'I've got something to say': Interaction in a focus group of adults with cerebral palsy and complex communication needs

AAC: Augmentative and Alternative Communication

Volumn 24, Issue 2, 2008, Pages 110-122

  Hemsley, Bronwyn ^a   Balandin, Susan ^a   Togher, Leanne ^a  

^a UNIVERSITY OF SYDNEY   (Australia)

Author keywords

AAC; Augmentative and alternative communication; Complex communication needs; Focus groups; Interaction; Research methods

Indexed keywords

CLARIFICATION; COMMUNICATION; FLOW INTERACTIONS; HUMAN REHABILITATION ENGINEERING; MODERATORS;

CEREBRAL PALSY (CP); COMMUNICATION METHODS; COMPLEX COMMUNICATION NEEDS; FOCUS GROUPS; FUTURE RESEARCH; PILOT STUDIES;

SPEECH COMMUNICATION;

ADULT; ARTICLE; CEREBRAL PALSY; CLINICAL TRIAL; COMMUNICATION AID; COMMUNICATION DISORDER; DYSARTHRIA; FEMALE; HUMAN; HUMAN RELATION; INFORMATION PROCESSING; INTERPERSONAL COMMUNICATION; MALE; METHODOLOGY; MIDDLE AGED; PEER GROUP; PILOT STUDY; PSYCHOLOGICAL ASPECT; SPEECH;

ADULT; CEREBRAL PALSY; COMMUNICATION; COMMUNICATION AIDS FOR DISABLED; COMMUNICATION DISORDERS; DYSARTHRIA; FEMALE; FOCUS GROUPS; HUMANS; MALE; MIDDLE AGED; PEER GROUP; PILOT PROJECTS; RESEARCHER-SUBJECT RELATIONS; SPEECH;

EID: 45849150719     PISSN: 07434618     EISSN: 14773848     Source Type: Journal    
DOI: 10.1080/07434610701830579     Document Type: Article

References (53)

1. Allan, M. (1999) The language of augmented and alternative communication. ISAAC Bulletin, 56, pp. 1-7.
2. Alm, N. (1994) Ethical issues in AAC research, pp. 98-104. International Society of Augmentative and Alternative Communication (ISAAC) Jonkoping University Press, Kerkrade, Holland
3. American Psychological Association (2001) Publication manual of the American Psychological Association, American Psychological Association, Washington, DC
4. Altheide, D. L. and Johnson, J. M. (1998) Criteria for assessing interpretive validity in qualitative research. Collecting and interpreting qualitative materials, pp. 283-312. Sage Publications, Thousand Oaks, CA
5. Balandin, S. and Raghavendra, P. (1999) Challenging oppression: Augmented communicators' involvement in AAC research. Augmentative and alternative communication: New directions in research and practice, pp. 262-277. Whurr Publishers, London
6. Barrett, J. and Kirk, S. (2000) Running focus groups with elderly and disabled elderly participants. Applied Ergonomics, 31, pp. 621-629.
7. Bersani Jr., H. (1999) Nothing about me without me: A proposal for participatory action research in AAC. Augmentative and alternative communication: New directions in research and practice, pp. 278-289. Whurr Publishers, London
8. Beukelman, D. and Mirenda, P. (2005) Augmentative and alternative communication: Supporting children and adults with complex communication needs, Paul H. Brookes, Baltimore, MD
9. Bigby, C., Fyffe, C., Balandin, S., Gordon, M. and McCubbery, J. (2001) Day support services options for older adults with a disability. Report to the national disability administrators, Department of Human Services, Melbourne
10. Blackstone, S., Williams, W. and Wilkins, D. (2007) Key principles underlying research and practice in AAC. Augmentative & Alternative Communication, 23, pp. 191-203.
11. Bloor, M. and Wood, F. (2006) Keywords in qualitative methods: A vocabulary of research concepts, p. 54. Sage Publications, London
12. Cambridge, P. and McCarthy, M. (2001) User focus groups and best value in services for people with learning disabilities. Health and Social Care in the Community, 9, pp. 476-489.
13. Crossley, M. L. (2002) 'Could you please pass one of those health leaflets along?': Exploring health, morality and resistance through focus groups. Social Science & Medicine, 55, pp. 1471-1483.
14. Duggleby, W. (2005) What about focus group interaction data?. Qualitative Health Research, 15:6, pp. 832-840.
15. Fraser, M. and Fraser, A. (2001) Are people with learning disabilities able to contribute to focus groups on health promotion?. Journal of Advanced Nursing, 33:2, pp. 225-233.
16. Hemsley, B. and Balandin, S. (2004) Without AAC: The stories of unpaid carers of adults with cerebral palsy and CCN in Hospital. Augmentative and Alternative Communication, 20, pp. 243-258.
17. Hemsley, B., Balandin, S. and Togher, L. (2007) Narrative analysis of the hospital experience for older parents of people who cannot speak. Journal of Aging Studies, 21, pp. 239-254.
18. Hemsley, B., Balandin, S. and Togher, L. Staff views on the roles and needs of family carers of adults with cerebral palsy and complex communication needs in hospital. Journal of Intellectual & Developmental Disabilities
19. Hemsley, B., Balandin, S. and Togher, L. Family carers discuss roles and needs in supporting adults with cerebral palsy and complex communication needs in hospital. Journal of Developmental and Physical Disabilities
20. Hemsley, B., Balandin, S. and Togher, L. 'We need to be the centrepiece': Adults with cerebral palsy and complex communication needs discuss the roles and needs of family carers in hospital. Disability & Rehabilitation
21. Higginbotham, J. D. and Wilkins, D. (1999) Slipping through the timestream: Social issues of time and timing in augmented interactions. Constructing (in)competence: Disabling evaluations in clinical and social interaction, pp. 49-82. Lawrence Erlbaum Associates, Inc., Mahwah, NJ
22. Iacono, T., Balandin, S. and Cupples, L. (2001) Focus group discussions of literacy assessment and world wide web-based reading intervention. Augmentative and Alternative Communication, 17, pp. 27-46.
23. Fontana, A. and Frey, J. H. (1998) Interviewing: The art of science. Collecting and interpreting qualitative materials, pp. 47-78. Sage Publications, Thousand Oaks, CA
24. (2004) Online social research: Methods, issues & ethics, Peter Lang, New York
25. Joinson, A. N. (2001) Self-disclosure in computer-mediated communication: The role of self-awareness and visual anonymity. European Journal of Social Psychology, 31, pp. 177-192.
26. Kazdin, A. E. (1982) Single case research designs: Methods for clinical and applied settings., Oxford University Press, New York
27. Kent-Walsh, J. and McNaughton, D. (2005) Communication partner instruction in augmentative and alternative communication: Present practices and future directions. Augmentative and Alternative Communication, 21:3, pp. 195-204.
28. Kidd, P. S. and Parshall, M. B. (2000) Getting the focus and the group: Enhancing analytical rigor in focus group research. Qualitative Health Research, 10, pp. 293-308.
29. Kitzinger, J. (1994) The methodology of focus groups: The importance of interaction between research participants. Sociology of Health & Illness, 16:1, pp. 103-121.
30. Kitzinger, J. and Barbour, R. S. (1999) Introduction: The challenge and promise of focus groups. Developing focus group research: Politics, theory and practice, pp. 1-20. Sage Publications, London
31. Krueger, R. A. (1994) Focus groups: A practical guide for applied research, Sage Publications, Thousand Oaks, CA
32. Krueger, R. A. (1998) Moderating focus groups. The focus group kit, 4, Sage Publications, Thousand Oaks, CA
33. Landis, J. R. and Koch, G. G. (1977) The measurement of observer agreement for categorical data. Biometrics, 33, pp. 159-174.
34. (2006) Health research in cyberspace: Methodological, practical and personal issues, Nova Science Publishers, New York
35. Light, J. (1988) Interaction involving individuals using AAC systems: State of the art and future directions. Augmentative and Alternative Communication, 4, pp. 66-82.
36. Light, J. (1997) Communication is the essence of human life: Reflections on communicative competence. Augmentative and Alternative Communication, 13, pp. 61-70.
37. Light, J., Dattilo, J., English, J., Gutierrez, L. and Hartz, J. (1992) Instructing facilitators to support the communication of people who use augmenting systems. Journal of Speech & Hearing Research, 35, pp. 865-875.
38. Madriz, E. (2000) Focus groups in feminist research. Handbook of qualitative research, pp. 835-850. Sage Publications, Thousand Oaks, CA
39. McNaughton, D., Light, J. and Arnold, K. B. (2002) 'Getting your wheel in the door': Successful full-time employment experiences of individuals with cerebral palsy who use augmentative and alternative communication. Augmentative and Alternative Communication, 18, pp. 59-76.
40. Merchen, M. A. (1990) Some reasons for being passive from a personal perspective. Communication Outlook, 12:1, pp. 10-11.
41. Morgan, D. L. and Krueger, R. A. (1998) The focus group kit, Sage Publications, Thousand Oaks, CA
42. Murphy, J. (2006) Perceptions of communication between people with communication disability and general practice staff. Health Expectations, 9, pp. 49-59.
43. Myers, G. (1998) Displaying opinions: Disagreement and topic shifts in focus groups. Language in Society, 27, pp. 85-111.
44. Myers, G. and Macnaughten, P. (1999) Can focus groups be analysed as talk?. Developing focus group research: Policy, theory and practice, pp. 173-185. Sage Publications, London
45. O'Keefe, B. M., Kozak, N. B. and Schuller, R. (2007) Research priorities in augmentative and alternative communication as identified by people who use AAC. Augmentative & Alternative Communication, 23, pp. 89-96.
46. Patton, M. Q. (2005) Qualitative research and evaluation methods, Sage Publications, Thousand Oaks, CA
47. QSR (1999) QSR NVivo, QSR International Pty. Ltd., Melbourne, Victoria
48. Rackensperger, T., Krezman, C., McNaughton, D., Williams, M. B. and D'Silva, K. (2005) "When I first got it, I wanted to throw it off a cliff": The challenges and benefits of learning AAC technologies as described by adults who use AAC. Augmentative and Alternative Communication, 21, pp. 165-186.
49. Schlosser, R. W. (1999) An introduction to consumer perspectives in AAC research: Approaches, techniques and their theoretical underpinnings. Augmentative and alternative communication: New directions in research and practice, pp. 257-261. Whurr Publishers, London
50. Sigafoos, J. (1999) Creating opportunities for augmentative and alternative communication: Strategies for involving people with developmental disabilities. Augmentative and Alternative Communication, 15, pp. 183-190.
51. Stevens, P. E. (1996) Focus groups: Collecting aggregate-level data to understand community health phenomena. Public Health Nursing, 13, pp. 170-176.
52. Williams, M. and Robson, K. (2004) Reengineering focus group methodology for the online environment. Online social research: Methods, issues & ethics, pp. 25-46. Peter Lang Publishing Co., New York
53. Zorn, T. E., Roper, J., Broadfoot, K. and Weaver, C. K. (2006) Focus groups as sites of influential interaction: Building communicative self-efficacy and effecting attitudinal change in discussing controversial topics. Journal of Applied Communication Research, 34:2, pp. 115-140.