Quality of life and diabetes

Diabetes/Metabolism Research and Reviews

Volumn 15, Issue 3, 1999, Pages 205-218

  Rubin, Richard R ^a,b   Peyrot, Mark ^a,c  

^a JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b Loyola College of Maryland ^*  (United States)

^c LOYOLA UNIVERSITY MARYLAND   (United States)

Author keywords

Chronic disease; Diabetes; Quality of life; Well being

Indexed keywords

BLOOD GLUCOSE MONITORING; CHRONIC DISEASE; DEMOGRAPHY; DIABETES MELLITUS; HEALTH STATUS; HUMAN; MEASUREMENT; MENTAL CAPACITY; PATIENT EDUCATION; PHYSICAL CAPACITY; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW; SOCIAL INTERACTION; SOCIAL PSYCHOLOGY;

ADULT; DIABETES MELLITUS; HUMANS; QUALITY OF LIFE;

EID: 0032773676     PISSN: 15207552     EISSN: None     Source Type: Journal    
DOI: 10.1002/(SICI)1520-7560(199905/06)15:3<205::AID-DMRR29>3.0.CO;2-O     Document Type: Review

References (115)

1. Constitution of the World Health Organization. In Handbook of Basic Documents, World Health Organization, 5th edn. Geneva: Palais des Nations, 1952; 3-20.
2. Fisher EB Jr, Arfken CL, Heins J, Houston C, Jeffe D, Sykes R. Acceptance of diabetes in adults. In Handbook of Health Behavior Research, Gochman DS (ed). New York: Plenum Publishing Corp, 1996.
3. Glasgow RE, Osteen VL. Evaluating diabetes education: are we measuring the most important outcomes? Diabetes Care 1992; 15: 1423-1432.
4. Rosenthal MJ, Fajardo M, Gilmore S, Morley JE, Nabiloff BD. Hospitalization and mortality of diabetes in older adults: a three-year prospective study. Diabetes Care 1998; 21: 231-235.
5. Testa MA, Simonson DC. Assessment of quality of life outcomes. N Engl J Med 1996; 334: 835-840.
6. Thier SO. Forces motivating the use of health status assessment measures in clinical settings and related clinical research. Med Care 1992; 30 (Suppl): MS15-MS22.
7. Campbell A, Converse PE, Rodgers WL. The Quality of American Life. New York: Russell Sage, 1976.
8. Andrews FM, Withey SB. Developing measures of perceived life quality: results from several national surveys. Social Indicators Research 1974; 1: 1-26.
9. Mastekaasa A. Multiplicative and additive models of job and life satisfaction. Social Indicators Research 1984; 14: 141-163.
10. Rose M, Burkert U, Scholler G, Schirop T, Danzer G, Klapp BF. Determinants of quality of life of patients with diabetes under intensified insulin therapy. Diabetes Care 1998; 21: 1876-1883.
11. Testa MA, Simonson DC. Health economic benefits and quality of life during improved glycemic control in patients with type 2 diabetes mellitus: a randomized, controlled, double blind trial. JAMA 1998; 280: 1490-1496.
12. Jacobson AM. Quality of life in patients with diabetes mellitus. Semin Clin Neuropsychiatry 1997; 2: 82-93.
13. Stewart AL, Greenfield S, Hays RD, et al. Functional status and well-being of patients with chronic conditions: results from the Medical Outcomes Study. JAMA 1989; 262: 907-913.
14. Ware JH, Sherbourne CD. The MOS 36-Item Short Form Health Survey (SF-36). I: Conceptual framework and item selection. Med Care 1992; 30: 473-483.
15. Bush JM, Kaplan RM. Health-related quality of life measurement. Health Psychology 1982; 1: 61-80.
16. Bergner M, Bobbitt RA, Carter WB, Gilson BS. The Sickness Impact Profile: development and final revision of a health status measure. Med Care 1981; 19: 787-805.
17. Hunt SM, McKenna SP, McEwen J, Williams J, Papp E. The Nottingham Health Profile: subjective health status and medical consultations. Soc Sci Med 1981; 15: 221-229.
18. Bradley C, Lewis KS. Measures of psychological well-being and treatment satisfaction developed from the responses of people with tablet-treated diabetes. Diabet Med 1990; 7: 445-451.
19. McNair DM, Lorr M, Droppelman LF. Manual of the Profile of Mood States. San Diego: Educational and Industrial Testing Service, 1971.
20. Derogatis LP, Rickels K, Rock A. The SCL-90 and MMPI: a step in validation of a new self-report scale. Br J Psychiatry 1976; 128: 280-289.
21. Folstein MF, Folstein SE, McHugh PR. Mini-mental state: a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975; 12: 189-198.
22. Kellner R. A symptom questionnaire. J Clin Psychiatry 1987; 48: 268-274.
23. McDowell I, Praught E. On the measurement of happiness: an examination of the Bradburn scale in the Canadian Health Survey. Am J Epidemiol 1982; 116: 949-958.
24. Beck AT, Beamesderfer A. Assessment of depression: the depression inventory. Mod Prob Pharmacopsychiatry 1974; 7: 151-169.
25. Zung WWK. A self-rating depression scale. Arch Gen Psychiatry 1965; 12: 63-70.
26. Zung WWK, Richards CB, Short MF. Self-rating depression in an outpatient clinic: further validation of the SDS. Arch Gen Psychiatry 1965; 13: 508-515.
27. Radloff LS. The CES-D scale: a self-report scale for research in the general population. Appl Psychol Meas 1977; 1: 385-401.
28. Steer R, Beck A. Beck Anxiety Inventory. In Evaluating Stress: a Book of Resources, Zalaquette CP, Wood RJ (eds). Lanham, Maryland: Scarecrow Press, 1997; 23-40.
29. Zung WWK. Assessment of anxiety disorders: qualitative and quantitative approaches. In Phenomenology and the Treatment of Anxiety, Fann WE (ed). New York: SP Medical and Scientific, 1978; 1-17.
30. Zigmond AS, Smith RP. The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scand 1983; 67: 361-370.
31. The Diabetes Control and Complications Trial Research Group. Influence of intensive diabetes treatment on quality-of-life outcomes in the Diabetes Control and Complications Trial. Diabetes Care 1996; 19: 195-203.
32. Boyer JG, Earp JL. The development of an instrument for assessing the quality of life of people with diabetes. Med Care 1997; 35: 440-453.
33. Polonsky WH, Anderson BJ, Lohrer PA, et al. Assessment of diabetes-related distress. Diabetes Care 1995; 18: 754-760.
34. Lewis KS, Bradley C, Knight G, Boulton AJM, Ward D. A measure of treatment satisfaction designed specifically for people with insulin-dependent diabetes. Diabet Med 1988; 5: 235-242.
35. Aalto AM, Uutela A, Aro AR. Health related quality of life among insulin-dependent diabetics: disease-related and psychosocial correlates. Patient Educ Couns 1997; 30: 215-225.
36. Glasgow RE, Ruggiero L, Eakin EG, Dryfoos J, Chobanian L. Quality of life and associated characteristics in a large national sample of adults with diabetes. Diabetes Care 1997; 20: 562-567.
37. Klein BE, Klein R, Moss SE. Self-rated health and diabetes of long duration. The Wisconsin Epidemiologic Study of Diabetic Retinopathy. Diabetes Care 1998; 21: 236-240.
38. Peyrot M, Rubin RR. Levels and risks of depression and anxiety symptomatology among diabetic adults. Diabetes Care 1997; 20: 585-590.
39. Wredling R, Stalhammar J, Adamson U, Berne C, Larsson Y, Oestman J. Well-being and treatment satisfaction in adults with diabetes: a Swedish population-based study. Qual Life Res 1995; 4: 515-522.
40. Parkerson GR, Connis RT, Broadhead WE, Patrick DL, Taylor TR, Chiu-Kit JT. Disease-specific versus generic measurement of health-related quality of life in insulin-dependent diabetic patients. Med Care 1993; 31: 629-639.
41. Eiser C, Flynn M, Green E, et al. Quality of life in young adults with type 1 diabetes in relation to demographic and disease variables. Diabet Med 1992; 9: 375-378.
42. Peyrot M, Rubin RR. A new quality of life instrument for patients and families. Paper presented at the Psychosocial Aspects of Diabetes Study Group Third Scientific Meeting. Madrid April 4-6, 1998.
43. Jacobson AM, de Groot M, Samson JA. The evaluation of two measures of quality of life in patients with type I and type II diabetes. Diabetes Care 1994; 17: 267-274.
44. Trief PM, Grant W, Elbert K, Weinstock RS. Family environment, glycemic control, and the psychosocial adaptation of adults with diabetes. Diabetes Care 1998; 21: 241-245.
45. Keinanen-Kiukaanniemi S, Ohinmaa A, Pajunpaa H, Koivukangas P. Health related quality of life in diabetic patients measured by the Nottingham Health Profile. Diabet Med 1996; 13: 382-388.
46. Anderson RM, Fitzgerald JT, Wisdom K, Davis WK, Hiss RG. A comparison of global versus disease-specific quality-of-life measures in patients with NIDDM. Diabetes Care 1997; 20: 299-305.
47. Ahroni JH, Boyko EJ, Davignon DR, Pecaro RE. The health and functional status veterans with diabetes. Diabetes Care 1994; 17: 318-321.
48. Rodin G. Quality of life in adults with insulin-dependent diabetes mellitus. Psychotherapy Psychosomatics 1990; 54: 132-139.
49. Farup CE, Leidy NK, Murray M, Williams GR, Helbers L, Quigley EMM. Effect of domperidone on the health-related quality of life of patients with symptoms of diabetic gastroparesis. Diabetes Care 1998; 21: 1699-1706.
50. Wuslin LR, Jacobson AM, Rand LI. Psychosocial aspects of diabetic retinopathy. Diabetes Care 1987; 10: 367-373.
51. Wuslin LR, Jacobson AM. Visual and psychological function in PDR (Abstract). Diabetes 1989; 38 (Suppl 1): 242A.
52. Whitehead ED, Klyde BJ, Zussman S, Wayne N, Shinbach K, Davis D. Male sexual dysfunction and diabetes mellitus. N Y State J Med 1983; 83: 1174-1179.
53. Lustman PJ, Clouse RE. Relationship of psychiatric illness to impotence in men with diabetes. Diabetes Care 1990; 13: 893-895.
54. Cavan DA, Barnett AH, Leatherdale BA. Diabetic impotence: risk factors in a clinic population. Diabetes Res 1987; 5: 145-148.
55. Leedom LJ, Procci WP, Don D, Meehan WP. Sexual dysfunction and depression in diabetic women (Abstract). Diabetes 1986; 35 (Suppl 1): 23A.
56. Schiavi PC, Hogan B. Sexual problems in diabetes mellitus: psychological aspects. Diabetes Care 1979; 2: 9-17.
57. Mayou R, Bryant B, Turner R. Quality of life in non-insulin-dependent diabetes and a comparison with insulin-dependent diabetes. J Psychosom Res 1990; 34: 1-11.
58. Stewart AL, Hays RD, Wells KB, Rogers WH, Spritzer KL, Greenfield S. Long-term functioning and well-being outcomes associated with physical activity and exercise in patients with chronic conditions in the Medical Outcomes Study. J Clin Epidemiol 1994; 47: 719-730.
59. Peterson T, Lee P, Young B, Newton P, Dornan T. Well-being and treatment satisfaction in older people with diabetes. Diabetes Care 1998; 21: 930-935.
60. Van der Does FE, de Neeling JN, Snoek FJ, et al. Randomized study of two different levels of glycemic control within the acceptable range in type 2 diabetes. Diabetes Care 1998; 21: 2085-2093.
61. Gilden JL, Casia C, Hendryx M, Singh SP. Effects of self-monitoring of blood glucose on quality of life in elderly diabetic patients. J Am Geriatr Soc 1990; 38: 511-515.
62. Vickrey BG, Hays RD, Rausch R, Sutherling WW, Engel JJr, Brook RH. Quality of life of epilepsy surgery patients as compared with outpatients with hypertension, diabetes, heart disease, and/or depressive symptoms. Epilepsia 1994; 35: 597-607.
63. Weinberger M, Kirkman MS, Samsa GP, et al. The relationship between glycemic control and health-related quality of life in patients with non-insulin-dependent diabetes mellitus. Med Care 1994; 32: 1173-1181.
64. Hanestad BR, Graue M. To maintain quality of life and satisfactory metabolic control in Type II diabetes patients. Qual Life Res 1995; 4: 436-437.
65. Bagne CA, Luscombe FA, Damiano A. Relationships between glycemic control, diabetes-related symptoms and SF-36 scales scores in patients with non-insulin dependent diabetes mellitus. Qual Life Res 1995; 4: 392-393.
66. Wikblad K, Leksell J, Wibell L. Health-related quality of life in relation to metabolic control and late complication in patients with insulin dependent diabetes mellitus. Qual Life Res 1996; 5: 123-130.
67. Saudek CD, Duckworth WC, Giobbie-Hurder A. Implantable insulin pump vs multiple dose insulin for non-insulin dependent diabetes mellitus. JAMA 1996; 276: 1322-1327.
68. Hanestad BR, Albrektsen G. Quality of life, perceived difficulties in adherence to diabetes regimen, and blood glucose control. Diabet Med 1991; 8: 759-764.
69. Naess S, Midthjell K, Moum T, Sorensen T, Tambs K. Diabetes mellitus and psychological well-being. Results of the Nord-Trondelag health survey. Scand J Soc Med 1995; 23: 179-188.
70. Van der Does FE, de Neeling JN, Snoek FJ, et al. Symptoms and well-being in relation to glycemic control in type II diabetes. Diabetes Care 1996; 19: 204-210.
71. Mazze RS, Lucido D, Shamoon H. Psychological and social correlates of glycemic control. Diabetes Care 1984; 7: 360-366.
72. Verbrugge LM. Sex differences in health. Public Health Rep 1982; 97: 417-437.
73. Hibbard JH, Pope CR. Gender roles illness orientation and use of medical services. Soc Sci Med 1983; 17: 129-137.
74. Kandrack M, Grant KR, Segall A. Gender differences in health-related behaviour: some unanswered questions. Soc Sci Med 1991; 32: 579-590.
75. Green KE. Common illness and self-care. J Community Health 1990; 15: 329-338.
76. Verbrugge LM. Gender and health: an update on hypotheses and evidence. J Health Soc Behav 1985; 26: 156-183.
77. Sharpe PA, Clarke NM, Janz NK. Differences in the impact and management of heart disease between older men and women. Women Health 1991; 17: 25-43.
78. Rubin RR, Peyrot M. Men and diabetes: psychosocial and behavioral issues. Diabetes Spectrum 1998; 11: 81-87.
79. Ward J, Lin M, Heron G, Lajoie V. Comprehensive audit of quality-of-care and quality-of-life for patients with diabetes. J Qual Clin Pract 1997; 17: 91-100.
80. Connell CM, Davis WK, Gallant MP, Sharpe PA. Impact of social support, social cognitive variables, and perceived threat on depression among adults with diabetes. Health Psychol 1994; 13: 263-273.
81. Davis WK, Hess GE, van Harrison R, Hiss RG. Psychosocial adjustment to and control of diabetes mellitus: differences by disease type and treatment. Health Psychol 1987; 6: 1-14.
82. Rankin S, Galbraith ME, Huang P. Quality of life and social environment as reported by Chinese immigrants with non-insulin-dependent diabetes mellitus. The Diabetes Educator 1997; 23: 171-177.
83. Murrell SA, Himmelfarb S, Wright K. Prevalence of depression and its correlates in older adults. Am J Epidemiol 1983; 117: 173-185.
84. Hanestad BR. Self-reported quality of life and the effect of different clinical and demographic characteristics in people with type 1 diabetes. Diabetes Res Clin Pract 1993; 19: 139-149.
85. Peyrot M, Rubin RR. Structure and correlates of diabetes-specific locus of control. Diabetes Care 1994; 17: 994-1001.
86. Mengel MB, Connis RT, Gordon MJ, Herman SJ, Taylor TR. The relationship of family dynamics/social support to patient functioning in IDDM patients on intensive insulin therapy. Diabetes Res Clin Pract 1990; 9: 149-162.
87. Donnelly MB, Davis WK, Hess GE, Hiss RG. The influence of diabetes severity and social support on overall quality of life. Interdisciplinaria 1995; 12: 99-122.
88. Stewart AL, Hays RD, Ware JE. The MOS short-form health survey: reliability and validity in a patient population. Med Care 1988; 26: 724-735.
89. Ware JE, Snow KK, Kosinski M, Gandek B. SF-36 Health Survey Manual and Interpretation Guide. Boston: The Health Institute, New England Medical Center, 1993.
90. Ware JE, Kosinski M, Keller S. SF-36 Physical and Mental Health Summary Scales: a User's Guide. Boston: The Health Institute, New England Medical Center, 1994.
91. Wandell PE, Brorsson B, Aberg H. Quality of life in diabetic patients registered with primary health care services in Sweden. Scand J Prim Health Care 1997; 15: 97-102.
92. Aalto AM, Uutela A, Kangas T. Health behaviour, social integration, perceived health and dysfunction. A comparison between patients with type I and II diabetes and controls. Scand J Soc Med 1996; 24: 272-281.
93. Tebbi CK, Bromberg C, Sills I, Cukierman J, Piedmonte M. Vocational adjustment and general well-being of young adults with IDDM. Diabetes Care 1990; 13: 98-103.
94. Bourdel-Marchasson I, Dubroca B, Manciet G, Dechamps A, Emeriau JP, Dartigues JF. Prevalence of diabetes and effect on quality of life in older French living in the community: the PAQUID Epidemiological Survey. J Am Geriatr Soc 1997; 45: 295-301.
95. Gafvels G, Borjesson B, Lithner F. The social consequences of insulin-treated diabetes mellitus in patients 20-50 years of age. An epidemiological case-control study. Scand J Soc Med 1991; 19: 86-93.
96. Milani RV, Lavie CJ. Behavioral differences and effects of cardiac rehabilitation in diabetic patients following cardiac events. Am J Med 1996; 100: 517-523.
97. Fratezi AC, Albers M, de Luccia ND, Pereira CA. Outcome and quality of life in patients with severe chronic limb ischaemia: a cohort study on the influence of diabetes. Eur J Vasc Endovasc Surg 1995; 10: 459-465.
98. Gavard JA, Lustman PJ, Clouse RE. Prevalence of depression in adults with diabetes: an epidemiological evaluation. Diabetes Care 1993; 16: 1167-1178.
99. Lustman PJ, Griffin LS, Clouse RE. Depression in adults with diabetes. Semin Clin Neuropsychiatry 1997; 2: 15-23.
100. Viinamaki H, Niskanen L, Uusitupa M. Mental well-being in people with non-insulin dependent diabetes. Acta Psychiatr Scand 1995; 92: 392-397.
101. Testa MA, Simonson DC. Measuring quality of life in hypertensive patients with diabetes. Postgrad Med J 1988; 64 (Suppl 3): 50-58.
102. Hermann BP, Vickrey B, Hays RD, et al. A comparison of health-related quality of life in patients with epilepsy, diabetes and multiple sclerosis. Epilepsy Res 1996; 25: 113-118.
103. Backonja M, Beydoun A, Edwards KR, et al., for the Gabapentin Diabetic Neuropathy Study Group. Gabapentin for the symptomatic treatment of painful neuropathy in patients with diabetes mellitus. JAMA 1998; 280: 1831-1836.
104. Hornquist JO, Wikby A, Stenstrom U, Andersson PO. Change in quality of life among type 1 diabetes. Diabetes Res Clin Pract 1995; 28: 63-72.
105. Graff MR, McClanahan MA. Assessment of patients with diabetes mellitus of two insulin pen delivery systems versus a vial and syringe. Clin Ther 1998; 20: 486-496.
106. Langewitz W, Wossmer B, Iseli J, Berger W. Psychological and metabolic improvement after an outpatient teaching program for functional intensified insulin therapy (FIT). Diabetes Res Clin Pract 1997; 37: 157-164.
107. Chantelau E, Schiffers T, Schuetze J, Hanson B. Effect of patient-selected intensive insulin therapy on quality of life. Patient Educ Couns 1997; 30: 167-173.
108. Rubin RR, Peyrot M, Saudek CS. The effect of a diabetes education program incorporating coping skills training on emotional well-being and diabetes self-efficacy. The Diabetes Educator 1993; 19: 210-214.
109. Anderson RM, Funnell MM, Butler PM, Arnold MS, Fitzgerald JT, Feste CC. Patient empowerment: results of a randomized controlled trial. Diabetes Care 1995; 18: 943-949.
110. Rabin C, Amir S, Nardi R, Ovadia B. Compliance and control: issues in group training for diabetics. Health Soc Work 1986; 11: 141-151.
111. Cain C, Childs C. Development of a peer support group for the patient using a subcutaneous insulin infusion pump (Abstract). Diabetes 1982; 31 (Suppl 1): 18A.
112. Warren-Boulton E, Anderson BJ, Schwartz NL, Drexler AJ. A group approach to the management of diabetes in adolescents and young adults. Diabetes Care 1981; 4: 620-623.
113. Dupuis A. Assessment of the psychological factors and responses in self-managed patients. Diabetes Care 1980; 3: 117-120.
114. Testa MA, Anderson RB, Nackley JF, Hollenberg NK. Quality of life and antihypertensive therapy in men. N Engl J Med 1993; 328: 907-913.
115. Vileikyte L, Bundy C, Tomenson B, Walsh T, Boulton AJM. Neuropathy-specific quality of life measure: construction of scales and preliminary tests of reliability and validity (Abstract). Diabetes 1998; 47 (Suppl 1): A44.