A systematic review of patient inflammatory bowel disease information resources on the world wide web

American Journal of Gastroenterology

Volumn 102, Issue 9, 2007, Pages 2070-2077

  Bernard, André ^a   Langille, Morgan ^a   Hughes, Stephanie ^a   Rose, Caren ^a   Leddin, Desmond ^a   Veldhuyzen Van Zanten, Sander ^a,b  

^a DALHOUSIE UNIVERSITY   (Canada)

^b Zeidler Ledcor Centre   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CROHN DISEASE; ENTERITIS; GLOBAL QUALITY SCORE; INFORMATION TECHNOLOGY; INTERNET; PRIORITY JOURNAL; QUALITY CONTROL; QUALITY EVALUATION INSTRUMENT; SCORING SYSTEM; SIX POINT INTEGRITY SCORE; SYSTEMATIC REVIEW; TWO READING GRADE LEVEL SCORE; ULCERATIVE COLITIS;

HUMANS; INFLAMMATORY BOWEL DISEASES; INFORMATION STORAGE AND RETRIEVAL; INTERNET;

EID: 34548131593     PISSN: 00029270     EISSN: 15720241     Source Type: Journal    
DOI: 10.1111/j.1572-0241.2007.01325.x     Document Type: Article

References (31)

1. Moser G, Tillinger W, Sachs G, et al. Disease-related worries and concerns: A study on out-patients with inflammatory bowel disease. Eur J Gastroenterol Hepatol 1995 7 : 853 8.
2. Martin A, Leone L, Castagliuolo I, et al. What do patients want to know about their inflammatory bowel disease? Ital J Gastroenterol 1992 24 : 477 80.
3. Rees JE, Mayberry JF, Calcraft B. What the patient wants to know about Crohn's disease. J Clin Gastroenterol 1983 5 : 221 2.
4. Scholmerich J, Sedlak P, Hoppe-Seyler P, et al. The information needs and fears of patients with inflammatory bowel disease. Hepatogastroenterology 1987 34 : 182 5.
5. Probert CS, Mayberry JF. Inflammatory bowel disease: Patients' expectations in the 1990s. J R Soc Med 1991 84 : 131 2.
6. Buck D, Jacoby A, Baker GA, et al. Patients' experiences of and satisfaction with care for their epilepsy. Epilepsia 1996 37 : 841 9.
7. O'Connor JB, Johanson JF. Use of the Web for medical information by a gastroenterology clinic population. JAMA 2000 284 : 1962 4.
8. Basch EM, Thaler HT, Shi W, et al. Use of information resources by patients with cancer and their companions. Cancer 2004 100 : 2476 83.
9. Diaz JA, Griffith RA, Ng JJ, et al. Patients' use of the Internet for medical information. J Gen Intern Med 2002 17 : 180 5.
10. Crocco AG, Villasis-Keever M, Jadad AR. Analysis of cases of harm associated with use of health information on the Internet. JAMA 2002 287 : 2869 71.
11. Jorgensen KJ, Gotzsche PC. Presentation on websites of possible benefits and harms from screening for breast cancer: Cross-sectional study. BMJ 2004 328 : 148.
12. McClung HJ, Murray RD, Heitlinger LA. The Internet as a source for current patient information. Pediatrics 1998 101 : E2.
13. Crocco AG, Villasis-Keever M, Jadad AA. Two wrongs don't make a right: Harm aggravated by inaccurate information on the Internet. Pediatrics 2002 109 : 522 3.
14. Eysenbach G, Kohler C. How do consumers search for and appraise health information on the World Wide Web? Qualitative study using focus groups, usability tests, and in-depth interviews. BMJ 2002 324 : 573 7.
15. Sigouin C, Jadad AR. Awareness of sources of peer-reviewed research evidence on the Internet. JAMA 2002 287 : 2867 9.
16. Silverstein C, Marais H, Henzinger M, et al. Analysis of a very large web search engine query log. ACM SIGIR Forum 1999 33 : 6 12.
17. Boyer C, Selby M, Appel RD. The Health On the Net Code of Conduct for medical and health web sites. Medinfo 1998 9 : 1163 6.
18. Health Summit Working Group HITI, Mitretek Systems. Criteria for assessing the quality of health information on the Internet - policy paper. Available at : http://hitiweb.mitretek.org/docs/policy.html. Accessed December 10, 2006.
19. Holman H, Lorig K. Patients as partners in managing chronic disease. Partnership is a prerequisite for effective and efficient health care. BMJ 2000 320 : 526 7.
20. Tang PC, Newcomb C. Informing patients: A guide for providing patient health information. J Am Med Inform Assoc 1998 5 : 563 70.
21. Eaden JA, Abrams K, Mayberry JF. The Crohn's and Colitis Knowledge Score: A test for measuring patient knowledge in inflammatory bowel disease. Am J Gastroenterol 1999 94 : 3560 6.
22. Ziebland S, Chapple A, Dumelow C, et al. How the Internet affects patients' experience of cancer: A qualitative study. BMJ 2004 328 : 564.
23. Impicciatore P, Pandolfini C, Casella N, et al. Reliability of health information for the public on the World Wide Web: Systematic survey of advice on managing fever in children at home. BMJ 1997 314 : 1875 9.
24. Sullivan D. Nielsen NetRatings search engine ratings. Available at : http://www.searchenginewatch.com/reports/netratings.html. Accessed December 10, 2006.
25. Steinbrook R. Searching for the right search - reaching the medical literature. N Engl J Med 2006 354 : 47.
26. Giustini D. How Google is changing medicine. BMJ 2005 331 : 1487 8.
27. Griffiths KM, Christensen H. Website quality indicators for consumers. J Med Internet Res 2005 7 : e55. Available at : http://www.jmir.org/2005/5/e55/. Accessed December 10, 2006.
28. Mitchell A, Guyatt G, Singer J, et al. Quality of life in patients with inflammatory bowel disease. J Clin Gastroenterol 1988 10 : 306 10.
29. Black PC, Penson DF. Prostate cancer on the Internet-information or misinformation? J Urol 2006 175 : 1836 42 discussion 1842.
30. Charnock D, Shepperd S, Needham G, et al. DISCERN: An instrument for judging the quality of written consumer health information on treatment choices. J Epidemiol Community Health 1999 53 : 105 11.
31. Safeer RS, Keenan J. Health literacy: The gap between physicians and patients. Am Fam Physician 2005 72 : 463 8.