Amplified ambivalence: Having a sibling with juvenile idiopathic arthritis

Psychology and Health

Volumn 23, Issue 4, 2008, Pages 477-492

  Waite Jones, Jennifer M ^a   Madill, Anna ^a  

^a UNIVERSITY OF LEEDS   (United Kingdom)

Author keywords

Childhood disability; Chronic illness; Family; Juvenile idiopathic arthritis; Qualitative research; Siblings

Indexed keywords

ADOLESCENT; ARTICLE; ATTITUDE TO HEALTH; CHILD; CHILDHOOD DISABILITY; CHRONIC DISEASE; FAMILY; FAMILY RELATION; FEMALE; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; MALE; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; SIBLING; YOUNG ADULT;

CHILDHOOD DISABILITY; CHRONIC ILLNESS; FAMILY; JUVENILE IDIOPATHIC ARTHRITIS; QUALITATIVE RESEARCH; SIBLINGS;

ADOLESCENT; ARTHRITIS, JUVENILE; ATTITUDE TO HEALTH; CHILD; FAMILY RELATIONS; FEMALE; HUMANS; MALE; QUALITATIVE RESEARCH; SIBLINGS; YOUNG ADULT;

EID: 42049108188     PISSN: 08870446     EISSN: 14768321     Source Type: Journal    
DOI: 10.1080/14768320701299906     Document Type: Article

References (32)

1. Banister, P., Burman, E., Parker, I., Taylor, M., & Tindall, C. (1995). Qualitative methods in psychology: A research guide. Buckingham: Open University Press.
2. Barlow, J. H., & Ellard, D. R. (2004). Psycho-educational interventions for children with chronic disease, parents and siblings: An overview of the research evidence base. Child: Care, Health & Development, 30, 637-645.
3. Barlow, J. H., Shaw, K. L., & Harrison, K. (1999). Consulting the 'experts': Children's and parents' perceptions of psycho-educational interventions in the context of juvenile chronic arthritis. Health Education Research: Theory & Practice, 14, 597-610.
4. Batte, S., Watson, A. R., & Amess, K. (2006). The effects of chronic renal failure on siblings. Pediatric Nephrology, 21, 246-250.
5. Billings, A. G., Moos, R. H., Miller, J. J., & Gottleib, J. E. (1987). Psychosocial adaptation in juvenile rheumatic disease: A controlled evaluation. Health Psychology, 6, 343-359.
6. Bluebond-Lagner, M. (1996). In the shadow of illness: Parents of the chronically sick child. Princeton: Princeton University Press.
7. Britton, C., & Moore, A. (2002). Views from the Inside, Part 2: What the children with arthritis said, and the experiences of siblings, mothers, fathers and grandparents. British Journal of Occupational Therapy, 65, 413-419.
8. Charmaz, K. (1995). Qualitative research, reflexivity and context. In M. Murray (Ed.), Rediscovering methods in psychology. London: Sage.
9. Dunn, J. (2000). State of the art: Siblings. The Psychologist, 13, 244-248.
10. Ellis, N., Upton, U., & Thompson, P. (2000). Epilepsy and the family: A review of current literature. Seizure, 9, 22-30.
11. Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. New York: Aldine.
12. Harding, R. (1996). Children with cancer: The needs of siblings. Professional Nurse, 11, 588-590.
13. Houtzager, B. A., Oort, F. J., Hoeksra-Weebers, J. H. M., Caron, H. N., Grootenhuis, M. A., & Last, B. F. (2004). Coping and family functioning predict longitudinal psychological adaptation of siblings of childhood cancer patients. Journal of Pediatric Psychology, 8, 591-605.
14. Jaeger, M. E., & Rosnow, R. L. (1988). Contextualism and its implications for psychological inquiry. British Journal of Psychology, 79, 63-75.
15. Lobato, D. J., & Kao, B. T. (2002). Integrated sibling-parent group intervention to improve sibling knowledge and adjustment to chronic illness and disability. Journal of Pediatric Psychology, 27, 711-716.
16. Madill, A., Jordan, A., & Shirley, S. (2000). Objectivity and reliability in qualitative analysis: Realist, contextualist, and radical constructionist epistemologies. British Journal of Psychology, 91, 1-20.
17. Miller, S. (1996). Living with a disabled sibling: A review. Peadiatric Nursing, 8, 21-23.
18. Pidgeon, N., & Henwood, K. (1996). Grounded theory: Practical implementation. In J. T. E. Richardson (Ed.), Handbook of qualitative research methods. Leicester: BPS Books.
19. Potter, J., & Hepburn, A. (2005). Qualitative interviews in psychology: Problems and possibilities. Qualitative Research in Psychology, 4, 281-307.
20. Ratcliffe, J. (2001). Listening to siblings. Birmingham: Hansel Trust Publications.
21. Sharpe, D., & Rossiter, L. (2002). Siblings of children with a chronic illness: A meta-analysis. Journal of Pediatric Psychology, 27, 699-710.
22. Shaw, K. L., Southwood, T. R., & McDonagh, J. E. (2005). Growing up and moving on in rheumatology: A multicentre cohort of adolescents with juvenile idiopathic arthritis. Rheumatology, 44, 806-812.
23. Silver, E. J., & Frohlinger-Graham, M. J. (2000). Brief report: Psychological symptoms in healthy female siblings of adolescents with and without chronic conditions. Journal of Pediatric Psychology, 25, 279-284.
24. Sloper, P. (2000). Experiences and support needs of siblings of children with cancer. Health and Social Care in the Community, 8, 298-306.
25. Sloper, P., & While, D. (1996). Risk factors in the adjustment of siblings of children with cancer. Journal of Child Psychology and Psychiatry and Allied Disciplines, 37, 597-607.
26. Spinetta, J. (1981). The sibling of the child with cancer. In J. Spinetta & P. Deasy-Spinetta (Eds), The sibling of the child with cancer (pp. 133-142). Mosby: St. Luis.
27. Stalker, K., & Connors, C. (2004). Children's perceptions of their disabled siblings: 'She's different but it's normal for us.' Children & Society, 18, 218-230.
28. Strauss, A., & Corbin, J. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory. (2nd ed.). London: Sage Publications.
29. Symmons, D. P. M., Jones, M., Osborn, J., Sills, J., Southwood, T. R., & Woo, P. (1996). Paediatric rheumatology in the United Kingdom: Data from the british paediatric group National Diagnostic register. Journal of Rheumatology, 23, 1975-80.
30. Williams, P. D. (1997). Siblings and pediatric chronic illness: A review of the literature. International Journal of Nursing Studies, 34, 312-323.
31. Williams, P. D., Williams, A. R., Graff, J. C., Hanson, S., Stanton, A., Hafeman, C., et al. (2002). Interrelationships among variables affecting well siblings and mothers in families of children with a chronic illness or disability. Journal of Behavioural Medicine, 25, 411-424.
32. Williams, P. D., Williams, A. R., Graff, J. C., Hanson, S., Stanton, A., Hafeman, C., et al. (2003). A community-based intervention for siblings and parents of children with a chronic illness or disability: The ISEE study. Journal of Pediatrics, 143, 386-393.