Biographical disruption associated with multiple sclerosis: Using propensity scoring to assess the impact

Social Science and Medicine

Volumn 65, Issue 3, 2007, Pages 524-535

  Green, Gill ^a   Todd, Jennifer ^a   Pevalin, David ^a  

^a UNIVERSITY OF ESSEX   (United Kingdom)

Author keywords

Biographical disruption; Employment; Income; Marital status; Multiple sclerosis; UK

Indexed keywords

HOUSEHOLD SURVEY; NERVOUS SYSTEM DISORDER; QUALITY OF LIFE; SOCIAL IMPACT ASSESSMENT;

ADULT; AGED; ARTICLE; CHRONIC DISEASE; DAILY LIFE ACTIVITY; DISABILITY; DISEASE COURSE; EMPLOYMENT; FEMALE; HEALTH SURVEY; HUMAN; INCOME; LIFE EVENT; MAJOR CLINICAL STUDY; MALE; MARRIAGE; MULTIPLE SCLEROSIS; QUANTITATIVE ANALYSIS; RELAPSE; REMISSION; SELF REPORT; SEXUAL BEHAVIOR; SOCIAL BEHAVIOR; SOCIOECONOMICS;

ACTIVITIES OF DAILY LIVING; ADULT; AGED; AGED, 80 AND OVER; CHRONIC DISEASE; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; FAMILY CHARACTERISTICS; FEMALE; HUMANS; INCOME; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; SOCIAL SUPPORT; UNEMPLOYMENT;

EURASIA; EUROPE; UNITED KINGDOM; WESTERN EUROPE;

EID: 34347347034     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2007.03.007     Document Type: Article

References (56)

1. In: Anderson R., and Bury M. (Eds). Living with chronic illness: The experience of patients and their families (1988), Hyman Unwin, London
2. Aronson K.J. Quality of life among persons with multiple sclerosis and their caregivers. Neurology 48 1 (1997) 74-80
3. Bartley M., and Owen C. Relation between socio-economic status, employment and health during economic change, 1973-93. British Medical Journal 313 (1996) 445-449
4. Battaglia M.A., Zagami P., and Uccelli M.M. A cost evaluation of multiple sclerosis. Journal of Neurovirology 6 Suppl 2 (2000) S191-S193
5. Bamford J.M., Sandercock P.A., Warlow C.P., and Slattery J. Inter-observer agreement for the assessment of handicap in stroke patients. Stroke 20 (1989) 828
6. Burgess M. Multiple sclerosis theory and practice for nurses (2002), Whurr, London
7. Bury M. Chronic illness as biographical disruption. Sociology of Health and Illness 4 (1982) 167-182
8. Bury M. The sociology of chronic illness: A review of research and prospects. Sociology of Health and Illness 13 (1991) 451-468
9. CACI Ltd. (2003). Pay Check Data, 〈http://www.worcestershire.gov.uk/home/cs-research-econom-data#income〉.
10. Canadian Burden of Illness Study Group. Burden of illness of multiple sclerosis: Part 1: Cost of illness. Canadian Journal of Neurological Science 25 (1998) 23-30
11. Catanzaro M., and Weinert C. Economic status of families living with multiple sclerosis. International Journal of Rehabilitation Research 15 3 (1992) 209-218
12. Cervera-Deval J., Morant-Guillen M.P., Fenollosa-Vasquez P., Serra-Escorihuela M., Vilchez-Padilla J., and Burguera J. Social handicaps of multiple sclerosis and their relation to neurological alterations. Archives of Physical Medicine and Rehabilitation 75 (1994) 1223-1227
13. Charmaz K. Loss of self: A fundamental form of suffering in the chronically ill. Sociology of Health and Illness 5 (1983) 168-195
14. Charmaz K. Good days, bad days: The self in chronic illness and time (1991), Rutgers University Press, New Brunswick
15. Chilcott J., McCabe C., Tappenden P., O'Hagan A., Cooper N.J., Abrams K., et al. Modelling the cost effectiveness of interferon beta and glatiramer acetate in the management of multiple sclerosis. British Medical Journal 326 (2003) 522
16. Conrad P. The experience of illness: Recent and new directions. Research in the Sociology of Health Care 6 (1987) 1-31
17. Corbin J., and Strauss A.L. Accompaniments of chronic illness: Changes in body, self and biological time. Res Sociol Health Care 6 (1987) 249-281
18. de Andres C., and Guillem A. Approach to quality of life changes in patients with multiple sclerosis. [Spanish]. Revista de Neurologia 30 12 (2000) 1229-1234
19. Dehejia R.H., and Wahba S. Causal effects in nonexperimental studies: Reevaluating the evaluation of training programs. Journal of the American Statistical Association 94 (1999) 1053-1062
20. Dehejia R.H., and Wahba S. Propensity score-matching methods for nonexperimental causal studies. The Review of Economics and Statistics 84 1 (2002) 151-161
21. Dyck I. Hidden geographies: The changing lifeworlds of women with multiple sclerosis. Social Science & Medicine 40 3 (1995) 307-320
22. Hakim E.A., Bakheit A.M., Bryant T.N., Roberts M.W., McIntosh-Michaelis S.A., Spackman A.J., et al. The social impact of multiple sclerosis: A study of 305 patients and their relatives. Disability and Rehabilitation 22 6 (2000) 288-293
23. Hammond S.R., McLeod J.G., Macaskill P., and English D.R. Multiple sclerosis in Australia: Socio-economic factors. Journal of Neurology Neurosurgery and Psychiatry 61 (1996) 311-313
24. Herzlich C., and Pierret J. Illness and self in society (1987), The John Hopkins University Press, Baltimore
25. Jackson G., and Kelsey A. The needs of neurology patients after discharge. Professional Nurse 14 7 (1999) 467-470
26. Jenkins S.P., and Rigg J.A. Disability and disadvantage: Selection, onset and duration effects. Journal of Social Policy 33 3 (2004) 479-501
27. Jongbloed L. Factors influencing employment status of women with multiple sclerosis. Canadian Journal of Rehabilitation 9 (1996) 213-222
28. Kobelt G. Health economic issues in MS. International MS Journal 13 (2006) 17-26
29. Kobelt G., Lindgren P., Parkin D., Francis D., Johnson M., Bates D., et al. Costs and quality of life in multiple sclerosis: A cross sectional observational study in the UK (2000), Stockholm School of Economics, Stockholm
30. Kobelt G., Jonsson L., Henriksson F., Fredrikson S., and Jonsson B. Cost-utility analysis of interferon beta-1b in secondary progressive multiple sclerosis. International Journal of Technological Assessment of Health Care 16 (2000) 768-780
31. Kornblith A.B., La Rocca N.G., and Baum H.M. Employment in individuals with multiple sclerosis. International Journal of Rehabilitation Research 9 2 (1986) 155-165
32. Mathieson C.M., and Stam H.J. Renegotiating identity: Cancer narrative. Sociology of Health and Illness 17 (1995) 283-306
33. McDonnell G.V., and Hawkins S.A. An assessment of the spectrum of disability and handicap in multiple sclerosis: A population-based study. Multiple Sclerosis 7 2 (2001) 111-117
34. Miller C.M. The lived experience of relapsing multiple sclerosis: A phenomenological study. Journal of Neuroscience Nursing 29 5 (1997) 294-304
35. Mohr D.C., Dick L.P., Russo D., Pin J., Boudewyn A.C., Likosky W., et al. The psychosocial impact of multiple sclerosis: Exploring the patient's perspective. Health Psychology 18 4 (1999) 376-382
36. Monks J. Life stories and sickness experience: A performance perspective. Culture, Medicine and Psychiatry 19 4 (1995) 453-478
37. Patten S.B., and Metz L.M. Depression in multiple sclerosis. Psychotherapy & Psychosomatics 66 6 (1997) 286-292
38. Phillips C.J. The cost of multiple sclerosis and the cost effectiveness of disease-modifying agents in its treatment. CNS Drugs 18 9 (2004) 561-574
39. Pollock K. Attitude of mind as a means of resisting illness. In: Radley A. (Ed). Worlds of illness (1993), Routledge, London 49-70
40. Richards R.G., Sampson F.C., Beard S.M., and Tappenden P.A. A review of the natural history and epidemiology of multiple sclerosis: Implications for resource allocation and health economic models. Health Technology Assessment 6 10 (2002)
41. Robertson N., Deans J., Fraser M., and Compston D.A. Multiple sclerosis in south Cambridgeshire: Incidence and prevalence based on a district register. Journal of Epidemiology and Community Health 50 3 (1996) 274-279
42. Robinson I. Multiple sclerosis (1988), Routledge, London
43. Robinson I., Hunter M., and Neilson S. A dispatch from the frontline: The views of people with multiple sclerosis about their needs. A report for the Multiple Sclerosis Society (1996), MS Research Unit, Brunel
44. Robinson I., Neilson S., and Clifford Rose F. Multiple sclerosis at your fingertips (2000), Class Publishing, London
45. In: Rose D., and Pevalin D.J. (Eds). A researcher's guide to the national statistics socio-economic classification (2003), Sage, London
46. Rosenbaum P.R., and Rubin D.B. The central role of the propensity score in observational studies for causal effects. Biometrika 70 (1983) 41-55
47. Rotstein Z., Barak Y., Noy S., and Achiron A. Quality of life in multiple sclerosis: Development and validation of the 'RAYS' scale and comparison with the SF-36. International Journal for Quality in Health Care 12 6 (2000) 511-517
48. Rubin D.B. Matching to remove bias in observational studies. Biometrics 29 (1973) 159-183
49. Rubin D.B., and Thomas N. Combining propensity score matching with additional adjustments for prognostic covariates. Journal of the American Statistical Association 95 (2000) 573-585
50. Rudick R.A., Miller D., Clough J.D., Gragg L.A., and Farmer R.G. Quality of life in multiple sclerosis: Comparison with inflammatory bowel, disease and rheumatoid arthritis. Archives of Neurology 49 12 (1992) 1237-1242
51. Somerset M., Campbell R., Sharp D.J., and Peters T.J. What do people with MS want and expect from health-care services?. Health Expectations 4 1 (2001) 29-37
52. Strauss A.L., Corbin J., Fagerhaught S., Glaser B.G., Maines D., Suczek B., et al. Chronic health and the quality of life. 2nd ed. (1984), C.V. Mosby Co, St. Louis
53. Ware N. Sociomatics and illness course in chronic fatigue syndrome. Psychosomatic Medicine 60 (1998) 394-401
54. Wiener C. The burden of rheumatoid arthritis: Tolerating the uncertainty. Social Science & Medicine 9 3 (1975) 97-104
55. Williams G. The genesis of chronic illness: Narrative reconstruction. Sociology of Health and Illness 6 2 (1984) 175-200
56. Williams S.J. Chronic respiratory illness (1993), Routledge, London