Stigma despite recovery: Strategies for living in the aftermath of psychosis

Medical Anthropology Quarterly

Volumn 22, Issue 4, 2008, Pages 381-409

  Jenkins, Janis H ^a   Carpenter Song, Elizabeth A ^b  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b HARVARD MEDICAL SCHOOL   (United States)

Author keywords

Antipsychotic medication; Culture; Intersubjectivity; Lived experience; Mental illness; Psychosis; Recovery; Schizophrenia and schizoaffective disorder; Stigma

Indexed keywords

CLOZAPINE; NEUROLEPTIC AGENT;

ARTICLE; CULTURAL ANTHROPOLOGY; FEMALE; HUMAN; INTERVIEW; MALE; MENTAL HEALTH SERVICE; OBSERVATION; PERCEPTION; PSYCHOLOGY; QUESTIONNAIRE; SCHIZOPHRENIA; SOCIAL PSYCHOLOGY;

ANTHROPOLOGY, CULTURAL; ANTIPSYCHOTIC AGENTS; CLOZAPINE; COMMUNITY MENTAL HEALTH SERVICES; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; OBSERVATION; QUESTIONNAIRES; SCHIZOPHRENIA; SCHIZOPHRENIC PSYCHOLOGY; SOCIAL PERCEPTION; STEREOTYPING;

EID: 57749172714     PISSN: 07455194     EISSN: 15481387     Source Type: Journal    
DOI: 10.1111/j.1548-1387.2008.00038.x     Document Type: Article

References (75)

1. Ablon, Joan 1981 Stigmatized Health Conditions. Social Science and Medicine 15B:5-9.
2. Ablon, Joan 1984 Little People in America: The Social Dimensions of Dwarfism. New York: Praeger.
3. Ablon, Joan 1988 Living with Differences: Families with Dwarf Children. New York: Praeger.
4. Ablon, Joan 1999 Living with Genetic Disorder: The Impact of Neurofibromatosis. Westport, CT: Auburn House.
5. Ablon, Joan 2002 The Nature of Stigma and Medical Conditions. Epilepsy and Behavior 3:S2-S9.
6. Alverson, Hoyt S., Elizabeth Carpenter, and Robert Drake 2007 Ethnocultural Variations in Mental Illness Discourse: Some Implications for Building Therapeutic Alliances. Psychiatric Services 58(12):1541-1546.
7. Barrett, Ronald 2005 Self-Mortification and the Stigma of Leprosy in Northern India. Medical Anthropology Quarterly 19(2):216-230.
8. Bergstresser, Sara M. 2006 Work, Identity, and Stigma Management in an Italian Mental Health Community. Anthropology of Work Review 27(1):12-20.
9. Biehl, João 2005 Vita: Life in a Zone of Social Abandonment. Berkeley: University of California Press.
10. Biehl, João, Byron Good, and Arthur Kleinman 2007 Introduction: Rethinking Subjectivity. In Subjectivity. J. Biehl, B. Good, and A. Kleinman, eds. Pp. 1-23. Berkeley: University of California Press.
11. Burger, Gary K., R. J. Calsyn, G. A. Morse, W. D. Klinkenberg, and Michael L. Trusty 1997 Factor Structure of the Expanded Brief Psychiatric Rating Scale. Journal of Clinical Psychology 53(5):451-454.
12. Castro, Arachu, and Paul Farmer 2005 Understanding and Addressing AIDS-Related Stigma: From Anthropological Theory to Clinical Practice in Haiti. American Journal of Public Health 95(1):53-59.
13. Coker, Elizabeth M. 2005 Selfhood and Social Distance: Toward a Cultural Understanding of Psychiatric Stigma in Egypt. Social Science and Medicine 61:920-930.
14. Covell, Nancy H., Linda K. Frisman, and Susan M. Essock 2003 Rates of Refusal to Participate in Research Studies among Men and Women. Psychiatric Services 54(11):1541-1544.
15. Cullinane, Joanne 2007 The Domestication of AIDS: Stigma, Gender, and the Body Politic in Japan. Medical Anthropology 26(3):255-292.
16. Das, Veena 2001 Stigma, Contagion, Defect: Issues in the Anthropology of Public Health. Paper presented at Stigma and Global Health: Developing a Research Agenda Conference, Bethesda, MD, September 5-7. Electronic document, http://www.stigmaconference.nih.gov/FinalDasPaper.htm, accessed July 2, 2008.
17. Davidson, Larry 2003 Living outside Mental Illness: Qualitative Studies of Recovery in Schizophrenia. New York: New York University Press.
18. Edgerton, Robert B. 1993 The Cloak of Competence. Berkeley: University of California Press.
19. Ellison, Marcia A. 2003 Authoritative Knowledge and Single Women's Unintended Pregnancies, Abortions, Adoptions, and Single Motherhood: Social Stigma and Structural Violence. Medical Anthropology Quarterly 17(3):322-347.
20. Estroff, Sue E., David L. Penn, and Julie R. Toporek 2004 From Stigma to Discrimination: An Analysis of Community Efforts to Reduce the Negative Consequences of Having a Psychiatric Disorder and Label. Schizophrenia Bulletin 30(3):493-509.
21. Fabrega, Horatio 1990 Psychiatric Stigma in the Classical and Medieval Period: A Review of the Literature. Comprehensive Psychiatric 31(4):289-306.
22. Fabrega, Horatio 1991a The Culture and History of Psychiatric Stigma in Early Modern and Modern Western Societies: A Review of Recent Literature. Comprehensive Psychiatric 32(2):97-119.
23. Fabrega, Horatio 1991b Psychiatric Stigma in Non-Western Societies. Comprehensive Psychiatry 32(6):534-551.
24. First, M. B., R. L. Spitzer, M. Gibbon, and J. B. W. Williams 2002 Structured Clinical Interview for DSM-IV-TR Axis I Disorders, Research Version, Patient Edition (SCID-I/P). New York: Biometrics Research, New York State Psychiatric Institute.
25. Frank, Gelya 1986 On Embodiment: A Case Study of Congenital Limb Deficiency in American Culture. Culture, Medicine and Psychiatry 10(3):189-219.
26. Goffman, Erving 1963 Stigma: Notes on the Management of Spoiled Identity. Englewood Cliffs, NJ: Prentice-Hall.
27. Good, Byron J. 1994 Medicine, Rationality, and Experience: An Anthropological Perspective. Cambridge: Cambridge University Press.
28. Good, Byron J., and Mary-Jo DelVecchio Good 1981 The Meaning of Symptoms: A Cultural Hermeneutic Model for Clinical Practice. In The Relevance of Social Science for Medicine. A. Kleinman and L. Eisenberg, eds. Boston: Reidel.
29. Good, Mary-Jo DelVecchio 1995 American Medicine: The Quest for Competence. Berkeley: University of California Press.
30. Hopper, Kim 2004 Interrogating the Meaning of "Culture" in WHO International Studies of Schizophrenia. In Schizophrenia, Culture, and Subjectivity: The Edge of Experience. J. Jenkins and R. Barrett, eds. New York: Cambridge University Press.
31. Hutchinson, Gerard, and Dinesh Bhugra 2000 Social Anthropology and Stigma: The Importance for Psychiatry. In Anthropological Approaches to Psychological Medicine. Vieda Skultans and John Cox, eds. Pp. 233-257. Philadelphia: J. Kingsley.
32. Inhorn, Marcia 2004 Middle Eastern Masculinities in the Age of New Reproductive Technologies: Male Infertility and Stigma in Egypt and Lebanon. Medical Anthropology Quarterly 18(2):162-182.
33. Jackson, Jean E. 2005 Stigma, Liminality, and Chronic Pain: Mind-Body Borderlands. American Ethnologist 32(3):332-353.
34. Jenkins, Janis H. 1988a Conceptions of Schizophrenic Illness as a Problem of Nerves: A Comparative Analysis of Mexican-Americans and Anglo-Americans. Social Science and Medicine 26:1233-1243.
35. Jenkins, Janis H. 1988b Ethnopsychiatric Interpretations of Schizophrenic Illness: The Problem of Nervios within Mexican-American Families. Culture, Medicine and Psychiatry 12:301-329.
36. Jenkins, Janis H. 1991a Anthropology, Expressed Emotion, and Schizophrenia. Ethos 19(4):387-431.
37. Jenkins, Janis H. 1991b The State Construction of Affect: Political Ethos and Mental Health among Salvadoran Refugees. Culture, Medicine and Psychiatry 15(2):139-165.
38. Jenkins, Janis H. 1997 Subjective Experience of Persistent Schizophrenia and Depression among US Latinos and Euro-Americans. British Journal of Psychiatry 171:20-25.
39. Jenkins, Janis H. 1998 The Medical Anthropology of Political Violence: A Cultural and Feminist Agenda. Medical Anthropology Quarterly 12(1):122-131.
40. Jenkins, Janis H. 2004 Schizophrenia as a Paradigm Case for Understanding Fundamental Human Processes. In Schizophrenia, Culture, and Subjectivity: The Edge of Experience. J. H. Jenkins and R. J. Barrett, eds. Pp. 29-61. New York: Cambridge University Press.
41. Jenkins, Janis H., and Robert Barrett, eds. 2004 Schizophrenia, Culture, and Subjectivity: The Edge of Experience. New York: Cambridge University Press.
42. Jenkins, Janis H., and Elizabeth Carpenter-Song 2005 The New Paradigm of Recovery from Schizophrenia: Cultural Conundrums of Improvement without Cure. Culture, Medicine and Psychiatry 29(4):379-413.
43. Jenkins, Janis H., and Marvin Karno 1992 The Meaning of "Expressed Emotion:" Theoretical Issues Raised by Cross-Cultural Research. American Journal of Psychiatry 149:9-21.
44. Karim, Fazlul, A. M. R. Chowdhury, Akramul Islam, and Mitchell G. Weiss 2007 Stigma, Gender and their Impact on Patients with Tuberculosis in Rural Bangladesh. Anthropology and Medicine 14(2):139-151.
45. Kleinman, Arthur 1988a The Illness Narratives: Suffering,Healing, and the Human Condition. New York: Basic.
46. Kleinman, Arthur 1988b Rethinking Psychiatry: From Category to Personal Experience. New York: Free Press.
47. Kleinman, Arthur, Veena Das, and Margaret Lock, eds. 1997 Social Suffering. Berkeley: University of California Press.
48. Lancaster, Roger N. 1988 Subject Honor and Object Shame: The Construction of Male Homosexuality and Stigma in Nicaragua. Ethnology 27(2):111-125.
49. Lang, Norris G. 1991 Stigma, Self-Esteem, and Depression: Psycho-Social Responses to Risk of AIDS. Human Organization 50(1):66-72.
50. Layne, Linda L. 2006 Pregnancy Loss, Stigma, Irony, and Masculinities: Reflections on and Future Directions for Research on Religion in the Global Practice of IVF. Culture, Medicine and Psychiatry 30:537-545.
51. Lee, Sing, Margaret T. Y. Lee, Marcus Y. L. Chiu, and Arthur Kleinman 2005 Experience of Social Stigma by People with Schizophrenia in Hong Kong. British Journal of Psychiatry 186:153-157.
52. Lin, T. Y., and M. C. Lin 1982 Love, Denial, and Rejection: Responses of Chinese Families to Mental Illness. In Normal and Abnormal Behavior in Chinese Culture. A. Kleinman and T. Y. Lin, eds. Pp. 387-401. Dordrecht, the Netherlands: Reidel.
53. Link, Bruce G., and Jo C. Phelan 2001 Conceptualizing Stigma. Annual Review of Sociology 27:363-365.
54. Link, Bruce G., Lawrence H. Yang, Jo C. Phelan, and Pamela Y. Collins 2004 Measuring Mental Illness Stigma. Schizophrenia Bulletin 30(3):511-541.
55. Lipson, Juliene G. 2004 Multiple Chemical Sensitivities: Stigma and Social Experiences. Medical Anthropology Quarterly 18(2):200-213.
56. Littlewood, Roland, Sushrut Jadhav, and Andrew G. Ryder 2007 A Cross-National Study of the Stigmatization of Severe Psychiatric Illness: Historical Review, Methodological Considerations and Development of the Questionnaire. Transcultural Psychiatry 44(2):171-202.
57. Luborsky, Mark R. 1993 The Identification and Analysis of Themes and Patterns. In Qualitative Methods in Aging Research. J. Gubrium and A. Sankar, eds. New York: Sage.
58. Miall, Charlene E. 1994 Community Constructs of Involuntary Childlessness: Sympathy, Stigma, and Social Support. Canadian Review of Sociology and Anthropology 31(4):392-421.
59. Niang, Cheikh Ibrahima, Placide Tapsoba, Ellen Weiss, Moustapha Diagne, Youssoupha Niang, Amadou Mody Moreau, Dominique Gomis, Abdoulaye Sidb'e Wade, Karim Seck, and Chris Castle 2003 "It's Raining Stones": Stigma, Violence, and HIV Vulnerability among Men Who Have Sex with Men in Dakar, Senegal. Culture, Health, and Sexuality 5(6):499-512.
60. Parsons, Talcott 1951 The Social System. Glencoe, IL: The Free Press.
61. Pickenhagen, A., and Norman Sartorius 2002 The WPA Global Programme to Reduce the Stigma and Discrimination because of Schizophrenia. Annotated bibliography. Electronic document, http://www.opnthedoors.com/english/ media/Bibliography.pdf, accessed July 2, 2008.
62. Rebhun, Linda Ann 2004 Sexuality, Color, and Stigma among Northeast Brazilian Women. Medical Anthropology Quarterly 18(2):183-199.
63. Rosen, Alan 2003 What Developed Countries Can Learn from Developing Countries in Challenging Psychiatric Stigma. Australasian Psychiatry 11(l1):S89-S95.
64. Scientific Software 1997 Atlas.ti. Berlin, Germany.
65. Shuttleworth, Russell P., and Devva Kasnitz 2004 Stigma, Community. Ethnography: Joan Ablon's Contribution to the Anthropology of Impairment-Disability. Medical Anthropology Quarterly 18(2):139-161.
66. Stanley, Laura D. 1999 Transforming AIDS: The Moral Management of a Stigmatized Identity. Anthropology and Medicine 6(1):103-120.
67. Strauss, Anselm L., and Juliet M. Corbin 1990 Basics of Qualitative Research: Grounded Theory Procedures and Techniques. Newbury Park, CA: Sage.
68. Sullivan, H. S. 1962 Schizophrenia as a Human Process. New York: Norton.
69. Townsend, John Marshall 1979 Stereotypes of Mental Illness: A Comparison with Ethnic Stereotypes. Culture, Medicine and Psychiatry 3(3):205-229.
70. Waxler, Nancy E. 1977 Is Mental Illness Cured in Traditional Societies? A Theoretical Analysis. Culture, Medicine and Psychiatry 1(3):233-253.
71. Weiss, Mitchell G., Sushrut Jadhav, Penelope Atsou, and Roland Littlewood 2001 Psychiatric Stigma across Cultures: Local Validation in Bangalore and London. Anthropology and Medicine 8(1):71-87.
72. World Health Organization (WHO) 1973 The International Pilot Study of Schizophrenia. Geneva: World Health Organization.
73. World Health Organization (WHO) 1979 Schizophrenia: An International Follow-Up Study. Chichester: Wiley.
74. World Health Organization (WHO) 2001 Mental Health: New Understanding, New Hope. Geneva: World Health Organization.
75. Yang, Lawrence Hsin, Arthur Kleinman, Bruce G. Link, Jo C. Phelan, Sing Lee, and Byron Good 2007 Culture and Stigma: Adding Moral Experience to Stigma Theory. Social Science and Medicine 64:1524-1535.