Disease-specific health-related quality of life instruments among adults diabetic: A systematic review

Diabetes Research and Clinical Practice

Volumn 80, Issue 2, 2008, Pages 171-184

  El Achhab, Youness ^a,b   Nejjari, Chakib ^a   Chikri, Mohamed ^a   Lyoussi, Badiaa ^b  

^a SIDI MOHAMED BEN ABDELLAH UNIVERSITY   (Morocco)

^b SIDI MOHAMED BEN ABDELLAH UNIVERSITY   (Morocco)

Author keywords

Diabetes mellitus; Health related quality of life; Review

Indexed keywords

APPRAISAL OF DIABETES SCALE; AUDIT OF DIABETES DEPENDENT QUALITY OF LIFE; CLINICAL ASSESSMENT TOOL; DEVELOPING COUNTRY; DIABETES 39; DIABETES CARE PROFILE; DIABETES DISTRESS SCALE; DIABETES HEALTH PROFILE; DIABETES IMPACT MEASUREMENT SCALE; DIABETES MELLITUS; DIABETES QUALITY OF LIFE CLINICAL TRIAL QUESTIONNAIRE REVISED; DIABETES QUALITY OF LIFE MEASURE; DIABETES SPECIFIC QUALITY OF LIFE SCALE; ELDERLY DIABETES BURDEN SCALE; ETHNICITY; FACTORIAL ANALYSIS; HUMAN; INSULIN DELIVERY SYSTEM QUALITY OF LIFE SCALE; METABOLIC REGULATION; PROBLEM AREAS IN DIABETES SCALE; PSYCHOMETRY; QUALITY OF LIFE; QUALITY OF LIFE WITH DIABETES QUESTIONNAIRE; QUESTIONNAIRE; QUESTIONNAIRE ON STRESS IN DIABETIC PATIENTS REVISED; RATING SCALE; RELIABILITY; REVIEW; SYSTEMATIC REVIEW; VALIDATION PROCESS; WELL BEING ENQUIRY FOR DIABETES;

ADULT; DIABETES MELLITUS; HEALTH STATUS; HUMANS; PATIENT SELECTION; QUALITY OF LIFE; QUESTIONNAIRES; RESEARCH DESIGN; STRESS, PSYCHOLOGICAL;

EID: 41749103977     PISSN: 01688227     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.diabres.2007.12.020     Document Type: Review

References (65)

1. Rubin R.R., and Peyrot M. Quality of life and diabetes. Diabet. Metab. Res. Rev. 5 (1999) 205-218
2. Guyatt G.H., Feeny D.H., and Patrick D.L. Measuring health-related quality of life. Ann. Intern. Med. 118 (1993) 622-629
3. Health outcomes methodology [no authors listed], Med. Care 38 (2000) SII7-II13.
4. Barr J.T. The outcomes movement and health status measures. J. Allied Health 24 (1995) 13-28
5. Mapi Research Institute, Instruments by Pathology/Disease, Available from www.qolid.org. Accessed on February 2006.
6. Garratt A.M., Schmidt L., and Fitzpatrick R. Patient-assessed health outcome measures for diabetes: a structured review. Diabet. Med. 19 (2002) 1-11
7. Norris S.L. Health-related quality of life among adults with diabetes. Curr. Diabet. Rep. 5 (2005) 124-130
8. Watkins K., and Connell C.M. Measurement of health-related QOL in diabetes mellitus. Pharmacoeconomics 22 (2004) 1109-1126
9. Scientific Advisory Committee of the Medical Outcomes Trust, Assessing health status and quality of life instruments: attributes and review criteria, Qual. Life Res. 11 (2002) 193-205.
10. R. Fitzpatrick, C. Davey, M.J. Buxton, D.R. Jones, Evaluating patient based outcome measures for use in clinical trials, Health Technol. Assess 2 (1998) 1-74.
11. Carey M.P., Jorgensen R.S., Weinstock R.S., Sprafkin R.P., Lantinga L.J., Carnrike C.L.M., et al. Reliability and validity of the appraisal of diabetes scale. J. Behav. Med. 14 (1991) 43-51
12. Bradley C., Todd C., Gorton T., Symonds E., Martin A., and Plowright R. The development of an individualized questionnaire measure of perceived impact of diabetes on quality of life: the ADDQoL. Qual. Life Res. 8 (1999) 79-91
13. Boyer J.G., and Earp J.A.L. The development of an instrument for assessing the quality of life of people with diabetes: diabetes-39. Med. Care 35 (1997) 440-453
14. Fitzgerald J.T., Davis W.K., Connell C.M., Hess G.E., Funnell M.M., and Hiss R.G. Development and validation of the Diabetes Care Profile. Eval. Health Prof. 19 (1996) 208-230
15. Polonsky W.H., Fisher L., Earles J., Dudl J., Lees J., Mullan J., et al. Assessing psychosocial distress in diabetes: development of the Diabetes Distress Scale. Diabet. Care 28 (2005) 626-631
16. Meadows K., Steen N., McColl E., Eccles M., Shiels C., Hewison J., et al. The diabetes health profile (DHP): a new instrument for assessing the psychosocial profile of insulin requiring patients: development and psychometric evaluation. Qual. Life Res. 5 (1996) 242-254
17. Hammond G.S., and Aoki T.T. Measurement of Health Status in diabetic patients: diabetes impact measurement scales. Diabet. Care 15 (1992) 469-477
18. Shen W., Kotsanos J.G., Huster W.J., Mathias S.D., Andrejasich C.M., and Patrick D.L. Development and validation of the diabetes quality of life clinical trial questionnaire. Med. Care 37 (1999) AS45-AS66 (Lilly Suppl)
19. Jacobson A.M., Barofsky I., Cleary P., and Rand L.L. Reliability and validity of a diabetes quality-of-life measure for the diabetes control and complications trial (DCCT). Diabet. Care 11 (1988) 725-732
20. Bott U., Mühlhauser I., Overmann H., and Berger M. Validation of a diabetes-specific quality-of-life scale for patients with type 1 diabetes. Diabet. Care 21 (1998) 757-769
21. Araki A., and Ito H. Development of elderly diabetes burden scale for elderly patients with diabetes mellitus. Geriatr. Gerontol. Int. 3 (2003) 212-222
22. Peyrot M., and Rubin R.R. Validity and reliability of an instrument for assessing health-related quality of life and treatment preferences: the insulin delivery system rating questionnaire. Diabet. Care 28 (2005) 53-58
23. Hirsch A., Bartholomae C., and Volmer T. Dimensions of quality of life in people with non-insulin-dependent diabetes. Qual. Life Res. 9 (2000) 207-218
24. Polonsky W.H., Anderson B.J., Lohrer P.A., Welch G., Jacobson A.M., Aponte J.E., et al. Assessment of diabetes-related distress. Diabet. Care 18 (1995) 754-760
25. Herschbach P., Duran G., Waadt S., Zettler A., Amm C., and Marten-Mittag B. Psychomentric properties of the questionnaire on stress in patients with diabetes: revised (QSD-R). Health Psychol. 16 (1997) 171-174
26. Mannucci E., Ricca V., Bardini G., and Rotella C.M. Well-being enquiry for diabetics: a new measure of diabetes-related quality of life. Diabet. Nutr. Metab. 9 (1996) 89-102
27. Gilden J.L., Hendryx M.S., Clar S., Casia C., and Singh S.P. Diabetes support groups improve health care of older diabetic patients. J. Am. Geriatr. Soc. 40 (1992) 147-150
28. Henderson M.J., and Tindall H. Evaluation of consumer satisfaction and quality of life in patients changing to Novopen II. Pract. Diabet. 7 (1990) 206-208
29. Wierenga M.E. Life-style modification for weight control to improve diabetes health status. Patient Educ. Couns. 23 (1994) 33-40
30. Michigan Diabetes Research and Training Centre (MDRTC), Diabetes History (DMH), Available from http://www.med.umich.edu/mdrtc/textonly/educmast/survey_intro.htm. Accessed on February 2006.
31. Talbot F., Nouwen A., Gingras J., Gosselin M., and Audet J. The assessment of diabetes-related cognitive and social factors: the multidimensional diabetes questionnaire. J. Behav. Med. 20 (1997) 291-312
32. Grootenhuis P.A., Snoek F.J., Heine R.J., and Bouter L.M. Development of a type 2 diabetes symptom checklist: a measure of symptom severity. Diabet. Med. 11 (1994) 253-261
33. McColl E., Steen I.N., Meadows K.A., Hutchinson A., Eccles M.P., Hewison J., et al. Developing outcome measures for ambulatory care: an application to asthma and diabetes. Soc. Sci. Med. 41 (1995) 1339-1348
34. Anderson R.M., Funnell M.M., Fitzgerald J.T., and Marrero D.G. The diabetes empowerment scale: a measure of psychosocial self-efficacy. Diabet. Care 23 (2000) 739-743
35. Van Der Ven N.C., Weinger K., Yi J., Pouwer F., Ader H., Van Der Ploeg H.M., et al. The confidence in diabetes self-care scale: psychometric properties of a new measure of diabetes-specific self-efficacy in Dutch and US patients with type 1 diabetes. Diabet. Care 26 (2003) 713-718
36. Anderson R.T., Skovlund S.E., Marrero D., Levine D.W., Meadows K., Brod M., et al. Development and validation of the insulin treatment satisfaction questionnaire. Clin. Therapeut. 26 (2004) 565-578
37. Taylor E.P., Crawford J.R., and Gold A.E. Design and development of a scale measuring fear of complications in type 1 diabetes. Diabet. Metab. Res. Rev. 21 (2005) 264-270
38. Mollema E.D., Snoek F.J., Pouwer F., Heine R.J., and Van Der Ploeg H.M. Diabetes fear of injecting and self-testing questionnaire: a psychometric evaluation. Diabet. Care 23 (2000) 765-769
39. Cox D.J., Irvine A., Gonder-Frederick L., Nowacek G., and Butterfield J. Fear of hypoglycemia: quantification, validation, and utilization. Diabet. Care 10 (1987) 617-621
40. Anderson R.M., Fitzgerald J.T., Funnell M.M., and Gruppen L.D. The third version of the diabetes attitude scale. Diabet. Care 21 (1998) 1403-1407
41. Bradley C., and Lewis K.S. Measures of psychological well-being and treatment satisfaction developed from the responses of people with tablet-treated Type 2 diabetes. Diabet. Med. 7 (1990) 445-451
42. Costa F.A., Guerreiro J.P., and Duggan C. An audit of diabetes dependent quality of life (ADDQoL) for Portugal: exploring validity and reliability. Pharm. Pract. 4 (2006) 123-128
43. Fitzgerald J.T., Gruppen L.D., Anderson R.M., Funnell M.M., Jacober S.J., Grunberger G., et al. The influence of treatment modality and ethnicity on attitudes in Type 2 diabetes. Diabet. Care 23 (2000) 313-318
44. Cunningham V., Mohler M.J., Wendel C.S., Hoffman R.M., Murata G.H., Shah J.H., et al. Reliability and validity of the DCP among hispanic veterans. Eval. Health Prof. 28 (2005) 447-463
45. Meadows K.A., Abrams C., and Sandbaek A. Adaptation of the diabetes health profile (DHP-1) for use with patients with Type 2 diabetes mellitus: psychometric evaluation and cross-cultural comparison. Diabet. Med. 17 (2000) 572-580
46. Li T.C., Lin C.C., Liu C.S., Li C.I., and Lee Y.D. Validation of the Chinese version of the diabetes impact measurement scales amongst people suffering from diabetes. Qual. Life Res. 15 (2006) 1613-1619
47. Jacobson A.M., De Groot M., and Samson J.A. The evaluation of two measures of quality-of-life in patients with Type-I and Type-II diabetes. Diabet. Care 17 (1994) 267-274
48. Cheng A.Y., Tsui E.Y., Hanley A.J.G., and Zinman B. Developing a quality of life measure for Chinese patients with diabetes. Diabet. Res. Clin. Pract. 46 (1999) 259-267
49. Bott U., Ebrahim S., Hirschberger S., and Scovlund S.E. Effect of rapid-acting insulin analogue insulin aspart on quality of life and treatment satisfaction in patients with type 1 diabetes. Diabet. Med. 20 (2003) 626-634
50. Snoek F.J., Pouwer F., Welch G.W., and Polonsky W.H. Diabetes-related emotional distress in Dutch and U.S. diabetic patients: cross-cultural validity of the problem areas in diabetes scale. Diabet. Care 23 (2000) 1305-1309
51. Welch G.W., Jacobson A.M., and Polonsky W.H. The problem areas in diabetes scale: an evaluation of its clinical utility. Diabet. Care 20 (1997) 760-766
52. Trief P.M., Grant W., Elbert K., and Weinstock R.S. Family environment, glycemic control, and the psychosocial adaptation of adults with diabetes. Diabet. Care 21 (1998) 241-245
53. Trief P.M., Aquilino C., Paradies K., and Weinstock R.S. Impact of the work environment on glycemic control and adaptation to diabetes. Diabet. Care 22 (1999) 569-574
54. Bradley C., and Speight J. Patient perceptions of diabetes and diabetes therapy: assessing quality of life. Diabet. Metab. Res. Rev. 18 (2002) S64-S69
55. DAFNE Study Group. Training in flexible, intensive insulin management to enable dietary freedom in people with type 1 diabetes: dose adjustment for normal eating (DAFNE) randomised controlled trial. BMJ 325 (2002) 746-749
56. Wee H.L., Tan C.E., Goh S.Y., and Li S.C. Usefulness of the audit of diabetes-dependent quality-of-life (ADDQoL) questionnaire in patients with diabetes in a multi-ethnic Asian country. Pharmacoeconomics 24 (2006) 673-682
57. Dunn S.M., Smartt H., Beeney L., and Turtle J. Measurement of emotional adjustment in diabetic patients: validity and reliability of ATT39. Diabet. Care 9 (1986) 480-489
58. Kotsanos J.G., Vignati L., Huster W., Andrejasich C., Boggs M.B., Jacobson A.M., et al. Health-related quality-of-life results from multinational clinical trials of insulin lispro. Diabet. Care 20 (1997) 948-958
59. Jacobson A.M. Quality of life in patients with diabetes mellitus. Semin. Clin. Neuropsychol. 2 (1997) 82-93
60. Araki A., Izumo Y., Inoue J., Takahashi R., Takanashi K., Teshima T., et al. Development of elderly diabetes impact scales (EDIS) in elderly patients with diabetes mellitus. Nippon Ronen Igakkai Zasshi (Jpn. J. Geriatr.) 32 (1995) 786-796
61. Duran G., Herschbach P., Waadt S., Strain F., and Zettler A. Assessing daily problems with diabetes: a subject-oriented approach to compliance. Psychol. Rep. 76 (1995) 515-521
62. Welch G.W., Weinger K., Anderson B., and Polonsky W.H. Responsiveness of the problem areas in diabetes (PAID) questionnaire. Diabet. Med. 20 (2003) 69-72
63. Cook D.A., and Beckman T.J. Current concepts in validity and reliability for psychometric instruments: theory and application. Am. J. Med. 119 (2006) 166.e7-166.e16
64. Streiner D.L., and Norman G.R. Health Measurement Scales: A Practical Guide to their Development and Use. 2nd ed. (1995), Oxford University Press, New York, NY
65. Wild S., Roglic G., Green A., Sicree R., and King H. Global prevalence of diabetes: estimates for the year 2000 and projections for 2030. Diabet. Care 27 (2004) 1047-1053