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Volumn 9, Issue 3, 2008, Pages 220-232

Systematic review of health-related quality of life measures for children with respiratory conditions

Author keywords

Children; Parents; Patient reported outcomes (PROs); Pulmonary conditions; Quality of life

Indexed keywords

AGE; ASTHMA; CHILD; CHILD DEVELOPMENT; COGNITION; FOOD AND DRUG ADMINISTRATION; HUMAN; OUTCOME ASSESSMENT; PATIENT CARE; PRACTICE GUIDELINE; PRIORITY JOURNAL; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; RESPIRATORY TRACT DISEASE; REVIEW; SCORING SYSTEM; SLEEP DISORDERED BREATHING; SOCIAL PSYCHOLOGY; VOCAL CORD DISORDER;

EID: 48749087584     PISSN: 15260542     EISSN: 15260550     Source Type: Journal    
DOI: 10.1016/j.prrv.2008.05.003     Document Type: Review
Times cited : (46)

References (62)
  • 2
    • 0345135351 scopus 로고    scopus 로고
    • Health-related quality of life in pediatric populations
    • Roberts M. (Ed), Guilford Publications, New York
    • Quittner A.L., Davis M.A., and Modi A.C. Health-related quality of life in pediatric populations. In: Roberts M. (Ed). Handbook of Pediatric Psychology (2003), Guilford Publications, New York 696-709
    • (2003) Handbook of Pediatric Psychology , pp. 696-709
    • Quittner, A.L.1    Davis, M.A.2    Modi, A.C.3
  • 3
    • 48749129165 scopus 로고    scopus 로고
    • US Food and Drug Administration. Guidance for industry patient-reported outcome measures: Use in medial product developmental to support labeling claims [internet]. Draft guidance; 2006. Available at: http://www.fds.gov/cder/guidance/5460dft.pdf. Date accessed: 1 December 2007
    • US Food and Drug Administration. Guidance for industry patient-reported outcome measures: Use in medial product developmental to support labeling claims [internet]. Draft guidance; 2006. Available at: http://www.fds.gov/cder/guidance/5460dft.pdf. Date accessed: 1 December 2007
  • 4
    • 0035077887 scopus 로고    scopus 로고
    • Quality-of-life measures in chronic diseases of childhood
    • Eiser C., and Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technol Assess 5 (2001) 1-125
    • (2001) Health Technol Assess , vol.5 , pp. 1-125
    • Eiser, C.1    Morse, R.2
  • 5
    • 34548255391 scopus 로고    scopus 로고
    • Patient-reported outcomes in cystic fibrosis
    • Goss C.H., and Quittner A.L. Patient-reported outcomes in cystic fibrosis. Proc Am Thorac Soc 4 (2007) 378-386
    • (2007) Proc Am Thorac Soc , vol.4 , pp. 378-386
    • Goss, C.H.1    Quittner, A.L.2
  • 6
    • 0031372472 scopus 로고    scopus 로고
    • Functional status and well-being of children representing three cultural groups: Initial self-reports using the CHQ-CF87
    • Landgraf J.M., and Abetz L.N. Functional status and well-being of children representing three cultural groups: Initial self-reports using the CHQ-CF87. Psychol Health 12 (1997) 839-854
    • (1997) Psychol Health , vol.12 , pp. 839-854
    • Landgraf, J.M.1    Abetz, L.N.2
  • 8
    • 0035432179 scopus 로고    scopus 로고
    • PedsQL™: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 generic core scales in healthy and patient populations
    • Varni J.W., Seid M., and Kurtin P.S. PedsQL™: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 generic core scales in healthy and patient populations. Med Care 39 (2001) 800-812
    • (2001) Med Care , vol.39 , pp. 800-812
    • Varni, J.W.1    Seid, M.2    Kurtin, P.S.3
  • 9
    • 33646030367 scopus 로고    scopus 로고
    • Developing and evaluating questionnaires
    • Fayers P., and Hays R. (Eds), Oxford University Press, Oxford
    • Hays R. Developing and evaluating questionnaires. In: Fayers P., and Hays R. (Eds). Assessing Quality of Life in Clinical Trials (2005), Oxford University Press, Oxford 3-8
    • (2005) Assessing Quality of Life in Clinical Trials , pp. 3-8
    • Hays, R.1
  • 11
    • 0037132574 scopus 로고    scopus 로고
    • Health-related quality of life assessments and patient-physician communication: a randomised controlled trial
    • Detmar S.B., Muller M.J., Schornagel J.H., Wever L.D., and Aaronson N.K. Health-related quality of life assessments and patient-physician communication: a randomised controlled trial. JAMA 288 (2002) 3027-3034
    • (2002) JAMA , vol.288 , pp. 3027-3034
    • Detmar, S.B.1    Muller, M.J.2    Schornagel, J.H.3    Wever, L.D.4    Aaronson, N.K.5
  • 12
    • 33747189558 scopus 로고    scopus 로고
    • Preference-based measures: utility and quality-adjusted life years
    • Fayers P., and Hays R. (Eds), Oxford University Press, Oxford
    • Feeny D. Preference-based measures: utility and quality-adjusted life years. In: Fayers P., and Hays R. (Eds). Assessing Quality of Life in Clinical Trials (2005), Oxford University Press, Oxford 405-430
    • (2005) Assessing Quality of Life in Clinical Trials , pp. 405-430
    • Feeny, D.1
  • 13
    • 0036195669 scopus 로고    scopus 로고
    • Methods to explain the clinic significance of health status measures
    • Guyatt G.H., Osoba D., Wu A.W., et al. Methods to explain the clinic significance of health status measures. Mayo Clin Proc 77 (2002) 371-383
    • (2002) Mayo Clin Proc , vol.77 , pp. 371-383
    • Guyatt, G.H.1    Osoba, D.2    Wu, A.W.3
  • 14
    • 17744385303 scopus 로고    scopus 로고
    • Estimating clinically significant difference in quality of life outcomes
    • Wyrwich K.W., Bullinger M., Aaronson N., et al. Estimating clinically significant difference in quality of life outcomes. Qual Life Res 14 (2005) 285-295
    • (2005) Qual Life Res , vol.14 , pp. 285-295
    • Wyrwich, K.W.1    Bullinger, M.2    Aaronson, N.3
  • 16
    • 0019133494 scopus 로고
    • Development of children' concepts of illness
    • Bibace R., and Walsh M.E. Development of children' concepts of illness. Pediatrics 66 (1980) 912-917
    • (1980) Pediatrics , vol.66 , pp. 912-917
    • Bibace, R.1    Walsh, M.E.2
  • 17
    • 0022461168 scopus 로고
    • Children's concepts of physical illness: A review and critique of the cognitive developmental literature
    • Burbach D.J., and Peterson L. Children's concepts of physical illness: A review and critique of the cognitive developmental literature. Health Psychol 5 (1986) 307-325
    • (1986) Health Psychol , vol.5 , pp. 307-325
    • Burbach, D.J.1    Peterson, L.2
  • 18
    • 0001417784 scopus 로고
    • Developmental issues in children's self-reports
    • Harter S., and La Greca A. (Eds), Allyn & Boston, Boston, MA
    • Stone W.L., and Lemanek K.L. Developmental issues in children's self-reports. In: Harter S., and La Greca A. (Eds). Through the Eyes of a Child (1990), Allyn & Boston, Boston, MA
    • (1990) Through the Eyes of a Child
    • Stone, W.L.1    Lemanek, K.L.2
  • 19
    • 0034920942 scopus 로고    scopus 로고
    • Elementary school-aged children's reports of their health: A cognitive interviewing study
    • Rebok G., Riley A., Forrest C., et al. Elementary school-aged children's reports of their health: A cognitive interviewing study. Qual Life Res 10 (2001) 59-70
    • (2001) Qual Life Res , vol.10 , pp. 59-70
    • Rebok, G.1    Riley, A.2    Forrest, C.3
  • 20
    • 0001585069 scopus 로고    scopus 로고
    • Improving assessment in child clinical and pediatric psychology: Establishing links to process and functional outcomes
    • Drotar D. (Ed), Plenum Publishing Corporation, New York
    • Quittner A.L. Improving assessment in child clinical and pediatric psychology: Establishing links to process and functional outcomes. In: Drotar D. (Ed). Handbook of Research Methods in Pediatric and Child Clinical Psychology (2000), Plenum Publishing Corporation, New York 119-143
    • (2000) Handbook of Research Methods in Pediatric and Child Clinical Psychology , pp. 119-143
    • Quittner, A.L.1
  • 24
    • 0033073557 scopus 로고    scopus 로고
    • The PedsQL: Measurement model for the pediatric quality of life inventory
    • Varni J.W., Seid M., and Rode C.A. The PedsQL: Measurement model for the pediatric quality of life inventory. Med Care 37 (1999) 126-139
    • (1999) Med Care , vol.37 , pp. 126-139
    • Varni, J.W.1    Seid, M.2    Rode, C.A.3
  • 25
    • 0030714630 scopus 로고    scopus 로고
    • Quality of life in adults and children with asthma and rhinitis
    • Juniper E.F. Quality of life in adults and children with asthma and rhinitis. Allergy 52 (1997) 971-977
    • (1997) Allergy , vol.52 , pp. 971-977
    • Juniper, E.F.1
  • 26
    • 84963178488 scopus 로고
    • A re-examination of children's conceptions of contagion
    • Siegal M., Patty J., and Eiser C. A re-examination of children's conceptions of contagion. Psychol Health 40 Suppl 1 (1990) 159-165
    • (1990) Psychol Health , vol.40 , Issue.SUPPL. 1 , pp. 159-165
    • Siegal, M.1    Patty, J.2    Eiser, C.3
  • 27
    • 34547676686 scopus 로고    scopus 로고
    • Computerised paediatric asthma quality of life questionnaires in routine care
    • Mussaffi H., Omer R., Prais D., et al. Computerised paediatric asthma quality of life questionnaires in routine care. Arch Dis Child 92 (2007) 678-682
    • (2007) Arch Dis Child , vol.92 , pp. 678-682
    • Mussaffi, H.1    Omer, R.2    Prais, D.3
  • 28
    • 0031650074 scopus 로고    scopus 로고
    • Development of an instrument to assess stress levels and quality of life in children with asthma
    • Mishoe S.C., Baker R.R., Poole S., Harrell L.M., Arant C.B., and Rupp N.T. Development of an instrument to assess stress levels and quality of life in children with asthma. J Asthma 35 (1998) 553-563
    • (1998) J Asthma , vol.35 , pp. 553-563
    • Mishoe, S.C.1    Baker, R.R.2    Poole, S.3    Harrell, L.M.4    Arant, C.B.5    Rupp, N.T.6
  • 29
    • 27144479427 scopus 로고    scopus 로고
    • Development and Validation of the Cystic Fibrosis Questionnaire (CFQ) in the United States: A health-related quality of life measure for cystic fibrosis
    • Quittner A.L., Buu A., Messer M.A., Modi A.C., and Watrous M. Development and Validation of the Cystic Fibrosis Questionnaire (CFQ) in the United States: A health-related quality of life measure for cystic fibrosis. Chest 128 (2005) 2347-2354
    • (2005) Chest , vol.128 , pp. 2347-2354
    • Quittner, A.L.1    Buu, A.2    Messer, M.A.3    Modi, A.C.4    Watrous, M.5
  • 31
    • 0242565793 scopus 로고    scopus 로고
    • Validation of a disease-specific measure of health-related quality of life for children with cystic fibrosis
    • Modi A.C., and Quittner A.L. Validation of a disease-specific measure of health-related quality of life for children with cystic fibrosis. J Pediatr Psychol 28 (2003) 535-546
    • (2003) J Pediatr Psychol , vol.28 , pp. 535-546
    • Modi, A.C.1    Quittner, A.L.2
  • 35
    • 0034955522 scopus 로고    scopus 로고
    • Development and validation of the Adolescent Asthma Quality of Life Questionnaire (AAQOL)
    • Rutishauser C., Sawyer S.M., Bond L., Coffey C., and Bowes G. Development and validation of the Adolescent Asthma Quality of Life Questionnaire (AAQOL). Eur Respir J 17 (2001) 52-58
    • (2001) Eur Respir J , vol.17 , pp. 52-58
    • Rutishauser, C.1    Sawyer, S.M.2    Bond, L.3    Coffey, C.4    Bowes, G.5
  • 36
    • 0027428569 scopus 로고
    • Development of child-centered disease-specific questionnaires for living with asthma
    • Christie M.J., French D., Sowden A., and West A. Development of child-centered disease-specific questionnaires for living with asthma. Psychosom Med 55 (1993) 541-548
    • (1993) Psychosom Med , vol.55 , pp. 541-548
    • Christie, M.J.1    French, D.2    Sowden, A.3    West, A.4
  • 37
    • 0028038159 scopus 로고
    • The reproducibility of the Childhood Asthma Questionnaires: Measures of quality of life for children with asthma aged 4-16 years
    • French D.J., Christie M.J., and Sowden A.J. The reproducibility of the Childhood Asthma Questionnaires: Measures of quality of life for children with asthma aged 4-16 years. Qual Life Res 3 (1994) 215-224
    • (1994) Qual Life Res , vol.3 , pp. 215-224
    • French, D.J.1    Christie, M.J.2    Sowden, A.J.3
  • 38
    • 0033472824 scopus 로고    scopus 로고
    • Reliability and validity of the children's health survey for asthma
    • Asmussen L., Olsen L.M., Grant E.N., Fagan J., and Weiss K.B. Reliability and validity of the children's health survey for asthma. Pediatrics 104 (1999) e71
    • (1999) Pediatrics , vol.104
    • Asmussen, L.1    Olsen, L.M.2    Grant, E.N.3    Fagan, J.4    Weiss, K.B.5
  • 40
    • 33750873572 scopus 로고    scopus 로고
    • Testing a questionnaire to measure asthma-related quality of life among children
    • Chiang L., Tzeng L., Fu L., and Huang J. Testing a questionnaire to measure asthma-related quality of life among children. J Nurs Scholarsh 38 (2006) 383-386
    • (2006) J Nurs Scholarsh , vol.38 , pp. 383-386
    • Chiang, L.1    Tzeng, L.2    Fu, L.3    Huang, J.4
  • 41
    • 33646848937 scopus 로고    scopus 로고
    • Psychometric properties of the TACQOL-asthma, a disease-specific measure of health related quality of life for children with asthma and their parents
    • Flapper B.C.T., Koopman H.M., Napel C., and van der Schans C.P. Psychometric properties of the TACQOL-asthma, a disease-specific measure of health related quality of life for children with asthma and their parents. Chron Respir Dis 3 (2006) 65-72
    • (2006) Chron Respir Dis , vol.3 , pp. 65-72
    • Flapper, B.C.T.1    Koopman, H.M.2    Napel, C.3    van der Schans, C.P.4
  • 42
    • 3543133546 scopus 로고    scopus 로고
    • The PedsQL in pediatric asthma: reliability and validity of the pediatric quality of life inventory generic core scales and asthma module
    • Varni J.W., Burwinkle T.M., Rapoff M.A., Kamps J.L., and Olson N. The PedsQL in pediatric asthma: reliability and validity of the pediatric quality of life inventory generic core scales and asthma module. Journal of Behavioral Medicine 27 (2004) 297-318
    • (2004) Journal of Behavioral Medicine , vol.27 , pp. 297-318
    • Varni, J.W.1    Burwinkle, T.M.2    Rapoff, M.A.3    Kamps, J.L.4    Olson, N.5
  • 44
    • 0034487037 scopus 로고    scopus 로고
    • Which source should we use to measure quality of life in children with asthma: The children themselves or their parents?
    • le Coq E.M., Boeke A.J., Bezemer P.D., Colland V.T., and van Eijk J.T. Which source should we use to measure quality of life in children with asthma: The children themselves or their parents?. Qual Life Res 9 (2000) 625-636
    • (2000) Qual Life Res , vol.9 , pp. 625-636
    • le Coq, E.M.1    Boeke, A.J.2    Bezemer, P.D.3    Colland, V.T.4    van Eijk, J.T.5
  • 45
    • 0033952491 scopus 로고    scopus 로고
    • Evaluation of a short form for measuring health-related quality of life among pediatric asthma patients
    • Bukstein D.A., McGrath M.M., Buchnew D.A., Landgraf J., and Goss T.F. Evaluation of a short form for measuring health-related quality of life among pediatric asthma patients. J Allergy Clin Immunol 105 (2000) 245-251
    • (2000) J Allergy Clin Immunol , vol.105 , pp. 245-251
    • Bukstein, D.A.1    McGrath, M.M.2    Buchnew, D.A.3    Landgraf, J.4    Goss, T.F.5
  • 46
    • 1642577218 scopus 로고    scopus 로고
    • Validity and responsiveness of a brief, asthma-specific quality of life instrument in children with acute asthma
    • Gorelick M.H., Brousseau D.C., and Stevens M.W. Validity and responsiveness of a brief, asthma-specific quality of life instrument in children with acute asthma. Ann Allergy Asthma Immunol 92 (2004) 47-51
    • (2004) Ann Allergy Asthma Immunol , vol.92 , pp. 47-51
    • Gorelick, M.H.1    Brousseau, D.C.2    Stevens, M.W.3
  • 47
    • 0033806096 scopus 로고    scopus 로고
    • Translation and linguistic validation of a disease-specific quality of life measure for cystic fibrosis
    • Quittner A.L., Sweeny S., Watrous M., et al. Translation and linguistic validation of a disease-specific quality of life measure for cystic fibrosis. J Pediatr Psychol 25 (2000) 401-414
    • (2000) J Pediatr Psychol , vol.25 , pp. 401-414
    • Quittner, A.L.1    Sweeny, S.2    Watrous, M.3
  • 48
    • 0033768032 scopus 로고    scopus 로고
    • Development of a disease specific health related quality of life measure for adults and adolescents with cystic fibrosis
    • Gee L., Abbot J., Conway S.P., Etherington C., and Webb A.K. Development of a disease specific health related quality of life measure for adults and adolescents with cystic fibrosis. Thorax 55 (2000) 946-954
    • (2000) Thorax , vol.55 , pp. 946-954
    • Gee, L.1    Abbot, J.2    Conway, S.P.3    Etherington, C.4    Webb, A.K.5
  • 49
    • 0037248949 scopus 로고    scopus 로고
    • Questions on life satisfaction for adolescents and adults with cystic fibrosis
    • Goldbeck L., Schmitz T.G., Henrich G., and Herschbach P. Questions on life satisfaction for adolescents and adults with cystic fibrosis. Chest 123 (2003) 42-48
    • (2003) Chest , vol.123 , pp. 42-48
    • Goldbeck, L.1    Schmitz, T.G.2    Henrich, G.3    Herschbach, P.4
  • 52
    • 30944466084 scopus 로고    scopus 로고
    • A controlled trial of long-term inhaled hypertonic saline in patients with cystic fibrosis
    • Elkins M.R., Robinson M., Rose B.R., et al. A controlled trial of long-term inhaled hypertonic saline in patients with cystic fibrosis. N Engl J Med 354 (2006) 229-240
    • (2006) N Engl J Med , vol.354 , pp. 229-240
    • Elkins, M.R.1    Robinson, M.2    Rose, B.R.3
  • 53
    • 0141816759 scopus 로고    scopus 로고
    • Multicenter, randomised, placebo controlled, double-blind trial of administration of azithromycin in patients with cystic fibrosis chronically infected with pseudomonas aeruginosa
    • Saiman L., Marshall B.C., Mayer-Hamblett N., et al. Multicenter, randomised, placebo controlled, double-blind trial of administration of azithromycin in patients with cystic fibrosis chronically infected with pseudomonas aeruginosa. JAMA 290 (2003) 1749-1756
    • (2003) JAMA , vol.290 , pp. 1749-1756
    • Saiman, L.1    Marshall, B.C.2    Mayer-Hamblett, N.3
  • 54
    • 48749100964 scopus 로고    scopus 로고
    • Inhaled antibiotics to treat symptoms of pulmonary exacerbation in patients with cystic fibrosis: Measuring patient perceptions of symptom improvement [abstract]
    • Quittner A.L., Wainwright C., Woo M.S., and Montgomery B. Inhaled antibiotics to treat symptoms of pulmonary exacerbation in patients with cystic fibrosis: Measuring patient perceptions of symptom improvement [abstract]. Pediatr Pulmonol 30 Suppl (2007) 279
    • (2007) Pediatr Pulmonol , vol.30 , Issue.SUPPL , pp. 279
    • Quittner, A.L.1    Wainwright, C.2    Woo, M.S.3    Montgomery, B.4
  • 55
    • 0036340337 scopus 로고    scopus 로고
    • Validation of a pediatric voice quality of life instrument: the pediatric voice outcome survey
    • Hartnick C.J. Validation of a pediatric voice quality of life instrument: the pediatric voice outcome survey. Arch Otolaryngol Head Neck Surg 128 (2002) 919-922
    • (2002) Arch Otolaryngol Head Neck Surg , vol.128 , pp. 919-922
    • Hartnick, C.J.1
  • 60
    • 0034223401 scopus 로고    scopus 로고
    • First place - resident clinical science award 1999. Quality of life for children with obstructive sleep apnea
    • Franco R.A., Rosenfeld R.M., and Rao M. First place - resident clinical science award 1999. Quality of life for children with obstructive sleep apnea. Otolaryngol Head Neck Surg 123 (2000) 9-16
    • (2000) Otolaryngol Head Neck Surg , vol.123 , pp. 9-16
    • Franco, R.A.1    Rosenfeld, R.M.2    Rao, M.3
  • 62


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