Kazis, L.2
Ash, A.3
Moskowitz, M.A.4
-
40
-
-
0030869448
-
A role for the sick role. Patient preferences regarding information and participation in clinical decision-making
-
Stiggelbout AM, Kiebert GM. A role for the sick role. Patient preferences regarding information and participation in clinical decision-making. CMAJ 1997; 157: 383-389.
-
(1997)
CMAJ
, vol.157
, pp. 383-389
-
-
Stiggelbout, A.M.1
Kiebert, G.M.2
-
41
-
-
33947713813
-
Factors influencing completion of advanced directives in hospitalized patients
-
Duke G, Thompson S, Hastie M. Factors influencing completion of advanced directives in hospitalized patients. Int J Palliat Nurs 2007; 13: 39-43.
-
(2007)
Int J Palliat Nurs
, vol.13
, pp. 39-43
-
-
Duke, G.1
Thompson, S.2
Hastie, M.3
-
42
-
-
0025397610
-
What about the family?
-
Hardwig J. What about the family? Hastings Cent Rep 1990; 20: 5-10.
-
(1990)
Hastings Cent Rep
, vol.20
, pp. 5-10
-
-
Hardwig, J.1
-
43
-
-
0028401613
-
Patient choices, family interests, and physician obligations
-
Mappes TA, Zembaty JS. Patient choices, family interests, and physician obligations. Kennedy Inst Ethics J 1994; 4: 27-46.
-
(1994)
Kennedy Inst Ethics J
, vol.4
, pp. 27-46
-
-
Mappes, T.A.1
Zembaty, J.S.2
-
44
-
-
31544479056
-
Families and futility: Forestalling demands for futile treatment
-
Hardwig J. Families and futility: Forestalling demands for futile treatment. J Clin Ethics 2005; 16: 335-344.
-
(2005)
J Clin Ethics
, vol.16
, pp. 335-344
-
-
Hardwig, J.1
|