Communication of information to patients with inflammatory bowel disease: A European Collaborative Study in a multinational prospective inception cohort

Journal of Crohn's and Colitis

Volumn 2, Issue 3, 2008, Pages 226-232

  Politi, P ^a   Bodini, P ^a   Mortilla, M G ^b   Beltrami, M ^b   Fornaciari, G ^b   Formisano, D ^b   Munkholm, P ^c   Riis, L ^c   Wolters, F ^d   Hoie, O ^e   Katsanos, K ^f   O'Morain, C ^g   Shuhaibar, M ^g   Lalli, P ^h   De Falco, M ^h   Pereira, S ⁱ   Freitas, J ^j   Odes, S ^k   Stockbrugger R W ^d  

^a CREMONA HOSPITAL   (Italy)

^b Arcispedale S Maria Nuova ^*  (Italy)

^c GENTOFTE UNIVERSITY HOSPITAL   (Denmark)

^d MAASTRICHT UNIVERSITY MEDICAL CENTER   (Netherlands)

^e Division of Medicine   (Norway)

^f UNIVERSITY OF IOANNINA   (Greece)

^g ADELAIDE AND MEATH HOSPITAL   (Ireland)

^h UNIVERSITY OF BOLOGNA   (Italy)

ⁱ University Hospital of Vigo   (Spain)

^j HOSPITAL GARCIA DE ORTA   (Portugal)

^k BEN GURION UNIVERSITY OF THE NEGEV   (Israel)

more..

Author keywords

Communication; Electronic media; IBD; Information; Internet

Indexed keywords

ACADEMIC ACHIEVEMENT; ADULT; ARTICLE; COHORT ANALYSIS; CROHN DISEASE; DEMOGRAPHY; ENTERITIS; EUROPE; FEMALE; FOLLOW UP; GENETICS; HUMAN; INFORMATION PROCESSING; ISRAEL; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; MEDICAL RESEARCH; PATIENT ATTITUDE; PATIENT INFORMATION; PATIENT SATISFACTION; PRIORITY JOURNAL; PROSPECTIVE STUDY; STRUCTURED QUESTIONNAIRE; ULCERATIVE COLITIS;

EID: 48949105137     PISSN: 18739946     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.crohns.2008.01.007     Document Type: Article

References (22)

1. Friedman S., and Blumberg R.S. Inflammatory bowel diseases. In: Kasper K., Braunwald E.B., Fauci A.S., et al. (Eds). Harrison's Principles of Internal Medicine 16th ed (2005), McGraw-Hill, New York 1776-1789
2. Teutsch C. Patient-doctor communication. Med Clin N Am 87 (2003) 1115-1145
3. Casati J., Toner B.B., de Rooy E.C., Drossman D.A., and Maunder R.G. Concerns of patients with inflammatory bowel disease. A review of emerging themes. Dig Dis Sci 45 (2000) 26-31
4. Casati J., and Toner B.B. Psychosocial aspects of inflammatory bowel disease. Biomed Pharmacother 54 (2000) 388-393
5. Wagner T.H., Baker L.C., Bundorf M.K., and Singer S. Use of internet for health information by the chronically ill. Prev Chronic Dis 1 (2004) 1-12
6. Shivananda S., Lennard-Jones J., Logan R., et al. Incidence of inflammatory bowel disease across Europe: is there a difference between north and south? Results of the European Collaborative Study on Inflammatory Bowel Disease (EC-IBD). Gut 39 (1996) 690-697
7. Lennard-Jones J.E. Classification of inflammatory bowel disease. Scand J Gastroenterol 170 Suppl (1989) 2-6
8. Odes S., Vardi, Friger, et al. European Collaborative Study on Inflammatory Bowel Disease. Cost-analysis and cost-determinants in a European inflammatory bowel disease inception cohort with 10 years follow-up evaluation. Gastroenterology 131 (2006) 719-728
9. Wolters F.L., van Zeijl G., Sijbrandij J., et al. Internet-based data inclusion in a European epidemiological follow-up study of IBD patients: a description of methods used. World J Gastroenterol 11 (2005) 7152-7158
10. Van der Eijk I., Verheggen F.W., Russel M.G., et al. Best practice of health care in inflammatory bowel disease: a European survey. Eur J Int Med 15 (2004) 113-120
11. Wolters F.L., Russel M.G., Sijbrandij J., et al. Phenotype at diagnosis predicts surgical and non-surgical recurrence rates in Crohn's disease. Gut 55 (2006) 1124-1130
12. Höie O., Wolters F., Riis L., et al. Ulcerative colitis: patient characteristics may predict 10-year disease recurrence in a European-wide population-based cohort. Am J Gastroenterol 102 (2007) 1-10
13. Katsanos K.H., Vermeire, Christodoulou D.K., et al. Dysplasia and cancer in inflammatory bowel disease 10 years after diagnosis: Results of a population-based European collaborative follow-up study. Digestion 75 (2007) 113-121
14. Martin A., Leone L., Castagliuolo I., Di Mario F., and Naccarato R. What do patients want to know about their inflammatory bowel disease?. Ital J Gastroenterol 24 (1992) 477-480
15. Van der Eijk I., Vlachonikolis I.G., Munkholm P., et al. The role of quality of care in health-related quality of life in patients with IBD. Inflamm Bowel Dis 10 (2004) 392-398
16. Ferguson T., and Frydman G. The first generation of e-patients. BMJ 328 (2004) 1148-1149
17. Spadaro R., and European Opinion Research Group. Eurobarometer 58.0. European Union citizens and sources of information about health (2003), European Union, Belgium. http://europa.eu.int/comm./health/ph_information/indicators/pub_indic_dat_en.htm Brussels, March:1-16. http://europa.eu.int/comm./health/ph_information/indicators/pub_indic_dat_en.htm
18. O'Connor J.B., and Johanson J.F. Use of the web for medical information by a gastroenterology clinic population. JAMA 284 (2000) 1962-1964
19. Bernard A., Langille M., Hughes S., Rose C., Leddin D., and Veldhuyzen van Zanten S. A systemic review of patient inflammatory bowel disease information resources on the world wide web. Am J Gastroenterol 102 (2007) 1-8
20. Borgaonkar M.R., Townson G., Donnelly M., and Irvine E.J. Providing disease-related information worsens health-related quality of life in inflammatory bowel disease. Inflamm Bowel Dis 8 (2002) 264-269
21. Winkelman W.J., Leonard K.J., and Rossos P.G. Patient-perceived usefulness of on line electronic medical records: employing grounded theory in the development of information and communication technologies for use by patients living with chronic illness. J Am Med Inform Assoc 12 (2005) 306-314
22. Eaden J.A., Abrams K., and Mayberry J.F. The Crohn's and colitis knowledge score: a test for measuring patient knowledge in inflammatory bowel disease. Am J Gastroenterol 94 (1999) 3560-3566