The ambiguities of out-of-home care: Children with severe or profound disabilities

Family Relations

Volumn 56, Issue 2, 2007, Pages 147-161

  Roper, Susanne Olsen ^a   Jackson, Jeffrey B ^a  

^a BRIGHAM YOUNG UNIVERSITY   (United States)

Author keywords

Ambiguous loss; Boundary ambiguity; Developmental disabilities; Placement

Indexed keywords

EID: 33947663022     PISSN: 01976664     EISSN: 17413729     Source Type: Journal    
DOI: 10.1111/j.1741-3729.2007.00448.x     Document Type: Article

References (32)

1. Administration on Developmental Disabilities, (n.d.). ADD fact sheet, Retrieved April 11, 2006, from http://www.acf.dhhs.gov/programs/add/ Factsheet.html
2. The Arc of the United States, (n.d.). Introduction to mental retardation. Retrieved August 2, 2003, from http://www.thearc.org/faqs/mrqa. html
3. Berge, J. M., & Holm, K. E. (2007). Boundary ambiguity in parents with chronically ill children: Integrating theory and research. Family Relations, 56, 123-134.
4. Boss, P. (1993). Boundary ambiguity: A block to cognitive coping. In A. P. Turnbull, J. M Patterson, S. K. Behr, D. L. Murphy, J. G. Marquis, & M. J. Blue-Banning (Eds.), Cognitive coping, families, & disability (pp. 257-269). Baltimore, MD: Paul H. Brooke.
5. Boss, P. (1999). Ambiguous loss, Cambridge, MA: Harvard University Press.
6. Boss, P. (2002). Family stress management: A contextual approach (2nd ed.). Thousand Oaks, CA: Sage.
7. Boss, P. (2004a). Ambiguous loss. In F. Walsh & M. McGoldrick (Eds.), Living beyond loss (2nd ed., pp. 237-246). New York: Norton.
8. Boss, P. (2004b). Ambiguous loss research, theory, and practice: Reflections after 9/11. Journal of Marriage and Family, 66, 551-566.
9. Boss, P. (2006). Loss, trauma, and resilience. London: W.W. Norton.
10. Boss, P., & Couden, B. A. (2002). Ambiguous loss from chronic physical illness: Clinical interventions with individuals, couples, and families. Journal of Clinical Psychology, 58, 1351-1360.
11. Boss, P., & Greenberg, J. (1984). Family boundary ambiguity: A new variable in family stress theory. Family Process, 23, 535-546.
12. Burr, W. R., Leigh, G. K., Day, R. D., & Constantine, J. (1979). Symbolic interaction and the family. In W. R. Burr, R. Hill, F. I. Nye, & I. L Reiss (Eds.), Contemporary theories about the family (Vol. 2, pp. 42-111). New York: The Free Press.
13. Carroll, J. S., Olson, C. D., & Buckmiller, N. (2007). Family boundary ambiguity: A 30 year review of theory, research, and measurement. Family Relations, 56, 210-230.
14. Creswell, J. W. (1998). Qualitative inquiry and research design: Choosing among five traditions. Thousand Oaks, CA: Sage.
15. Dyson, L. L. (1993). Response to the presence of a child with disabilities: Parental stress and family functioning over time. American Journal of Mental Retardation, 98, 207-218.
16. Garwick, A. (2005, November). Family meanings associated with caring for medically fragile children. Phoenix, AZ: National Council on Family Relations.
17. Gilgun, J. F. (2004, March). Some guidelines for the design of qualitative research with emphasis on dissertation research. First Brazilian International Conference on Qualitative Research, Minneapolis, MN.
18. Gilgun, J. F. (2005). Qualitative research and family psychology. Journal of Family Psychology, 19, 40-50.
19. Hill, C. E., Thompson, B. J., & Williams, E. N. (1997). A guide to conducting consensual qualitative research. Counseling Psychologist, 25, 517-572.
20. Hodapp, R. M. (2002). Parenting children with mental retardation. In M. H. Bornstein (Ed.), Handbook of parenting; Vol. 1: Children and parenting (2nd ed., pp. 355-381). Mahwah, NJ: Erlbaum.
21. Jackson, J. B. (2004). Parental coping methods for managing stresses experienced following out-of-home placement of a child with developmental disabilities. Unpublished master's thesis, University of Maryland, College Park.
22. Jackson, J. B., & Olsen, S. F. (2005, November). Parental adaptation to placement of a child with developmental disabilities. Phoenix, AZ: National Council on Family Relations.
23. Kahn, R. L., Wolfe, D. M., Quinn, R. P., Snoek, J. D., & Rosenthal, R. A. (1964). Organizational stress: Studies in role conflict and ambiguity. New York John Wiley.
24. LaRossa, R. (2005). Grounded theory methods and qualitative family research. Journal of Marriage and Family, 67, 837-857.
25. Lenhart, S. W. (2000). Protecting workers with developmental disabilities. Applied Occupational and Environmental Hygiene, 15(2), 171-181.
26. Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Beverly Hills, CA: Sage.
27. Linehan, M. M. (1993). Skills training manual for treating borderline personality disorder. New York: Guilford Press.
28. Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis: A sourcebook of new methods (2nd ed.). Thousand Oaks, CA: Sage.
29. Neuman, W. L. (2006). Social research methods: Quantitative and qualitative approaches (6th ed.). Boston: Allyn and Bacon.
30. QSR International Proprietary Limited. (2000). NVivo qualitative data analysis program (version 1.3) [Computer software]. Melbourne, Australia.
31. Radina, M. E., & Downs, K. J. M. (2005). Asking new questions of existing qualitative data. In V. L. Bengtson, A. C. Acock, K. R. Allen, P. Dilworth-Anderson, & D. M. Klein (Eds.), Sourcebook of family theory and research (pp. 63-64). Thousand Oaks, CA: Sage.
32. Strauss, A., &, Corbin, J. (1998). Basics of qualitative research; Techniques and procedures for developing grounded theory. Thousand Oaks, CA: Sage.