Reflections on an uncommon journey: A follow-up study of life management of six mothers of children with diverse disabilities

International Journal of Special Education

Volumn 23, Issue 1, 2008, Pages 103-114

  Scorgie, Kate ^a   Wilgosh, Lorraine ^b  

^a AZUSA PACIFIC UNIVERSITY   (United States)

^b UNIVERSITY OF ALBERTA   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 54949119967     PISSN: 08273383     EISSN: 08273383     Source Type: Journal    
DOI: None     Document Type: Article

References (36)

1. Bernheimer, L. P., & Weisner, T. S. (2007). "Let me tell you what I do all day . . .": The family story at the center of intervention research and practice. Infants and Young Children, 20(3), 192-201.
2. Boss, P., & Couden, B. A. (2002). Ambiguous loss from chronic physical illness: Clinical interventions with individuals, couples, and families. Journal of Clinical Psychology, 58(11), 131-1360.
3. Bowen, G. A. (2006). Grounded theory and sensitizing concepts. International Journal of Qualitative Methods, 5(3), 1-9.
4. Bridgeman, J. (2005). Caring for children with severe disabilities: Boundaried and relational rights. The International Journal of Children's Rights, 13, 99-119.
5. Carroll, J. S., Olson, C. D., & Buckmiller, N. (2007). Family boundary ambiguity: A 30-year review of theory, research, and measurement. Family Relations 56(2), 210-230.
6. nd ed., pp. 249-291). Thousand Oaks, CA: Sage.
7. Dellve, L., Samuelsson, L., Tallborn, A., Fasth, A., & Hallberg, L. (2006). Stress and well-being among parents of children with rare diseases: A prospective interaction study. Issues and Innovations in Nursing Practice, 53(4), 392-402.
8. Gilgun, J. F. (2002). Conjectures and refutations: Government funding and qualitative research. Qualitative Social Work, 1(3), 359-375.
9. Grant, G., Ramcharan, P, & Goward, P. (2003). Resilience, family care, and people with intellectual disabilities. International Review of Research in Mental Retardation, 26, 135-173.
10. Green, S. E. (2007). "We're tired, not sad": Benefits and burdens of mothering a child with a disability.Social Science and Medicine, 64, 150-163.
11. Hartshorne, T. S. (2002). Mistaking courage for denial: Family resilience after the birth of a child with severe disabilities. The Journal of Individual Psychology, 58(3), 263-278.
12. Hintermair, M. (2004). Sense of coherence: A relevant resource in the coping process of mothers of deaf and hard-of-hearing children. Journal of Deaf Studies and Deaf Education, 9(1), 15-26.
13. Horton, T. V., & Wallander, J. L. (2001). Hope and social support as resilience factors against psychological distress of mothers who care of children with chronic conditions. Rehabilitation Psychology, 46(4), 382-399.
14. Hutton, A. M., & Caron, S. L. (2005). Experiences of families with children with autism in rural New England. Focus on Autism and Other Developmental Disorders, 20(3), 180-189.
15. Kasahara, M., & Turnbull, A. P. (2005). Meaning of family-professional partnerships: Japanese mothers' perspectives. Exceptional Children, 71(3), 249-265.
16. Kearney, P. M., & Griffin, T. (2001). Between joy and sorrow: Being a parent of a child with developmental disability. Issues and Innovations in Nursing Practice, 34(5), 582-592.
17. Kuhn, J. C., & Carter, A. S. (2006). Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry, 76(4), 564-575.
18. Lazarus, R. S. (2006). Emotions and interpersonal relationships: Toward a person-centered conceptualization of emotions and coping. Journal of Personality, 74(1), 9-46.
19. Moule, N.J., & Streitberger, S. (1997). Stories of suffering, stories of strength: Narrative influences in family nursing. Journal of Family Nursing, 3, 365-377.
20. Murray, J. A. (2001). Loss as a universal concept: A review of the literature to identify common aspects of loss in diverse situations. Journal of Loss and Trauma, 6, 219-241.
21. Neimeyer, R. A. (2002). Traumatic loss and the reconstruction of meaning. Journal of Palliative Medicine, 5(6), 935-942.
22. Nota, L., Soresi, S., Ferrarai, L., Wilgosh, L., & Scorgie, K. (2003). Life management and quality of life of parents of children with diverse disabilities. Developmental Disabilities Bulletin, 31, 155-181.
23. O'Brien, M. (2007). Ambiguous loss in families of children with autism spectrum disorder. Family Relations, 56(2), 135-146.
24. Orbuch, T. L. (1997). People's accounts count: The sociology of accounts. Annual Review of Sociology, 23, 455-478.
25. Roper, S. O., & Jackson, J. B. (2007). The ambiguities of out-of-home care: Children with severe or profound disabilities. Family Relations, 56(2), 147-161.
26. Seltzer, M. M., Greenberg, J. S., Floyd, F. J., Pettee, Y., & Hong, J. (2001). Life course impact of parenting a child with disabilities. American Journal on Mental Retardation, 106, 265-286.
27. Sobel, S., & Cowan, C. B. (2003). Ambiguous loss and disenfranchised grief: The impact of DNA predictive testing on the family as a system. Family Processes, 42(1), 47-57.
28. Scorgie, K., Wilgosh, L., & McDonald, L. (1996). A qualitative study of managing life when a child has a disability. Developmental Disabilities Bulletin, 24(2), 68-90.
29. Scorgie, K., Wilgosh, L., & McDonald, L. (1997). A survey follow-up on managing life when a child has a disability. Developmental Disabilities Bulletin, 25, 65-69.
30. Scorgie, K., Wilgosh, L., & McDonald, L. (1998). Parents' experiences managing life when a child has a disability. International Journal of Special Education, 13, 102-110.
31. Scorgie, K., Wilgosh, L., & McDonald, L. (1999). Transforming partnerships: Parent life management issues when a child has mental retardation. Education and Training in Mental Retardation & Developmental Disabilities, 34, 396-405.
32. Trute, B., & Hiebert-Murphy, D. (2002). Family adjustment to childhood developmental disability:A measure of parent appraisal of family impacts. Journal of Pediatric Psychology, 27, 271-280.
33. Twoy, R., Connolly, P. M., & Novak, J. M. (2007). Coping strategies used by parents of children with autism. Journal of the American Academy of Nurse Practitioners, 19, 251-260.
34. Wilgosh, L., Nota, L., Scorgie, K., & Soresi, S. (2004). Effective life management in parents of children with disabilities: A cross-national extension. International Journal for the Advancement of Counselling. 26, 301-312.
35. Wilgosh, L., & Scorgie, K. (2006). A theoretical model for conceptualizing cross-cultural applications and intervention strategies for parents of children with disabilities. Journal of Policy and Practice in Intellectual Disability. 3(4), 211-218.
36. Zaidman-Zait, A., & Jamieson, J. R. (2007). Providing web-based support for families of infants and young children with established disabilities. Infants and Young Children, 20(1), 11-25.