Sidelined by the guidelines: Reflections on the limitations of standard informed consent procedures for the conduct of ethical research

ACME

Volumn 7, Issue 2, 2008, Pages 239-259

  Butz, David ^a  

^a BROCK UNIVERSITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 48249098348     PISSN: None     EISSN: 14929732     Source Type: Journal    
DOI: None     Document Type: Conference Paper

References (48)

1. Askins, Kye. 2007. Codes, communications and other such conundrums! ACME: An International E-Journal for Critical Geographies 6(3), 350-359.
2. Berg, Lawrence D., Mike Evans, Duncan Fuller, and The Okanagan Urban Aboriginal Health Research Collective, Canada. 2007. Ethics, hegemonic whiteness, and the contested imaginations of 'Aboriginal community' in social science research in Canada. ACME: An International E-Journal for Critical Geographies 6(3), 395-409.
3. Blake, Megan K. 2007. Formality and friendship: Research ethics review and participatory action research. ACME: An International E-Journal for Critical Geographies 6(3), 411-421.
4. Bradley, Matt. 2007. Silenced for their own protection: How the IRB marginalises those it feigns to protect. ACME: An International E-Journal for Critical Geographies 6(3), 339-349.
5. Butler, Judith. 2004. Undoing Gender. London: Routledge.
6. Butz, David. 1995. Legitimating porter regulation in an indigenous mountain community in northern Pakistan. Environment and Planning D: Society and Space 13(4), 381-414.
7. Butz, David. 1996. Sustaining indigenous communities: Symbolic and instrumental dimensions of pastoral resource use in Shimshal, northern Pakistan. The Canadian Geographer 40(1), 36-53.
8. Butz, David. 1998. Orientalist representations of resource use in Shimshal, Pakistan, and their extra-discursive effects. In, I. Stellrecht (ed.), Karakorum-Hindukush-Himalaya: Dynamics of Change (Part 1). Köln: Rüdiger Köppe Verlag, pp. 357-386.
9. Butz, David. 2002. Resistance, representation and third space in Shimshal Village, Northern Pakistan. ACME: An International Journal of Critical Geographies 1, 15-34.
10. Butz, David. 2006. Tourism and portering labour relations in Shimshal, Gojal Hunza. In, H. Kreutzmann (ed.), Karakoram in Transition - The Hunza Valley. Oxford and Karachi: Oxford, pp. 394-403.
11. Cahill, Caitlin, Farhana Sultana and Rachel Pain. 2007. Participatory ethics: Politics, practices, institutions. ACME: An International E-Journal for Critical Geographies 6(3), 304-318.
12. Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada, Social Sciences and Humanities Research Council of Canada. 1998. Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans. Ottawa, Canada. (with 2000, 2002 and 2005 amendments). (http://pre.ethics.gc.ca/english/ policystatement/policystatement.cfm)
13. Craine, Vera, Caroline Davis, Travis Jacobs, and Angeline Letendre. 2004. Ethics in the context of research and indigenous peoples: A bibliography. Pimatisiwin: A Journal of Aboriginal and Indigenous Community Health 2(1), 91-120.
14. Christians, Clifford G. 2005. Ethics and politics in qualitative research. In, Norman K. Denzin, Yvonna S. Lincoln (eds.), The Handbook of Qualitative Research, 3rd Edition. Thousand Oaks: Sage, pp. 139-164.
15. Council for International Organisations of Medical Sciences. 1993. International Ethical Guidelines for Biomedical Research Involving Human Subjects. Geneva, Switzerland. (updated 2002). (http://www.cioms.ch/frame_guidelines_nov_2002.htm)
16. Davies, Gail and Claire Dwyer. 2007. Qualitative methods: Are you enchanted or are you alienated? Progress in Human Geography 31(2), 257-266.
17. Davies, M.R. 2003. Death to critique and dissent? The policies and practices of new managerialism and of 'evidence-based practice.' Gender and Education 15(1), 91-103.
18. Eide, Phyllis and David Kahn. 2008. Ethical issues in the qualitative researcher-participant relationship. Nursing Ethics 15(2), 199-207.
19. Evans, Mike. 2004. Ethics, anonymity, and authorship in community centred research - Or anonymity and the Island Cache. Pimatisiwin: A Journal of Aboriginal and Indigenous Community Health 2(1), 59-75.
20. Habermas, Jürgen. 1981. The Theory of Communicative Action: Reason and the Rationalisation of Society. Boston: Beacon Press.
21. Indigenous Peoples Council on Biocolonialism. No date. Indigenous Research Protection Act. (http://www.ipcb.org/publications/policy/ files/irpa.html)
22. Israel, Mark and Iain Hay. 2006. Research Ethics for Social Scientists: Between Ethical Conduct and Regulatory Compliance. London and Thousand Oaks: Sage.
23. Jackson, Peter. 1989. Maps of Meaning: An Introduction to Cultural Geography. London: Unwin Hyman.
24. Larkin, Philip, Bernadette Dierckx de Casterlé and Paul Schotsmans. 2008. A relational ethical dialogue with research ethics committees. Nursing Ethics 15(2), 234-242.
25. Lincoln, Yvonna S. 2005. Institutional review boards and methodological conservatism: The challenge to and from phenomenological paradigms. In, Norman K. Denzin, Yvonna S. Lincoln (eds.), The Handbook of Qualitative Research, 3rd Edition. Thousand Oaks: Sage, pp. 165-181.
26. Lincoln, Yvonna S. and Gaile S. Cannella. 2004. Dangerous discourses: Methdological conservatism and government regimes of truth. Qualitative Inquiry 10(1), 5-14.
27. Lincoln, Yvonna S. and E.G. Guba. 1985. Naturalistic Inquiry. Beverly Hills: Sage.
28. MacDonald, Kenneth and David Butz. 1998. Investigating portering relations as a locus for transcultural interaction in the Karakoram region of northern Pakistan. Mountain Research and Development 18(4), 333-343.
29. Martin, Deborah G. 2007. Bureaucratising ethics: Institutional review boards and participatory research. ACME: An International E-Journal for Critical Geographies 6(3), 319-328.
30. National Commission for the Protection of Human Subjects of Biomedical and Behavioural Research. 1979. The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research. Washington DC. (http://ohsr.od.nih.gov/guidelines/ belmont.html)
31. National Committee for Research Ethics in the Social Sciences and Humanities (Norway). 1994. Guidelines for Research Ethics in the Social Sciences, Law and the Humanities. Oslo, Norway. (updated 2001, 2006). (http://www.etikkom.no/English/NESH/Publications/NESHguide)
32. National Research Council. 2002. Scientific Research in Education. Committee on Scientific Principles for Education Research. R.J. Shavelson and L. Towne (eds.). Centre for Education, Division of Behavioural and Social Sciences and Education. Washington, DC: National Academy Press.
33. Patton, Michael. 1980. Qualitative Evaluation Methods. Beverly Hills: Sage.
34. Pile, Steve and Nigel Thrift (eds.) 1995. Mapping the Subject: Geographies of Cultural Transformation. London: Routledge.
35. Pratt, Mary Louise. 1992. Imperial Eyes: Travel Writing and Transculturation. London: Routledge.
36. Rose, Gillian. 1997. Situating knowledges: Positionality, reflexivity and other tactics. Progress in Human Geography 21(3), 305-20.
37. Routledge, Paul. 2002. Travelling East as Walter Kurtz: Identity, performance, and collaboration in Goa, India. Environment and Planning D: Society and Space 20, 477-498.
38. Ruttan, Lia. 2004. Exploring ethical principles in the context of research relationships. Pimatisiwin: A Journal of Aboriginal and Indigenous Community Health 2(1), 11-28.
39. Scott, James C. 1998. Seeing Like a State: How Certain Schemes to Improve the Human Condition have Failed. New Haven: Yale.
40. Sibley, David. 1995. Geographies of Exclusion: Society and Difference in the West. London: Routledge.
41. Slater, David. 1997. Spatialities of power and postmodern ethics - Rethinking geopolitical encounters. Environment and Planning D: Society and Space 15, 55-72.
42. Sultana, Farhana. 2007. Reflexivity, positionality and participatory ethics: Negotiating fieldwork dilemmas in international research. ACME: An International E-Journal for Critical Geographies 6(3), 374-385.
43. Thrift, Nigel. 2003. Practising ethics. In, Michael Pryke, Gillian Rose and Sarah Whatmore (eds.), Using Social Theory: Thinking Through Research. Thousand Oaks: Sage, pp. 105-121.
44. Trinder, L. and S. Reynolds (eds.). 2000. Evidence-Based Practice: A Critical Appraisal. London: Sage.
45. UNESCO. 1994. Ethical Guidelines for International Comparative Social Science Research in the Framework of M.O.S.T (Management of Social Transformation). Paris, France.
46. Whatmore, Sarah. 1997. Dissecting the autonomous self: Hybrid cartographies for a relational ethics. Environment and Planning D: Society and Space 15, 37-53.
47. World Medical Organization. 1964. Declaration of Helsinki: Ethical Principles for Medical Research Involving Human Subjects. Helsinki, Finland. (www.wma.net/e/policy/pdf/17c.pdf)
48. Young, Robert. 1990. White Mythologies: Writing History and the West. London: Routledge.