'Restricting choices and limiting independence': Social and economic impact of multiple sclerosis upon households by level of disability

Chronic Illness

Volumn 4, Issue 3, 2008, Pages 160-172

  Green, G ^a   Todd, J ^a  

^a UNIVERSITY OF ESSEX   (United Kingdom)

Author keywords

Disability; Household; Multiple sclerosis; Social and economic impact

Indexed keywords

ADULT; ARTICLE; CLINICAL FEATURE; CONTROLLED STUDY; DAILY LIFE ACTIVITY; DISABILITY; DISEASE COURSE; ECONOMIC ASPECT; FEMALE; HEALTH SURVEY; HOUSEHOLD; HUMAN; JOB PERFORMANCE; MALE; MULTIPLE SCLEROSIS; SCORING SYSTEM; SOCIAL LIFE; SOCIAL STATUS;

ACTIVITIES OF DAILY LIVING; ADULT; AGED; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; DEPENDENCY (PSYCHOLOGY); FAMILY RELATIONS; FEMALE; HEALTH SURVEYS; HUMANS; INTERPERSONAL RELATIONS; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; SOCIAL BEHAVIOR; SOCIOECONOMIC FACTORS;

EID: 51749122922     PISSN: 17423953     EISSN: 17459206     Source Type: Journal    
DOI: 10.1177/1742395307087457     Document Type: Article

References (29)

1. Multiple Sclerosis Society Website. Available at: http://www.mssociety. org (accessed May 2007).
2. Compston A., Coles A. Multiple sclerosis. Lancet 2002 ; 359: 1221-31.
3. Green G., Todd J., Pevalin DJ Biographical disruption associated with multiple sclerosis: using propensity scoring to assess the impact. Soc Sci Med 2007 ; 65: 524-35.
4. Rudick RA, Miller DM, Clough JD, Gragg LA, Farmer RG Quality of life in multiple sclerosis. Comparison with inflammatory bowel disease and rheumatoid arthritis. Arch Neurol 1992 ; 49: 1237-42.
5. Mohr DC, Dick LP, Russo D., et al. The psychosocial impact of multiple sclerosis: exploring the patient's perspective. Health Psychol 1999 ; 18: 376-82.
6. Hakim EA, Bakheit AM, Bryant TN, et al. The social impact of multiple sclerosis: a study of 305 patients and their relatives. Disabil Rehabil 2000 ; 22: 288-93.
7. de Andres C., Guillem A. Approach to quality of life changes in patients with multiple sclerosis [Spanish]. Rev Neurol 2000 ; 30: 1229-34.
8. Kobelt G., Berg J., Lindgren P., Kerrigan J., Russell N., Nixon R. Costs and quality of life of multiple sclerosis in the United Kingdom. Eur J Health Econ 2006 ; 7 (Suppl 2). S96-104.
9. Battaglia MA, Zagami P., Uccelli MM A cost evaluation of multiple sclerosis. J Neurovirol 2000 ; 6 (Suppl 2). S191-3.
10. Aronson KJ Quality of life among persons with multiple sclerosis and their caregivers. Neurology 1997 ; 48: 74-80.
11. Dyck I. Hidden geographies: the changing life-worlds of women with multiple sclerosis. Soc Sci Med 1995 ; 40: 307-20.
12. Burgess M. Multiple sclerosis theory and practice for nurses., London: Whurr, 2002.
13. Schapiro RT Sexuality. In: Symptom management in multiple sclerosis, 3 rd edn. New York: Demos Medical Publishing, 1998: 59-65.
14. Hammersley M. Varieties of social research: a typology. Int J Soc Res Methodol TheoryPractice 2000 ; 3: 221-31.
15. World Health Organization. International classification of functioning, disability and health (ICF). Geneva: WHO, 2002. Available at: http://www.who.int/classifications/icf/ (accessed October 2007).
16. Kurtzke JF Rating neurologic impairment in multiple sclerosis: an expanded disability status scale (EDSS). Neurology 1983 ; 33: 1444-52.
17. Nichol L., Hobart J., Dunwoody L., Cramp A., Lowe-Strong A. Disability assessment in multiple sclerosis. Way Ahead 2004 ; 8: 8-9.
18. Mahoney FI, Barthel DW Functional evaluation: the Barthel ADL index. Md State Med J 1965 ; 14: 61-5.
19. Collin C., Wade DT, Davies S., Horn V. The Barthel ADL index: a reliability study. Int Disabil Studies 1988 ; 10: 61-3.
20. Bamford JM, Sandercock PA, Warlow CP, Slattery J. Interobserver agreement for the assessment of handicap in stroke patients. Stroke 1989 ; 20: 828.
21. Banks JL Outcome validity and reliability of the modified Rankin scale: implications for stroke clinical trials: a literature review and synthesis. Stroke 2007 ; 38: 1091-6.
22. Kuckartz U. winMAX Pro 98 scientific text analysis for the social sciences., London: Sage, 1998.
23. Ritchie J., Spencer L. Qualitative data analysis for applied policy research. In: Bryman A, Burgess B, eds. Analysing qualitative data, London: Routledge, 1994: 173-94.
24. Mori. Measuring up - experiences of health services of people with MS. Research Study conducted for MS Society 2003.
25. Howland CA, Rintala DH Dating behaviors of women with physical disabilities. Sexuality Disabil 2001 ; 19: 41-70.
26. Richardson J., Lazur A. Sexuality in the nursing home patient. Am Family Physician 1995 ; 51: 121-4.
27. Stuifbergan A., Rogers S. The experience of fatigue and strategies of self-care among persons with multiple sclerosis. Appl Nurs Res 1997 ; 10: 2-10.
28. Miller CM The lived experience of relapsing multiple sclerosis: a phenomenological study. J Neurosci Nurs 1997 ; 29: 294-304.
29. Monks J. Life stories and sickness experience: a performance perspective. Culture Medicine Psychiatry 1995 ; 19: 453-78.