Choice of service provider: How consumer self-determination shaped a psychiatric rehabilitation program

Psychiatric Rehabilitation Journal

Volumn 31, Issue 3, 2008, Pages 202-210

  Barreira, Paul ^a,b   Macias, Cathaleene ^c   Rodican, Charles ^c   Gold, Paul B ^d  

^a HARVARD UNIVERSITY   (United States)

^b HARVARD MEDICAL SCHOOL   (United States)

^c MCLEAN HOSPITAL   (United States)

^d MEDICAL UNIVERSITY OF SOUTH CAROLINA   (United States)

Author keywords

Consumer empowerment; Program engagement; Psychiatric rehabilitation; Service choice

Indexed keywords

ARTICLE; CORRELATION ANALYSIS; EMPOWERMENT; HEALTH CARE PERSONNEL; HUMAN; MENTAL DISEASE; MENTAL HEALTH CARE; MENTAL HEALTH SERVICE; PROGRAM DEVELOPMENT; QUALITY OF LIFE; REGRESSION ANALYSIS; REHABILITATION CARE; SOCIAL INTERACTION; ADULT; CONSUMER; DECISION MAKING; FEMALE; HUMAN RELATION; MALE; METHODOLOGY; NEEDS ASSESSMENT; PATIENT ATTITUDE; PATIENT PARTICIPATION; PERSONAL AUTONOMY; PSYCHOLOGICAL ASPECT; UNITED STATES;

ADULT; CHOICE BEHAVIOR; CONSUMER PARTICIPATION; FEMALE; HUMANS; MALE; MASSACHUSETTS; MENTAL DISORDERS; MENTAL HEALTH SERVICES; NEEDS ASSESSMENT; PATIENT ACCEPTANCE OF HEALTH CARE; PATIENT PARTICIPATION; PERSONAL AUTONOMY; PROFESSIONAL-PATIENT RELATIONS;

EID: 42949174236     PISSN: 1095158X     EISSN: None     Source Type: Journal    
DOI: 10.2975/31.3.2008.202.210     Document Type: Article

References (66)

1. Abelson, R. P. (1995). Statistics as principled argument. Hillsdale, NJ: Lawrence Erlbaum.
2. Adams, J. R., & Drake, R. E. (2006). Shared decision-making and evidence-based practice. Community Mental Health Journal, 42(1), 87-105.
3. Amiel-Lebigre, F., & Chevalier, A. (2002). Differential metabolization of the impact of life events on subjects hospitalized for depressive and anxiety disorders: Case-control study. Social Psychiatry & Psychiatric Epidemiology, 37(2), 74-79.
4. Anderson, S. B. (1998). We Are Not Alone: Fountain House and the development of clubhouse culture. New York, NY: Fountain House, Inc.
5. Argyle, M. (1999). Causes and correlates of happiness. In D. Kahnemann, E. Diener & N. Schwartz (Eds.), Well-being. New York: Russell Sage.
6. Bandura, A. (1999). Self-efficacy: Toward a unifying theory of behavior change. In R. F. Baumeister (Ed.), The self in social psychology. Philadelphia, PA: Taylor & Francis.
7. Baron, R. M., & Kenny, D. A. (1986). The moderator-mediator distinction in social psychological research: Conceptual, strategic and statistical considerations. Journal of Personality & Social Psychology, 51, 1173-1182.
8. Bengtsson-Tops, A. (2004). Mastery in patients with schizophrenia living in the community: Relationship to sociodemographic and clinical characteristics, needs for care and support, and social network. Journal of Psychiatric & Mental Health Nursing, 11(3), 298-304.
9. Blom, B. (2004). Specialization in social work practice: Effects on interventions in the personal social services. Journal of Social Work, 4(1), 25-46.
10. Bond, G. R., Vogler, K., Resnick, S. G., Evans, L., Drake, R., & Becker, D. (2001). Dimensions of supported employment: Factor structure of the IPS fidelity scale. Journal of Mental Health (UK), 10(4), 383-393.
11. Brown, C. (Ed.). (2001). Recovery and wellness: Models of hope and empowerment for people with mental illness. New York: Haworth Press.
12. Buck, J. A., Teich, J. L., & Miller, K. (2003). Use of mental health and substance abuse services among high-cost Medicaid enrollees. Administration and Policy in Mental Health, 31(1), 3-14.
13. Buck, P. W., & Alexander, L. B. (2006). Neglected voices: Consumers with serious mental illness speak about intensive case management. Administration and Policy in Mental Health and Mental Health Services Research, 33(4), 470-481.
14. Calsyn, R., Winter, J., & Morse, G. (2000). Do consumers who have a choice of treatment have better outcomes? Community Mental Health Journal, 36(2), 149-160.
15. Calsyn, R. J., Morse, G. A., Yonker, R. D., Winter, J. P., Pierce, K. J., & Taylor, M. J. (2003). Client choice of treatment and cllient outcomes. Journal of Community Psychology, 31(4), 339-348.
16. Calsyn, R. J., Morse, G. A., Klinkenberg, D., Yonker, R. D., & Trusty, M. (2002). Moderators and mediators of client satisfaction in case management programs for clients with severe mental illness. Mental Health Services Research, 4(4), 267-275.
17. Carver, C., & Scheier, M. (1999). Control theory: A useful conceptual framework for personality-social clinical and health psychology. In R. F. Baumeister (Ed.), The self in social psychology. Philadelphia, PA: Taylor & Francis.
18. Chovil, I. (2005). Reflections on schizophrenia, learned helplessness/dependence, and recovery. Psychatric Rehabilitation Journal, 29(1), 69-71.
19. Corrigan, P. W., & Salzer, M. S. (2003). The conflict between random assignment and treatment preference: Implications for internal validity. Evaluation and Program Planning, 26, 109-121.
20. Crane-Ross, D., Lutz, W. J., & Roth, D. (2006). Consumer and case manager perspectives of service empowerment: Relationship to mental health recovery. Journal of Behavioral Health Services & Research, 33(2), 142-155.
21. Dickerson, F. (1998). Strategies that foster empowerment. Cognitive & Behavioral Science, 5(2), 255-275.
22. Dickey, B., Normand, S. L., Weiss, R., Drake, R., & Azeni, H. (2002). Medical morbidity, mental illness, and substance use disorders. Psychiatric Services, 53(7), 861-867.
23. Eklund, M., Hansson, L., & Bengtsson-Tops, A. (2004). The influence of temperament and character on functioning and aspects of psychological health among people with schizophrenia. European Psychiatry, 19(1), 34-41.
24. Fairweather, G. W. (1986). The need for uniqueness. American Journal of Community Psychology, 14(2), 128-137.
25. Felton, B., Barr, A., Clark, G., & Tsemeris, S. J. (2006). ACT team members' responses to training in recovery-oriented practices. Psychatric Rehabilitation Journal, 30(2), 112-119.
26. Frey, J. L. (1994). Long term support: The critical element to sustaining competitive employment: Where do we begin? Psychosocial Rehabilitation Journal, 17(3), 127-133.
27. Griffin, K. W., & Rabkin, J. G. (1998). Perceived control over illness, realistic acceptance, and psychological adjustment in people with AIDS. Journal of Social & Clinical Psychology, 17(4), 407-424.
28. Griva, K., Myers, L., & Newman, S. (2000). Illness perceptions and self efficacy beliefs in adolescents and young adults with insulin dependent diabetes mellitus. Psychology & Health, 15(6), 733-750.
29. Herdelin, A. C., & Scott, D. L. (1999). Experimental studies of the Program of Assertive Community Treatment (PACT): A meta-analysis. Journal of Disability Policy Studies, 10, 53-89.
30. Hoffman, D., Young, D., Manges, L., Chambers, W., & Miller, M. (2004). A collaborative approach to the development of psychiatric rehabilitation services in a public behavioral health managed care environment. Psychatric Rehabilitation Journal, 28(2), 109-112.
31. Holmberg, S. K., & Kane, C. (1999). Health and self-care practices of persons with schizophrenia. Psychiatric Services, 50(6), 827-829.
32. Hopkins, M., & Ramsundar, N. (2006). Which factors predict case management services and how do these services relate to client outcomes? Psychatric Rehabilitation Journal, 29(3), 219-222.
33. Jackson, M. E., & Tessler, R. C. (1984). Perceived lack of control over life events: Antecedents and consequences in a discharged patient sample. Social Science Research, 13(3), 287-301.
34. Janzen, R., Nelson, G., Trainor, J., & Ochocka, J. (2006). A longitudinal study of mental health consumer/survivor initiatives: Part 4 - Benefits beyond the self? A quantitative and qualitative study of system-level activities and impacts. Journal of Community Psychology 34(3), 285-303.
35. Johnson, W., & Krueger, R. F. (2005). Higher perceived life control decreases genetic variance in physical health: Evidence from a national twin study. Journal of Personality and Social Psychology, 88(1).
36. Jones, D. R., Macias, C., Barreira, P. J., Fisher, W. H., Hargreaves, W. A., & Harding, C. M. (2004). Prevalence, severity, and co-occurrence of chronic physical health problems of persons with serious mental illness. Psychiatric Services, 55(11), 1250-1257.
37. Kent, S., & Yellowlees, P. (1995). The relationship between social factors and frequent use of psychiatric services. Australian & New Zealand Journal of Psychiatry, 29(3), 403-408.
38. King, R., Le Bas, J., & Spooner, D. (2000). The impact of caseload on the personal efficacy of mental health case managers. Psychiatric Services, 51(3), 364-368.
39. Kravetz, S., Faust, M., & David, M. (2000). Accepting the mental illness label, perceived control over the illness, and quality of life. Psychiatric Rehabilitation Journal, 23(4), 323-332.
40. Krupa, T., Radloff-Gabriel, D., Whippey, E., & Kirsh, B. (2002). Reflections on...Occupational therapy and assertive community treatment. Canadian Journal of Occupational Therapy, 69(3), 153-157.
41. Lang, F., & Heckhausen, J. (2001). Perceived control over development and subjective well-being: Differential benefits across adulthood. Journal of Personality & Social Psychology, 81(3), 509-523.
42. Linhorst, D. M. (2006). Empowering people with severe mental illness: A practical guide. Oxford (UK): Oxford University Press.
43. Macias, C., Barreira, P., Hargreaves, W., Bickman, L., Fisher, W. H., & Aronson, E. (2005). Impact of referral source and study applicants' preference for randomly assigned service on research enrollment, service engagement, and evaluative outcomes. American Journal of Psychiatry, 162(4), 781-787.
44. Maher, E. J., & Kroska, A. (2002). Social status determinants of control in individuals' accounts of their mental illness. Social Science & Medicine, 55(6), 949-961.
45. Marks, R. (2001). Efficacy theory and its utility in arthritis rehabilitation: Review and recommendations. Disability & Rehabilitation: An International Multidisciplinary Journal, 23(7), 271-280.
46. Mazure, C., Bruce, M., Maciejewski, P., & Jacobs, S. (2000). Adverse life events and cognitive-personality characteristics in the prediction of major depression and antidepressant response. American Journal of Psychiatry, 157, 896-903.
47. Mowbray, C. T., Robinson, E. A., & Hotter, M. C. (2002). Consumer drop-in centers: Operations, services, and consumer involvement. Health Soc Work, 27(4), 248-261.
48. Osowiecki, D. M., & Compas, B. E. (1999). A prospective study of coping, perceived control, and psychological adaptation to breast cancer. Cognitive Therapy & Research, 23(2), 169-180.
49. Paulson, R., Post, R., Herinckx, H., & Risser, P. (2002). Beyond components: Using fidelity scales to measure and assure choice in program implementation and quality assurance. Community Mental Health Journal, 38(2), 119-128.
50. Pescosolido, B. A., Gardner, C. B., & Lubell, K. M. (1998). How people get into mental health services: Stories of choice, coercion and "muddling through" from "first-timers." Social Science Medicine, 46(2), 275-286.
51. Propst, R. (1992). Standards for clubhouse programs: Why and how they were developed. Psychosocial Rehabilitation Journal, 16(2), 25-30.
52. Ralph, R. (2000). Review of recovery literature: A synthesis of a sample of recovery literature. Arlington, VA: National Association of State Mental Health Program Directors.
53. Rappaport, J. (1994). Narrative studies, personal stories, and identity transformation in the mutual-help context. In T. J. Powell (Ed.), Understanding the self-help organization. Thousand Oaks, CA: Sage.
54. Read, J., & Harre, N. (2001). The role of biological and genetic causal beliefs in the stigmatisation of "mental patients." Journal of Mental Health (UK), 10(2), 223-235.
55. Reed, S. J., & Merz, M. A. (2000). Integrated service teams in psychiatric rehabilitation: A strategy for improving employment outcomes and increasing funding. Journal of Applied Rehabilitation Counseling, 31(4), 40-46.
56. Rogers, E. S., Chamberlain, J., Ellison, M. L., & Crean, T. (1997). A consumer-constructed scale to measure empowerment among users of mental health services. Psychiatric Services, 48(8), 1042-1047.
57. Russert, M. G., & Frey, J. L. (1991). The PACT Vocational Model: A step into the future. Psychosocial Rehabilitation Journal, 14(4), 8-18.
58. Salzer, M. S. (1997). Consumer empowerment in mental health organizations: Concept, benefits, and impediments. Adm Policy Ment Health, 24(5), 425-434.
59. Scheid, T. L., & Greenley, J. R. (1997). Evaluations of organizational effectiveness in mental health programs. Journal of Health & Social Behavior, 38, 403-426.
60. Shadish, W. R., Cook, T. D., & Campbell, D. T. (2002). Experimental and quasi-experimental designs for generalized causal inference. New York: Houghton Mifflin.
61. Shaw, W. S., Patterson, T., Semple, S., Halpain, M., Koch, W., Harris, J., Grant, I., & Jeste, D. (2000). Use of community support services by middle-aged and older patients with psychotic disorders. Psychiatric Services, 51(4), 504-512.
62. Sowers, L. (2005). Transforming systems of care: The American Association of Community Psychiatrists Guidelines for Recovery Oriented Services. Community Mental Health Journal, 41(6), 757-774.
63. Statistical Program for the Social Sciences (1999). [Windows]. Chicago: SPSS.
64. Walsh, B., & Walsh, S. (2002). Caseload factors and the psychological well-being of community mental health staff. Journal of Mental Health, 11(1), 67-78.
65. Wowra, S. A., & McCarter, R. (1999). Validation of the empowerment scale with an outpatient mental health population. Psychiatric Services, 50(7), 959-961.
66. Zahniser, J. H., Ahern, L., & Fisher, D. (2005). How the PACE program builds a recovery transformed system: Results from a national survey. Psychatric Rehabilitation Journal, 29(2), 142-145.