The information needs of carers of adults diagnosed with epilepsy

Seizure

Volumn 13, Issue 7, 2004, Pages 499-508

  Kendall, Sally ^a   Thompson, Diane ^a   Couldridge, Lynette ^b  

^a UNIVERSITY OF HERTFORDSHIRE   (United Kingdom)

^b EPILEPSY SOCIETY   (United Kingdom)

Author keywords

Carers'; Epilepsy; Epilepsy services; Information; Self efficacy

Indexed keywords

ANTICONVULSIVE AGENT;

ADOLESCENT; ADULT; ALTERNATIVE MEDICINE; ARTICLE; CAR DRIVING; CAREGIVER; COPING BEHAVIOR; DISEASE CLASSIFICATION; EPILEPSY; FAMILY COUNSELING; FEMALE; HEALTH CARE NEED; HEALTH PRACTITIONER; HUMAN; HUMAN RELATION; INTERVIEW; MALE; MEDICAL INFORMATION; PATIENT INFORMATION; PREGNANCY; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; QUESTIONNAIRE; SIDE EFFECT; AGED; COMPARATIVE STUDY; EDUCATION; FAMILY; HEALTH CARE DELIVERY; HEALTH SERVICE; METHODOLOGY; MIDDLE AGED; NEEDS ASSESSMENT; NURSING; PSYCHOLOGICAL ASPECT; SELF CONCEPT;

ADULT; AGED; CAREGIVERS; EPILEPSY; FAMILY; FEMALE; HEALTH SERVICES ACCESSIBILITY; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INTERVIEWS; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PROFESSIONAL-FAMILY RELATIONS; QUESTIONNAIRES; SELF EFFICACY;

EID: 4344564935     PISSN: 10591311     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.seizure.2003.12.003     Document Type: Article

References (28)

1. Wallace H. Shorvon S. Tallis R. Age specific incidence and prevalence rates of treated epilepsy in an unselected population of 2,052,922 and age specific fertility of women with epilepsy Lancet 352 1998 1970-1973
2. Hopkins A. Menken M. De-Friese G. A record of patient encounters in neurological practice in the UK. J Neurol Neurosurg Psychiatry 1989:52;436-8 cited by Jacoby A. Epilepsy and the quality of everyday life. Social Sci Med 1992 34 657-666
3. MacDonald B.K. Cockerell O.C. Sander J.W. Shorvon S.D. The incidence and lifetime prevalence of neurological disorders in a prospective community-based study in the UK Brain 123 2000 665-676
4. Department of Health Caring about Carers. London: The Stationery Office; 1999a
5. Bugler C. Couldridge L. Information Task Force Briefing Paper. National Society for Epilepsy, Chalfont St. Giles, 1997 (unpublished)
6. Hart Y. Existing care for epilepsy. Chadwick D, editor. Quality of life and quality of care in epilepsy. Royal Society of Medicine Round Table series, 1990 23 16-27
7. Brown S. Betts T. Chadwick D. Hall B. Shorvon S. Wallace S. Clinical review. An Epilepsy Needs Document Seizure 2 1993 91-103
8. Brown S. Betts T. Crawford P. Hall B. Shorvon S. Wallace S. Epilepsy needs revisited: a revised epilepsy needs document for the UK Seizure 7 1998 435-446
9. Couldridge L. Kendall S. March A. A systematic overview - a decade of research. The information and counselling needs of people with epilepsy Seizure 10 2001 605-614
10. Morris S. Thomas C. The need to know: informal carers and information Eur. J. Cancer Care 11 2002 183-187
11. Simon C. Kendrick T. Community provision for informal live-in carers of stroke patients Br. J. Community Nurs. 7 2002 292-298
12. Soothill K. Morris S. Harman J. Francis B. Thomas C. McIllmurray M. Informal carers of cancer patients: what are their unmet psychosocial needs? Health Social Care Community 9 2001 464-469
13. Driscoll A. Managing post-discharge care at home: an analysis of patients and their carers' perception of information received during their stay in hospital J. Adv. Nurs. 31 2000 1165-1173
14. Rose K. A qualitative analysis of the information needs of informal carers of terminally ill cancer patients J. Clin. Nurs. 8 1999 81-88
15. Ward H. Cavanagh J. A descriptive study of the self-perceived needs of carers for dependent with a range of long-term problems J. Public Health Med. 19 1997 281-287
16. Arksey H. Heaton J. Sloper P. Carers tell it like it is Health Service J. 108 1998 32-33
17. Leino-Kilpi H. Lire L. Suominen T. Vuorenheimo J. Valimaki M. Client and information: a literature review J. Clin. Nurs. 2 1999 331-340
18. Forster A. Smith J. Young J. Knapp P. House A. Wright J. Information provision for stroke patients and their caregivers. Cochrane database of systematic reviews 2002 Issue 4
19. Nolan M. Lundh U. Satisfactions and coping strategies of family carers Br. J. Community Nurs. 4 1999 470-475
20. Oxford English Dictionary. Oxford: Oxford University Press; 1980
21. Kvale S. Interviews: an introduction to qualitative research interviewing. London: Sage; 1996
22. Berg B.L. An introduction to content analysis in qualitative research methods for the social sciences. London: Allyn and Bacon; 1989
23. Silverman D. Qualitative methodology & sociology. London: Gower, 1989
24. Bandura A. Self-efficacy: towards a unifying theory of behaviour change Psychol. Rev. 84 1977 191-215
25. Dilorio C. Faherty B. Manteuffel B. The developing and testing of an instrument to measure self-efficacy in people with epilepsy J. Neurosci. Nurs. 14 1992 9-13
26. Ridsdale L. Robins D. Cryer C. Williams H. and the Epilepsy Care Evaluation Group. Feasibility and effects of nurse run clinics for patients with epilepsy in general practice: randomised controlled trial. Br Med J 1997 314 120-122
27. Home Office. Supporting Families. London: The Stationery Office; 1998
28. Department of Health. Saving Lives-Our Healthier Nation. London: The Stationery Office; 1999b