Epilepsy and the family: A review of current literature

Seizure

Volumn 9, Issue 1, 2000, Pages 22-30

  Ellis, Neil ^a   Upton, Dominic ^a   Thompson, Pam ^b  

^a CARDIFF METROPOLITAN UNIVERSITY   (United Kingdom)

^b EPILEPSY SOCIETY   (United Kingdom)

Author keywords

Epilepsy; Families; Family functioning; Family interventions; Psychosocial difficulties

Indexed keywords

BENIGN CHILDHOOD EPILEPSY; CHILD PARENT RELATION; EPILEPSY; FAMILY; FAMILY STUDY; HUMAN; MARRIAGE; MEDICAL RESEARCH; MENTAL DISEASE; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW; SELF ESTEEM; SOCIAL ISOLATION; SOCIAL PSYCHOLOGY; STRESS; WELLBEING;

EID: 0033951174     PISSN: 10591311     EISSN: None     Source Type: Journal    
DOI: 10.1053/seiz.1999.0353     Document Type: Article

References (98)

1. Cramer J. A., Perrine K., Devinsky O., Bryant-Comstock K., Meador, Hermann B. Development and cross-cultural translations of a 31-item quality of life in epilepsy inventory. Epilepsia. 39:1988;81-88.
2. Zhu D., Jin L., Xie G., Xiao B. Quality of life and personality in adults with epilepsy. Epilepsia. 39:1998;1208-1212.
3. Baker G. A., Nashef L., van Hout B. A. Current issues in the management of epilepsy: the impact of frequent seizures on cost of illness, quality of life, and mortality. Epilepsia. 38:1997;S1-S8.
4. Malmgren K., Sullivan M., Ekstedt G., Kullberg G., Kumlien E. Health-related quality of life after epilepsy surgery: a Swedish multicentre study. Epilepsia. 38:1997;830-838.
5. Collings J. A. Life fulfilment in an epilepsy sample from the United States. Social Science and Medicine. 40:1995;1579-1584.
6. Mims J. Self esteem, behaviour, and concerns surrounding epilepsy in siblings of children with epilepsy. Journal of Child Neurology. 12:1997;187-192.
7. Carlton-Ford S., Miller R., Brown M., Nealeigh N., Jennings P. Epilepsy and children social and psychological adjustment. Journal of Health and Social Behaviour. 36:1995;285-301.
8. Hartshorn J. C., Byers V. L. Importance of health and family variables related to quality of life in individuals with uncontrolled seizures. Journal of Neuroscience Nursing. 26:1994;288-297.
9. Thompson P. J., Upton D. The impact of chronic epilepsy on the family. Seizure. 1:1992;43-48.
10. Thompson P. J., Upton D. Quality of life in family members of persons with epilepsy. Trimble M. R., Dodson W. E. Epilepsy and Quality of Life. 1994;Raven Press Ltd, New York.
11. Scambler G. Epilepsy. 1989;Tavistock/Routledge, London.
12. Flanagan D. A. J. A retrospective analysis of expressed emotion (EE) and affective distress in a sample of relatives caring for traumatically brain-injured (TBI) family members. British Journal of Clinical Psychology. 37:1998;431-439.
13. Morris R. G., Morris L. W., Britton P. G. Factors affecting the emotional well-being of the caregivers of dementia sufferers. British Journal of Psychiatry. 153:1988;147-156.
14. Whittick J. E. Dementia and mental handicap: emotional distress in carers. British Journal of Clinical Psychology. 27:1988;167-172.
15. Brooks N. Head injury and the family. Brooks N. Closed Head Injury: Psychological, Social, and Family Consequences. 1985;123-147 Oxford University Press, Oxford.
16. Taylor D. C. Psychosocial components of childhood epilepsy. Hermann B., Seidenberg M. Childhood Epilepsies: Neuropsychological, Psychosocial, and Intervention Aspects. 1989;119-142 John Wiley and Sons, Chichester.
17. Sheeran T., Marvin R. S., Pianta R. C. Mothers' resolution of their child's diagnosis and self reported measures of parenting stress, marital relations, and social support. Journal of Pediatric Psychology. 22:1997;197-212.
18. Austin J. K., McDermott N. Parental attitude and coping behaviours in families of children with epilepsy. Journal of Neuroscience Nursing. 20:1988;174-179.
19. Voeller K., Rothenberg M. Psychological aspects of the management of seizures in children. Pediatrica. 51:1973;1072-1082.
20. Carlton-Ford S., Miller R., Nealeigh N., Sanchez N. The effect of perceived stigma and psychological over-control on the behavioural problems of children with epilepsy. Seizure. 6:1997;383-391.
21. Bressi C. Family and chronic disease: from research to intervention. New Trends in Experimental and Clinical Psychiatry. XI:1996;135-145.
22. Mitchell W. G., Scheier L. M., Baker S. A. Psychosocial, behavioural, and medical outcomes in children with epilepsy: a developmental risk factor model using longitudinal data. Pediatrics. 4:1994;471-477.
23. West P. The social meaning of epilepsy: stigma as a potential explanation for psychopathology in children. Whitman S., Hermann B. P. Psychopathology in Epilepsy: Social Dimensions. 1986;Oxford University Press, Oxford.
24. Thomas S. V., Bindu V. B. Psychosocial and economic problems of parents of children with epilepsy. Seizure. 8:1999;66-69.
25. Austin J. K. Childhood epilepsy: child adaptation and family resources. Journal of Child and Adolescent Psychiatric and Mental Health Nursing. 1:1988;18-24.
26. M. Rutter, P. Graham, W. A. Yule, Clinics in Developmental Medicine 1970, 1970, S.I.M.P. with Heinemann Medical, London.
27. Ferrari M. Epilepsy and its effects on the family. Hermann B., Siedenberg M. Childhood Epilepsies: Neuropsychological, Psychosocial and Intervention Aspects. 1989;159-172 John Wiley, Chichester.
28. Hoare P., Kerley S. Psychosocial adjustment of children with chronic epilepsy and their families. Bulletin of Epilepsy. 1:1992;28-36.
29. Hoare P. The quality of life of children with chronic epilepsy and their families. Seizure. 2:1993;269-275.
30. Kitamoto I., Ikuko, Kurokawa T., Tomita S., Maeda Y., Sakamaoto K., Ueda K. Child-parent relationships in the care of epileptic children. Brain and Development. 10:1988;36-40.
31. Tarnopoloski A., Hand D., Maclean E. et al. Validity and use of a screening questionnaire (GHQ) in the community. British Journal of Psychiatry. 134:1979;508-515.
32. Devinsky O. Psychosocial and behavioural function in epilepsy. Porter J., Chadwick D. The Epilepsies 2. 1997;Butterworth-Heinmann, Boston.
33. Ward F., Bower B. D. A study of certain social aspects of epilepsy in childhood. Developmental Medicine and Child Neurology. 20:1978;63.
34. Austin J. K., McBride A. B., Davies H. W. Parental attitudes and adjustment to childhood epilepsy. Nursing Research. 33:1984;92-96.
35. Hoare P. Psychiatric disturbances in the families of epileptic children. Developmental Medicine and Child Neurology. 26:1984;14-19.
36. Chappell B., Smithson W. H. Patient view on primary care services for epilepsy and areas where additional professional knowledge would be welcome. Seizure. 7:1998;447-457.
37. Laybourn A., Hill M. Children with epilepsy and their families: needs and services. Child: Care, Health and Development. 20:1994;1-14.
38. Jain P., Patterson N. H., Morrow J. I. What people with epilepsy want from a hospital clinic. Seizure. 2:1993;75-78.
39. Beech L. Knowledge of epilepsy among relatives of the epilepsy sufferer. Seizure. 1:1992;133-135.
40. Jilek-Aall L., Jilek M., Kaaya J., Mkombachepa L., Hillary K. Psychosocial study of epilepsy in Africa. Social Science and Medicine. 45:1997;783-795.
41. Wagner A. K., Keller S. D., Kosinski M., Baker G. A., Jacoby A., Hsu M. A., Chadwick D. W., Ware J. E. Advances in methods for assessing the impact of epilepsy and antiepileptic drug therapy on patients' health-related quality of life. Quality of Life Research. 4:1995;115-134.
42. Wright L. M., Simpson P. A systematic belief approach to epileptic seizures: a case of being spell bound. Contemporary Family Therapy. 13:1991;165-180.
43. Anderson E., Barton R. Epilepsy - a family burden? Clinical Psychology Forum. 25:1990;3-5.
44. Kugoh T., Fukunishi I., Hosokawa K., Kashihara K., Sora I. Psychological aspects of families with epileptic patients: a study using General Health Questionnaire. The Japanese Journal of Psychiatry and Neurology. 43:1989;550-551.
45. Kugoh T., Hosokawa. Psychological aspects of patients with epilepsy and their family members. Epilepsia. 32:1991;43.
46. Kleinman A., Wang W., Li S., Cheng X., Dai X., Li K., Kleinman J. The social course of epilepsy: chronic illness as social experience in interior China. Social Science and Medicine. 40:1995;1319-1330.
47. Aziz H., Akhtar S. W., Hasan K. Z. Epilepsy in Pakistan: stigma and psychological problems. A population-based epidemiological study. Epilepsia. 38:1997;1069-1073.
48. Conrad P., Schneider J., Dorhrmann R. Medical and Sociological Typologies: The Case of Epilepsy, Presented at the Annual Meeting of the American Sociological Association. 1978.
49. Smith L. L. Social work with epileptic patients. Health and Social Work. 3:1978;158-174.
50. Droge D., Arntson P., Norton R. The social support function in epilepsy self-help groups. Small Group Behaviour. 17:1986;139-163.
51. Kahn J., Kemp B., Staples F. R., Brummel-Smith K. Decreasing the burden in families caring for relatives with a dementing illness: a control study. Journal of the American Geriatrics Association. 33:1985;664-670.
52. Frude N. Family Problems: A Psychological Approach. 1993;John Wiley and Sons Ltd, Chichester.
53. Wood B. L., McDaniel S., Burchfiel, Erba G. Factors distinguishing families of patients with psychogenic seizures from families of patients with epilepsy. Epilepsia. 39:1998;432-437.
54. Anders T. F. Clinical syndromes, relationship disturbances, and their assessment. Sameroff A. J., Emde R. N. Relationship Disturbances in Early Childhood. 1989;Basic, New York.
55. Langfitt J. T., Wood B. L., Brand K. L., Brand J., Erba G. Family interactions as targets for intervention to improve social adjustment after epilepsy surgery. Epilepsia. 40:1999;735-744.
56. Nicholas K. K., Pianta R. C. Mother-child interactions and seizure control: relations with behaviour problems in children with epilepsy. Journal of Epilepsy. 7:1994;102-107.
57. Pianta R. C., Lothman D. J. Predicting behaviour problems in children with epilepsy; child factors, disease factors, family stress, and child mother interactions. Child Development. 65:1994;1415-1428.
58. Hoare P., Kerley S. Psychosocial adjustment of children with chronic epilepsy and their families. Developmental Medicine and Child Neurology. 33:1991;201-215.
59. Maj M., Del Vecchio M., Tata M. R., Guizzaro A., Bravaccio F., Kamali D. Perceived parental rearing behaviour and psychopathology in epileptic patients: a control study. Psychopathology. 20:1987;196-202.
60. Long C. G., Moore J. R. Parental expectations for their epileptic children. Journal of Child Psychology and Child Psychiatry. 20:1979;299-312.
61. Ziegler R. G. Psychologic vulnerability in epileptic patients. Psychosomatic. 20:1979;145-148.
62. Appolone C. Preventative social work interventions with families of children with epilepsy. Journal of Paediatrics. 95:1978;139-148.
63. Bagley C. The Social Psychology of Children with Epilepsy. 1971;PLACE: Routledge and Kegan Paul.
64. Ritchie K. Research notes: Interaction in the families of epileptic children. Journal of Child Psychology and Psychiatry. 22:1981;65-71.
65. Fenton G. Epilepsy. Lader M. Handbook of Psychiatry 2: Mental Disorder and Somatic Illness. 1983;Cambridge University Press, Cambridge.
66. P. Lerman, Epilepsy: The Eighth International Symposium, Penry, J. 1977, Raven Press, New York.
67. Hartledge L. C., Green J. B. The relation of parental attitudes to academic and social achievement in epileptic children. Epilepsia. 13:1972;21-26.
68. Cull C., Goldstein L. H. The Clinical Psychologists Handbook of Epilepsy: Assessment and Management. 1997;Routledge, London.
69. Olson D. H., Portner J., Lavee Y. FACES III. Family Social Science. 1985;University of Minnesota.
70. Gecas V., Seff M. A. Families and adolescents: a review of the 1980s. Booth A. Contemporary Families: Looking Forward, Looking Back. 1991;208-225 National council on family relations, Minnesota.
71. O'Donoghue M. F., Duncan J. S., Sander J. W. A. S. The subjective handicap of epilepsy. A new approach to measuring treatment outcome. Brain. 121:1998;317-343.
72. Ribeiro J. L., Mendonca D., Martins-daSilva A. Measuring health related quality of life in epileptic people having seizures. Epilepsia. 36:1995;S184.
73. Kellett M. W., Smith D., Baker G. A., Chadwick D. W. Quality of life after epilepsy surgery. Epilepsia. 36:1995;S188.
74. Wagner A. K., Bungay K. M., Bromfield E. B., Ehrenberg B. L. Relationship of health-related quality of life to seizure control and antiepileptic drug side effects. Epilepsia. 35:1994;S56.
75. Branford D., Bhaumik S., Duncan F. Epilepsy in adult with learning difficulties. Seizure. 7:1998;473-477.
76. Thompson P. J., Oxley J. Socioeconomic accompaniments of severe epilepsy. Epilepsia. 29:1988;S9-S18.
77. Hopkins A., Shorvon S., Cascino G. Epilepsy. 1995;Chapman and Hall Medical, London.
78. Duncan J. S., Sander J. W. A. S. The Chalfont severity scale. Journal of Neurology, Neurosurgery and Psychiatry. 54:1991;873-876.
79. Jacoby A., Baker G. A., Steen N., Potts P., Chadwick D. The clinical course of epilepsy and its psychosocial correlates: findings from a UK community study. Epilepsia. 37:1996;148-161.
80. Collings J. Psychosocial well-being and epilepsy: an empirical study. Epilepsia. 31:1990;418-426.
81. Arntson P., Droge D., Norton R., Murray E. The perceived psychosocial consequences of having epilepsy. Whitman S., Herman B. Psychopathology in Epilepsy: Social Dimensions. 1986;Oxford University Press, Oxford.
82. Smith P. E. M. The teenager with epilepsy: has special needs (Editorial). The British Medical Journal. 10:1998;960-961.
83. Aro H., Paronen O., Aro S. Psychosomatic symptoms among 14-16 year old Finnish adolescents. Social Psychiatry and Epidemiology. 22:1987;171-176.
84. Zelter K. L., LeBaron S. Psychosomatic problems in adolescents: why they occur, how to intervene. Post Graduate Medicine. 75:1984;153-164.
85. Rauste-von Wright M., Von Wright J. A longitudinal study of psychosomatic symptoms in healthy 11- to 18-year-old girls and boys. Journal of Psychosomatic Research. 25:1981;525-534.
86. Duncan S., Blacklaw J., Beastall G. H., Brodie M. J. Sexual functioning in women with epilepsy. Epilepsia. 38:1997;1074-1081.
87. Theils C., Steinhausen H. C. Psychopathology and family functioning in mothers with epilepsy. Acta Psychiatrica Scandinavica. 89:1994;29-34.
88. Mulder H. C., Suurmeijer T. P. Families with a child with epilepsy: a sociological contribution. Journal of Biosocial Science. 9:1977;13-24.
89. Austin J. K., Risinger M. W., Beckett L. A. Correlates of behaviour problems in children with epilepsy. Epilepsia. 33:1992;1115-1122.
90. Austin J. K. A model of family adaption to new-onset childhood epilepsy. Journal of Neuroscience Nursing. 28:1996;82-92.
91. Avondet M., Castelli Y., Scramelli. Psychological and social adjustment in adolescents with epilepsy. Epilepsia. 32:1991;43.
92. Espie C. A., Paul A., Graham M., Sterrick M., Foley J., McGarvey C. The epilepsy outcome scale: the development of a measure for the use with carers of people with epilepsy plus intellectual disability. Journal of Intellectual Disability Research. 42:1998;90-96.
93. Galletti F., Rinna A., Acquafondata C. An insight into children's and adolescents' experience of seizures and epilepsy. Seizure. 7:1998;309-316.
94. Hoare P., Russel M. The quality of life of children with chronic epilepsy and their families: preliminary findings with a new assessment measure. Developmental Medicine and Child Neurology. 37:1995;689-696.
95. Jacoby A. Quality of everyday life among a group of patients with well controlled epilepsy. Epilepsia. 32:1991;43.
96. Lechtenberg R. Epilepsy and the Family. 1984;Harvard University Press, London.
97. Long M. P., Glueckauf R. L., Rasmussen J. L. Developing family counselling interventions for adults with episodic neurological disabilities: presenting problems, persons involved, and problem severity. Rehabilitation Psychology. 43:1998;101-117.
98. Miller L. Psychotherapy of epilepsy: seizure control and psychosocial adjustment. The Journal of Cognitive Rehabilitation. 1994;14-30.