Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: A European perspective

Quality of Life Research

Volumn 14, Issue 4, 2005, Pages 1065-1077

  Petersen, Corinna ^a   Schmidt, Silke ^a   Power, Mick ^b   Bullinger, Monika ^a  

^a UNIVERSITY MEDICAL CENTER HAMBURG EPPENDORF   (Germany)

^b UNIVERSITY OF EDINBURGH   (United Kingdom)

Author keywords

Children; Chronic condition; Health related quality of life; Paediatric

Indexed keywords

ADOLESCENT; AGE DISTRIBUTION; ARTHRITIS; ASTHMA; ATOPIC DERMATITIS; CEREBRAL PALSY; CONTROLLED STUDY; CYSTIC FIBROSIS; DATA ANALYSIS; DIABETES MELLITUS; EMOTION; EPILEPSY; FEMALE; HUMAN; INDEPENDENCE; LANGUAGE; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; REVIEW; SCHOOL CHILD; SOCIAL ASPECT;

ADOLESCENT; CHILD; CHRONIC DISEASE; DISABLED CHILDREN; EUROPE; HEALTH STATUS; HUMANS; PILOT PROJECTS; QUALITY OF LIFE; QUESTIONNAIRES; SICKNESS IMPACT PROFILE;

EID: 18844428870     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-004-2575-z     Document Type: Review

References (18)

1. C Eiser R. Morse 2001 A review of measures of quality of life for children with chronic illness Arch Dis Child 84 205 211
2. Perrin JM, Shonkoff JP. Developmental disabilities and chronic illness: An overview. In: Behrman RE, Kliegman RM, Jenson HB (eds), Textbook of Pediatrics, Philadelphia: W. B. Saunders, 2000; 121-129.
3. C Eiser R. Morse 2001 Quality-of-life measures in chronic diseases of childhood Health Technol Assess 5 11 57
4. A. Bowling 1995 Measuring Disease: A Review of Disease-specific Quality of Life Measurement scales Open University Press Philadelphia
5. M Bullinger S Schmidt C Petersen the DISABKIDS Group 2002 Assessing quality of life of children with chronic health conditions and disabilities: A European approach Int J Rehabil Res 25 197 206
6. C. Eiser 1990 Psychological effects of chronic disease J Child Psycho Psychiatry 31 85 98
7. K. Midence 1994 The effects of chronic illness on children and their families: An overview Genet Soc Gen Psychol Monogr 120 311 326
8. U Ravens-Sieberer M. Bullinger 1998 Assessing health-related quality of life in chronically ill children with the German KINDL: First psychometric and content analytical results Qual Life Res 7 399 407
9. JM Landgraf E Maunsell KN Speechley 1998 Canadian-French, German and UK versions of the Child Health Questionnaire: Methodology and preliminary item scaling results Qual Life Res 7 433 445
10. REK Stein DJ. Jessop 1990 Functional Status II (R) A measure of child health status Med Care 28 1041 1055
11. CD Bethell D Read RE Stein SJ Blumberg N Wells PW. Newacheck 2002 Identifying children with special health care needs: Development and evaluation of a short screening instrument Ambul Pediatr 2 38 48
12. Hays RD, Hayashi T, Carson S, Ware JE. Users Guide for the Multitrait Analysis Program (MAP). Rand Co-operation Report No. N-2786-RC, 1988
13. P Bentler EJ Wu 2001 EQS for Windows User's guide. Multivariate Software Encino: CA
14. Van Davier M. Winmira. A Method for Analysing Probabilistic Test Models. Kie1: IPN, 1996.
15. J Rost MV. Davier 1994 A conditional item-fit index for Rasch models Appl Psychol Measure 18 171 182
16. BM. Byrne 2001 Structural Equation Modelling with AMOS Erlbaum New York
17. M Bullinger S von Mackensen K Fischer K Khair C Petersen U Ravens-Sieberer A Rocino P Sagnier JM Tusell M van Den Berg M. Vicariot 2002 Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries Haemophilia 8 47 54
18. The WHOQOL Group 1995 The World Health Organization Quality of Life assessment (WHOQOL): Position paper from the World Health Organization Soc Sci Med 41 1403 1409